up to dates

[Guest guest]

__ Hi all, this is Joan in the USA. I

would like to catch you up on my last few months. Mostly I am doing this to

see if anyone else has gone thru any parts of this or advice.

About 2 years ago I was diagnosed with

bronc(age now 66). At that time I was given many tests to determine my oxygen

level and lung capacity. Shortly after diag I began coughing up copious amts

of green sputum. pul dr sent me to infectious disease dr who had determined

from sputum testing that I had MAC, as well. Infect dis Dr had me start an 18

month regimen of heavy does of 2 antis 3 times a day (similar to one would get with

non-infectious TB). My stomach couldn’t handle it and so stopped for About

4 months. Then Dr had me try amox and cipro on a rotation bi- weekly

schedule. Another sputum test maybe 2 months later showed a big change had

taken place. Infec dr called and told me to stop oral antis. When I went to

him he said what was in my lungs had become resistant to oral antis. I also

felt like I had the flu 24/7. infec dr. said I had a pseudomonas. Has sent me

to an immersion center every day with what will be a month at the end of this

week, and twice a day. There I intravenously, thru a pic-line get maxipine

entered directly to my heart which goes directly to my lungs. Two days after

getting this I felt like a new person. Very little sputum and what there is,

is pale yellow. I also have TOBI in my nebulizer and use the vest. Sooo, if

they stop treatments Friday and sputum is still pale yellow, then what. Or what

if I am in this regimen too long. I feel wonderful. However, this is so new

to me, I have so many what ifs. I think all the dr working together have been

great. They also sent me to sinus dr to try to eliminate post nasal drain thru

Claritin once a day. I had gone for second opinions and all others arrived at

the same conclusions. Any comments? I don’t even know what I am looking

to hear. Thanks for wading thru all this. J