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Re: Son having second flare

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Hi, my son, then 4, had a bout of EN symptoms following a viral respiratory infection - but it appeared several weeks after the initial virus. So sorry to hear your son has had a second flare. I think it is very unlikely to be related to cancer - far more likely to be triggered by an infection and subsequently re-activated by some sort of immune disturbance or stress, but if you are worried, trust your mother's instincts and push for testing/monitoring. You're also in a good position to be extra vigilant for any worrying signs over the coming months, just in case.

Best wishes,

cathy

To: erythema_nodosum_Group From: wylands04@...Date: Tue, 13 Mar 2012 16:12:26 +0000Subject: Son having second flare

Hi my son is 18 & he is enduring his second round of EN. His initial bloodwork failed to identify the cause. Our Pcp & dermatologist said it was probably idiopathic. My question is this.....I know it is rare for males to get this & even more rare for teenagers so should I be pushing for more testing. In the back of my mind I keep thinking of the small % that it could related to cancer & it can precede the cancer by months. I hope someone can give me some insight.Thanks!Michele

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  • 3 months later...
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Hi Michele. My daughter had her first bout at age 12(very bad cause) and has

had flare ups occurring every 6 -24 months.(much milder then intial) She is 22

and is having another one now although she has a very sore throat this time. We

first thought it was seasonal as they would occur in summer but for the last 3

years. she has had them in winter. All blood work comes back normal.I too was

worried about the cancer thing at one stage but after having it so many times

the doctors tell me its just am auto-immune disease. Good luck.

>

>

> Hi, my son, then 4, had a bout of EN symptoms following a viral respiratory

infection - but it appeared several weeks after the initial virus. So sorry to

hear your son has had a second flare. I think it is very unlikely to be related

to cancer - far more likely to be triggered by an infection and subsequently

re-activated by some sort of immune disturbance or stress, but if you are

worried, trust your mother's instincts and push for testing/monitoring. You're

also in a good position to be extra vigilant for any worrying signs over the

coming months, just in case.

>

> Best wishes,

>

> cathy

>

>

>

>

> To: erythema_nodosum_Group

> From: wylands04@...

> Date: Tue, 13 Mar 2012 16:12:26 +0000

> Subject: Son having second flare

>

>

>

>

>

>

> Hi my son is 18 & he is enduring his second round of EN. His initial bloodwork

failed to identify the cause. Our Pcp & dermatologist said it was probably

idiopathic. My question is this.....I know it is rare for males to get this &

even more rare for teenagers so should I be pushing for more testing. In the

back of my mind I keep thinking of the small % that it could related to cancer &

it can precede the cancer by months. I hope someone can give me some insight.

>

> Thanks!

> Michele

>

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  • 3 weeks later...
Guest guest

Hi, I'm also around your son's age (19) and I'm having my third EN now. Mine

also idiopathic. My first (2009) and second (2012) EN was in winter nearly

spring, so like I thought it was seasonal, but now I got it on spring

nearly summer. I read in a blog of someone who got EN for around 20 years, that

EN can easily being spot on with the change of season, so I think we might be

careful and get our body well-prepared on the change of season to prevent EN

flare-up.

I myself curious to reveal the main cause and to take more testing, but reading

on people thoughts here, I think it still hard to conclude what can come up with

EN beside not-so-harmful inflammation (indicated with CRP and else) and

autoimmune disorder if no other symptom(s) related. Anyway, the doctor might

give pain killer such as ibuprofen or drugs who might also have side effects on

long term so I barely recommend on taking too much of those pills, but please

take it when it hurts bad (with doctor's prescription).

I'm personally taking vitamins especially vitamin E (as my doctor's advice), and

I also love the idea of EN's 'veterans' who recommend gluten-free diet to manage

EN and gonna try it soon.

I having EN for around 1,5 months now and getting better, but really I'm

thankful for all the people here who shared their stories and advices, to know

that we fight this thing together, and I hope your son will get better very very

soon!

Regards,

Kamilia

> >

> >

> > Hi, my son, then 4, had a bout of EN symptoms following a viral respiratory

infection - but it appeared several weeks after the initial virus. So sorry to

hear your son has had a second flare. I think it is very unlikely to be related

to cancer - far more likely to be triggered by an infection and subsequently

re-activated by some sort of immune disturbance or stress, but if you are

worried, trust your mother's instincts and push for testing/monitoring. You're

also in a good position to be extra vigilant for any worrying signs over the

coming months, just in case.

> >

> > Best wishes,

> >

> > cathy

> >

> >

> >

> >

> > To: erythema_nodosum_Group

> > From: wylands04@

> > Date: Tue, 13 Mar 2012 16:12:26 +0000

> > Subject: Son having second flare

> >

> >

> >

> >

> >

> >

> > Hi my son is 18 & he is enduring his second round of EN. His initial

bloodwork failed to identify the cause. Our Pcp & dermatologist said it was

probably idiopathic. My question is this.....I know it is rare for males to get

this & even more rare for teenagers so should I be pushing for more testing. In

the back of my mind I keep thinking of the small % that it could related to

cancer & it can precede the cancer by months. I hope someone can give me some

insight.

> >

> > Thanks!

> > Michele

> >

>

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