Introduction

[Guest guest]

Hi Dave, I will be very interested to see if you can cut back on your provigil. I started provigil

probably 18 months ago (at least) and I am now up to 1-1/2 tablets a day, and it helps, but I

know (at least at this point) I could not cut back to 1/2 pill. A few times when I have forgotten -

usually on the weekends - I will take 1/2 pill later in the day because I don't want to chance

taking a full pill that late in the day, I am still fatigued. I also have fibromyalgia, so the fatigue

from both diseases is unbelievable.

Good luck and keep us posted.

Beth Provis

McDermott, Will & Emery

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[Guest guest]

Hello Leisa,

Welcome It can be tough when your the only one in the house committed to a

healthy lifestyle. Don't let that set you off course and your success may

well put them on course.

I know all about the heat, I live in Arizona. Drink water and work out very

early or at dusk. Inside in air conditioning is best to start.

The book great start guidance on exercises and you can see from the photos

what equipment is required. If possible, join a gym first to get some

exposure to a variety of equipment. You can even get a personal trainer,

but that can be costly. All you really need to start is a set of dumbbells

and some kind of bench that you can sit and lay on while you exercise. Get

2.5lb, 5lb, 7lb, & 10lb dumbbells.

What weight you start at is less important than following the program which

includes a process of progressively increasing weight in accordance the

effort it takes for you to perform an exercise. Read the chapter on the

" high point technique " . Start at a weight that feels easy and progress the

weight until your hitting those 10's.

Good Luck!

--

Kurnik

http://expat-wanderlust.blogspot.com/

On Sun, Aug 16, 2009 at 5:34 PM, Ms. Welch wrote:

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising..not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Hi, and thanks so much for the advice and support. My son was able to help me

out last night (better late than never)get his weight bench puy back together. I

did MOST of the exercises saw there. Whew it took a pitifully small amount of

weight to poop me out.  I had some 2# weights to start with. I doubled them up

for some of the exercises. It was a start.

 Most of my weight is around my core. I look like a California Raisin. I'm going

to need some MASSIVE amount of /back work. What works best for this? 

 

~*~Wade & Leisa~*~

 

 

________________________________

To: bodyforlife

Sent: Monday, August 17, 2009 1:38:37 AM

Subject: Re: Introduction

 

Hello Leisa,

Welcome It can be tough when your the only one in the house committed to a

healthy lifestyle. Don't let that set you off course and your success may

well put them on course.

I know all about the heat, I live in Arizona. Drink water and work out very

early or at dusk. Inside in air conditioning is best to start.

The book great start guidance on exercises and you can see from the photos

what equipment is required. If possible, join a gym first to get some

exposure to a variety of equipment. You can even get a personal trainer,

but that can be costly. All you really need to start is a set of dumbbells

and some kind of bench that you can sit and lay on while you exercise. Get

2.5lb, 5lb, 7lb, & 10lb dumbbells.

What weight you start at is less important than following the program which

includes a process of progressively increasing weight in accordance the

effort it takes for you to perform an exercise. Read the chapter on the

" high point technique " . Start at a weight that feels easy and progress the

weight until your hitting those 10's.

Good Luck!

--

Kurnik

http://expat- wanderlust. blogspot. com/

On Sun, Aug 16, 2009 at 5:34 PM, Ms. Welch <chloeisabella2004@ yahoo.com>wrote:

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

There is no such thing as spot reducing - once you start losing the weight it

will come off evenly across your body.  The parts you have with the most weight

will be the last place to go.  Trust me - I have lost 110 pounds on BFL and

still fight the back fat as that is my area - I have battled the same last 20

pounds for about 8 years.  It is a constant battle for me.  I do BFL for a while

and then I mix it up.  I always come back to BFL as it is in my exercise

rotation.  I just get bored after 6 months and I need something new - but it is

a lifestyle and one that you have to stay committed to.

 

Honestly for me - I will never go back to being 270 pounds again. I have changed

my life and I still do not like to exercise - but I do it 5 to 6 days a week

starting at 4:30a.  Stay committed push through - you will love the you that you

are creating.  Healthy and strong!

 

~B

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Leisa, the first few weeks you will be sore.  Don't overdo the weights and hurt

yourself or be so sore you can't move the next day.  After the first few weeks

it gets easier.  Try to get yourself in a routine working out at the same time

every day be it morning or evening and set apart that time no matter what.  If

you miss a meal or cheat, don't fret but get right back to it!  This is an

amazing process that will take you through many hills and valleys but everyone

will agree that it is worth it.  Mostly it works! 

 

Focus on the levels.  If just walking at a face pace for 20 minutes wears you

out so be it.  Keep track of it and always work on improving each time, even

it's 15 seconds of improvement.

 

Focus on form early on alot as well.  Take your time and do them right vs

wrong.  Their are a ton of videos on youtube to see how they are done.

 

Also, let us know what equipment you have and what your plan is and we'll give

suggestions.

 

remember, Eat to live not Live to eat!

 

Randy

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Hi Leisa,

Welcome to BFL and big congratulations to you for deciding to make a change!

You can do it! I really recommend the bodyforlife journal. It's kinda pricey

but perhaps you can find the individual sheets on the website. It really helps

you stay accountable and it even makes you list your excuses and then ways to

overcome them. I use the website (bodyforlife.com) for all the fitness

worksheets. They really help me see what weights I'm using and when to increase

the amount. I also use resistance bands to work out at home as I don't have the

space for gym equipment. Maybe that will work for you, too?

Best of luck to you and please keep us posted on your results or let us know if

you need some motivation! I'm on my third challenge and I only have one more

week to go! Trust me, it does work! I'm a new mom and I'm in better shape now

than before I became pregnant! LOL Sometimes, when I don't see big results yet

on the outside it helps to think of how healthy I'm becomming on the INSIDE.

I know what you mean about the eating. It is difficult at first to eat six

small meals but your body will adjust and it won't feel like all you're doing is

eating. After awhile, it become like second nature and you just do it

automatically.

I can't wait to read about your successes!

>

> Hi my name is Leisa. I just recently found out about BFL and am in the process

of reading the book. I was amazed by the before and after photos in the book and

many of the stories mirror my own life. This gives me an amazing amount of hope

that I don't have to remain where I am. I have about 50 pounds to loose but more

than that I want to feel strong and healthy again. I feel more like I am 60 than

40 most days. I really won't have a lot of support from my family at this point.

It will just be another scheme that I am up to until some time goes by. I

thought getting in touch with others following a similar path would help keep my

motivation up and help keep me accountable. I had my daughter take my before

shots today...OMG! I'm in shock. I knew I was out of shape and a bit chubby but

nothing could have been the eye opener those pictures were. I look like a

California Raisin. I'm not brave enough to show those off yet. But I may have

them blown up and put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

usually eat 3 meals a day so I feel like eating is all I am doing with 6. The

exercising..not so good yet. Partially because of the weather it's so hot I feel

like I weigh 1000 pounds. Partially because I am unsure what I should start

doing. What weight should I start with? What equipment do I need? Partially

because I deal with fatigue from fibro and a hypo thyroid. I know sounds like

(B**ching,Whiing and Moaning) At least I can call it what it is! EXCUSES. So

I'll sign off for now and go find something to do for 30 minutes that gets me

sweating ;0)

>

> I'm looking forward to meeting you all

>

[Guest guest]

B~ Thanks for the tips. I already have improved energy just with the switch im

my eating. It always goes on faster than it will come off.....ACK

 

~*~Wade & Leisa~

 

________________________________

To: bodyforlife

Sent: Monday, August 17, 2009 9:05:14 AM

Subject: Re: Introduction

 

There is no such thing as spot reducing - once you start losing the weight it

will come off evenly across your body.  The parts you have with the most weight

will be the last place to go.  Trust me - I have lost 110 pounds on BFL and

still fight the back fat as that is my area - I have battled the same last 20

pounds for about 8 years.  It is a constant battle for me.  I do BFL for a while

and then I mix it up.  I always come back to BFL as it is in my exercise

rotation.  I just get bored after 6 months and I need something new - but it is

a lifestyle and one that you have to stay committed to.

 

Honestly for me - I will never go back to being 270 pounds again. I have changed

my life and I still do not like to exercise - but I do it 5 to 6 days a week

starting at 4:30a.  Stay committed push through - you will love the you that you

are creating.  Healthy and strong!

 

~B

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Randy, Thanks for the tips. I have access to a weight bench a few free weights.

Some aerobic DVD's from FIRM which seem to incorporate light weights in with the

cardio. I also have an exercise step and some stretch bads. Eventually I'd also

like to do some running. I have some knee pain presently though and with my

added weight decided to wait at least before attempting that. Maybe I will bike

instead.

My plan was to do 3/3 today was a cardio day.the day prior upper body. Since I

did not really know what I was doing I just followed along in the book...and I

did it until I couldn't anymore. Yes my arms feel heavy today ;0) as does my

chest and shoulders. I have been walking the past few months around 5 miles a

day however I did not change my diet much so it had little positive effect

besides stress relief. I walked as hard as I could too on a route with decent

inclines.....I don't know.

I'm eating clean now so we will see what that does to help.

Leisa

 

________________________________

To: bodyforlife

Sent: Monday, August 17, 2009 11:04:32 AM

Subject: Re: Introduction

 

Leisa, the first few weeks you will be sore.  Don't overdo the weights and hurt

yourself or be so sore you can't move the next day.  After the first few weeks

it gets easier.  Try to get yourself in a routine working out at the same time

every day be it morning or evening and set apart that time no matter what.  If

you miss a meal or cheat, don't fret but get right back to it!  This is an

amazing process that will take you through many hills and valleys but everyone

will agree that it is worth it.  Mostly it works! 

 

Focus on the levels.  If just walking at a face pace for 20 minutes wears you

out so be it.  Keep track of it and always work on improving each time, even

it's 15 seconds of improvement.

 

Focus on form early on alot as well.  Take your time and do them right vs

wrong.  Their are a ton of videos on youtube to see how they are done.

 

Also, let us know what equipment you have and what your plan is and we'll give

suggestions.

 

remember, Eat to live not Live to eat!

 

Randy

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Thanks so much for the incouragement! I do have some stretch bands that I used a

bit yesterday. Fortunately I have an 18 year old around who had a weight bench

and some weights...it's a start ;0)

 

~*~Wade & Leisa~*~

 

 

________________________________

To: bodyforlife

Sent: Monday, August 17, 2009 11:27:50 AM

Subject: Re: Introduction

 

Hi Leisa,

Welcome to BFL and big congratulations to you for deciding to make a change! You

can do it! I really recommend the bodyforlife journal. It's kinda pricey but

perhaps you can find the individual sheets on the website. It really helps you

stay accountable and it even makes you list your excuses and then ways to

overcome them. I use the website (bodyforlife. com) for all the fitness

worksheets. They really help me see what weights I'm using and when to increase

the amount. I also use resistance bands to work out at home as I don't have the

space for gym equipment. Maybe that will work for you, too?

Best of luck to you and please keep us posted on your results or let us know if

you need some motivation! I'm on my third challenge and I only have one more

week to go! Trust me, it does work! I'm a new mom and I'm in better shape now

than before I became pregnant! LOL Sometimes, when I don't see big results yet

on the outside it helps to think of how healthy I'm becomming on the INSIDE.

I know what you mean about the eating. It is difficult at first to eat six small

meals but your body will adjust and it won't feel like all you're doing is

eating. After awhile, it become like second nature and you just do it

automatically.

I can't wait to read about your successes!

>

> Hi my name is Leisa. I just recently found out about BFL and am in the process

of reading the book. I was amazed by the before and after photos in the book and

many of the stories mirror my own life. This gives me an amazing amount of hope

that I don't have to remain where I am. I have about 50 pounds to loose but more

than that I want to feel strong and healthy again. I feel more like I am 60 than

40 most days. I really won't have a lot of support from my family at this point.

It will just be another scheme that I am up to until some time goes by. I

thought getting in touch with others following a similar path would help keep my

motivation up and help keep me accountable. I had my daughter take my before

shots today...OMG! I'm in shock. I knew I was out of shape and a bit chubby but

nothing could have been the eye opener those pictures were. I look like a

California Raisin. I'm not brave enough to show those off yet. But I may have

them blown up and

put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

usually eat 3 meals a day so I feel like eating is all I am doing with 6. The

exercising.. not so good yet. Partially because of the weather it's so hot I

feel like I weigh 1000 pounds. Partially because I am unsure what I should start

doing. What weight should I start with? What equipment do I need? Partially

because I deal with fatigue from fibro and a hypo thyroid. I know sounds like

(B**ching,Whiing and Moaning) At least I can call it what it is! EXCUSES. So

I'll sign off for now and go find something to do for 30 minutes that gets me

sweating ;0)

>

> I'm looking forward to meeting you all

>

__________________________________________________

[Guest guest]

Leisa,

You have picked the right program this time. Diets don't work (not a long term

solution), but lifestyle changes do work. BFL will help you change your

lifestyle - eating and workout habits.

It will be hard and you will take steps back, but in the long run, this

lifestyle will move you forward and you will see progress.

Find healthy foods that you like and activities you enjoy to stay motivated.

Andy

>

> Hi my name is Leisa. I just recently found out about BFL and am in the process

of reading the book. I was amazed by the before and after photos in the book and

many of the stories mirror my own life. This gives me an amazing amount of hope

that I don't have to remain where I am. I have about 50 pounds to loose but more

than that I want to feel strong and healthy again. I feel more like I am 60 than

40 most days. I really won't have a lot of support from my family at this point.

It will just be another scheme that I am up to until some time goes by. I

thought getting in touch with others following a similar path would help keep my

motivation up and help keep me accountable. I had my daughter take my before

shots today...OMG! I'm in shock. I knew I was out of shape and a bit chubby but

nothing could have been the eye opener those pictures were. I look like a

California Raisin. I'm not brave enough to show those off yet. But I may have

them blown up and put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

usually eat 3 meals a day so I feel like eating is all I am doing with 6. The

exercising..not so good yet. Partially because of the weather it's so hot I feel

like I weigh 1000 pounds. Partially because I am unsure what I should start

doing. What weight should I start with? What equipment do I need? Partially

because I deal with fatigue from fibro and a hypo thyroid. I know sounds like

(B**ching,Whiing and Moaning) At least I can call it what it is! EXCUSES. So

I'll sign off for now and go find something to do for 30 minutes that gets me

sweating ;0)

>

> I'm looking forward to meeting you all

>

[Guest guest]

When you say bike, do you have a stationary bike or a bicycle?  Any aerobic 

type exercise is good but the best results will come from HIIT which is High

Intensity Interval Training.  If you looka the book you will see the 20 minute

aerobic exercise layed out in levels.  The best thing about this is it's only 20

minutes.  The bad thing is it's a hard 20 minutes, or should be.  It's basically

set up in 4 levels kind of like sprints with rest in between each level.

 

A level is strictly your own level.  What you can do.  As you progress you will

be able to do more and more until you are amazed at yourself, lol.

 

Most do stationary bikes, treadmill or ellyptical but even if it walking outside

you can try to improve until you incorporate some jogging and eventually

running.

 

HIIT not only gets your heart rate up, it gets you to an an-aerobic level that

will really burn off fat and calories and keep your metablolism churning all

day.

>

>

> Hi my name is Leisa. I just recently found out about BFL and am in the

> process of reading the book. I was amazed by the before and after photos in

> the book and many of the stories mirror my own life. This gives me an

> amazing amount of hope that I don't have to remain where I am. I have about

> 50 pounds to loose but more than that I want to feel strong and healthy

> again. I feel more like I am 60 than 40 most days. I really won't have a lot

> of support from my family at this point. It will just be another scheme that

> I am up to until some time goes by. I thought getting in touch with others

> following a similar path would help keep my motivation up and help keep me

> accountable. I had my daughter take my before shots today...OMG! I'm in

> shock. I knew I was out of shape and a bit chubby but nothing could have

> been the eye opener those pictures were. I look like a California Raisin.

> I'm not brave enough to show those off yet. But I may have them blown up and

> put on the fridge and where I plan to exercise.

>

> I've started the eating plan..I'm om day 2 and that is going well. I don't

> usually eat 3 meals a day so I feel like eating is all I am doing with 6.

> The exercising.. not so good yet. Partially because of the weather it's so

> hot I feel like I weigh 1000 pounds. Partially because I am unsure what I

> should start doing. What weight should I start with? What equipment do I

> need? Partially because I deal with fatigue from fibro and a hypo thyroid. I

> know sounds like (B**ching,Whiing and Moaning) At least I can call it what

> it is! EXCUSES. So I'll sign off for now and go find something to do for 30

> minutes that gets me sweating ;0)

>

> I'm looking forward to meeting you all

>

>

>

[Guest guest]

Hi Bonnie, Welcome!  I’m glad you found us and it sounds like you came to the right place.   Your message wasn’t too long at all, in fact I’m sure most people here were relating to everything you said.  I hope you’ve had a chance to check out the different topics – there is a lot of information here including links to other sites.  For me, it’s my son (in his late 20s) who suffers and this site has really been helpful and supportive for me as a parent, and there are also some people here who have really gone above and beyond to spread the word about this so there’s more knowledge and understanding about it.  BTW, if you don’t get a response to any of your messages right away, just send it again.  Everyone DOES care and sometimes people just miss it or get caught up in a different thread for a while.  Hang in there while we look for solutions! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of bonniemarcus@...Sent: Saturday, April 14, 2012 12:29 PMTo: Sound SensitivitySubject: introduction I’m new here and want to introduce myself. Yesterday I was watching Live with ( Ripa) and she mentioned that she couldn’t tolerate the sound of people chewing so it was hard for her to eat with people. My ears perked up and I had to rewind the DVR box and listen to her talk about this again and again. She put a name to it which I had never heard before, misophonia. So off to the computer I went to Google it and to my amazement, I could finally see that I’m not nuts because certain noises annoy me so! I quickly sent the link to my daughter who also has this disorder. Lucky for me, I don’t work and often am alone but she works and has 2 small children so she is always with people. She posted it on Facebook and many people chimed in about their “quirks†with noises and movements. About me: I am a college graduate and did teach school for a few years before my children were born. I’m 59, have a wonderful husband, 2 daughters (35 and 32), I don’t work outside the home, and we live in Chattanooga, TN. We do have a little log cabin as a 2nd home in the Smoky Mountains of NC where I spend a lot of time. We have 3 dachshunds that are a huge part of our family life. I spend a total of about 5 months a year at the cabin with my dogs and my husband comes up a weekend or 2 a month. I love being by myself and I have often wondered if it’s because people get on my nerves! I have always been slim, healthy, a fitness buff, and never had depression or any other anxiety that I know of other than what we are talking about here. I do get out and am with friends often but staying home with my dogs is my preference. For me, I can remember being under 10 years old when mouth noises started annoying me. I was very close to my parents but those were the first people who grated on my nerves with their habits. They used to suck their teeth, use toothpicks which made the teeth sucking worse and more frequent, and my dad whistled and jingled change in his pocket and my mom hummed. I can remember being so unnerved by these sounds that I didn’t know what to do and tried to avoid being with them if I could. I was quiet and shy, never have been comfortable with confrontations so I wasn’t able to vocalize my feelings. It made me feel bad because they were really fun and sweet people. A few years before my mom passed away she was in the car with me and I finally blurted out, “Why do you make that noise with your teeth? It’s so annoying!†and she had no idea what I was talking about! My 35 yr. old daughter and I have talked for many years about things that annoy. Some are:Sounds:gum chewing/cracking/poppingopen mouth chewing & smackingchewing of icewhistlinghummingsinging (except by professional in that kind of setting or through the media)finger or fingernail tappingdrumming of hands on thingsfoot tappingjingling of pocket change or keys Motions:Leg swingingPeople who kick the back of your seatfinger fidgeting I’m sure I’ve left some things out! For me, whistling and gum chewing are the 2 worst sounds. After my parents passed away, I can’t say that I’ve heard many people who suck their teeth but if I do then at least I can get away from them quickly. My poor daughter works in a small office where one person hums and smacks gum all day. I load her iPod with audiobooks so she can block it out! A few years ago I was shopping in Wal-Mart and started on one side of the store. I heard very loud whistling and after a minute I was feeling the “bristling†that comes on. As I got closer to the food section it got louder. Turns out it was a man who worked in produce. I couldn’t take it any longer so I abandoned my cart and walked out. In Target just last week a cashier was cracking her gum in my face. Luckily I only had a few things to buy and was out as quickly as I could but the whole way to the car and for a few minutes afterwards I was on edge. Employers shouldn’t allow gum chewing! I also can’t stand to be around someone smoking but whether that’s related to this or not I don’t know. I about gag when I smell cigarettes whether the smell is just on someone or I am confronted by the smoke. Sorry this was so long but it felt good to get this out to people who understand. My husband is a “fidgeter†and often plays with his facial hair or rubs his fingers together or pats his legs and I can’t look at him when he’s doing things like that. I need horse blinders at times! I know he thinks I nag at him, always telling him to stop moving or be quiet. I sent him the website so that he can see that I’m not just a nag, it’s a real thing that happens to me. He’s not even aware that he’s doing those things.Thanks for reading about me and I look forward to getting support as well as giving it. Hope we find an answer one day. Bonnie

[Guest guest]

I’m reading everyone’s posts and feel bad since my problems appears to be minor compared to what all you guys are dealing with. My issues are with people only and I can’t even think of one sound that isn’t from a person that bothers me. Sure there are minor annoyances like when someone in a car next to you has their music up so loud it reverberates in your head (wish I had a sign I could hold up that says “turn that down!â€) or someone is texting or talking on a phone in inappropriate places like a check-out line holding everyone else up. But I’m not sure that is part of misophonia for me, just me thinking that some people have no respect for others and are rude. What I can’t understand is why someone thinks it’s okay to pop their gum, whistle, or make other noises that invade people’s personal space. I want to ask them why they think everyone wants to listen to that and don’t they know how annoying they are. On the rare occasion (because he knows better!) when my husband might try to sing along with a song on the radio, I tell him “do you know why they’re singing that song? So you don’t have to!â€

Bonnie

From: Cummings

Sent: Monday, April 16, 2012 3:20 PM

To: Soundsensitivity

Subject: RE: introduction

Hi Bonnie,

Welcome! I’m glad you found us and it sounds like you came to the right place. Your message wasn’t too long at all, in fact I’m sure most people here were relating to everything you said. I hope you’ve had a chance to check out the different topics – there is a lot of information here including links to other sites. For me, it’s my son (in his late 20s) who suffers and this site has really been helpful and supportive for me as a parent, and there are also some people here who have really gone above and beyond to spread the word about this so there’s more knowledge and understanding about it. BTW, if you don’t get a response to any of your messages right away, just send it again. Everyone DOES care and sometimes people just miss it or get caught up in a different thread for a while. Hang in there while we look for solutions!

From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of bonniemarcus@...Sent: Saturday, April 14, 2012 12:29 PMTo: Sound SensitivitySubject: introduction

I’m new here and want to introduce myself. Yesterday I was watching Live with ( Ripa) and she mentioned that she couldn’t tolerate the sound of people chewing so it was hard for her to eat with people. My ears perked up and I had to rewind the DVR box and listen to her talk about this again and again. She put a name to it which I had never heard before, misophonia. So off to the computer I went to Google it and to my amazement, I could finally see that I’m not nuts because certain noises annoy me so! I quickly sent the link to my daughter who also has this disorder. Lucky for me, I don’t work and often am alone but she works and has 2 small children so she is always with people. She posted it on Facebook and many people chimed in about their “quirks†with noises and movements.

About me: I am a college graduate and did teach school for a few years before my children were born. I’m 59, have a wonderful husband, 2 daughters (35 and 32), I don’t work outside the home, and we live in Chattanooga, TN. We do have a little log cabin as a 2nd home in the Smoky Mountains of NC where I spend a lot of time. We have 3 dachshunds that are a huge part of our family life. I spend a total of about 5 months a year at the cabin with my dogs and my husband comes up a weekend or 2 a month. I love being by myself and I have often wondered if it’s because people get on my nerves! I have always been slim, healthy, a fitness buff, and never had depression or any other anxiety that I know of other than what we are talking about here. I do get out and am with friends often but staying home with my dogs is my preference.

For me, I can remember being under 10 years old when mouth noises started annoying me. I was very close to my parents but those were the first people who grated on my nerves with their habits. They used to suck their teeth, use toothpicks which made the teeth sucking worse and more frequent, and my dad whistled and jingled change in his pocket and my mom hummed. I can remember being so unnerved by these sounds that I didn’t know what to do and tried to avoid being with them if I could. I was quiet and shy, never have been comfortable with confrontations so I wasn’t able to vocalize my feelings. It made me feel bad because they were really fun and sweet people. A few years before my mom passed away she was in the car with me and I finally blurted out, “Why do you make that noise with your teeth? It’s so annoying!†and she had no idea what I was talking about!

My 35 yr. old daughter and I have talked for many years about things that annoy. Some are:

Sounds:

gum chewing/cracking/popping

open mouth chewing & smacking

chewing of ice

whistling

humming

singing (except by professional in that kind of setting or through the media)

finger or fingernail tapping

drumming of hands on things

foot tapping

jingling of pocket change or keys

Motions:

Leg swinging

People who kick the back of your seat

finger fidgeting

I’m sure I’ve left some things out! For me, whistling and gum chewing are the 2 worst sounds. After my parents passed away, I can’t say that I’ve heard many people who suck their teeth but if I do then at least I can get away from them quickly. My poor daughter works in a small office where one person hums and smacks gum all day. I load her iPod with audiobooks so she can block it out! A few years ago I was shopping in Wal-Mart and started on one side of the store. I heard very loud whistling and after a minute I was feeling the “bristling†that comes on. As I got closer to the food section it got louder. Turns out it was a man who worked in produce. I couldn’t take it any longer so I abandoned my cart and walked out. In Target just last week a cashier was cracking her gum in my face. Luckily I only had a few things to buy and was out as quickly as I could but the whole way to the car and for a few minutes afterwards I was on edge. Employers shouldn’t allow gum chewing! I also can’t stand to be around someone smoking but whether that’s related to this or not I don’t know. I about gag when I smell cigarettes whether the smell is just on someone or I am confronted by the smoke.

Sorry this was so long but it felt good to get this out to people who understand. My husband is a “fidgeter†and often plays with his facial hair or rubs his fingers together or pats his legs and I can’t look at him when he’s doing things like that. I need horse blinders at times! I know he thinks I nag at him, always telling him to stop moving or be quiet. I sent him the website so that he can see that I’m not just a nag, it’s a real thing that happens to me. He’s not even aware that he’s doing those things.

Thanks for reading about me and I look forward to getting support as well as giving it. Hope we find an answer one day.

Bonnie

[Guest guest]

Hello Sally,

Welcome to the group. I am also “the Mom†of an AOSD patient who is 30. She

was diagnosed at age 21 or so. I understand your feelings of frustration for

getting treatment and help.

I have just begun to hear about actimera. I’m glad it seems to be helping

your son. My daughter was on Kineret, but the doc has her on a break to take

some tests. It wasn’t helping as much as it could have been. The fevers is

what continue to be a problem for her. Each day around 5 o’clock they are up

to 101-102 somewhere in there. She is not feeling well enough to use the

computer or be on a support group. It would help her tremendously, however she

says she cannot even lift the computer some days. She gets so grouchy lately

being that she feels so bad, that she ends up no even wanting to talk to anyone.

I wish she had support. Her boyfriend lives out of town. She is here in town

only because she was eligible for housing assistance and got her own place.

You have dealt with this illness a long time. I’m not exactly sure of the

differences of adult diagnosed and childhood Still’s, however I do know that

my daughter has been sick most of her life in childhood with asthma, allergies,

mono, and other illnesses of the sort and never felt exactly energetic or right.

She could have been dealing with auto immune long before it became diagnosed.

We are all here for each other and cope each day as best we can. I struggle with

my own issues of ’s Disease, Fibromyalgia, Chronic Fatigue, Asthma and

more. I’m tired, but try to enjoy what life has for today and not thinking too

much about what tomorrow will bring. Glad to have you.

From: Sally Yarbrough

Sent: Saturday, May 05, 2012 12:27 PM

To: Stillsdisease

Subject: introduction

Good Morning,

I am the mother of a son 31 years old that was diagnosed with Stills

in 1985 he was just 5 years old. I belive he was born with it. We

have been through a host of doctors and done lots of the treatments

now considered useless.

Loren(My son) and I just got back from Washington DC from the 2012

arthritis summit. We were there to ask congress to pass H.R. 4209 the

patients access to care bill. I hope we did some good. There were 350

people from all over the USA. I found out that 12 states in the USA

do not have a pediatric rheumatoligst Children travel for miles to

get the care they need this is unacceptable H.R 4209 would address

this issue also.

My son is now on a biologic drug called actimera and doing well. I

have been enjoying this list, thanks for the support.

Sally

[Guest guest]

Welcome Sally,

I would like to say thank you for the work you and Loren are doing in the

efforts to bring services to more widespread areas as well as all else.

Has Loren ever had any degree of remission since childhood? I hope the Actemra

helps him.

Wishing you and yours a good weekend,

Subject: introduction

Good Morning,

I am the mother of a son 31 years old that was diagnosed with Stills

in 1985 he was just 5 years old. I belive he was born with it. We

have been through a host of doctors and done lots of the treatments

now considered useless.

Loren(My son) and I just got back from Washington DC from the 2012

arthritis summit. We were there to ask congress to pass H.R. 4209 the

patients access to care bill. I hope we did some good. There were 350

people from all over the USA. I found out that 12 states in the USA

do not have a pediatric rheumatoligst Children travel for miles to

get the care they need this is unacceptable H.R 4209 would address

this issue also.

My son is now on a biologic drug called actimera and doing well. I

have been enjoying this list, thanks for the support.

Sally

[Guest guest]

Hello, Sally-

Welcome! My daughter has systemic jra, too. Price ; )

Ps. The wink is because Sally and I know one another. Sally and Loren generously

donate their time to help out at our annual camp for the children and families

affected with jra in the state of Oregon and SW Washington.

Sent from my iPad

> Good Morning,

> I am the mother of a son 31 years old that was diagnosed with Stills

> in 1985 he was just 5 years old. I belive he was born with it. We

> have been through a host of doctors and done lots of the treatments

> now considered useless.

> Loren(My son) and I just got back from Washington DC from the 2012

> arthritis summit. We were there to ask congress to pass H.R. 4209 the

> patients access to care bill. I hope we did some good. There were 350

> people from all over the USA. I found out that 12 states in the USA

> do not have a pediatric rheumatoligst Children travel for miles to

> get the care they need this is unacceptable H.R 4209 would address

> this issue also.

> My son is now on a biologic drug called actimera and doing well. I

> have been enjoying this list, thanks for the support.

> Sally

>

>

[Guest guest]

Hi ,

It’s nice to see you again. How wonderful that you already know Sally. I would

love to hear about the camp you have. We have a Mc's camp locally in the

mountains here and I can’t think of more wonderful places to help children. I

wish at times there were camps for us adults too ;0) But, the Still’s

conference is sort of that for me, lol.

Ps. The wink is because Sally and I know one another. Sally and Loren generously

donate their time to help out at our annual camp for the children and families

affected with jra in the state of Oregon and SW Washington.

[Guest guest]

This will be our fourth year of Camp JAM. It is sponsored by the Arthritis

Foundation of Oregon. Camp JAM is a three day, weekend camp for the families

and children with juvenile rheumatoid arthritis. The entire family is invited,

each family gets their own cabin, all food is provided, and the event is free of

charge. During the days of Saturday and Sunday from 9-12, the parents learn from

educational speakers, while their children are chaperoned in different age

groups and participating in fun activities such as: swimming, inner tubing down

a river, a petting zoo, a magician, crafts, an obstacle course, etc.

We usually have about 350 people. It is my absolute favorite weekend of the

year. Nothing like this was available to us when n was young, and it is

very important to me that this is provided to our children now. (n,

23, systemic jra)

> Hi ,

> It’s nice to see you again. How wonderful that you already know Sally. I would

love to hear about the camp you have. We have a Mc's camp locally in the

mountains here and I can’t think of more wonderful places to help children. I

wish at times there were camps for us adults too ;0) But, the Still’s conference

is sort of that for me, lol.

>

> Ps. The wink is because Sally and I know one another. Sally and Loren

generously donate their time to help out at our annual camp for the children and

families affected with jra in the state of Oregon and SW Washington.

>

>

[Guest guest]

I couldn't agree more, Barb.Your grandparents saw what was coming. Maybe they

saw the sinister reality of what Khrushchev said, that America will be taken

down without them firing a shot. The " regulators " are a huge part of the

problem. Too many with an agenda or working for the other side. But they are

working for our good ya know....allowing poison chemicals, GMOs, toxic vaccines,

garbage processed food, etc.

Several years ago a big push was made in WI for the premises ID. First state

in the nation. I wrote to the representative introducing it and voiced my

concern. She wrote back a generic BS response about how great it was and

necessary for a " safe " food supply. Of course it passed and when Satan's minions

began implementing it and going after farmers that wouldn't take the mark, this

same legislator went public that that was not what she intended the law to be.

Too late, it's now in the Department of Ag's hands to do what they please.

I wrote and suggested she introduce a new law to eliminate it. She wrote back

that she was retiring, so not going to happen. She was a useful idiot for those

wanting more control.Turns out it was another legislator that wanted it

introduced but he is known as a big ag whore, so talked her into doing it so as

to not stir up as much opposition. Didn't have a clue (supposedly) of the

communism she was hanging around our neck, but many did and are profiting from

it.DHI was one of the major pushers of premises ID as they stand to profit much

from it.

Milk is the same. As we look back at the manipulation of grade A

standards/pasteurization laws with more and more hoops to jump through many

simply quit. In the 70's NZ cheese was imported to crash the dairy prices. It

was all part of driving the farmers off the land by this government gone mad.

Too hard to control millions of farmers with direct connections to consumers and

small processing plants on every block. It is no wonder the raw milk movement is

met with such force and hatred. We are bringing back local food sources,

freedom, and REAL food, no need for the parasites that have grown accustomed to

feeding off the rest of us.

Cheyenne

>

> Hi, my name is Barb and I currently live in Texas, but own a farm in Mn where

I grew up on a dairy farm consuming raw milk. We are currently in the transition

of selling off thigs in Texas to move permanently to MN and hopefully live off

the farm with a couple milk cows, goats and sheep...chickens too. I have not

posted before and I enjoy reading everyone's posts, tho not daily but whenever I

get to the emails. As far as I know selling raw milk is no allowed in MN but

have read in some reports that farmers can have " donations " from people wanting

raw milk. Personally, the government has far overreached their arms for many

years now. I remember my grandparents telling us the government takeover would

always be a little at a time where people won't notice it, a law here and there

and pretty soon they regulate everything. I am sure there are many that don't

believe that and that's okay, as we are all entirely open to our own opinions.

Glad to be part of this group.

>

[Guest guest]

My name is Kelli Bledsoe. desert_rose_1966@... My family and I live in Texas just about in the middle of Houston and Dallas. While living in Calif, when our oldest son was about 8 he became incredibly ill. The doctor told us that he was lactose intolerant and (if you can believe this) suggested getting goats since we already lived in a rural area. We did, he got better, we love having goats. We are now in the process of getting Texas certified for raw and cheese. I love talking milk, butter, cheese, spinning, crochet and quilting, etc with anyone that wants to talk. I am looking forward to getting to know all of you.

Kelli

[Guest guest]

Hi MJ,

 

Nice introduction. Glad you are with the group and getting support. There are

several family members who are not the one with Still's themselves. I am the Mom

of a 30 year old daughter diagnosed at age 22 or so after first being diagnosed

with Lupus.  She is on Kineret and it is helping. The fevers are not so intense

although not gone. But her pain level is better and she has some good days with

energy.

 

Of course she does something and uses energy and then has to pay for it with bed

rest. Or if she has something planned she has to rest up for it. The illness is

so unpredictable and has so many different ways in which it can affect someone.

It is hardest I think for us family members to watch our loved ones suffer so

and not be able to do anythng to help them.

 

I hope things start turning around for your Dad soon. He is lucky to have such a

nice daughter to be ther for him.

 

Love and Hugs,

>To: Stillsdisease

>Sent: Thursday, August 16, 2012 6:00 PM

>Subject: Introduction

>

>

> 

>Hey sorry so I did things a little backwards.. heh

>My name is Marissa Mack aka MJ or mjays My father was recently diagnosed

>with Stills [official date August 1st 2012] His rash started in may and

>they treated it with a prednisone pack because they thought it was

>poison ivy or other ivy. When it came back again they gave him another

>zip pack of prednisone.On the morning of July 3rd my dad's left foot

>hurt, bruised like.. but not enough to stop him from going to work.

>Mid-morning his foot pained him more and he stopped work and iced it.

>After 20 minutes of resting the pain didn't let up so he went into the

>clinic at his work. The dr there did not see anything but decided to

>take X-rays. The X-rays showed nothing and they sent him home to rest.

>The next morning when he woke he felt like he was buried in sand and

>could not move. After several minutes of figuring out if he was

>dreaming/hallucinating he woke my mother to help him get out of bed.

>That day he spent in pain while we continued with the Fourth of July

>festivities. At 7am July 5th, he felt that the amount of pain and the

>inability to walk was merit to go to the ER. He was admitted and they

>immediately started him on Hydrocodon and very high doses of prednazone.

>They did several blood tests and sent him home on Tuesday July 10th with

>pain medication and prednisone. On Thursday July 12th, He saw a

>rheumatologist for the first time and it was at that time that they took

>17 vials of blood to run 30 different tests to rule out everything. He

>spent the weekend at home suffering with a lot of pain and finally

>decided to go back in to the hospital Sunday July 15th at 10pm. This

>time they took a CT scan and spinal tap, they also took a skin sample on

>a bug bite and some fluid from his knee but nothing came back positive.

>During this whole time he argued that Prednisone was making his symptoms

>worse though the drs disagreed. At some point they all agreed overall

>his problem fit Adult Onset Stills and started daily Kineret.

>So thats pretty much where we are now... working on figuring out if his

>liver problem is a result from all the medication or from Stills.

>Currently he is only on a daily shot of Kineret and over the counter

>Ibuprofen for his on going headaches.

>

>

[Guest guest]

Hi MJ,

 

Nice introduction. Glad you are with the group and getting support. There are

several family members who are not the one with Still's themselves. I am the Mom

of a 30 year old daughter diagnosed at age 22 or so after first being diagnosed

with Lupus.  She is on Kineret and it is helping. The fevers are not so intense

although not gone. But her pain level is better and she has some good days with

energy.

 

Of course she does something and uses energy and then has to pay for it with bed

rest. Or if she has something planned she has to rest up for it. The illness is

so unpredictable and has so many different ways in which it can affect someone.

It is hardest I think for us family members to watch our loved ones suffer so

and not be able to do anythng to help them.

 

I hope things start turning around for your Dad soon. He is lucky to have such a

nice daughter to be ther for him.

 

Love and Hugs,

>To: Stillsdisease

>Sent: Thursday, August 16, 2012 6:00 PM

>Subject: Introduction

>

>

> 

>Hey sorry so I did things a little backwards.. heh

>My name is Marissa Mack aka MJ or mjays My father was recently diagnosed

>with Stills [official date August 1st 2012] His rash started in may and

>they treated it with a prednisone pack because they thought it was

>poison ivy or other ivy. When it came back again they gave him another

>zip pack of prednisone.On the morning of July 3rd my dad's left foot

>hurt, bruised like.. but not enough to stop him from going to work.

>Mid-morning his foot pained him more and he stopped work and iced it.

>After 20 minutes of resting the pain didn't let up so he went into the

>clinic at his work. The dr there did not see anything but decided to

>take X-rays. The X-rays showed nothing and they sent him home to rest.

>The next morning when he woke he felt like he was buried in sand and

>could not move. After several minutes of figuring out if he was

>dreaming/hallucinating he woke my mother to help him get out of bed.

>That day he spent in pain while we continued with the Fourth of July

>festivities. At 7am July 5th, he felt that the amount of pain and the

>inability to walk was merit to go to the ER. He was admitted and they

>immediately started him on Hydrocodon and very high doses of prednazone.

>They did several blood tests and sent him home on Tuesday July 10th with

>pain medication and prednisone. On Thursday July 12th, He saw a

>rheumatologist for the first time and it was at that time that they took

>17 vials of blood to run 30 different tests to rule out everything. He

>spent the weekend at home suffering with a lot of pain and finally

>decided to go back in to the hospital Sunday July 15th at 10pm. This

>time they took a CT scan and spinal tap, they also took a skin sample on

>a bug bite and some fluid from his knee but nothing came back positive.

>During this whole time he argued that Prednisone was making his symptoms

>worse though the drs disagreed. At some point they all agreed overall

>his problem fit Adult Onset Stills and started daily Kineret.

>So thats pretty much where we are now... working on figuring out if his

>liver problem is a result from all the medication or from Stills.

>Currently he is only on a daily shot of Kineret and over the counter

>Ibuprofen for his on going headaches.

>

>

[Guest guest]

Hi Jacky,

Sorry about the previous incomplete message. Here’s what I intended to send.

Most of us had to endure the classroom as students, but as a teacher you can’t leave or put in earplugs. My heart goes out to you!

Like some others here, I have a policy of hiding my misophonia from everyone except doctors. That allows me to manage my mental state internally, without feeling that people are deliberately or carelessly triggering me. My parents and siblings know because I used to fly off the handle, but now they are extremely considerate.

Other people here have prepared letters, handouts, and videos explaining our condition. Here they are:

http://www.misophonia.info/Forum/viewtopic.php?f=16 & t=262

http://www.misophonia.info/resources/letters/

Here are some segments from ABC news, including a version without trigger noises:

http://abcnews.go.com/search?searchtext=misophonia & r=video

Can you tell us more about how you â€distance myself from the trigger, by identifying less with the soundâ€?

Welcome!

From: jackysaw1

Sent: Wednesday, August 22, 2012 1:03 AM

To: Soundsensitivity

Subject: introduction

Hello,Loud eating, a chewing gum, are the worse triggers, breathing and sniffing can also get me up the tree. It started in my early teens, dinner was agony. The result isolation and depression. Often I feel/ felt like I am crazy, bad, horrible human being to feel so much agony with something so basic, eating and breathing. Now, mid 40, the solution has been avoidance, anticipate the trigger sounds. It works to a certain extend, relationships are difficult and avoid them, but I have a lot of friends. As long as I am able to be away from human for sections of the day I am fine. My career has been like a roller coaster, I just left 7 years of university teaching. Standing in front of a class with chewing breathing students, was too much agony and exhausting as I had to spend allot of energy to cope. Lately, I have realized, how this condition has influenced my life, caused allot of pain and frustration, isolation, and depression. Years of therapy to deal with these issues. Though I have never talked about the sound triggers, because I was too ashamed. I thought that deep inside me there is something wrong with me, a dark secret. I often say I don't like as humans and yes, prefer to spend my time with animals, at least they don't chew gum. Wherein actuality I am very social and need people. (I sometimes say that chewing gum is sound pollution and there should be designated chewing areas). This past winter I googled sound sensitivity, and utterly surprised to find misophonia as a recorded condition that more people share. The relieve I felt was enormous and resulted with me sitting through Christmas dinner with my family. I was able to distance myself from the trigger, by identifying less with the sound. For short periods this technique helps I have been finding. I haven't told anyone as of jet of my condition. Afraid that they might not take it serious, and shrug it of. It feels like I am at the fringe of coming out of the closet. Though it feels difficult to explain. An information package, videos, a flyer, which would make it easier to introduce the condition. Does something like this exist? I haven't done any brain scans or such. To be honest I was a bit afraid to be locked up and drugged. Though, I am partly deaf in the mid range frequency, this in both ears and from birth. The rest of my hearing is excellent, as I can spot a chewing human across the room.Thanks for listing and sharing,Jacky

[Guest guest]

Oops. Here are the 20/20 segments without trigger noises:

http://abcnews.go.com/blogs/health/2012/05/18/safer-for-misophonics-2020s-misophonia-coverage/

From:

Sent: Wednesday, August 22, 2012 4:03 AM

To: Soundsensitivity group

Subject: Fw: introduction

Hi Jacky,

Sorry about the previous incomplete message. Here’s what I intended to send.

Most of us had to endure the classroom as students, but as a teacher you can’t leave or put in earplugs. My heart goes out to you!

Like some others here, I have a policy of hiding my misophonia from everyone except doctors. That allows me to manage my mental state internally, without feeling that people are deliberately or carelessly triggering me. My parents and siblings know because I used to fly off the handle, but now they are extremely considerate.

Other people here have prepared letters, handouts, and videos explaining our condition. Here they are:

http://www.misophonia.info/Forum/viewtopic.php?f=16 & t=262

http://www.misophonia.info/resources/letters/

Here are some segments from ABC news, including a version without trigger noises:

http://abcnews.go.com/search?searchtext=misophonia & r=video

Can you tell us more about how you â€distance myself from the trigger, by identifying less with the soundâ€?

Welcome!

[Guest guest]

I started a College course today, and kept having to leave the class as it seemed that the majority of the class were continual pen clickers  Thankfully this particular class I think I'll be able to complete very quickly.  I've put in a request for help, basically if I can sit in a room on my own I'll be ok to do whatever work the class has to do.