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It makes it worse for me because it tires my body and anytime I'm tired the miso is worse. I avoid it and processed foods. HeidiSent from my iPhone

Any wisdom on sound sensitivity and sugar intake?

Anne

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I would imagine the sugar intake would be a natural...being made tired when you come down from any sugar intake you are too tired to fight the agitations and frustrations of the miso.

To: Soundsensitivity From: heidi@...Date: Wed, 14 Mar 2012 08:20:42 -0700Subject: Re: Sugar and sensitivity...

It makes it worse for me because it tires my body and anytime I'm

tired the miso is worse. I avoid it and processed foods.

HeidiSent from my iPhone

Any wisdom on sound sensitivity and sugar intake?Anne

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But why, *why* does sugar have to taste *so* good?Removing that from my diet would take more will power than I think I could muster :-p To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, March 14, 2012 8:20 AM Subject: Re: Sugar and sensitivity...

It makes it worse for me because it tires my body and anytime I'm tired the miso is worse. I avoid it and processed foods. HeidiSent from my iPhone

Any wisdom on sound sensitivity and sugar intake?

Anne

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I don't get tired just coming down, it makes my body work too hard after eating it which is what I mean by tired Sent from my iPhone

I would imagine the sugar intake would be a natural...being made tired when you come down from any sugar intake you are too tired to fight the agitations and frustrations of the miso.

To: Soundsensitivity From: heidi@...Date: Wed, 14 Mar 2012 08:20:42 -0700Subject: Re: Sugar and sensitivity...

It makes it worse for me because it tires my body and anytime I'm

tired the miso is worse. I avoid it and processed foods.

HeidiSent from my iPhone

Any wisdom on sound sensitivity and sugar intake?Anne

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I hear ya! I too love it. I give my self the birthday and ocassional holiday treat of it (and endure the resultant headache) and that's it. Here's why it tastes is good and why it's hard to give up:Sugar the Bitter Truthhttp://youtu.be/dBnniua6-oMand a story that appeared about it in the NY Timeshttp://www.nytimes.com/2011/04/17/magazine/mag-17Sugar-t.html?_r=1 & scp=2 & sq=sugar%20 & st=cseHeidiSent from my iPhone

But why, *why* does sugar have to taste *so* good?Removing that from my diet would take more will power than I think I could muster :-p To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, March 14, 2012 8:20 AM Subject: Re: Sugar and sensitivity...

It makes it worse for me because it tires my body and anytime I'm tired the miso is worse. I avoid it and processed foods. HeidiSent from my iPhone

Any wisdom on sound sensitivity and sugar intake?

Anne

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I too saw the information from Dr Lustig. It got me thinking about how my nine

year old son (the one with the sound sensitivity) is absolutely addicted to

sugar. I made sure he had no candy, juice, yogurt, or popsicles (his prime

sugar sources) yesterday and today and he has been much much better. Not sure

if it is some other factor, but I think sugar may make it much worse. I have

heard that sugar can negatively effect the central nervous system. Senses,

including hearing, are controlled by the central nervous system. So, there

could be a connection.

@ Chris....I would think that anyone who craves and eats a lot of sugar and has

a sound sensitivity should at least try going off of sugar for a week. What's

the worst thing that could happen? BTW, you can eat fruit b/c it has fiber and

will slow sugar intake and you metabolize it normally...it is added sugar you

want to avoid.

Anne

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I took my daughter off sugar a year ago. Blogged about the expeirence and the remarkable change in behavior, seriously astonishing in a very positive way. I think about all the kids diagnosed with ADD and Bipolar who may just be reacting negatively to the massive amounts of sugar we consume. I read ALL labels. Look even at bread and fish sticks. Fruit ok, everything else not. We even avoid honey and agave although we use the Agave from time to time for special treats. I make hot cocoa from scratch with Stevia on Christmas etc. It's sad that parents fill their kids up with sugar, then punish them for the behavior the sugar is causing. Makes me sad to think about. But given my daughter's Dad has severe ADD and me with sound sensitivity, I'm going to help out her central nervous system as best as I can and eliminate that which I know first hand makes it worse. Sent from my iPhone

I too saw the information from Dr Lustig. It got me thinking about how my nine year old son (the one with the sound sensitivity) is absolutely addicted to sugar. I made sure he had no candy, juice, yogurt, or popsicles (his prime sugar sources) yesterday and today and he has been much much better. Not sure if it is some other factor, but I think sugar may make it much worse. I have heard that sugar can negatively effect the central nervous system. Senses, including hearing, are controlled by the central nervous system. So, there could be a connection.

@ Chris....I would think that anyone who craves and eats a lot of sugar and has a sound sensitivity should at least try going off of sugar for a week. What's the worst thing that could happen? BTW, you can eat fruit b/c it has fiber and will slow sugar intake and you metabolize it normally...it is added sugar you want to avoid.

Anne

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Thanks Heidi. I will continue down the no sugar and whole foods path for my

son. I don't even like sweets so it is easy for me. How does your daughter do

at school or at her friend's houses regarding sugar? Do you ask other parents /

teachers not offer her sugar or does she decline? Does she occasionally have it

when offered on special occasions?

Also, do you eliminate white flour products that tend to spike blood sugar

levels. Dr. Lusting doesn't seem to be concerned with those so much.

Anne

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Thanks!

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" Any wisdom on sound sensitivity and sugar intake? " -Anne

I have ADHD, an I basically need suger and caffine(caffine by itself has little

effect) when I'm studying, otherwize I ware out way to quick. My father is a

diabetic, so I know I should quit, but Darwin help me, my inherited traits keep

me craving sugar. It's the best thing ever, plus it gives me more energy; and

for some reason, I rarely have sugar crashes. At any rate, there have been

times when I haven't had sugar for a while, and my misophonia doesn't seem to

get any better.

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Hi Anne,

I don't know if it amounts to wisdom, but it's my experience, anyway . . .

Sugar makes or breaks me. The difficulty was learning that almost all sugars

are a problem, not just the snacks and sweetened drinks and added sugars etc.

Fruits, breads, potatoes, even dairy (lactose) make a major difference, and it

goes back to what I ate the day prior. When I skip all sugars, I usually can

survive the next day intact. But if I have something like pizza or pasta or

white potatoes for dinner, or if I have ice cream, or chocolate or other sweets

in the evening, then the next day is sure to be an auditory nightmare. In the

morning, any bread like a bagel or breakfast sandwich, or fruit juice, or maple

syrup, or potatoes will guarantee a bad day.

Even the lactose in milk & cheese seems to aggravate things. I narrowed my

morning food to eggs & cheese (I included some cheese not even thinking of the

lactose content). But after trying it many times with cheese, and many times

without, I can't avoid the reality that the eggs help a lot, but adding cheese

undoes some of the benefit. Same with milk. I figured milk is a good protein

source, and since protein should help reduce sugar cravings, milk would help.

But (in my case at least) there's a trade off between the benefit of the protein

and the drawback of the lactose.

Now I'm back to just eggs, and it's easy to skip the cheese by thinking of the

difference it makes for my miso experience. I can better tolerate more of the

day's noise. I still hear it, but it's less enraging . . . I can stay collected

and calmly leave a room where someone is eating chips, whereas with sugar in my

system, the same scene would make me lose my marbles in a flash. A day with

sugar is sure to involve the quick-rising anger that's so common with miso. But

without sugar, I go whole days without the anger. Whatever causes the

misophonia appears to be seriously amplified by the sugar. I won't be surprised

if we find that a root cause is sugar . . . by its action on the nervous system,

or the brain, or the afferent/efferent auditory paths, or whatever. We're just

inundated with sugar, like never before in history, and misophonia may be

another natural result of sugar overload in our bodies. Sorry . . . . tangent .

.. . re-focusing now . . .

When I'm keeping on track (which is not always . . . but each slip-up results in

a clear reminder in the form of a bad miso day, so I'm learning), dinner is

vegetables, brown rice, etc - no pasta, no bread, no potatoes, etc I've found I

can have some juice, berries, etc the evening before, with some yogurt or kefir,

without too much problem the following day.

For me, the key to cutting the sugar has been stevia. I've tried honey, agave,

syrup, brown rice sweeteners, etc, and they all affect me like sugar (to lesser

degrees, but there's still a clear effect). Stevia is very sweet, and it's an

herb, so (again, speaking for myself anyway) I don't get any of the amplified

audition, nor the amplified rage, that I get with sugars. If you try stevia,

I'd suggest to be sure to use stevia products that are labeled 'alcohol-free' .

.. . some stevia is produced with an alcohol base, which would of course defeat

our otherwise valiant efforts to eliminate sugars. (If you can appreciate the

irony in that, congrats . . . I consider it proof we still have a sense of

humor).

I also drink lots of plain tea, sweetened with stevia, often starting first

thing in the morning. Not sure how I'd stay awake without the caffeine, and at

times I do reach for caffeine and sugar (I usually wish I hadn't). But for

energy throughout the day, tea with stevia has usually worked for me.

It may be that I just have sugar issues (gee, ya think?). But I do wonder how

other people's miso is affected by sugar, and I'm glad you the posted the

question and prompted some replies.

Mike

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> Any wisdom on sound sensitivity and sugar intake?

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I agree with Mike. Sugar definitely heightens my Misophonia, not to mention

makes me more anxious, jumpy, nervous and irritable. A couple of years ago I

went on the " yeast free diet " -- no sugars whatsoever. No fruits, no dairy, no

gluten/wheat/yeast. I felt a MILLION times better. Unfortunately, I only lasted

2 weeks on the diet before my sweet tooth broke me down. However, it did have

lasting effects in weaning me off of sugar. During that time I tried a few

pieces of yellow squash and they were like the sweetest thing I'd EVER tasted.

Squash?!

But anyway, I didn't feel like my Misophonia symptoms went away completely. But

now that Mike mentions potatoes, I didn't stop eating white potatoes - do they

contain sugar?? So maybe I wasn't getting the full benefits of the diet. I'd

like to try it again without the potatoes this time, but I have such an

addiction to potato chips and french fries I don't know if I could do it!!

Someday soon I'll try it out again and report my results. Even now, after almost

three years, I still don't like to eat sweets as much as I was eating them

before the diet. I can eat about 5 bites of ice cream before I realize that's

too much sugar for me. Slowly my addiction is creeping up on me again though...

Jami

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Why is it that even among my own people(misophonics) I'm about as different as I

can freakin be? I'm probaby the only one here who need's sugar to function, it

doesn't effect my misophonia, and I'm not bothered by eating noises, just

instrusive noises in general. Yet I know I have misophonia because I've lost the

ability to tune noises out, and I respond with horrable rage. I'd like to find

others like me, but even here I feel truely isolated.

I'm so used to life reminding me of this all the time, that even if somebody did

come out with a cure for misophonia, I'm very doubtful that even it would even

work on me; there's no telling what in the hell is wrong with me (forgive me for

complaining, I just felt like getting that off my chest).

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Thanks Mike. I think sugar is a big contributor for my nine year old son. I

appreciate your comments and will share your experience with him so he might be

motivated to watch it when I am not there controlling what he eats.

Anne

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Hi Jarred,

I might understand your frustration. Then again, I might not . . . I won't

presume to know your situation. But I'll share this in case it has any value

for you (even if just entertainment or commiseration value).

My realization about sugar came after years of feeling like I couldn't cut back

on it, & certainly couldn't give it up. I needed it to function. And I just

kept getting more and more exhausted, so I kept going for more sugar (and

caffeine). Once in a while I'd skip soda for a day, with no noticeable change

in my noise issues, and then I'd tell myself I tried cutting back on sugar, and

it didn't make a difference, so I'd go right back to the soda. I ignored the

fact that I was still getting all sorts of other sugar, and not much in terms of

nutritious food, and one day was probably not enough time for my body to adjust

to less sugar anyway.

My body would send me signals like 'I'm hungry,' but it really just wanted more

sugar to feed the out-of-control (yeast, bacteria, etc) that demand ever more

sugar. I would need sugar in order to be 'up' - alert, attentive, etc - but

after the few minutes of the sugar rush, I'd crash, and naturally I'd seek more

sugar. If I didn't get more sugar, I'd feel even worse. So I just kept up a

pretty constant stream of sugar. I was always exhausted. Even after sleeping,

I'd wake up exhausted and go downhill from there. It's probably fair to apply

terms like addiction, withdrawal, and denial to my experience with sugar . . .

it's a chemical dependence.

Once I was able to bring the sugar somewhat under control, I was more balanced.

The energy from other sources (protein, caffeine, complex carbs, etc) was

steady, rather than the high followed by the crash and the constant need for

more sugar. Sleep was more restful, and I felt more clear . . . like moving

along at a healthy, sustainable pace, not jazzed from a high, not dragging from

a crash . . . just more balanced.

The thing that finally opened my eyes about the sugar and the noise was the

realization that some of my worst responses to noise came pretty soon after

eating something with sugar in it. Rage, fight/flight, total hopelessness,

feeling like a caged animal locked up with horrific noises and no escape, the

complete desperation of not being able to change it or make it go away . . .

those responses were happening most often, and most intensely, after I ate

something with sugar - a bottle of sugared tea, a couple bites of chocolate, a

piece of bread. For the longest time, the connection wasn't obvious (partly

because I didnt want to see it, I'm sure!) but also because I was constantly

taking in sugar, and I felt like I was constantly having the reactions, so there

were no isolated ah-ha moments as examples of sugar-in and rage-out. But once

I made the connection, it became easier to see. I remember my last donut, which

was a chocolate-covered cream-filled sugar bomb, because I was a total basket

case for the next six hours. I started to think backwards from my rage . . .

'what did I eat? Oh, yeah, I had a cup of yogurt with sugar in it . . then

suddenly the noises around me (which were already difficult to handle) became

totally unbearable - someone walking through the room, a conversation, a radio

playing, a door closing - and the noise took over my existence.' It's as if the

sugar elevated my auditory sense from " high " to " !!Emergency!! "

Anyway, I don't know if this relates to your situation, but I hope it's of some

use to you.

Mike

-- In Soundsensitivity , " whatismisophona "

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> Why is it that even among my own people(misophonics) I'm about as different as

I can freakin be? I'm probaby the only one here who need's sugar to function, it

doesn't effect my misophonia, and I'm not bothered by eating noises, just

instrusive noises in general. Yet I know I have misophonia because I've lost the

ability to tune noises out, and I respond with horrable rage. I'd like to find

others like me, but even here I feel truely isolated.

> I'm so used to life reminding me of this all the time, that even if somebody

did come out with a cure for misophonia, I'm very doubtful that even it would

even work on me; there's no telling what in the hell is wrong with me (forgive

me for complaining, I just felt like getting that off my chest).

>

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Thanks Anne, I hope it's useful for him. And I apologize for going on to the

extent I did . . . if I had paid a little closer attention to the other

responses to your post, I'd have seen you're well ahead of me and some of my

post was a bit redundant.

Anyway, for whatever the context is worth, my problems with noise started when I

was about his age. He's fortunate to have you helping him. Best of luck.

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Mike,

I told my son about you and he gave me a hug. He has gone along with the

removal of sugar from the house and you have helped validate our choice. He

likes to hear that he's not alone with this and that maybe he can do some things

to keep it under control. Thanks for sharing. I am interested in hearing from

anyone and everyone who thinks taking sugar and white flour out of the diet

might help. It is poison for everyone, but for some, it is just more obvious

that it needs to be removed. I'm glad you replied in detail and read your other

posts also.

Anne

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Thanks Jami. I don't know if I could ever get a 9 year old to stop eating all

of those things. We are working on curbing his sugar intake, but I have still

allowed fruit. he eats fruit all day long! Frozen blueberries especially.

Fruit is supposed to metabolize slower because of the fiber and does not poison

the system like added sugar. Maybe we'll try a period of time without any fruit

too. I am learning so much and appreciate your input!

anne

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Hi Anne,Raspberries and Blackberries are higher in fiber than most other fruits and therefore are metabolized more slowly so there’s not such a sudden and high jump in blood sugar. Those are the fruits most recommended for people on low-carb diets. There are so many good nutrients, antioxidants, etc. in fruits so it would be a shame to cut fruits out altogether. Blueberries have a little less fiber, but they are still one of the healthier fruits (tons of antioxidants), so maybe just eating the high fiber fruits in moderation might help without having to completely stop eating them. Just an idea … From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of ABSent: Wednesday, March 28, 2012 11:22 AMTo: Soundsensitivity Subject: Re: Sugar and sensitivity... Thanks Jami. I don't know if I could ever get a 9 year old to stop eating all of those things. We are working on curbing his sugar intake, but I have still allowed fruit. he eats fruit all day long! Frozen blueberries especially. Fruit is supposed to metabolize slower because of the fiber and does not poison the system like added sugar. Maybe we'll try a period of time without any fruit too. I am learning so much and appreciate your input! anne> > >> > > > > > Any wisdom on sound sensitivity and sugar intake?> > > > > > Anne> > >> >>

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I agree on the nutrients! Fruit is full of them and they are beneficial. I

hesitate to cut out such things in a child's diet because they need all of that

to grow and function. I say this as I am eating a bowl of blueberries. a

staple at our house. i will get some raspberries and blackberries too for my

son.

So far i can tell he is doing better by just taking a few items out of the house

that have high added sugar. The added sugar seems to make him nervous, and his

moods swing too far. He can't deal with it and if you add the misophonia in, he

is a wreck. It doesn't make the misophonia go away to take out sugar, but he

can more calmly handle the situations he does not like when he stays away from

added sugar. Overall, he then feels more successful and confident about

everything.

Anne

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I am a sugar addict. I have to have chocolate....I love cake, brownies, ice cream, but mostly chocolate and peanut butter. I eat it every night....I'm eating it right now! I totally get it. To: Soundsensitivity Sent: Monday, March 26, 2012 3:05 PM Subject: Re: Sugar and sensitivity...

Why is it that even among my own people(misophonics) I'm about as different as I can freakin be? I'm probaby the only one here who need's sugar to function, it doesn't effect my misophonia, and I'm not bothered by eating noises, just instrusive noises in general. Yet I know I have misophonia because I've lost the ability to tune noises out, and I respond with horrable rage. I'd like to find others like me, but even here I feel truely isolated.

I'm so used to life reminding me of this all the time, that even if somebody did come out with a cure for misophonia, I'm very doubtful that even it would even work on me; there's no telling what in the hell is wrong with me (forgive me for complaining, I just felt like getting that off my chest).

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" I am a sugar addict.  I have to have chocolate....I love cake, brownies, ice

cream, but mostly chocolate and peanut butter.  I eat it every night....I'm

eating it right now!  I totally get it. " -Alesia Poynter

Mike mentioned in message 25778 that he had to get rid of all suger, which would

basically be one of those impossible diets where you couldnt eat hardly anything

besides lean meat, vegetables(most), and dirt. I'm considering it, but I have

so little to look forward to in my every day life, that it would make sense if

fate told me I'd have to give up practically the only things I actually look

forward to (good food and beer) in order to 'potentially''reduce' my misophonia

a bit. It's like having to shoot one of your children in order that the other

one should live, even though he/she would stay perpetually sick, and may still

wind up dead too if you're unlucky. Eating less sugar is one thing, but giving

up all forms of suger is quite another. I have never done this, and I don't

know that I'm willing to. This may seem strange, but it's because my misophonia

is so severe that I'm having alot of trouble with this; the last thing that I

want to do is turn eating into an unpleasent experience when everything else is,

and I'm farely UNconfident that eating no sugar will fix me. Now, if I were

confident, that would be a different story.

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I'm also not bothered by eating noises. For a while this made me wonder if I didn't actually have misophonia (but everything else fits well enough I'm almost certain I do have it.)Also, I've become very sensitive to any sort of noise whatsoever, especially people talking in an adjacent room. It's not so much a "trigger" noise,but it makes it impossible to concentrate, and I build up a slow, steady anger instead of the immediate anger I get around a trigger noise (like whistling, which drives me instantly insane.)Additionally, I've noticed that many people with misophonia are able to have relationships (friends, partners, children, etc...)I had blamed my lack of success in this area at least partially

on misophonia, but I am starting to have my doubts.So, you are not alone in feeling alone :-)I don't know if this is anything like what you are experiencing. To: Soundsensitivity Sent: Monday, March 26, 2012 3:05 PM Subject: Re: Sugar and sensitivity...

Why is it that even among my own people(misophonics) I'm about as different as I can freakin be? I'm probaby the only one here who need's sugar to function, it doesn't effect my misophonia, and I'm not bothered by eating noises, just instrusive noises in general. Yet I know I have misophonia because I've lost the ability to tune noises out, and I respond with horrable rage. I'd like to find others like me, but even here I feel truely isolated.

I'm so used to life reminding me of this all the time, that even if somebody did come out with a cure for misophonia, I'm very doubtful that even it would even work on me; there's no telling what in the hell is wrong with me (forgive me for complaining, I just felt like getting that off my chest).

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Hi , Misophonia and other sound sensitivities have been found to be common in those with other disorders like OCD, ADHD, autism, Aspergers, and schizophrenia, however it can also occur without other disorders.  My son has OCD and misophonia, and I’ve often thought they were related, and they might be in his case, but it’s not the same for everyone.  So your misophonia may be related to OCD in your case, but you could also get varied opinions depending on which doctor or therapist you see since there doesn’t seem to be any conclusive information out there one way or the other. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Sent: Monday, April 02, 2012 9:14 PMTo: Soundsensitivity Subject: Re: Re: Sugar and sensitivity... I need sugar to function as well which I also though I was the only person like that. Also I remember reading something about OCDs and misophonia not being related? I think this is odd because I amImmediately angry when I hear chewing and swallowing or even sucking of teeth. Those drive me insane and I sometimes lash out. But I also have this thing were in the area I work it has to be neat I cannot have ANY clutter or I start feeling overwhelmed to the point of tears OR I get angry. Maybe I don't have misophonia maybe I am OCD or ADHD who knows but when I found this group i was instantly relived that I was not the only one who felt as I did about certain noises in daily life. Anyway I can't self diagnose and I can't afford medical so I find that groups like these are very informative and love the knowledge I can gain from others.Thank You & Have a Great Day!Best Regards, Patrol & Dispatch Administrative Assistant | Silicon Valley Security & Patrol, Inc.1131 Luchessi Drive, San , CA 95118( x 205 |Ê -krobinson@...| www.svsp.com|Lic No. PPO- 12138

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