Re: New member - questions

[Guest guest]

It does, but it contains more people who deal with Tethered Spinal Cord

directly themselves. However, we welcome anybody who has to deal with

Tethered Spinal Cord in some way. And I am sure we all think from time to

time that it would be nice to get the number of people in each category

evened out, that way we can all learn from eachother.

As I told you on the other List that we are both on........Urological

Symptoms don't always show up first, and sometimes they don't show up at

all. It's common for it to be the first Symptom, but it isn't always that

way.

I think you will learn much here.

Me

mymocha@...

> I have a son who has spina bifida and I'm wondering if this list contains

parents of other children with SB and/or tethered cord?

>

> The NS I had seen first, had suggested I mention it to the ortho - I

mentioned possibly tethered cord creeping in??? He didn't seem too

concerned about that. He said urologically he'd show changes first if it

was TC.

>

..

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[Guest guest]

It does, but it contains more people who deal with Tethered Spinal Cord

directly themselves. However, we welcome anybody who has to deal with

Tethered Spinal Cord in some way. And I am sure we all think from time to

time that it would be nice to get the number of people in each category

evened out, that way we can all learn from eachother.

As I told you on the other List that we are both on........Urological

Symptoms don't always show up first, and sometimes they don't show up at

all. It's common for it to be the first Symptom, but it isn't always that

way.

I think you will learn much here.

Me

mymocha@...

> I have a son who has spina bifida and I'm wondering if this list contains

parents of other children with SB and/or tethered cord?

>

> The NS I had seen first, had suggested I mention it to the ortho - I

mentioned possibly tethered cord creeping in??? He didn't seem too

concerned about that. He said urologically he'd show changes first if it

was TC.

>

..

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.377 / Virus Database: 211 - Release Date: 7/15/2002

[Guest guest]

It does, but it contains more people who deal with Tethered Spinal Cord

directly themselves. However, we welcome anybody who has to deal with

Tethered Spinal Cord in some way. And I am sure we all think from time to

time that it would be nice to get the number of people in each category

evened out, that way we can all learn from eachother.

As I told you on the other List that we are both on........Urological

Symptoms don't always show up first, and sometimes they don't show up at

all. It's common for it to be the first Symptom, but it isn't always that

way.

I think you will learn much here.

Me

mymocha@...

> I have a son who has spina bifida and I'm wondering if this list contains

parents of other children with SB and/or tethered cord?

>

> The NS I had seen first, had suggested I mention it to the ortho - I

mentioned possibly tethered cord creeping in??? He didn't seem too

concerned about that. He said urologically he'd show changes first if it

was TC.

>

..

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.377 / Virus Database: 211 - Release Date: 7/15/2002

[Guest guest]

Hi Dolores,

I have not had PG, but from reading a LOT about both EN and PG it seems that

many if not most of those with PG once had EN. Both EN and PG are associated

with Inflammatory Bowel Disease. PG is so much worse than EN, so I hope you are

being aggressive in getting the best care you can to get it under control.

Sometimes it takes a lot of trial and error to find what works best.

Wishing you and the Group a Happy Weekend.

Love,

http://poems2order.wordpress.com

>

> I have ulcerative colitis and other connective tissue diseases and have

developed EN and PG. I'm wondering if others have both erythema nodosum and

pyoderma gangrenosum?

>

[Guest guest]

I have ulcerative colitis and other connective tissue diseases and have developed EN and PG. I'm wondering if others have both erythema nodosum and pyoderma gangrenosum?

[Guest guest]

My dermatologist is taking very good care of me and yes, we are trying

many avenues.

dolores