How do I go about getting an official diagnosis?

[Guest guest]

.....if that is even possible.

My problem right now is that I have an appointment coming up for a program to see if I qualify for a grant for college. The program assists individuals with "disabilities". This includes physical, mental, and learning disabilities. I wouldn't exactly call 4S a disability, but I would say that it is a disorder that affects one's ability to function normally in a work/school enviroment on a day to day basis. I think it best fits under the category of a 'Sensory Disorder.' I'm afraid that they won't be able to help me, or recognize my condition because it is so unheard of. I'm supposed to bring documentation and medical records proving my "disability." Since doctors have never understood my symptoms/triggers, they've always associated it with some sort of psychological problem. I have "general anxiety disorder" listed on my medical record from when they decided to put me on Prozac and that's about it. After I found out that there was a name for this, which wasn't until I was 15, I would mention it to my pediatrician and even though they seemed to agree with me, I never felt that they took my self-diagnosis seriously. I had gone to a Cognitive Behavioral Therapist for a few visits and had a simple evaluation done, but I also felt like this woman had only agreed with me about my condition rather than confirming that I indeed did have this specific disorder. All I want is confirmation. I don't even care if I don't recieve funding from this program. If they deny me I'm still going to go after this. I just need the peace of mind knowing that someone has taken me seriously for once in my life about this very real thing that so many of us suffer with every day. I want to know what I have to do to get a piece of paper that says that I have been diagnosed with a sensory disorder called Soft Sound Sensitivity Syndrome, also known as Misophonia, also known as STOPCHEWINGYOUREFFINGGUM Disorder, whatever. I want to add myself to the listed of confirmed cases so that one day it will be recognized. I'm actually considering flying out to Portland one day to see Dr. J, unless I can find someone closer to me. I must say though, it would be an absolute honor to meet Dr. J.

[Guest guest]

Hi le, There isn’t a diagnostic code specifically for the word “misophonia”, however there is a code which covers sound sensitivity – it’s 388.42. Maybe you can get an official diagnosis with that code from your doctor, especially in combination with the General Anxiety Disorder. BTW, my son is “officially” disabled with a diagnosis of both Anxiety Disorder and OCD (but not 388.42, although that should be added), so it may be enough with just the General Anxiety Disorder to be considered having a disability, especially with the history of treatment specifically for that. The 388.42/Sound Sensitivity diagnosis certainly seems like it could go hand-in-hand with the anxiety though. I hope this helps, at least somewhat. Good luck with getting the grant! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of leSent: Tuesday, March 20, 2012 8:12 PMTo: Soundsensitivity Subject: How do I go about getting an official diagnosis? ....if that is even possible. My problem right now is that I have an appointment coming up for a program to see if I qualify for a grant for college. The program assists individuals with " disabilities " . This includes physical, mental, and learning disabilities. I wouldn't exactly call 4S a disability, but I would say that it is a disorder that affects one's ability to function normally in a work/school enviroment on a day to day basis. I think it best fits under the category of a 'Sensory Disorder.' I'm afraid that they won't be able to help me, or recognize my condition because it is so unheard of. I'm supposed to bring documentation and medical records proving my " disability. " Since doctors have never understood my symptoms/triggers, they've always associated it with some sort of psychological problem. I have " general anxiety disorder " listed on my medical record from when they decided to put me on Prozac and that's about it. After I found out that there was a name for this, which wasn't until I was 15, I would mention it to my pediatrician and even though they seemed to agree with me, I never felt that they took my self-diagnosis seriously. I had gone to a Cognitive Behavioral Therapist for a few visits and had a simple evaluation done, but I also felt like this woman had only agreed with me about my condition rather than confirming that I indeed did have this specific disorder. All I want is confirmation. I don't even care if I don't recieve funding from this program. If they deny me I'm still going to go after this. I just need the peace of mind knowing that someone has taken me seriously for once in my life about this very real thing that so many of us suffer with every day. I want to know what I have to do to get a piece of paper that says that I have been diagnosed with a sensory disorder called Soft Sound Sensitivity Syndrome, also known as Misophonia, also known as STOPCHEWINGYOUREFFINGGUM Disorder, whatever. I want to add myself to the listed of confirmed cases so that one day it will be recognized. I'm actually considering flying out to Portland one day to see Dr. J, unless I can find someone closer to me. I must say though, it would be an absolute honor to meet Dr. J.

[Guest guest]

We are directing people to

www.misophonia-provider.com

[Guest guest]

There are probably only a select few in this group lucky enough to live near one of the providers listed. What about the rest of us? To: Soundsensitivity Sent: Thursday, March 22, 2012 1:48 AM Subject: Re: How do I go about getting an official diagnosis?

We are directing people to

www.misophonia-provider.com