Re: Cross post: Petite Mal Seizure

July 27, 2006

I'd look at getting him an EKG as soon as possible to " rule out " (or in)

seizures.

Is he on Taurine?

Cross post: Petite Mal Seizure

Hi all,

I have observed now for a bout a week what I believe to be petite mal

seizures. It first it started buy few seconds of gazing like he used

to do before GFCF and I thought it could be caused by yeast over

growth and bad bacteria which he has been struggling with for over a

month. To treat that we first approached natural remedies but since

progress was slow have switched to Rx antibiotics and Nystatin. I

also have observed now quite frequently pressing of his eyelids and a

little shaking of his head with a second of disorientation. This has

been happening more and more lately some times 5-6 times back to back

within a two minute period. It is just like the seizure episode shown

in the video of Stan Kurt's son which is posted on testimonial page

of generation rescue.

I really don't know what I should do. I'll see my son's ped (a

sympathetic and DAN protocol aware dr) on august first and will

notify his DAN soon.

Is this could be viral related? I am waiting for the antibiotic

course to end in order to start LDN and if that doesn't work, give

Valtrex a try.

I recently noticed that my son has been given MMR and Varicella on

the same day, most likely a combined shot. I am really worried as we

had a honeymoon period at the start of DAN and that all now has ended

for the past 3 months.

Those of you who have dealt with seizures before, could you please

tell me what I need to do.

Thank you,

Haleh

July 27, 2006

Haleh,

Our daughter has absence seizures. She has staring spells that last up to 10

seconds. She was diagnosed when she was three and was prescribed Depakote. She's

almost 12 now. She tried several medications and this one worked. She took

Depakote for 8 years and was recently switched to Keppra about 7 months ago.

Keppra does not control the spacing out as well as Depakote but it isn't

chemically as hard on her body. I found that certain fat soluble substances

trigger the spells. Even Primal defense which is metabolized using short chain

fatty acids will cause her to space out. Most people give their children a

couple of scoops per day - I can only give our daughter 1/4-1/2 scoop. Vitamin E

and D - fish oil and too much carnitine cause her to space out. We've gone

through so many genetic fatty acid testing - bottom line is that she's missing

certain enzymes in the " chain " and she can't metabolize certain fatty acids very

well.

I'm so sorry you're dealing with this. It's heart breaking to watch your child

space out or become unaware of his surroundings. It's just awful. Keep looking

for triggers - they may be from the day before. We ran an 8 hour EEG on our

daughter in December. It consisted of a video tape, monitor, and brain wave.

After all of that - she's still taking the same medication. But, the neurologist

wanted to prove that carnitine was a trigger. We gave our daughter the

prescribed amount of Carnitor and it was just terrible. So, carnitine helps our

daughter in " little bitty " amounts but is detrimental in large amounts. Vit.E is

the same way - she loves V8 juice but if she drinks it -she will space out. The

only form of A she can tolerate in very small doses is Micel A.

Shari