Re: lung transplant

[Guest guest]

Everybody is totally different. Lungs and bronchiectasis can be very

unpredictable. I feel fine at the moment, that can change within

minutes, hours.

The outcome of lungdisease depends on the person's habits, lifestyle,

general health. Did they smoke? If they didn't, were they exposed to

smoke, or pollution. Was the person active beforehand, did they

participate in sports. Nutrition, what about the other organs?

If you're that worried about your mom - why not ask the hospital staff

to set up a family meeting. This would involve the medical staff,

doctors, family members who are involved in your mom's care.

This way you get some concrete answers. Also try to only have one

family member to be the spokesperson. Doctors don't have the time ro

repeat answering questions to every family member.

Bronchoscopys/lavage are important to determine what bacterium is in

the lungs, so it can be treated with the right type of antibiotic.

I wish you all the best for your mom,

Karin

>

>

> I have been reading the posts about a lung transplant. The one thing

that

> jumps out at me is it appears that the lung transplant is the end

stage of

> this disease? If so, what happens when someone isnt able to be put

on a list

> due to age and condition? It sounds like for some, they are having

just as

> hard of a time as my mom with the bleeding. My mom has been in the

hospital

> since last friday 3/30/07 after having a broc scope done. The have

had her

> on a total of 5 anitbatics. The dr said she had 3 different bactreria's

> growing in her lungs and then they said she has pnemnia and then

they said

> she only had 2 bacteria's growing. From what I'm reading, it sounds

like

> skipping the broc scope and going on antibatics is the best way to

go. I

> know they did this on my mom to see where her bleeding was coming from.

> That's when they found the large pocket in her right lung. I have to

say, at

> this point, it doesnt look good for my mom. I get the fact that

positive

> thinking has to be maintained, but at the same time, my sister and I

have to

> take care of business etc. I just want to to know straight out

without all

> the smoke and mirrors if this is the end/final stage so I know what

we need

> to do for our mom. Again, thanks to everyone who is taking time to

answer my

> ?'s.

>

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[Guest guest]

Dear CaSak in NY--I am so sorry about all of this with your Mom

especially as you have young children to take care of right now as

well. I'm not sure any of us here on email can answer your question w/

certainty about your Mom's prognosis going forward. I think you and

your sister need to press the Dr that is treating her for more

feedback.Is your Dad still alive and with your Mom?? Right now I'd say

you should concentrate on getting her treated for the infection(s) she

has right now that typically cause this type of bleeding--I think you

said she bleeds from the lungs? While it's a frightening sympton it

isn't necessarily the worst part of the disease. You might be surprised

how much better she will feel once the anitbiotics kick in and then You

should try to get her CAT scans to another pulmonary Dr. in the area

for a second opinion if you can. I have no idea how they determine who

is eligible for a lung transplant but 62 or 63 doesn't sound that old

to me!! Does she have any other health conditions that may be weakening

her?? Sorry lots of questions/advice but no real answers. XX

[Guest guest]

Hi

I don't know much about about the lung transplant program in reference to if

there are different guidelings in each state or not. The dr told us (in the

state of kansas) that the cut off is around 55 yrs old. My mom also has an

irregalur heart beat and is on blood thinners which doesn t help the

blooding. She also has low blood sugar and other misc health concerns. I

welcome the advice I'm getting since I'm trying to figure this all out, so

thank you.

<html><DIV> & nbsp;</DIV></html>

>

>Reply-To: bronchiectasis

>To: bronchiectasis

>Subject: Re: lung transplant

>Date: Mon, 09 Apr 2007 21:08:02 -0000

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>Dear CaSak in NY--I am so sorry about all of this with your Mom

>especially as you have young children to take care of right now as

>well. I'm not sure any of us here on email can answer your question w/

>certainty about your Mom's prognosis going forward. I think you and

>your sister need to press the Dr that is treating her for more

>feedback.Is your Dad still alive and with your Mom?? Right now I'd say

>you should concentrate on getting her treated for the infection(s) she

>has right now that typically cause this type of bleeding--I think you

>said she bleeds from the lungs? While it's a frightening sympton it

>isn't necessarily the worst part of the disease. You might be surprised

>how much better she will feel once the anitbiotics kick in and then You

>should try to get her CAT scans to another pulmonary Dr. in the area

>for a second opinion if you can. I have no idea how they determine who

>is eligible for a lung transplant but 62 or 63 doesn't sound that old

>to me!! Does she have any other health conditions that may be weakening

>her?? Sorry lots of questions/advice but no real answers. XX

>

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[Guest guest]

, I wish you all the best!!! Mari Cook wrote: Hi everyone! I'm in St. Louis, MO now getting my evaluation for a lung transplant. Did testing all day today. Will test tomorrow a.m. and then see the doctor in the afternoon to hear what he has to say. Take care! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

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[Guest guest]

I wish you all the best, too, . And Mari, I hope the ER docs take good care of you and that you're back home soon.

-------------- Original message --------------

, I wish you all the best!!!

Mari Cook <dianaleacook> wrote:

Hi everyone! I'm in St. Louis, MO now getting my evaluation for a lung transplant. Did testing all day today. Will test tomorrow a.m. and then see the doctor in the afternoon to hear what he has to say.

Take care!

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[Guest guest]

I just have to share my experience re organ donations. When my husband died 25 yrs ago I donated his eyes. They gave two different people his eyes. They wouldn't divulge who the recipients were, but they said there were two very grateful people out there because of this. There's always something that can be used.

.. I just want to give you a big ole bear hug ..thank you for sharing your story with us about your husband and the donation of his eyes..a gift of sight for others.

Sandie

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