Re: 20/20 Dateline Show is happening on Misophonia

[Guest guest]

Dr, Marsha ,

My personal thank you for focusing and gathering data to define

these issues of " personality annomalies " .

I have too much on my plate at the time to be of any assistance.

One focus group is " genius minds " ...highly creative...high IQ

I can attest to sounds during moments of concentration..

will " trigger " these type of people...to respond more than normal.

I was part of an informal group about 20 years ago with the criteria...

classified as " child prodigy material by age 12 "

We discussed this subject of sound reactions at length...

and assumed it had no real definition or understanding.

We concluded when the " creative genius part of the mind "

when surpressed for too long...

makes these " quirks become more amplified "

until some manner/excercise of release/recognition occurs.

We did observe this behavior in several cases...

as symptoms would come and go...almost at random.

The most remarkable scenario I have ever observed...

a three year old girl...born with " Roazanne Bar " attittude...

(that is best description)

and by chance/accident she heard French Opera on the FM radio.

In 5 seconds she calmed to normal 3 year old behaviour.

Whe the " Rozanne Bar " attitude returned in about a week....

10 minutes of time out with French Opera...would " reset her "

The family..parents and grandparents...did NOT watch the program

From before the day she was born.

They were able to contact an excellent therapist...if only to

observe and document the child.

Your projected goals...are " admirable and noble "

I hope it does NOT over-whelm you and other staff members.

W Hull

Founding Father of The Hull Effect Technology

>

> Neurofeedback is still on the examining table as far as I know. All viable

routes must be explored and thoroughly evaluated.

>

> We need to talk here about forming an organizing or welcome committee as this

site will be slammed again.

>

> We need to form up a group to make a 501 C 3 called Misophonia Association,

Inc. to handle the future of this field. This will require funding and superior

management from a business point of view.

>

> We would need then, an executive board of directors to help manage the new non

profit.

>

> The goals:

>

> support

> education

> awareness

> research

>

> A complicated series of actions must begin, here, with the good will of

everyone and the financial support to make it happen.

>

> This is a critical step in our work, who shall step forward to do it who has

expertise and time?

>

> I know how to set up non profits.

>

> The time is now.

>

> Dr. Marsha , Audiologist

>

[Guest guest]

I have been away for a few months (we had to move) and this was the first post I

saw upon coming back and I am completely thrilled with this news! Thank you!

>

> Thanks to everyone who has been helping with furthering this process, we are

now set to film in March and the show will run in April.

>

> We will need to think here:

>

> 1) how to handle the influx of new members?

>

> 2) how to help people make their way around to qualified providers?

>

> Please note I have added 2 more professionals to the

www.misiphonia-provider.com list, one in Colorado and one in L.A. area.

>

> We exploded from about 1300 to what we have now since September 2011 due to

the Today Show (brief segment) and the NYT article.

>

> Dateline is Prime-tiume. Many millions of people will watch this show and we

have some members here who will be profiled.

>

> We want also to have some patients who are going through or who have gone

through the Misophonia Management Protocol (MMP) at one of our centers, to

showcase the fact that there is HELP and TREATMENT available.

>

> So there we go....

>

> I am heading to NYC probably middle of March.

>

> Dr. Marsha , Audiologist

>