Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Chili Rellenos Casserole Servings: 4 Prep time: 45 minutes 3 Cans (4 oz) whole green chilis (drained) 4 oz. reduced fat MontereyJack cheese 1 1/4 C egg substitute 1/2 C flour 1/2 C skim milk 1/2 C reduced fat cheddar cheese (shredded) 1 tsp chili powder 2 green onions, sliced 1/2 C salsa 1. Preheat oven to 350. 2. Lighty coat 11 " x 7 " backing dish with cooking spray. 3. Lay whole green chilis out on paper towels. Slice Monterey Jack cheese into the same number of pieces as there are chilis. Insert slice of cheese into each chili and arrange evenly in baking dish. 4. In a medium mixing bowl, whisk together egg substitute, flour and milk. Pour egg mixture over chilis in baking dish. 5. Layer shredded cheddar cheese on top of casserole, then sprinkle with chili powder and green onion. 6. Bake for 35 minutes or until top is golden brown and toothpick inserted in center comes out " clean " . (If the toothpick does not come out clean, that means the casserole is not yet cooked through. Give it a few more minutes and test again.) 7. Cut into four portions and top with salsa. Serve and enjoy! Subject: Hello To: bodyforlife Date: Friday, July 25, 2008, 5:52 PM I am spending a few weeks home in the states, but left the EFL cookbook behind. Does anyone feel like posting or sending me the Chili Releno recipe from the DFL book? I would be greatful. Thanks, -- -- Kurnik http://expat- wanderlust. blogspot. com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2008 Report Share Posted July 26, 2008 Mucho Gracias! -- > > Chili Rellenos Casserole > Servings: 4 > Prep time: 45 minutes > > 3 Cans (4 oz) whole green chilis (drained) > 4 oz. reduced fat MontereyJack cheese > 1 1/4 C egg substitute > 1/2 C flour > 1/2 C skim milk > 1/2 C reduced fat cheddar cheese (shredded) > 1 tsp chili powder > 2 green onions, sliced > 1/2 C salsa > > 1. Preheat oven to 350. > 2. Lighty coat 11 " x 7 " backing dish with cooking spray. > 3. Lay whole green chilis out on paper towels. Slice Monterey Jack cheese > into the same number of pieces as there are chilis. Insert slice of cheese > into each chili and arrange evenly in baking dish. > 4. In a medium mixing bowl, whisk together egg substitute, flour and milk. > Pour egg mixture over chilis in baking dish. > 5. Layer shredded cheddar cheese on top of casserole, then sprinkle with > chili powder and green onion. > 6. Bake for 35 minutes or until top is golden brown and toothpick inserted > in center comes out " clean " . (If the toothpick does not come out clean, that > means the casserole is not yet cooked through. Give it a few more minutes > and test again.) > 7. Cut into four portions and top with salsa. Serve and enjoy! > > > > > > From: Kurnik <dkurnik@... <dkurnik%40gmail.com>> > Subject: Hello > To: bodyforlife <bodyforlife%40yahoogroups.com> > Date: Friday, July 25, 2008, 5:52 PM > > I am spending a few weeks home in the states, but left the EFL cookbook > behind. Does anyone feel like posting or sending me the Chili Releno recipe > from the DFL book? I would be greatful. > > Thanks, > > -- > > -- > Kurnik > http://expat- wanderlust. blogspot. com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Congrats frito. Keep up the good work. Sent via BlackBerry from T-Mobile Hello Hi folks, I just joined the group a few weeks ago and I have been reading the posts when I can. I started the BFL program 35 days ago and have seen some very good results. I have gone from a 44 (closer to 46) inch waist down to a 42/44 waist. I'm making gradual but staedy increases in the gym every week and really enjoy working out for the first time ever! My energy levels are triple what they used to be (couch potato to being able to keep up with my 2 year old energy). And finally My blood pressure is coming down. I'm not perfect and have cheated a few times and I don't always make my Saturday Cardio session but I am happy with what's happening. My biggest discovery is that I don't enjoy junk food anymore!!!!! It makes me feel like poo and I lose my energy very quickly with the stuff. I hope to go the first 12 weeks and then start a second round after that. Maybe by next summer I can wear clothes that I like and won't have to order fatboy clothes. Keep up the good work and the great posts, D.C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 , Welcome to the group! I wouldn't worry about modifying the program to fit your needs. Yours is the perfect example of adaptation to deal with adversity which is talked about a lot in both BFL books. It's admirable that you are going through with the program despite your injury. Good work! On an unrelated note, I have to ask if your screen name is a reference to the band Snapcase. They are one of my favorites, so I was just curious. Thanks, > > I am a 48 year old male getting into working off after a LONG layoff. I > was just told I have a torn meniscus that requires surgery. The doctor > indicated it would be best for the knee if I lost some weight. I have > read Body-for-Life before as well as trying out the workouts. > > I started yesterday and have a few modifications. Since the only thing > I can do for cardio is the bike or arc trainer I am going at a steady > pace for 30 minutes. I really can't push the knee without pain. I am > also going to do 4 sessions of cardio instead of 3. I cannot do any > legs as of yet so I was thinking of doing the upper body 3 times a week. > > I know there are Body-for-Life purists out there that will say follow > the book. However, my ability to walk and move is a part of my > livelyhood so I will listen to my doctor as far as my knee. > > Thank you for letting me be a part of our group. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Hello, , Your doing exactly the right thing. Its easy to wallow in self pity over and injury and use that as a substantial excuse to not do anything. You will here " progress not perfection " over and over again here and it applies to your situation as well. Think of the book as the perfect ideal of a workout, and the challenge is to get as close to it as possible using your Dr advice and your own common sense. If you that means no squats, so bet it. BTW, I bet the woman in the wheelchair in the book did not do a LB workout either. Good luck. -- Kurnik http://expat-wanderlust.blogspot.com/ > I am a 48 year old male getting into working off after a LONG layoff. I > was just told I have a torn meniscus that requires surgery. The doctor > indicated it would be best for the knee if I lost some weight. I have > read Body-for-Life before as well as trying out the workouts. > > I started yesterday and have a few modifications. Since the only thing > I can do for cardio is the bike or arc trainer I am going at a steady > pace for 30 minutes. I really can't push the knee without pain. I am > also going to do 4 sessions of cardio instead of 3. I cannot do any > legs as of yet so I was thinking of doing the upper body 3 times a week. > > I know there are Body-for-Life purists out there that will say follow > the book. However, my ability to walk and move is a part of my > livelyhood so I will listen to my doctor as far as my knee. > > Thank you for letting me be a part of our group. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 , I think the standard protocol AFTER your meniscus surgery will be to encourage you to improve the muscle tissue around the knee. And that is primarily your quads. I'm only a year older, but, I've had my miniscus removed many moons ago. I was VERY overweight and did not have closure on my knee pain until about 3 months into my BFL efforts. I remained " very " overweight before and after my surgery. After the surgery, I continued to feel a painful grinding in my knee joint for months and months. It was not until I dropped my first, maybe 50 pounds that the grinding stopped. Also, I decided just to perform the BFL exercises and work through the pain. I quickly found a new kind of pain in the muscles, but... When I started, I was NOT able to perform 12 squats without any weight, what so ever. It was not just my knee, but my quads that were just not up to the challenge. After a couple of years performing BFL, I was up to over 405# on my back while squatting and half squatted 600#. An amazing improvement. The stronger I had my quads, the less pain I had in my knees. Of course, the drop in weight also helped. Helped to the point that I was able to run against my 21 year old son, only 2 years ago. He would beat me on the 50 or 100 yard runs, but, if we took it to longer distances, I actually had more stamina to keep going. So... BFL ROCKS! By the way, my preferred HIIT cardio is via the exercycle. I do NOT like any impact or stress on the knees if I can avoid it. You can work the intensity on the cycle by mixing and matching either speeds or intensity. If it was cold and raining and my knee had some pain otherwise, it would be the speed route. Otherwise, I liked to push harder, rather than faster. I know it got my heart rate higher when I added resistance and not just speed. Anyhow... It will be great to see another cycle buff on the group. Remember... Progress, NOT perfection! about could still The first too was and I have , you will be directed to improve instructed to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 , Oh... And glucosamine and chondrointen will be your friend, too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 , If you do get the surgery, make sure you follow the post op therapy to the letter, no matter how painful. I detached my biceps 10 years ago, and after surgery managed a 95% recovery. I attribute the recovery to following the therapy which started with being unable to even lift my arm. I won't see that last 5% because they tied the thing off into my forearm muscles rather than screw it back into the insertion like they should have. It was a character building experience. -- .. Kurnik http://expat-wanderlust.blogspot.com/ > , > > I think the standard protocol AFTER your meniscus surgery will be to > encourage you to improve the muscle tissue around the knee. And that is > primarily your quads. > > I'm only a year older, but, I've had my miniscus removed many moons ago. I > was VERY overweight and did not have closure on my knee pain until about 3 > months into my BFL efforts. > > I remained " very " overweight before and after my surgery. After the > surgery, I continued to feel a painful grinding in my knee joint for months > and months. It was not until I dropped my first, maybe 50 pounds that the > grinding stopped. Also, I decided just to perform the BFL exercises and work > through the pain. > > I quickly found a new kind of pain in the muscles, but... When I started, I > was NOT able to perform 12 squats without any weight, what so ever. It was > not just my knee, but my quads that were just not up to the challenge. After > a couple of years performing BFL, I was up to over 405# on my back while > squatting and half squatted 600#. An amazing improvement. > > The stronger I had my quads, the less pain I had in my knees. Of course, > the drop in weight also helped. Helped to the point that I was able to run > against my 21 year old son, only 2 years ago. He would beat me on the 50 or > 100 yard runs, but, if we took it to longer distances, I actually had more > stamina to keep going. So... BFL ROCKS! > > By the way, my preferred HIIT cardio is via the exercycle. I do NOT like > any impact or stress on the knees if I can avoid it. You can work the > intensity on the cycle by mixing and matching either speeds or intensity. If > it was cold and raining and my knee had some pain otherwise, it would be the > speed route. Otherwise, I liked to push harder, rather than faster. I know > it got my heart rate higher when I added resistance and not just speed. > > Anyhow... It will be great to see another cycle buff on the group. > > Remember... > Progress, NOT perfection! > > > > about could still The first too was and I have , you will be directed to > improve instructed to > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Welcome to the group. Follow the nutrition and do any upper body exercises. Those 2 items should help you lose the fat. Your plan for cardio sounds fine to me. Andy > > I am a 48 year old male getting into working off after a LONG layoff. I > was just told I have a torn meniscus that requires surgery. The doctor > indicated it would be best for the knee if I lost some weight. I have > read Body-for-Life before as well as trying out the workouts. > > I started yesterday and have a few modifications. Since the only thing > I can do for cardio is the bike or arc trainer I am going at a steady > pace for 30 minutes. I really can't push the knee without pain. I am > also going to do 4 sessions of cardio instead of 3. I cannot do any > legs as of yet so I was thinking of doing the upper body 3 times a week. > > I know there are Body-for-Life purists out there that will say follow > the book. However, my ability to walk and move is a part of my > livelyhood so I will listen to my doctor as far as my knee. > > Thank you for letting me be a part of our group. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2009 Report Share Posted May 24, 2009 Have you tried the eliptical machine? ________________________________ To: bodyforlife Sent: Sunday, May 24, 2009 7:39:21 PM Subject: Hello Going into week 2 of 12. Nutrition first week was not the greatest. I am looking to start fresh tommorow. Still trying to find out what the best machine is best for my knees. Have problems with meniscus in both knees. Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 I have tried the eliptical but I feel uncoordinated on it. I did a little treadmill and it wasn't bad. Think I will alternate different pieces of equipment. In my second week and started with LBWO today. I am using lighter than normal weights to start so I can work my range of motion. I am also going to start walking at night to help keep me active. My plan is to do the HIIT and Lifting workouts at 5:30am. And to walk 20 to 30 minutes after my last meal. The walking is what I want to do and not by the BFL book. > > Have you tried the eliptical machine? > > > > > ________________________________ > > To: bodyforlife > Sent: Sunday, May 24, 2009 7:39:21 PM > Subject: Hello > > > > > > Going into week 2 of 12. Nutrition first week was not the greatest. I am looking to start fresh tommorow. Still trying to find out what the best machine is best for my knees. Have problems with meniscus in both knees. > > Jon > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 eliptical machines are great but a my better machine is made by cybex.Its called an arc trainer. It burn twice as many calories as any elipticals. I know some YMCA's have cybex arc trainers. You can burn 500 calories in 25 to 30 minutes. Subject: Re: Hello To: bodyforlife Date: Monday, May 25, 2009, 12:48 AM Have you tried the eliptical machine? ____________ _________ _________ __ From: awakesleeping59 <awakesleeping59@ yahoo.com> To: bodyforlife@ yahoogroups. com Sent: Sunday, May 24, 2009 7:39:21 PM Subject: Hello Going into week 2 of 12. Nutrition first week was not the greatest. I am looking to start fresh tommorow. Still trying to find out what the best machine is best for my knees. Have problems with meniscus in both knees. Jon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2011 Report Share Posted November 7, 2011 If your pain medication isn't working for you, you need to see your doctor, and perhaps have him change your meds up. If it's you feeling a little anxious, that can happen after the birth of a child! It's a life-altering event. Check with your Doctor! Regards Cat ________________________________ To: " Stillsdisease " <Stillsdisease > Sent: Monday, November 7, 2011 6:32:32 AM Subject: Hello Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Hello , Welcome to the group! You will find this group very caring and informative and they will help you immensely. I joined to support my autistic daughter who is 28 and contracted Stills Disease in 2010. Although I don't post much, I am constantly reading the daily posts looking for information that will help me. My daughter cannot communicate so I need to find other avenues of finding out what the pain is like and what everyone is doing for it . I always find a post that helps me with what is going on here! So welcome once again and know that you can always come here and find a friend .... Maree, 's mum In Australia Maree Pilakis sent this from her iPhone !!! > Hi everyone I'm new to this group and just wanted to take a minute to > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Hello , Welcome to the group! You will find this group very caring and informative and they will help you immensely. I joined to support my autistic daughter who is 28 and contracted Stills Disease in 2010. Although I don't post much, I am constantly reading the daily posts looking for information that will help me. My daughter cannot communicate so I need to find other avenues of finding out what the pain is like and what everyone is doing for it . I always find a post that helps me with what is going on here! So welcome once again and know that you can always come here and find a friend .... Maree, 's mum In Australia Maree Pilakis sent this from her iPhone !!! > Hi everyone I'm new to this group and just wanted to take a minute to > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Hello , Welcome to the group! You will find this group very caring and informative and they will help you immensely. I joined to support my autistic daughter who is 28 and contracted Stills Disease in 2010. Although I don't post much, I am constantly reading the daily posts looking for information that will help me. My daughter cannot communicate so I need to find other avenues of finding out what the pain is like and what everyone is doing for it . I always find a post that helps me with what is going on here! So welcome once again and know that you can always come here and find a friend .... Maree, 's mum In Australia Maree Pilakis sent this from her iPhone !!! > Hi everyone I'm new to this group and just wanted to take a minute to > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Welcome , Ironic that I too joined a fitness club right before I came down with Still s. I hadn't had the chance to use it and when I explained I was too ill they wouldn't even refund or let me transfer it to anyone else. I was so sad. Don't feel alone about the acceptance. Most have a hard time with the life changes and if you need help please share or consider talking to your doctor for help with it. It is certainly not unusual. There is much information on the foundation's web site if you wish to learn more about the disease. If you haven't already visited the address is www stillsdisease.org Please ask if you have questions and share anything you wish good and venting. Good evening to you, -------Original Message------- From: Hi everyone I'm new to this group and just wanted to take a minute to introduce myself. My name is I'm from Ohio, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Welcome , Ironic that I too joined a fitness club right before I came down with Still s. I hadn't had the chance to use it and when I explained I was too ill they wouldn't even refund or let me transfer it to anyone else. I was so sad. Don't feel alone about the acceptance. Most have a hard time with the life changes and if you need help please share or consider talking to your doctor for help with it. It is certainly not unusual. There is much information on the foundation's web site if you wish to learn more about the disease. If you haven't already visited the address is www stillsdisease.org Please ask if you have questions and share anything you wish good and venting. Good evening to you, -------Original Message------- From: Hi everyone I'm new to this group and just wanted to take a minute to introduce myself. My name is I'm from Ohio, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Welcome , Ironic that I too joined a fitness club right before I came down with Still s. I hadn't had the chance to use it and when I explained I was too ill they wouldn't even refund or let me transfer it to anyone else. I was so sad. Don't feel alone about the acceptance. Most have a hard time with the life changes and if you need help please share or consider talking to your doctor for help with it. It is certainly not unusual. There is much information on the foundation's web site if you wish to learn more about the disease. If you haven't already visited the address is www stillsdisease.org Please ask if you have questions and share anything you wish good and venting. Good evening to you, -------Original Message------- From: Hi everyone I'm new to this group and just wanted to take a minute to introduce myself. My name is I'm from Ohio, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 , I don't know what part of Ohio you are from, but if Pittsburgh is within reach of you there is a Dr in Pittsburgh who has extensive experience with Stills Disease. I was going to go to him (Pittsburgh is 300+ miles from me) but he sent me to one of his ex students who is right @ 100 miles away from me. I don't recall his name but know I found him on the internet. If that doesn't work, I can contact my RD and find out who this guy is. Having an aggressive, experienced Dr. is one of the few things I have going for me, but it took me a couple of " not so good " ones before I found Dr. Kantor (My RD). Funny how you started working out when you got whacked...I was a powerlifter whose lifetime goal was to bench press over 400lbs. I successfully pressed 405 2x in November of 2003 after 4 years of heavy lifting (though I lifted most of my life, starting when I was 12) and I became violently ill in January of '04. Sorry you had to find us this way but you found a pretty damn good group of people to help you out in loads of ways. I am no longer able to work, but I am one of the rare birds who never has had a remission. I also had to have a morphine pump implant as my back hurt so bad I could not stand or walk for close to 2 years. If you feel you may be down for a long time, think about filing for SSDI. It is a royal pain in the A$$, but if you unfortunate enough to not catch a remission or get worse you're going to need to do something........add to that even if you are approved they will not give you a dime until you are down for at least 2 years from the time you became ill, so filing early has its advantages. I would definitely consult my DR/RD on this, but it sounds as if you may need to. Best of luck, Kirk. > ** > > > Hi everyone I'm new to this group and just wanted to take a minute to > introduce myself. My name is I'm from Ohio, have 2 boys 16, and 13, > and an 18 year old daughter. I began getting sick the beginning of January > ironically I started the new year by getting a membership to a rec center > where the kids and I could go work out play raquet ball, and just find a > way to stay active through the winter, and start taking better care of > myself. I started getting sick pretty much the very next day, and I still > haven't managed to get back to normal yet. For me I started breaking out in > hives at work one day I went to the hospital they said it was a food > allergy and sent me home with benadryl. I would wake up in the mornings > fine then in the afternoons I would break out again, I followed up with a > doctor in my primary care practice, who said give it more time, when that > didn't help I seen another doctor who gave me a steroid shot and see an > allergist. I seen the allergist who prescribed a ton of meds, the next day > my hives turned into a different kind of rash, I called the allergist who > told me to double up on the already high doses of allergy meds, when that > didn't work I went back to the allergist who then said I had strep throat > and scarlet fever (at thus point I had began nightly fevers of 102.4) > During these weeks everytime I seen a doctor I mentioned joint pain that > seemed to get be getting worse and started at the time the rash started. > After a couple days I went to see my pcp who ran a bunch of blood work, but > I ended up getting so bad unable to drive, brush my hair, or even hold a > fork to feed myself so she put me in the hospital and after a week they > sent me home with no diagnosis. I foolowed up with a rhuematologist who > diagnosised me in Feb with Stills. I have been on 60mg prednisone for over > a month, and now methotrexate as well. He is trying to wean me off the > prednisone but my joints start flaring up so it's not going well. I still > haven't been able to get back to work, I have trouble walking sometimes > even standing. I'm 34 years old and summer is coming which is when I love > to go hiking, and camping with the kids, I'm having a hard time with > acceptance. Ok I'll stop rambling for the night, but want to let you know > I'm really glad to be a part of this group, so far I've found it very > informative, as I'm finding the rest of the world is very uninformed. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 , I don't know what part of Ohio you are from, but if Pittsburgh is within reach of you there is a Dr in Pittsburgh who has extensive experience with Stills Disease. I was going to go to him (Pittsburgh is 300+ miles from me) but he sent me to one of his ex students who is right @ 100 miles away from me. I don't recall his name but know I found him on the internet. If that doesn't work, I can contact my RD and find out who this guy is. Having an aggressive, experienced Dr. is one of the few things I have going for me, but it took me a couple of " not so good " ones before I found Dr. Kantor (My RD). Funny how you started working out when you got whacked...I was a powerlifter whose lifetime goal was to bench press over 400lbs. I successfully pressed 405 2x in November of 2003 after 4 years of heavy lifting (though I lifted most of my life, starting when I was 12) and I became violently ill in January of '04. Sorry you had to find us this way but you found a pretty damn good group of people to help you out in loads of ways. I am no longer able to work, but I am one of the rare birds who never has had a remission. I also had to have a morphine pump implant as my back hurt so bad I could not stand or walk for close to 2 years. If you feel you may be down for a long time, think about filing for SSDI. It is a royal pain in the A$$, but if you unfortunate enough to not catch a remission or get worse you're going to need to do something........add to that even if you are approved they will not give you a dime until you are down for at least 2 years from the time you became ill, so filing early has its advantages. I would definitely consult my DR/RD on this, but it sounds as if you may need to. Best of luck, Kirk. > ** > > > Hi everyone I'm new to this group and just wanted to take a minute to > introduce myself. My name is I'm from Ohio, have 2 boys 16, and 13, > and an 18 year old daughter. I began getting sick the beginning of January > ironically I started the new year by getting a membership to a rec center > where the kids and I could go work out play raquet ball, and just find a > way to stay active through the winter, and start taking better care of > myself. I started getting sick pretty much the very next day, and I still > haven't managed to get back to normal yet. For me I started breaking out in > hives at work one day I went to the hospital they said it was a food > allergy and sent me home with benadryl. I would wake up in the mornings > fine then in the afternoons I would break out again, I followed up with a > doctor in my primary care practice, who said give it more time, when that > didn't help I seen another doctor who gave me a steroid shot and see an > allergist. I seen the allergist who prescribed a ton of meds, the next day > my hives turned into a different kind of rash, I called the allergist who > told me to double up on the already high doses of allergy meds, when that > didn't work I went back to the allergist who then said I had strep throat > and scarlet fever (at thus point I had began nightly fevers of 102.4) > During these weeks everytime I seen a doctor I mentioned joint pain that > seemed to get be getting worse and started at the time the rash started. > After a couple days I went to see my pcp who ran a bunch of blood work, but > I ended up getting so bad unable to drive, brush my hair, or even hold a > fork to feed myself so she put me in the hospital and after a week they > sent me home with no diagnosis. I foolowed up with a rhuematologist who > diagnosised me in Feb with Stills. I have been on 60mg prednisone for over > a month, and now methotrexate as well. He is trying to wean me off the > prednisone but my joints start flaring up so it's not going well. I still > haven't been able to get back to work, I have trouble walking sometimes > even standing. I'm 34 years old and summer is coming which is when I love > to go hiking, and camping with the kids, I'm having a hard time with > acceptance. Ok I'll stop rambling for the night, but want to let you know > I'm really glad to be a part of this group, so far I've found it very > informative, as I'm finding the rest of the world is very uninformed. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 , I don't know what part of Ohio you are from, but if Pittsburgh is within reach of you there is a Dr in Pittsburgh who has extensive experience with Stills Disease. I was going to go to him (Pittsburgh is 300+ miles from me) but he sent me to one of his ex students who is right @ 100 miles away from me. I don't recall his name but know I found him on the internet. If that doesn't work, I can contact my RD and find out who this guy is. Having an aggressive, experienced Dr. is one of the few things I have going for me, but it took me a couple of " not so good " ones before I found Dr. Kantor (My RD). Funny how you started working out when you got whacked...I was a powerlifter whose lifetime goal was to bench press over 400lbs. I successfully pressed 405 2x in November of 2003 after 4 years of heavy lifting (though I lifted most of my life, starting when I was 12) and I became violently ill in January of '04. Sorry you had to find us this way but you found a pretty damn good group of people to help you out in loads of ways. I am no longer able to work, but I am one of the rare birds who never has had a remission. I also had to have a morphine pump implant as my back hurt so bad I could not stand or walk for close to 2 years. If you feel you may be down for a long time, think about filing for SSDI. It is a royal pain in the A$$, but if you unfortunate enough to not catch a remission or get worse you're going to need to do something........add to that even if you are approved they will not give you a dime until you are down for at least 2 years from the time you became ill, so filing early has its advantages. I would definitely consult my DR/RD on this, but it sounds as if you may need to. Best of luck, Kirk. > ** > > > Hi everyone I'm new to this group and just wanted to take a minute to > introduce myself. My name is I'm from Ohio, have 2 boys 16, and 13, > and an 18 year old daughter. I began getting sick the beginning of January > ironically I started the new year by getting a membership to a rec center > where the kids and I could go work out play raquet ball, and just find a > way to stay active through the winter, and start taking better care of > myself. I started getting sick pretty much the very next day, and I still > haven't managed to get back to normal yet. For me I started breaking out in > hives at work one day I went to the hospital they said it was a food > allergy and sent me home with benadryl. I would wake up in the mornings > fine then in the afternoons I would break out again, I followed up with a > doctor in my primary care practice, who said give it more time, when that > didn't help I seen another doctor who gave me a steroid shot and see an > allergist. I seen the allergist who prescribed a ton of meds, the next day > my hives turned into a different kind of rash, I called the allergist who > told me to double up on the already high doses of allergy meds, when that > didn't work I went back to the allergist who then said I had strep throat > and scarlet fever (at thus point I had began nightly fevers of 102.4) > During these weeks everytime I seen a doctor I mentioned joint pain that > seemed to get be getting worse and started at the time the rash started. > After a couple days I went to see my pcp who ran a bunch of blood work, but > I ended up getting so bad unable to drive, brush my hair, or even hold a > fork to feed myself so she put me in the hospital and after a week they > sent me home with no diagnosis. I foolowed up with a rhuematologist who > diagnosised me in Feb with Stills. I have been on 60mg prednisone for over > a month, and now methotrexate as well. He is trying to wean me off the > prednisone but my joints start flaring up so it's not going well. I still > haven't been able to get back to work, I have trouble walking sometimes > even standing. I'm 34 years old and summer is coming which is when I love > to go hiking, and camping with the kids, I'm having a hard time with > acceptance. Ok I'll stop rambling for the night, but want to let you know > I'm really glad to be a part of this group, so far I've found it very > informative, as I'm finding the rest of the world is very uninformed. > > > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Hi ! glad you found the group! When I first got diagnosed in 2007 it was after 9 1/2 years of searching for answers. I'm so happy you found a doctor that was knowledgeable enough to put the pieces of the puzzle together so quickly for you! Everyone here can relate to what you are saying about not getting to do what you love to do outdoors. It is a different life than the one we used to have for sure. But try to stay positive, some members find the right combination of medications that work well for them and they get their lives back. I would say I myself am not at my worst, but I cannot work so that is not my own personal best. BUT I am now able to look at my life, see what really matters to me, what plans and activities mean the most to me, and weed out the ones that mean less so that I can attempt to participate in the ones that mean a lot to me. I used to exorcize for over an hour about 4-5 x /week before I got sick. It meant a lot to me. I really enjoyed it. I am not longer able to do that, bt when I feel up to it, I really enjoy a walk with my dog and when the weather is nice I enjoy going in our pool. I have been trying to do some push-ups every day. I had to start with EIGHT!!! OMG, it sounds silly! And I added ONE push up each day (unless I felt worse, then I either don't do them, or I drop it back) but I'm up to 18! So let me just put it out there, I'm 47. I am pretty sure my daughter can't do 18 pushups at once!!! And I don't tell my husband because he'd think I was hurting my body. But to me, it's taking back just at TINY SLICE of who I once was!!! When I was working out religiously part of my work out was to do twenty pushups! And I will get back to that soon! SO TAKE THAT YOU DRAGON!!! there, I rambled back, now you feel at home right??? LOL hugs, Jo In a message dated 3/8/2012 10:32:38 P.M. Eastern Standard Time, achrisman32@... writes: I started getting sick pretty much the very next day, and I still haven't managed to get back to normal yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Hi ! glad you found the group! When I first got diagnosed in 2007 it was after 9 1/2 years of searching for answers. I'm so happy you found a doctor that was knowledgeable enough to put the pieces of the puzzle together so quickly for you! Everyone here can relate to what you are saying about not getting to do what you love to do outdoors. It is a different life than the one we used to have for sure. But try to stay positive, some members find the right combination of medications that work well for them and they get their lives back. I would say I myself am not at my worst, but I cannot work so that is not my own personal best. BUT I am now able to look at my life, see what really matters to me, what plans and activities mean the most to me, and weed out the ones that mean less so that I can attempt to participate in the ones that mean a lot to me. I used to exorcize for over an hour about 4-5 x /week before I got sick. It meant a lot to me. I really enjoyed it. I am not longer able to do that, bt when I feel up to it, I really enjoy a walk with my dog and when the weather is nice I enjoy going in our pool. I have been trying to do some push-ups every day. I had to start with EIGHT!!! OMG, it sounds silly! And I added ONE push up each day (unless I felt worse, then I either don't do them, or I drop it back) but I'm up to 18! So let me just put it out there, I'm 47. I am pretty sure my daughter can't do 18 pushups at once!!! And I don't tell my husband because he'd think I was hurting my body. But to me, it's taking back just at TINY SLICE of who I once was!!! When I was working out religiously part of my work out was to do twenty pushups! And I will get back to that soon! SO TAKE THAT YOU DRAGON!!! there, I rambled back, now you feel at home right??? LOL hugs, Jo In a message dated 3/8/2012 10:32:38 P.M. Eastern Standard Time, achrisman32@... writes: I started getting sick pretty much the very next day, and I still haven't managed to get back to normal yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 Jo, I think i've probably had signs of this for years now, that were missed or misdiagnosed. Probably partially my fault for not wanting to take time off work to go to the doctor everytime i didnt feel well. But I had some instances over the years never as severe as now and not always the same symptoms all at once that were treated as other things or some cases no answers at all but the symptoms would go away so i didnt worry about it. I guess it's time to pay attention now I'm really glad i found this group, not knowing anyone else with this disease is really hard. Friends and family dont really understand what it does to a persons body... i try to explain, and they try to understand, but it's nice to hear from people that do. The inforamation i've been getting from reading all the emails has helped tremendously as well.  Have a great day!!  To: Stillsdisease Sent: Friday, March 9, 2012 8:16 PM Subject: Re: hello  Hi ! glad you found the group! When I first got diagnosed in 2007 it was after 9 1/2 years of searching for answers. I'm so happy you found a doctor that was knowledgeable enough to put the pieces of the puzzle together so quickly for you! Everyone here can relate to what you are saying about not getting to do what you love to do outdoors. It is a different life than the one we used to have for sure. But try to stay positive, some members find the right combination of medications that work well for them and they get their lives back. I would say I myself am not at my worst, but I cannot work so that is not my own personal best. BUT I am now able to look at my life, see what really matters to me, what plans and activities mean the most to me, and weed out the ones that mean less so that I can attempt to participate in the ones that mean a lot to me. I used to exorcize for over an hour about 4-5 x /week before I got sick. It meant a lot to me. I really enjoyed it. I am not longer able to do that, bt when I feel up to it, I really enjoy a walk with my dog and when the weather is nice I enjoy going in our pool. I have been trying to do some push-ups every day. I had to start with EIGHT!!! OMG, it sounds silly! And I added ONE push up each day (unless I felt worse, then I either don't do them, or I drop it back) but I'm up to 18! So let me just put it out there, I'm 47. I am pretty sure my daughter can't do 18 pushups at once!!! And I don't tell my husband because he'd think I was hurting my body. But to me, it's taking back just at TINY SLICE of who I once was!!! When I was working out religiously part of my work out was to do twenty pushups! And I will get back to that soon! SO TAKE THAT YOU DRAGON!!! there, I rambled back, now you feel at home right??? LOL hugs, Jo In a message dated 3/8/2012 10:32:38 P.M. Eastern Standard Time, achrisman32@... writes: I started getting sick pretty much the very next day, and I still haven't managed to get back to normal yet. Quote Link to comment Share on other sites More sharing options...
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