Re: Does anyone get EN outbreaks in hips, thighs, and buttocks?

[Guest guest]

The furthest mine have ever traveled were to my thighs, and that was a rare event when that happened.Do you eat a lot of gluten? Breads, Pasta and gains?try removing them completely from your diet. Our intestines are not made to digest the over processed grains they have now. They are so modified they really can damage intestines and the colon.My underlining AE is Hashimotos. I was undiagnosed for 30 years. So my thyroid was a huge trigger only due to my immune system attacking my thyroid. Also there can be viruses and bacteria's that affect the immune system. It really depends on the underlying cause. a virus caused my Immune issues and that went into Hashi's and then it went into EN.Strep is an issue with me as well. However since seeing my new doctor, and dealing with ridding my body of viruses and bacteria, I haven't had an issue with strep in over a year.ml ML GemmillWriter - Creative Ideator I have recently had more frequent outbreaks of EN, and they continue to get worse and move up my body. Recently, the outbreaks have been in my inner thighs, hip areas, and my butt cheeks. This makes is so painful to sit down or even sleep. My doctor put me on prednisone again. I just find it strange that the outbreaks are moving up my body. Right now I am having tests run and they suspect an autoimmune disorder is an underlying cause. Any information would help. Or is anyone have/or had similar experiences? Thanks -

[Guest guest]

Hi :

My last outbreak lasted about 9 months and I had them all over my legs, butt, mid-section and I even had around a dozen on my arms. It was the worst case I ever had. It was compounded by stress. Going gluten-free and eliminating the excess stress from my life was a tremendous help.

My tests were all negative. I do have hashimotos, or did, I had to have my thyroid removed several years ago.

I know that it does not make your pain go away hearing about other people and what they have endured, but, at least you are not alone. Rest, elevate your legs, use ice packs, and cry if you feel like it.

My Rheumatologist put me on Colchrys and she said that it will keep the EN away. It has not flared up since my last lumps disappeared in August so I kind of believe her...

Good luck, rest and get well.

We are all here for you.

Subject: Does anyone get EN outbreaks in hips, thighs, and buttocks?To: erythema_nodosum_Group Date: Tuesday, February 21, 2012, 6:21 PM

I have recently had more frequent outbreaks of EN, and they continue to get worse and move up my body. Recently, the outbreaks have been in my inner thighs, hip areas, and my butt cheeks. This makes is so painful to sit down or even sleep. My doctor put me on prednisone again. I just find it strange that the outbreaks are moving up my body. Right now I am having tests run and they suspect an autoimmune disorder is an underlying cause. Any information would help. Or is anyone have/or had similar experiences?Thanks-

[Guest guest]

Hi I have also had the nodules in my arms inner thighs, it is very painfull I have been on different medication and nothing helped with mine apart from rest legs elevated, and ice packs, my en started when I was 22 I am now 45 and still have flare ups my en has changed I no longer get as many on my feet, legs and ankles now and I dont always get the redness with them they seem to have moved up my body into other places I still get the joint pain ankles, feet, knees hips I was wondering if there was a link with b12 deficiency as I have this also and I have degenerative joint disease they are also testing me for rheumatoid athritis, I have also become iron deficient and my white cell count is always elevated but there doesnt seem to be any cause for this it would be very interesting to find out if anyone else

has these problems as well I hope you are pain free soon when I am going through a flare up I always remind myself there is always someone else much worse of than myself and try and keep positive we are all here with the same horrible illness but unfortunately it is part of us and we just have to try and find a way to cope with it hugs from To: erythema_nodosum_Group Sent: Wednesday, 22 February 2012, 0:24 Subject: Re: Does anyone get EN outbreaks in hips, thighs, and buttocks?

Hi :

My last outbreak lasted about 9 months and I had them all over my legs, butt, mid-section and I even had around a dozen on my arms. It was the worst case I ever had. It was compounded by stress. Going gluten-free and eliminating the excess stress from my life was a tremendous help.

My tests were all negative. I do have hashimotos, or did, I had to have my thyroid removed several years ago.

I know that it does not make your pain go away hearing about other people and what they have endured, but, at least you are not alone. Rest, elevate your legs, use ice packs, and cry if you feel like it.

My Rheumatologist put me on Colchrys and she said that it will keep the EN away. It has not flared up since my last lumps disappeared in August so I kind of believe her...

Good luck, rest and get well.

We are all here for you.

Subject: Does anyone get EN outbreaks in hips, thighs, and buttocks?To: erythema_nodosum_Group Date: Tuesday, February 21, 2012, 6:21 PM

I have recently had more frequent outbreaks of EN, and they continue to get worse and move up my body. Recently, the outbreaks have been in my inner thighs, hip areas, and my butt cheeks. This makes is so painful to sit down or even sleep. My doctor put me on prednisone again. I just find it strange that the outbreaks are moving up my body. Right now I am having tests run and they suspect an autoimmune disorder is an underlying cause. Any information would help. Or is anyone have/or had similar experiences?Thanks-

[Guest guest]

Had the worst outbreak this last fall. I had the noduals on my arms, thighs, and thru out my calfs. High fever, lower extremity edema, and fatigue completed the picture. I was put on high dose prednisone. I did not like the side effects but stayed on pred. Unfortunately I found that the symptoms would come back if I tried to wean. I finally went off suffered a bit and now take low dose aspirin and gluten free diet. After three weeks of a slow recovery the symptoms are going away. I did notice when I added the gluten free aspect it happened faster.

[Guest guest]

I pretty much just worked thru it. The main thing for me was the tiredness~could not get enough zzzzzzzz's! I finally learned to relax during break time, lay or sit down. Since I never laid down on my breaks or lunch, people began to figure something was wrong with me. But, when body says it is tired, listen! Debbie 07 have been reading comments on this site for only 2 weeks. What do you folks do with work? I've been off work for 10 days now because of pain ans swelling on my feet. Does anybody know anybody who has been totally debilitated with this condtion?

Good day everyone,

Estela

To: erythema_nodosum_Group Sent: Tuesday, February 21, 2012 1:21 PMSubject: Does anyone get EN outbreaks in hips, thighs, and buttocks?

I have recently had more frequent outbreaks of EN, and they continue to get worse and move up my body. Recently, the outbreaks have been in my inner thighs, hip areas, and my butt cheeks. This makes is so painful to sit down or even sleep. My doctor put me on prednisone again. I just find it strange that the outbreaks are moving up my body. Right now I am having tests run and they suspect an autoimmune disorder is an underlying cause. Any information would help. Or is anyone have/or had similar experiences?Thanks-