Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 {{{{{{{{Dawn}}}}}}}} All so well said, and so very understandable. Hugs, Challis I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase." There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 {{{{{{{{Dawn}}}}}}}} All so well said, and so very understandable. Hugs, Challis I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase." There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 {{{{{{{{Dawn}}}}}}}} All so well said, and so very understandable. Hugs, Challis I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase." There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Dawn, The first few months are tough. Just remember that so much of fighting MS is in the attitude. You read the posts here –lots of humor and support. Rick is lucky to have a great Mom that cares and supports him. Don’t forget yourself---do something fun—go out, see a movie, laugh with friends. Life is not only about MS. It is only part of who we are… Connie From: MSersLife [mailto:MSersLife ] On Behalf Of dawnarie4 Sent: Wednesday, November 02, 2005 7:28 PM To: MSersLife Subject: Sorry I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase. " There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Dawn, The first few months are tough. Just remember that so much of fighting MS is in the attitude. You read the posts here –lots of humor and support. Rick is lucky to have a great Mom that cares and supports him. Don’t forget yourself---do something fun—go out, see a movie, laugh with friends. Life is not only about MS. It is only part of who we are… Connie From: MSersLife [mailto:MSersLife ] On Behalf Of dawnarie4 Sent: Wednesday, November 02, 2005 7:28 PM To: MSersLife Subject: Sorry I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase. " There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Dawn, The first few months are tough. Just remember that so much of fighting MS is in the attitude. You read the posts here –lots of humor and support. Rick is lucky to have a great Mom that cares and supports him. Don’t forget yourself---do something fun—go out, see a movie, laugh with friends. Life is not only about MS. It is only part of who we are… Connie From: MSersLife [mailto:MSersLife ] On Behalf Of dawnarie4 Sent: Wednesday, November 02, 2005 7:28 PM To: MSersLife Subject: Sorry I'm sorry that I haven't posted in quite awhile. The first week went thru my " This wasn't my plan when I had children, Lord phase. " There was about 2 weeks after Rick was diagnosed I couldn't look at much that had to deal with MS. I just couldn't deal with much. And then we had the craziness with the insurance company. A week ago Rick's neurologist called the medical director of Rick's insurance carrier. I guess it was a long, loud argument where his neuro had to finally relented and let Rick be on the Avonex. Then we wait another week for approval, which didn't come in a phone call so it would be faster, no, it came in a letter and to my ex-husband instead of Rick! But here we are now. Waiting for the medication to come to the pharmacy which hopefully will be on Thursday. I'm still coping with the fact that Rick has MS, I guess I'm coming to except it. Now and even those first few weeks when I was telling God this wasn't my plan for my kids, I would right away remind myself that God's plan is much better than my own. We just don't see it/know it yet. I still cry, just not as often. I am still waiting to hear from the Rebif company to see if Rick can get that through them. I've read good things about Rebif and it is a newer drug than Avonex. But, God wanted him on the Avonex for now. Things will work the way they are suppose to. The insurance will be another issue come in a couple of years. I'm not going to presue that avenue just yet. I have a little bit of time. That's what has been going on. I post things off and on. It's that busy time of year at school and it will be Christmas break before I know it. You are all in my prayers. ~hugs~ Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 That link to candobooks...... only lets you write an email. I will ask Amy if they are going to put up a web site. I will get her information about the book and get it posted. Sorry, I thought that was a web page. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Quote Link to comment Share on other sites More sharing options...
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