Re: Re: The CURE ... Neurofeedback

[Guest guest]

Excellent and very encouraging post. I am very curious about Neurofeedback. I looked it up and it is a effective as you claim, then I will probably try it. I would like it if you can tell me how many visits you have had, and if this is an ongoing process.I fully agree that this is not solely an auditory problem, but a neurological one. I am bothered by visuals as well. If someone is tapping my chair with their foot, something I can't see or hear, and it is repetitive and I experience the same reaction. That said, the auditory is the worst, but ALL or the senses are involved. I think this is more of an obsession than a phobia or hearing problem. It seems to me to be much more of a form of OCD than a hearing disorder. I would like very

much if you could go into more detail about you experience with Neurofeedback if you would. And I don't know you name! I think you are really on the money about this. Thanks,Mike To: Soundsensitivity Sent: Sunday, February 19, 2012 3:28 PM Subject: Re: The CURE ... Neurofeedback

Misophonia … a misnomer I have posted in the past in regards to the success my son and I have experienced in eliminating the condition referred to as "Misophonia" with Neurofeedback (NFB). It would certainly be my suggestion that sufferers try this approach as it has been extremely successful for my son and me. The reason I am submitting this post is due to the repeated pleas for help from several on this site in regards to wanting research and clinical trials. If it is research that is wanted, then it should serve to expedite those researchers toward their conclusion if they examine other lines of thought, and evidence, rather than the generally accepted assumptions. I was prompted to write this as I viewed a recent article that was linked to on this site and written by Dr. Latimer, a psychiatrist and president of Okanagan

Clinical Trials. I agree with those of you that commented in appreciation for Dr. Latimer's respectful tone and attitude toward this condition. But I do take exception and disagree with his following statement:

"Until now, many people experiencing this sensitivity have been mistakenly diagnosed with other problems when presenting their specific symptoms—they have been told they have a phobia or obsessive compulsive disorder, mania or an anxiety disorder." Most will agree that they really don't care what this condition is called, or what causes it, but rather just want the means to eliminate it from their lives. But, I point out the above paragraph as I feel it is wrong to rule out obsessive compulsive disorder (OCD) as "mistakenly diagnosed," if the intent is to assist the direction of research, or in following up with effective means of eliminating this condition. First of all … I will refer to this condition as "Misophonia" as that is the term recognized, even though I believe that term is a misnomer. In my opinion, I think that it is a mistaken belief that this is an audiological problem. While there is little doubt that certain sounds are the primary triggers for most sufferers, there are many non-sound triggers present also. So many times those defending this as audiological will claim that visual triggers are the result of the psychological aftermath of associating those visuals with offending sounds. A corroborating example of that would be a personal anecdote of mine; In the past, I could sit in a football stadium of 70,000 cheering fans with no problem, but suddenly be triggered if I saw someone chewing gum 50 yards away

thru my binoculars. So was I being triggered due to associating that visual with the chewing sounds that had triggered me before? This I can understand, and could agree to this theory with associated visuals that have no sound, such as my football stadium example, with a person merely putting their hand to their mouth, or with someone biting their fingernails. I had these triggers as well as most of the eating & sound triggers that are food related, as well as the worst … gum chewing. But, there are so many visual triggers that are not related to sound in any manner that many of us have such as repetitive foot or body movements, or when one twirls their hair … how would these be hearing related?

One of my triggers was the manner in which someone may hold their hands, or simply rest their hands on their lap. Another example would be that I sometimes "talk with my hands" when explaining something and my son could be triggered by the repetitive movement of my hands. I would ask someone to give me a plausible explanation of how these are hearing related. Another trigger for me was the manner in which my wife would swing her arms when we would take walks. It always seemed to me as if she was swinging her arms more than what was normal or needed, but when I honestly evaluated her arms swinging with my own or others walking by, there was no difference, yet it was a trigger to me with all the same apprehension, anxiety, and anger present. Again, please … I would ask an Audiologist, others in the medical or

scientific community, or a "Misophonia" sufferer, to explain to me how that can be hearing related.

You may have read my post on January 7th … message # 24453. Please re-read to familiarize yourself with how Neurofeedback is curing this condition for my son and me. Neurofeedback isn't fixing our hearing … it is fixing our brains. I wrote that both my NFB practitioner and I feel that this condition is an element of OCD. Some on the site are quick to dispute this as they do not feel they exhibit any of the signs of OCD. When a person thinks of OCD they generally think of repeated & obsessive hand washing, counting, checking, & following various routines, but OCD is also an obsession with thoughts. To these people I would ask, "If you have been willing to believe that "Misophonia" is a mysterious physiological

condition whereas the brain improperly processes sounds, that has yet to be fully understood & recognized … then why wouldn't you believe that it just might be a subset of OCD, also a faulty brain processing related condition, that has yet to be fully understood and recognized?"

OCD has been described as the following:

"Obsessive-compulsive disorder is an anxiety disorder in which people have unwanted and repeated thoughts, feelings, ideas, sensations (obsessions), or behaviors that make them feel driven to do something (compulsions). OCD sufferers generally recognize their obsessions and compulsions as irrational, and may become further distressed by this realization. Obsessions are thoughts that recur and persist despite efforts to ignore or confront them. People with OCD frequently perform tasks, or compulsions, to seek relief from obsession-related anxiety." The various triggers that "Misophonia" sufferers experience are obsessions. A key word hi-lighted in the above definition is frequently (many times, often, but not always). OCD may have its obsessive element without always being accompanied by a recognized compulsion. Or, one could also view the fight or flight reaction as the compulsion (feel driven to do something). The need to mimic those offending sounds or visuals can also be, as in the definition above, "a frequent task, or compulsion, to seek relief from the obsession-related anxiety". So although a "Misophonia" sufferer may not possess or exhibit the typical & recognized symptoms of OCD … the

trigger obsessions can certainly be an element or a subset of OCD.

These obsessions come down to the word "focus." I could not take my focus off of that person chewing gum 50 yards away. I could not take my focus off of my wife swinging her arms. My son could not take his focus off of the movement of my hands when I was talking. Misophonia sufferers cannot take their focus off of the various obsessions that trigger them!

Both my son and I have lived with OCD where we have/had several obsessions where we are driven uncontrollably to recognized compulsions. Just one of mine was where I had an obsession with adjusting the rear-view mirror when driving, whereas I felt driven to do something in continually pressing the knuckle of my index finger hard against the mirror. I wasn't really adjusting the mirror but my compulsion was to repeatedly press my knuckle against it. An important distinction to be made is that although I did not have any anger associated with my mirror obsession, my son did have the same "Misophonia" type of anger & rage with his recognized OCD obsession of not wanting cupboards or doors being left partially open. Again, I could not take my focus off of the need to press my knuckle against the mirror,

and my son could not take his focus off of his obsessions with the cupboards or doors being open. I no longer have this obsession thanks to Neurofeedback, and the cupboard/door obsession with my son is nearly gone also. I point out these examples, two of several I could relate, to show that I certainly understand OCD. And I certainly understand as a subset or an element of OCD, that my various "Misophonia" triggers (my obsessions) with gum chewing, food related sounds & visuals, as well as non-sound triggers (my obsessions) such as repetitive arm movements or position of one's hands made me feel driven to do so something (my compulsions) with fight or flight, and frequently mimicking. As I stated, I no longer have this obsession with the mirror, as well as several other former obsessions, thanks to NFB.

And as I pointed out at length in my post of message #24453, I no longer have the anger, the anxiety, or reactions, the fight or flight with the former "Misophonia" triggers, thanks to NFB. Is it so hard to not understand that since both were cured with Neurofeedback that they are indeed related?

>> > > > The CURE … Neurofeedback> > Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback> was proving to be the "cure" for me in regards to this dreaded> condition, referred to as Misophonia. I wrote of some extraordinary> "successes" I was having at the time, and I wrote, "I do not> know if this is the "cure" for all others on this site. I do> know what it has done for me so far … it's given me the first> real hope in defeating this after 45 years of anguish." You can> read my original post if you go to where it says message # at the top of> this page, and put in 20318 (do not use a comma in the number). The> positive progress I had recorded up to that time

was after 24 sessions> with a Neurofeedback (NFB) practitioner, and I told of our plans to> start our 15 year-old son with NFB who also has Misophonia. To my> disbelief, there was response from just two people on this site. That> is why I decided to post under the heading "The Cure" in hopes> of gaining everyone's attention.> > Neurofeedback has worked for both my son and me. I will stress that I> suffered with this Misophonia condition for 45 years and to a degree> just as strong as relayed by any of the messages posted on this site. > Both my son and I have also dealt with various symptoms of OCD, which> both my NFB Doctor and I feel that this condition is an element of. I> have read past arguments of those that don't consider this OCD as> they don't exhibit the "recognized" or usual symptoms, or> have an official diagnosis of OCD thru the "main

stream"> physicians. Since I have not heard of others being treated successfully> thru other means, I believe my NFB Doctor and I have earned the> credibility in referring to this condition as an element of OCD.> > If there were a rating system developed, both my wife and I would put me> at a strong 90 to 95% improvement from where I was several months ago. > I would be at the 100% level as far as the total absence of the anger> that is instantaneously present when Misophonia sufferers encounter a> "trigger." With some of the "successes" I am enjoying> my wife tells me that, "You are completely cured." But I> don't accept that quite yet as there are a couple elements that I> still notice, although ever so slightly. The terrific part of NFB is> that although there may be an "ebb & flow" of reactions during> treatment as improvements are made …

improvements realized are> permanent. Even more promising are studies that have shown that even> when NFB sessions are stopped, subtle improvements are still recognized> months later. Our son we would put at an 80% improvement level. > Possibly we could rate him higher yet on that scale but with people that> age it can be difficult to determine if some actions are unrelated to> this condition and rather just the normal teenager hormones to be dealt> with. He also started with more profound "recognized" and> typical OCD symptoms than what I did.> > > > In addition, my higher rating of improvement can be attributed to my> having a total of 112 NFB sessions so far versus my son's 64> sessions. With saying that I want to stress at this point not to let> the number of sessions and the related costs deter you. I pointed out> in my original post that

I paid $4,100 for my initial 40 sessions along> with a beginning and ending QEEG. At the end of the initial 40> sessions, both for myself as well as my son, my wife and I agreed that> both of us had achieved a 60-70% improvement for our Misophonia versus> our pre-Neurofeedback condition. Imagine how different your life would> be, or that of your child, if you/he/she were rid of 60-70% of the> triggers and anger … actually more on the anger as most of that> leaves completely and is the most pronounced effect first realized. > Although our lives would have been so much more enjoyable even if we had> stopped after the initial 40 sessions, we made the decision to strive> for perfection and be cured completely. My son has never complained one> time with going to the 64 sessions as he continues to realize the subtle> improvements he continues to make.> > Our

NFB practitioner will be starting with the use of a program called> the LORETA in another 3 weeks. The LORETA, which he will incorporate in> every third session, is like a mini-QEEG, a functional imaging technique> that looks directly at brain activity in "real time." The data> to date is showing the use of the LORETA enables one to treat at a more> successful rate … at a quicker pace … and for more conditions! > Naturally we are excited about this as we feel that he will be able to> identify and treat those last stubborn areas of our brains.> > Over the last several months I have compiled nearly 80 pages of a> journal chronicling the progress we have achieved thru Neurofeedback. I> am working on condensing this material to a version that I can post at a> later date so others may identify with situations we have encountered> with triggers that have resulted in

"successes" with a> non-reaction and no anger present. In addition, our Doctor will be> putting together a report for the Neurofeedback Journal and profession,> along with my input from a patient's perspective, regarding> NFB's success with treating Misophonia.> > I am going to add a disclaimer to my post. All brains are different,> and some people may not respond favorably to Neurofeedback, there are no> guarantees. But, we are not the only people with this condition that> have experienced success with Neurofeedback. My Doctor recently learned> of an NFB practitioner in Texas that had posted on a professional online> forum asking if anyone had experience in treating Misophonia. This> practitioner initially started seeing someone for ADD, but then this> patient's parents educated him on the Misophonia their child had. > Some time had elapsed and he posted a

second time telling that he was> having success with diminishing the Misophonia triggers.> > For those of you that contact a Neurofeedback practitioner and proceed> with sessions, I will offer this advice … Do not monitor all of the> posts on this site closely. I say this because of the number of posts> where people are venting and telling of new and different triggers that> outrage them. There have been arguments on this site in the past as to> if the venting is helpful. I am not entering into that argument but> rather just giving you advice on an observation that my Neurofeedback> Doctor, my wife, and I all agree on. We feel there is the possibility> of one developing new triggers they have not experienced before when> reading of them thru the venting on this site. We base this on the fact> that neither my wife, nor my Doctor, ever realized the manner in

which> people chew gum until coming in contact with me. It was simply> something they were not conscience of. But now they both notice if> people chew their gum or food in an obnoxious manner. It does not cause> them to get angry, but they do notice it now as readily as a Misophonia> victim does. For this reason I scan the headlines on this site but do> not read any postings that appear to be from someone venting or telling> of new triggers.> > I intend to stay anonymous on this site as well as in any subsequent> article in the NFB Journal. If it was just me I would have no issue> with using my real name. But I will not take the chance of subjecting> my son to ridicule from his peers if our identification were known and> talked of openly on this site, on a Facebook page, or in the media. > Please respect this. We all know that if we told acquaintances we

had> ADD … they would have compassion for us. If we told others that we> had depression, or bipolar … we would be shown compassion. In fact> if we say, as my Doctor and I maintain, "I have an element of> OCD" … we will be looked upon with compassion. But to tell> someone of Misophonia and its triggers & anger … will most often> bring us ridicule and mean spirited provoking.> > We live in Eastern Iowa so those of you that are close in proximity may> send an email to my Yahoo Mail account and I will respond with the name> of my Neurofeedback practitioner. For everyone else, please respect the> fact that my Doctor cannot accept the several calls that could inundate> him from those looking for referrals. He will not make referrals but> would be glad to accept a phone call or an email from NFB practitioners> in regards to protocol. My Doctor strongly

suggests that one go to the> website www.bcia.org <http://www.bcia.org/> to find a practitioner in> your area and to make sure that they are specifically accredited for> "BCN." Another valuable website is the International Society> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> . > At this time the practitioner listing section of this site is down so> check back.>

[Guest guest]

For the first time I feel hope! I called a neurofeedback practitioner in my area who is accredited for "BCN" and she is going to do a free consultation with me today! THANK YOU SO MUCH FOR SHARING YOUR STORY!!!! To: Soundsensitivity

Sent: Sunday, February 19, 2012 5:28 PM Subject: Re: The CURE ... Neurofeedback

Misophonia … a misnomer I have posted in the past in regards to the success my son and I have experienced in eliminating the condition referred to as "Misophonia" with Neurofeedback (NFB). It would certainly be my suggestion that sufferers try this approach as it has been extremely successful for my son and me. The reason I am submitting this post is due to the repeated pleas for help from several on this site in regards to wanting research and clinical trials. If it is research that is wanted, then it should serve to expedite those researchers toward their conclusion if they examine other lines of thought, and evidence, rather than the generally accepted assumptions. I was prompted to write this as I viewed a recent article that was linked to on this site and written by Dr. Latimer, a psychiatrist and president of Okanagan

Clinical Trials. I agree with those of you that commented in appreciation for Dr. Latimer's respectful tone and attitude toward this condition. But I do take exception and disagree with his following statement:

"Until now, many people experiencing this sensitivity have been mistakenly diagnosed with other problems when presenting their specific symptoms—they have been told they have a phobia or obsessive compulsive disorder, mania or an anxiety disorder." Most will agree that they really don't care what this condition is called, or what causes it, but rather just want the means to eliminate it from their lives. But, I point out the above paragraph as I feel it is wrong to rule out obsessive compulsive disorder (OCD) as "mistakenly diagnosed," if the intent is to assist the direction of research, or in following up with effective means of eliminating this condition. First of all … I will refer to this condition as "Misophonia" as that is the term recognized, even though I believe that term is a misnomer. In my opinion, I think that it is a mistaken belief that this is an audiological problem. While there is little doubt that certain sounds are the primary triggers for most sufferers, there are many non-sound triggers present also. So many times those defending this as audiological will claim that visual triggers are the result of the psychological aftermath of associating those visuals with offending sounds. A corroborating example of that would be a personal anecdote of mine; In the past, I could sit in a football stadium of 70,000 cheering fans with no problem, but suddenly be triggered if I saw someone chewing gum 50 yards away

thru my binoculars. So was I being triggered due to associating that visual with the chewing sounds that had triggered me before? This I can understand, and could agree to this theory with associated visuals that have no sound, such as my football stadium example, with a person merely putting their hand to their mouth, or with someone biting their fingernails. I had these triggers as well as most of the eating & sound triggers that are food related, as well as the worst … gum chewing. But, there are so many visual triggers that are not related to sound in any manner that many of us have such as repetitive foot or body movements, or when one twirls their hair … how would these be hearing related?

One of my triggers was the manner in which someone may hold their hands, or simply rest their hands on their lap. Another example would be that I sometimes "talk with my hands" when explaining something and my son could be triggered by the repetitive movement of my hands. I would ask someone to give me a plausible explanation of how these are hearing related. Another trigger for me was the manner in which my wife would swing her arms when we would take walks. It always seemed to me as if she was swinging her arms more than what was normal or needed, but when I honestly evaluated her arms swinging with my own or others walking by, there was no difference, yet it was a trigger to me with all the same apprehension, anxiety, and anger present. Again, please … I would ask an Audiologist, others in the medical or

scientific community, or a "Misophonia" sufferer, to explain to me how that can be hearing related.

You may have read my post on January 7th … message # 24453. Please re-read to familiarize yourself with how Neurofeedback is curing this condition for my son and me. Neurofeedback isn't fixing our hearing … it is fixing our brains. I wrote that both my NFB practitioner and I feel that this condition is an element of OCD. Some on the site are quick to dispute this as they do not feel they exhibit any of the signs of OCD. When a person thinks of OCD they generally think of repeated & obsessive hand washing, counting, checking, & following various routines, but OCD is also an obsession with thoughts. To these people I would ask, "If you have been willing to believe that "Misophonia" is a mysterious physiological

condition whereas the brain improperly processes sounds, that has yet to be fully understood & recognized … then why wouldn't you believe that it just might be a subset of OCD, also a faulty brain processing related condition, that has yet to be fully understood and recognized?"

OCD has been described as the following:

"Obsessive-compulsive disorder is an anxiety disorder in which people have unwanted and repeated thoughts, feelings, ideas, sensations (obsessions), or behaviors that make them feel driven to do something (compulsions). OCD sufferers generally recognize their obsessions and compulsions as irrational, and may become further distressed by this realization. Obsessions are thoughts that recur and persist despite efforts to ignore or confront them. People with OCD frequently perform tasks, or compulsions, to seek relief from obsession-related anxiety." The various triggers that "Misophonia" sufferers experience are obsessions. A key word hi-lighted in the above definition is frequently (many times, often, but not always). OCD may have its obsessive element without always being accompanied by a recognized compulsion. Or, one could also view the fight or flight reaction as the compulsion (feel driven to do something). The need to mimic those offending sounds or visuals can also be, as in the definition above, "a frequent task, or compulsion, to seek relief from the obsession-related anxiety". So although a "Misophonia" sufferer may not possess or exhibit the typical & recognized

symptoms of OCD … the trigger obsessions can certainly be an element or a subset of OCD.

These obsessions come down to the word "focus." I could not take my focus off of that person chewing gum 50 yards away. I could not take my focus off of my wife swinging her arms. My son could not take his focus off of the movement of my hands when I was talking. Misophonia sufferers cannot take their focus off of the various obsessions that trigger them!

Both my son and I have lived with OCD where we have/had several obsessions where we are driven uncontrollably to recognized compulsions. Just one of mine was where I had an obsession with adjusting the rear-view mirror when driving, whereas I felt driven to do something in continually pressing the knuckle of my index finger hard against the mirror. I wasn't really adjusting the mirror but my compulsion was to repeatedly press my knuckle against it. An important distinction to be made is that although I did not have any anger associated with my mirror obsession, my son did have the same "Misophonia" type of anger & rage with his recognized OCD obsession of not wanting cupboards or doors being left partially open. Again, I could not take my focus off of the need to press my knuckle against the mirror,

and my son could not take his focus off of his obsessions with the cupboards or doors being open. I no longer have this obsession thanks to Neurofeedback, and the cupboard/door obsession with my son is nearly gone also. I point out these examples, two of several I could relate, to show that I certainly understand OCD. And I certainly understand as a subset or an element of OCD, that my various "Misophonia" triggers (my obsessions) with gum chewing, food related sounds & visuals, as well as non-sound triggers (my obsessions) such as repetitive arm movements or position of one's hands made me feel driven to do so something (my compulsions) with fight or flight, and frequently mimicking. As I stated, I no longer have this obsession with the mirror, as well as several other former obsessions, thanks to NFB.

And as I pointed out at length in my post of message #24453, I no longer have the anger, the anxiety, or reactions, the fight or flight with the former "Misophonia" triggers, thanks to NFB. Is it so hard to not understand that since both were cured with Neurofeedback that they are indeed related?

>> > > > The CURE … Neurofeedback> > Eight months ago, on May 1, 2011, I posted here as to how Neurofeedback> was proving to be the "cure" for me in regards to this dreaded> condition, referred to as Misophonia. I wrote of some extraordinary> "successes" I was having at the time, and I wrote, "I do not> know if this is the "cure" for all others on this site. I do> know what it has done for me so far … it's given me the first> real hope in defeating this after 45 years of anguish." You can> read my original post if you go to where it says message # at the top of> this page, and put in 20318 (do not use a comma in the number). The> positive progress I had recorded up to that time

was after 24 sessions> with a Neurofeedback (NFB) practitioner, and I told of our plans to> start our 15 year-old son with NFB who also has Misophonia. To my> disbelief, there was response from just two people on this site. That> is why I decided to post under the heading "The Cure" in hopes> of gaining everyone's attention.> > Neurofeedback has worked for both my son and me. I will stress that I> suffered with this Misophonia condition for 45 years and to a degree> just as strong as relayed by any of the messages posted on this site. > Both my son and I have also dealt with various symptoms of OCD, which> both my NFB Doctor and I feel that this condition is an element of. I> have read past arguments of those that don't consider this OCD as> they don't exhibit the "recognized" or usual symptoms, or> have an official diagnosis of OCD thru the "main

stream"> physicians. Since I have not heard of others being treated successfully> thru other means, I believe my NFB Doctor and I have earned the> credibility in referring to this condition as an element of OCD.> > If there were a rating system developed, both my wife and I would put me> at a strong 90 to 95% improvement from where I was several months ago. > I would be at the 100% level as far as the total absence of the anger> that is instantaneously present when Misophonia sufferers encounter a> "trigger." With some of the "successes" I am enjoying> my wife tells me that, "You are completely cured." But I> don't accept that quite yet as there are a couple elements that I> still notice, although ever so slightly. The terrific part of NFB is> that although there may be an "ebb & flow" of reactions during> treatment as improvements are made …

improvements realized are> permanent. Even more promising are studies that have shown that even> when NFB sessions are stopped, subtle improvements are still recognized> months later. Our son we would put at an 80% improvement level. > Possibly we could rate him higher yet on that scale but with people that> age it can be difficult to determine if some actions are unrelated to> this condition and rather just the normal teenager hormones to be dealt> with. He also started with more profound "recognized" and> typical OCD symptoms than what I did.> > > > In addition, my higher rating of improvement can be attributed to my> having a total of 112 NFB sessions so far versus my son's 64> sessions. With saying that I want to stress at this point not to let> the number of sessions and the related costs deter you. I pointed out> in my original post that

I paid $4,100 for my initial 40 sessions along> with a beginning and ending QEEG. At the end of the initial 40> sessions, both for myself as well as my son, my wife and I agreed that> both of us had achieved a 60-70% improvement for our Misophonia versus> our pre-Neurofeedback condition. Imagine how different your life would> be, or that of your child, if you/he/she were rid of 60-70% of the> triggers and anger … actually more on the anger as most of that> leaves completely and is the most pronounced effect first realized. > Although our lives would have been so much more enjoyable even if we had> stopped after the initial 40 sessions, we made the decision to strive> for perfection and be cured completely. My son has never complained one> time with going to the 64 sessions as he continues to realize the subtle> improvements he continues to make.> > Our

NFB practitioner will be starting with the use of a program called> the LORETA in another 3 weeks. The LORETA, which he will incorporate in> every third session, is like a mini-QEEG, a functional imaging technique> that looks directly at brain activity in "real time." The data> to date is showing the use of the LORETA enables one to treat at a more> successful rate … at a quicker pace … and for more conditions! > Naturally we are excited about this as we feel that he will be able to> identify and treat those last stubborn areas of our brains.> > Over the last several months I have compiled nearly 80 pages of a> journal chronicling the progress we have achieved thru Neurofeedback. I> am working on condensing this material to a version that I can post at a> later date so others may identify with situations we have encountered> with triggers that have resulted in

"successes" with a> non-reaction and no anger present. In addition, our Doctor will be> putting together a report for the Neurofeedback Journal and profession,> along with my input from a patient's perspective, regarding> NFB's success with treating Misophonia.> > I am going to add a disclaimer to my post. All brains are different,> and some people may not respond favorably to Neurofeedback, there are no> guarantees. But, we are not the only people with this condition that> have experienced success with Neurofeedback. My Doctor recently learned> of an NFB practitioner in Texas that had posted on a professional online> forum asking if anyone had experience in treating Misophonia. This> practitioner initially started seeing someone for ADD, but then this> patient's parents educated him on the Misophonia their child had. > Some time had elapsed and he posted a

second time telling that he was> having success with diminishing the Misophonia triggers.> > For those of you that contact a Neurofeedback practitioner and proceed> with sessions, I will offer this advice … Do not monitor all of the> posts on this site closely. I say this because of the number of posts> where people are venting and telling of new and different triggers that> outrage them. There have been arguments on this site in the past as to> if the venting is helpful. I am not entering into that argument but> rather just giving you advice on an observation that my Neurofeedback> Doctor, my wife, and I all agree on. We feel there is the possibility> of one developing new triggers they have not experienced before when> reading of them thru the venting on this site. We base this on the fact> that neither my wife, nor my Doctor, ever realized the manner in

which> people chew gum until coming in contact with me. It was simply> something they were not conscience of. But now they both notice if> people chew their gum or food in an obnoxious manner. It does not cause> them to get angry, but they do notice it now as readily as a Misophonia> victim does. For this reason I scan the headlines on this site but do> not read any postings that appear to be from someone venting or telling> of new triggers.> > I intend to stay anonymous on this site as well as in any subsequent> article in the NFB Journal. If it was just me I would have no issue> with using my real name. But I will not take the chance of subjecting> my son to ridicule from his peers if our identification were known and> talked of openly on this site, on a Facebook page, or in the media. > Please respect this. We all know that if we told acquaintances we

had> ADD … they would have compassion for us. If we told others that we> had depression, or bipolar … we would be shown compassion. In fact> if we say, as my Doctor and I maintain, "I have an element of> OCD" … we will be looked upon with compassion. But to tell> someone of Misophonia and its triggers & anger … will most often> bring us ridicule and mean spirited provoking.> > We live in Eastern Iowa so those of you that are close in proximity may> send an email to my Yahoo Mail account and I will respond with the name> of my Neurofeedback practitioner. For everyone else, please respect the> fact that my Doctor cannot accept the several calls that could inundate> him from those looking for referrals. He will not make referrals but> would be glad to accept a phone call or an email from NFB practitioners> in regards to protocol. My Doctor strongly

suggests that one go to the> website www.bcia.org <http://www.bcia.org/> to find a practitioner in> your area and to make sure that they are specifically accredited for> "BCN." Another valuable website is the International Society> for Neurofeedback & Research at www.isnr.org <http://www.isnr.org/> . > At this time the practitioner listing section of this site is down so> check back.>