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http://www.nids.net/diet.htm

While the website hasn't been updated in a very long time, this is

really the only thing available online. He has gotten stricter about

the diet, though. Really, you find out what is okay and what isn't

by telling him what your child eats. I think I'm giving him a weekly

food report every 2-3 months, sometimes more often.

Cheryl

On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

> Is there a link to the diet Dr. Goldberg recommends?

>

>

>

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Cheryl,

My son has been a patient of Dr. G for 5 years and we are doing our first food

diary for him (at least, that I recall.) What symptoms does your child have

that you have to do food reports so often? My son has had a significant return

of the dark circles around his eyes and a decrease in focus/brightness.

My son is nine years old and a very picky/self limiting eater. I had him on

GFCF for almost a year before switching him to the diet at 4 years old. He

switched pretty easily back then, but I know I'll have a fight when/if we have

to take something away or make him broaden his horizons.

- in Mobile, AL

_________________________

Reality lies beyond the horizon...

Wonderwegian

Re: diet

http://www.nids.net/diet.htm

While the website hasn't been updated in a very long time, this is

really the only thing available online. He has gotten stricter about

the diet, though. Really, you find out what is okay and what isn't

by telling him what your child eats. I think I'm giving him a weekly

food report every 2-3 months, sometimes more often.

Cheryl

On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

> Is there a link to the diet Dr. Goldberg recommends?

>

>

>

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Share on other sites

Oh man, am I the only one that has to give food reports so

often?!? :) Seriously, I think that a big part of why we have to do

is that we just can't seem to get everything under control. Yes,

he's progressing very well but we can't get his titers down, his dark

circles haven't even remotely budged, he is not only very self

limiting in his foods but he also simply doesn't want to eat. He

eats very little and usually waits until he is absolutely starving

and even then, he will *only* eat certain things. I will say that we

may have found our first clue as to why he doesn't eat, though. I

just took him to the dentist for the first time and he had *six*

(!!!!!!) cavities! (Yes, we brush his teeth!) So we're actually

hoping that that's the reason why he won't eat - it hurts! He never

did eat a lot but he would at least eat. He did start to pick up his

eating for a few months but was still limiting but then all of a

sudden he stopped and is eating waaay less than he ever did and

*always* wants to drink. He gets his cavities filled on Thursday so

I'm hoping next week will bring about more eating (cross your fingers

for me, everyone!). I really don't know why I'm giving him a food

diary so much since, quite honestly, it doesn't ever change except to

get smaller when Dr. G tells me to cut something. Every once in a

while something new will show up on the radar but it never lasts very

long before it's rejected again.

Cheryl

On Oct 12, 2007, at 8:30 PM, Wonderwegian & Chile J & C wrote:

> Cheryl,

>

> My son has been a patient of Dr. G for 5 years and we are doing our

> first food diary for him (at least, that I recall.) What symptoms

> does your child have that you have to do food reports so often? My

> son has had a significant return of the dark circles around his

> eyes and a decrease in focus/brightness.

>

> My son is nine years old and a very picky/self limiting eater. I

> had him on GFCF for almost a year before switching him to the

> diet at 4 years old. He switched pretty easily back then, but I

> know I'll have a fight when/if we have to take something away or

> make him broaden his horizons.

>

> - in Mobile, AL

>

> _________________________

> Reality lies beyond the horizon...

> Wonderwegian

>

> Re: diet

>

> http://www.nids.net/diet.htm

>

> While the website hasn't been updated in a very long time, this is

> really the only thing available online. He has gotten stricter about

> the diet, though. Really, you find out what is okay and what isn't

> by telling him what your child eats. I think I'm giving him a weekly

> food report every 2-3 months, sometimes more often.

>

> Cheryl

>

> On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

>

> > Is there a link to the diet Dr. Goldberg recommends?

> >

> >

> >

>

>

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Share on other sites

Hey -

I'm in the same position as you w/my 8yr old as far as

the self-limiting, extremely picky eater. I have no

success in bribing him w/most foods. Even if I

offered him the greatest food (like ice cream) if he

would just try a bite of this, he'd cry because " So

that means I can't have such and such? " Not - ok I'll

try it to get this ... It would almost be funny. But

it's not.

My brother was like this as a child ... still is as a

30 year old. He only eats meat, bread, pasta and

rice, always has, probably always will. The only

newest concession he has made w/foods is that in a

fine restaurant, he's discovered he likes some sauces.

I hope my son won't be like that. At least he'll eat

broccoli and occasionally raw carrott, or apples. He

used to eat battered and fried squash and fried okra,

but no more.

Right now he doesn't have any circles or puffy eyes

(shock of all shockers), but his brother does.

Are you sure it's not viral or environmental?

None of this helps, I know. Just sharing the

struggle. ;)

--- Wonderwegian & Chile J & C <carriecox@...>

wrote:

> Cheryl,

>

> My son has been a patient of Dr. G for 5 years and

> we are doing our first food diary for him (at least,

> that I recall.) What symptoms does your child have

> that you have to do food reports so often? My son

> has had a significant return of the dark circles

> around his eyes and a decrease in focus/brightness.

>

>

> My son is nine years old and a very picky/self

> limiting eater. I had him on GFCF for almost a year

> before switching him to the diet at 4 years

> old. He switched pretty easily back then, but I

> know I'll have a fight when/if we have to take

> something away or make him broaden his horizons.

>

> - in Mobile, AL

>

> _________________________

> Reality lies beyond the horizon...

> Wonderwegian

>

> Re: diet

>

>

> http://www.nids.net/diet.htm

>

> While the website hasn't been updated in a very

> long time, this is

> really the only thing available online. He has

> gotten stricter about

> the diet, though. Really, you find out what is

> okay and what isn't

> by telling him what your child eats. I think I'm

> giving him a weekly

> food report every 2-3 months, sometimes more

> often.

>

> Cheryl

>

> On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

>

> > Is there a link to the diet Dr. Goldberg

> recommends?

> >

> >

> >

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Take the Internet to Go: Go puts the Internet in your pocket: mail, news,

photos & more.

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Cheryl,

We're being asked for food diets often too, and I feel the same way. He's

eating the same items over and over, which are supposedly OK, yet his

eosiniphils are high and the ASO and HHV6 titers are high. We've done so many

food diaries I'm ready to scream. I wouldn't mind so much if we were actually

finding what the triggers are, but it seems we never do. I'm considering

checking into whether it's more environmental allergies (Dr. G doesn't think

so), or having him checked by an allergist/immunologist. I don't know what else

to do.

Heidi

-------------- Original message --------------

From: Cheryl Lowrance <c.lowrance@...>

http://www.nids.net/diet.htm

While the website hasn't been updated in a very long time, this is

really the only thing available online. He has gotten stricter about

the diet, though. Really, you find out what is okay and what isn't

by telling him what your child eats. I think I'm giving him a weekly

food report every 2-3 months, sometimes more often.

Cheryl

On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

> Is there a link to the diet Dr. Goldberg recommends?

>

>

>

Link to comment
Share on other sites

I did see an allergist at the request of our ped when he saw the food

panel from Dr. G. It was pointless. Gryffin's eosinophils have gone

down but they fluctuate anyway so there's really no telling. I'm

pretty sure his dark circles are viral, though but since we haven't

been able to get a handle the viral problem, they've definitely not

gone away. I will say that I don't feel like we aren't doing

anything, though. We've got a plan but getting to it has been slow.

He want's to up his zoloft and change his antifungal and we added

Tenex at our last appointment so we've got a couple more months

before we try to hit the virals with something else. I don't know

what to do, either, though for allergies. Gryffin is such a viral

kid that until we get the viruses under control, I'm not sure doing

anything will really help. I'm strict with the food if he eats but

our food diaries certainly don't change.

Cheryl

On Oct 13, 2007, at 11:30 AM, theshabbysheep@... wrote:

> Cheryl,

>

> We're being asked for food diets often too, and I feel the same

> way. He's eating the same items over and over, which are supposedly

> OK, yet his eosiniphils are high and the ASO and HHV6 titers are

> high. We've done so many food diaries I'm ready to scream. I

> wouldn't mind so much if we were actually finding what the triggers

> are, but it seems we never do. I'm considering checking into

> whether it's more environmental allergies (Dr. G doesn't think so),

> or having him checked by an allergist/immunologist. I don't know

> what else to do.

>

> Heidi

>

> -------------- Original message --------------

> From: Cheryl Lowrance <c.lowrance@...>

> http://www.nids.net/diet.htm

>

> While the website hasn't been updated in a very long time, this is

> really the only thing available online. He has gotten stricter about

> the diet, though. Really, you find out what is okay and what isn't

> by telling him what your child eats. I think I'm giving him a weekly

> food report every 2-3 months, sometimes more often.

>

> Cheryl

>

> On Oct 12, 2007, at 7:26 PM, sydbugg wrote:

>

> > Is there a link to the diet Dr. Goldberg recommends?

> >

> >

> >

>

>

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  • 3 weeks later...

Pam:

I eat EVERYTHING you have mentioned below. I don't recommend it, but that

is what I am doing. I probably would have felt better SOONER, IF I had NOT.

Jim

###

Pam Norman <pam_norman@...> wrote:

Does anyone follow a specific diet for Lyme? I've never seen mention

of

one but I would imagine the emphasis would be on healthy foods to keep

the immune system as strong as possible. What I am wondering about are

the following:

Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

Wheat/gluten

Protein

Carbohydrates -------- I am assuming that the " bad " sugars (I always

forget which carbohydrates they are!)

Spices ----------- Asian food? Mexican food?

Alcohol - not hard, but beer & wine?

I am assuming that just about all veggies & fruits are good.

Any iinput?

PamN

__________________________________________________

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Hi Pam,

I think I've seen you on the other list?

If you go there and look for posts by " Angel " aka Tormey (not

sure of the last name)-

she has posted in detail about her very strict diet which she follows

for Lyme and I believe for other conditions. Which plus supplements

has worked very successfully for her.

As for me, while I know what is good and what is bad - ie sugar and

unrefined, etc - I have resigned myself now that I am 60 yrs old, my

diet is not going to be any better than it is now.

I eat very very little meat or fish. I try to eat one serving of

organic vegie once a day.

My diet has been as healthy as I have the discipline to make it, but

it is not a particularly anti-Lyme diet.

ellen

>

> Does anyone follow a specific diet for Lyme? I've never seen

mention of

> one but I would imagine the emphasis would be on healthy foods to keep

> the immune system as strong as possible. What I am wondering about are

> the following:

>

> Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

> Wheat/gluten

> Protein

> Carbohydrates -------- I am assuming that the " bad " sugars (I always

> forget which carbohydrates they are!)

> Spices ----------- Asian food? Mexican food?

> Alcohol - not hard, but beer & wine?

> I am assuming that just about all veggies & fruits are good.

>

> Any iinput?

>

> PamN

>

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I am following the (D'Adamo) Blood Type Diet. I am type A, so for me,

it involves being vegetarian (which I already was anyways) plus

limiting amounts of dairy and wheat. I also avoid cabbage,

nightshades (tomatoes, potatoes, peppers, eggplant), tropical fruits,

pickled foods & mouldy foods. It's only been 1.5 months since I

started the diet but I think it is helping me to feel a bit better.

In addition to the Type A diet, I stay away from sweets and alcohol

entirely. I find even one beer will make me feel TERRIBLE these days.

The lists of food for the different blood types can be found at:

http://www.intraspec.ca/blood.php

I purchased the book " Eat Right 4 Your Type " from Amazon.

>

> Does anyone follow a specific diet for Lyme? I've never seen

mention of

> one but I would imagine the emphasis would be on healthy foods to keep

> the immune system as strong as possible. What I am wondering about are

> the following:

>

> Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

> Wheat/gluten

> Protein

> Carbohydrates -------- I am assuming that the " bad " sugars (I always

> forget which carbohydrates they are!)

> Spices ----------- Asian food? Mexican food?

> Alcohol - not hard, but beer & wine?

> I am assuming that just about all veggies & fruits are good.

>

> Any iinput?

>

> PamN

>

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The diet I follow is highly restrictive, because having had lyme all

my life (45 years plus), I have subseqently developed almost a

complete allergy syndrome to everything.....including most foods.

I am existing on all organic veggies. I can't tolerate any fruits,

grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but

did test allergic to meats, poultry and fish any ways.

What I would like to do eventually, is eat a lot of raw foods and

stay vegetarian........but of course be able to add back in a lot of

things I am missing.

The lyme has caused a lot of autonomic nervous system dysfunction as

well as the extreme allergies. One of the issues for me is

gastroparesis alternating with dumping syndrome, and also blood sugar

issues. It's a real mess.

Eating healthy is extremely important to getting well, as well as

avoiding chemicals in your food, home and personal products......not

to mention herbs and supplements also.

Love,

Jnanda

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Hello Pam,

Gluten is best avoided for those with Lyme.

It feeds the critters.

Wine and beer are a no as well until you ar better.

Sugar , white sugar is really best avoided. Even honey did cause my daughter

problems and worsening.

You can use Stevia as a sweetener.

Cow milk is best avoided.

It all depends how you are feeling. There are plenty of experts on this forum

or search past messages for ideas. You basically try to alklize your body as

the critters love an acidic environment.

Best wishes

Helga

---------------------------------

Answers - Get better answers from someone who knows. Tryit now.

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Sorry to hear you are so susceptable to everything Jnanda.

Hope you can eventually get at least better.

I have the tendency to eat mostly junk food. I probably would be more healthy

IF I could get myself to eat only organic stuff and less sugar, etc.. But not

doing well in that department yet, though better than I used to be.

YOU would probably DIE on MY diet.

Jim.

###

jnanda <jnanda@...> wrote:

The diet I follow is highly restrictive, because having had lyme all

my life (45 years plus), I have subseqently developed almost a

complete allergy syndrome to everything.....including most foods.

I am existing on all organic veggies. I can't tolerate any fruits,

grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but

did test allergic to meats, poultry and fish any ways.

What I would like to do eventually, is eat a lot of raw foods and

stay vegetarian........but of course be able to add back in a lot of

things I am missing.

The lyme has caused a lot of autonomic nervous system dysfunction as

well as the extreme allergies. One of the issues for me is

gastroparesis alternating with dumping syndrome, and also blood sugar

issues. It's a real mess.

Eating healthy is extremely important to getting well, as well as

avoiding chemicals in your food, home and personal products......not

to mention herbs and supplements also.

Love,

Jnanda

__________________________________________________

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Jnanda,

I had tons of allergies also over the past few years and I went to an

acupuncturist who practices NAET (an allergy elimination technique). I was

wondering if you ever looked into this? It eliminates your allergies one by

one immediately.

-- [ ] Re: Diet

The diet I follow is highly restrictive, because having had lyme all

my life (45 years plus), I have subseqently developed almost a

complete allergy syndrome to everything.....including most foods.

I am existing on all organic veggies. I can't tolerate any fruits,

grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but

did test allergic to meats, poultry and fish any ways.

What I would like to do eventually, is eat a lot of raw foods and

stay vegetarian........but of course be able to add back in a lot of

things I am missing.

The lyme has caused a lot of autonomic nervous system dysfunction as

well as the extreme allergies. One of the issues for me is

gastroparesis alternating with dumping syndrome, and also blood sugar

issues. It's a real mess.

Eating healthy is extremely important to getting well, as well as

avoiding chemicals in your food, home and personal products......not

to mention herbs and supplements also.

Love,

Jnanda

Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its

Coinfections by Buhner at one of these locations:

http://tinyurl.com/3bgm5d

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Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to

immediately stop all processed foods, artificial foods, and simple

sugars. Bb does feed on them and so, in removing everything except very

complex carbs, you are taking away their favored source of food.

Some Doctors, (like one of mine) insist on a Zero carb diet. I don't

strictly adhere to this; however, I eat only organic (non genetically

engineered) food, period. No bread, ice cream, pasta, desserts, etc. I

do eat some organic biodynamically grown yogurt, occasionally some whole

rice, and some dark red & blue plain organic frozen fruit (wild

blueberries, dark cherries).

I'm hoping others will post some comments as well.

[ ] Diet

Does anyone follow a specific diet for Lyme? I've never seen mention of

one but I would imagine the emphasis would be on healthy foods to keep

the immune system as strong as possible. What I am wondering about are

the following:

Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

Wheat/gluten

Protein

Carbohydrates -------- I am assuming that the " bad " sugars (I always

forget which carbohydrates they are!)

Spices ----------- Asian food? Mexican food?

Alcohol - not hard, but beer & wine?

I am assuming that just about all veggies & fruits are good.

Any iinput?

PamN

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I follow a low-carb diet and it really feels to me like it helped me

turn the corner with this illness (I was on Buhner protocol at the time,

not anything else). Even some relatively conservative docs recommend

this for us. It's not clear to me what causes carbs to make us worse,

but I feel extremely well on low-carb.

It easily could be that it's a yeast control issue in my case. Nothing

other than diet had helped me deal with the candida before (and I " d been

avoiding sugar for a year, it just took removing the other carbs from my

diet for it to get under control). The symptoms of candida are really

similar to Lyme and both diseases depress the immune system so avoiding

candida (esp if you've been on antibiotics) seems really important.

I also lost weight in the process and went back to my 'normal' weight

(I was one of the Lymies who had gained some weight while sick, only 30

pounds though, and I don't have a thyroid problem or anything really

obviously major that some other Lyme patients experience. I'm not sure

what you'd have to do if you had the opposite problem and were one of

those people who have trouble keeping weight on with this disease- you

might have to add more eggs or something to the diet to keep from losing

weight unnecessarily. If you cook low-carb desserts sweetened with

stevia you'll find yourself using tons of eggs anyway if you're not

allergic to them- they seem to be in everything on the Whole Approach

diet recipe forums. I felt like I got to eat loads and loads of meat and

fat when I started on the diet and yet 20 pounds came off in about a

month (I was a skeptic about the whole Adkins Diet fad by the way). I

feel immune to calories now, it's a great feeling in my case.

One of these days they'll start putting stevia into foods in the US and

we'll have 'good' ice cream easily available. Currently stevia is

restricted to 'supplement' use which I'm really upset about (it's legal

in other countries), but I heard that one of the soft drink

manufacturers has broken the legal barrier against it and it'll be

available in processed foods soon. Not that we should be eating

processed foods, I just really regret it that my local health food store

carries nothing that's stevia-sweetened even though it's really easy to

bake/cook with and they can carry it separately as long as it's not in food.

There are lots of great suggestions for low-carb/low-allergen diet at

www.wholeapproach.com. Check out the forums and the recipe section of

the forums for some ideas.

A

Kendel wrote:

>

> Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to

> immediately stop all processed foods, artificial foods, and simple

> sugars. Bb does feed on them and so, in removing everything except very

> complex carbs, you are taking away their favored source of food.

>

> Some Doctors, (like one of mine) insist on a Zero carb diet. I don't

> strictly adhere to this; however, I eat only organic (non genetically

> engineered) food, period. No bread, ice cream, pasta, desserts, etc. I

> do eat some organic biodynamically grown yogurt, occasionally some whole

> rice, and some dark red & blue plain organic frozen fruit (wild

> blueberries, dark cherries).

>

> I'm hoping others will post some comments as well.

>

> [ ] Diet

>

> Does anyone follow a specific diet for Lyme? I've never seen mention of

> one but I would imagine the emphasis would be on healthy foods to keep

> the immune system as strong as possible. What I am wondering about are

> the following:

>

> Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

> Wheat/gluten

> Protein

> Carbohydrates -------- I am assuming that the " bad " sugars (I always

> forget which carbohydrates they are!)

> Spices ----------- Asian food? Mexican food?

> Alcohol - not hard, but beer & wine?

> I am assuming that just about all veggies & fruits are good.

>

> Any iinput?

>

> PamN

>

>

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I agree with Helga!

I also use Agave to sweeten things, so far not feeding my fungi.

I'm back to wine now that I'm better and I feel great with it. During

lyme days, nope, I felt crap with any form of alcohol (except for the

little amount I took in ticntures).

I was not on gluten free diet though, but avoided main allergens like

wheat, spelt, corn when I could. I took potatoes and whole rice

instead.

cow milk and milk derivates. I used some goat cheese sometimes when I

was getting better.

Selma

>

> Hello Pam,

>

> Gluten is best avoided for those with Lyme.

> It feeds the critters.

> Wine and beer are a no as well until you ar better.

> Sugar , white sugar is really best avoided. Even honey did cause

my daughter problems and worsening.

> You can use Stevia as a sweetener.

> Cow milk is best avoided.

> It all depends how you are feeling. There are plenty of experts

on this forum or search past messages for ideas. You basically try

to alklize your body as the critters love an acidic environment.

> Best wishes

> Helga

>

>

> ---------------------------------

> Answers - Get better answers from someone who knows. Tryit

now.

>

>

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Share on other sites

>

Hello everyone,

I avoid wheat, cow's dairy, alcohol [mostly!] and sugar, and try to

eat small portions of carbs, sticking mainly to complex ones such as

brown Basmati rice, though I do eat rye yeast-free bread, occasional

potatoes and quinoa, as it's a high protein 'seed': I still have

gastric problems, so goodness knows how much is the diet- though if

I'm not fairly strict about wheat and dairy, I get an even worse

reaction. I have always eaten a broadly 'healthy' diet, with plenty of

vegetables and for the last 12 years a largely organic one. When

candida was confirmed 4 years ago [though probably long-standing], I

started following the principles of the anti- candida diet and also,

under the guidance of a therapist, had to avoid some allergens such as

eggs, tea etc for a while.

I think this is an important area for discussion:

I would like to see much more research and info on Lyme and diet,

particularly as I do not find that all the big Lyme doctors are

consistent in their advice. Perhaps diet is not their expertise in

many cases. Although most suggest restricted carb diets, Dr Jernigan,

for example, warns against high protein ones, so where does that leave

you?....hungry, that's for sure!

Carolyn

> Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to

> immediately stop all processed foods, artificial foods, and simple

> sugars. Bb does feed on them and so, in removing everything except very

> complex carbs, you are taking away their favored source of food.

>

> Some Doctors, (like one of mine) insist on a Zero carb diet. I don't

> strictly adhere to this; however, I eat only organic (non genetically

> engineered) food, period. No bread, ice cream, pasta, desserts, etc. I

> do eat some organic biodynamically grown yogurt, occasionally some whole

> rice, and some dark red & blue plain organic frozen fruit (wild

> blueberries, dark cherries).

>

> I'm hoping others will post some comments as well.

>

> [ ] Diet

> '

>

>

> Does anyone follow a specific diet for Lyme? I've never seen mention of

> one but I would imagine the emphasis would be on healthy foods to keep

> the immune system as strong as possible. What I am wondering about are

> the following:

>

> Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

> Wheat/gluten

> Protein

> Carbohydrates -------- I am assuming that the " bad " sugars (I always

> forget which carbohydrates they are!)

> Spices ----------- Asian food? Mexican food?

> Alcohol - not hard, but beer & wine?

> I am assuming that just about all veggies & fruits are good.

>

> Any iinput?

>

> PamN

>

>

>

>

>

>

>

>

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I'm not as rigorous as I should be but after 8 months on the oh so

healthy Cdiff diet, I just couldn't keep it up. Altho I am better than I

used to be pre-Cdiff. Nowadays, I eat a good amount of veggies, apples,

wild rice, chicken, fish, some beef. Little caffeine. My bad sugar is

mostly confined to Whole Foods cranberry/oatmeal cookies & an occasional

splurge. Now that it's cold, I don't have to worry about my frequent

trips to the little ice cream stop on the boardwalk here in the

village. But I do have a weakness for Culver's hamburgers with

everything on them. But that's not TOO bad. The only baddie there is

the bun & the mayo. Ketchup, mustard, onion, lettuce, meat are ok. And

I am NOT willing YET to totally give up my wonderful dark locally brewed

Scotch Ale which I have once or twice a week.

Am going to see my LLMD & his naturopath tomorrow for an update on

myself. Then I'm off to San Diego to see my grandkids which I am HUGELY

stressed about as I am terrified of flying & worry about all my cats

continuously while I am gone. So I am a mess right now.

Pam

R. Bayliss wrote:

>

> Sorry to hear you are so susceptable to everything Jnanda.

>

> Hope you can eventually get at least better.

>

> I have the tendency to eat mostly junk food. I probably would be more

> healthy IF I could get myself to eat only organic stuff and less

> sugar, etc.. But not doing well in that department yet, though better

> than I used to be.

>

> YOU would probably DIE on MY diet.

>

> Jim.

> ###

>

> jnanda <jnanda@... <mailto:jnanda%40peak.org>> wrote:

> The diet I follow is highly restrictive, because having had lyme all

> my life (45 years plus), I have subseqently developed almost a

> complete allergy syndrome to everything.....including most foods.

>

> I am existing on all organic veggies. I can't tolerate any fruits,

> grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but

> did test allergic to meats, poultry and fish any ways.

>

> What I would like to do eventually, is eat a lot of raw foods and

> stay vegetarian........but of course be able to add back in a lot of

> things I am missing.

>

> The lyme has caused a lot of autonomic nervous system dysfunction as

> well as the extreme allergies. One of the issues for me is

> gastroparesis alternating with dumping syndrome, and also blood sugar

> issues. It's a real mess.

>

> Eating healthy is extremely important to getting well, as well as

> avoiding chemicals in your food, home and personal products......not

> to mention herbs and supplements also.

>

> Love,

> Jnanda

>

> __________________________________________________

>

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Helga, while I am pretty sure you are right about most of what you say below, I

found that I STILL got much better eating all those things you say we should

avoid. BUT it took lots of herbs, AND TIME! Maybe more time than IF I could

have quit all my favorite foods and of course a couple gallons a week of cow's

milk. (Skim only). Sugar is my biggest downfall though. Can't leave it alone.

Been doing it for over 65 years, so gonna be pretty hard to quit now.

Jim.

###

Helga Frost <helgafrost2004@...> wrote:

Hello Pam,

Gluten is best avoided for those with Lyme.

It feeds the critters.

Wine and beer are a no as well until you ar better.

Sugar , white sugar is really best avoided. Even honey did cause my daughter

problems and worsening.

You can use Stevia as a sweetener.

Cow milk is best avoided.

It all depends how you are feeling. There are plenty of experts on this forum or

search past messages for ideas. You basically try to alklize your body as the

critters love an acidic environment.

Best wishes

Helga

---------------------------------

Answers - Get better answers from someone who knows. Tryit now.

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Pat:

IF I were to go on a zero carb diet, I probably wouldn't want to live

anymore. It is probably good that the ketes feed on that stuff too, then they

will be around to get killed instead of going into hibernation. JMO.

Jim

###

Kendel <kendels@...> wrote:

Hi PamN, most Doctors recommend a low carbohydrate diet, and for you

to

immediately stop all processed foods, artificial foods, and simple

sugars. Bb does feed on them and so, in removing everything except very

complex carbs, you are taking away their favored source of food.

Some Doctors, (like one of mine) insist on a Zero carb diet. I don't

strictly adhere to this; however, I eat only organic (non genetically

engineered) food, period. No bread, ice cream, pasta, desserts, etc. I

do eat some organic biodynamically grown yogurt, occasionally some whole

rice, and some dark red & blue plain organic frozen fruit (wild

blueberries, dark cherries).

I'm hoping others will post some comments as well.

[ ] Diet

Does anyone follow a specific diet for Lyme? I've never seen mention of

one but I would imagine the emphasis would be on healthy foods to keep

the immune system as strong as possible. What I am wondering about are

the following:

Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

Wheat/gluten

Protein

Carbohydrates -------- I am assuming that the " bad " sugars (I always

forget which carbohydrates they are!)

Spices ----------- Asian food? Mexican food?

Alcohol - not hard, but beer & wine?

I am assuming that just about all veggies & fruits are good.

Any iinput?

PamN

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Thanks Jim, it is good to hear others can't /don't strict to zero carbs.

Actually, as per your comment, this doc Does say that zero carbs forces

them into their seed form, where they will remain until you feed them.

The truth is that he and his family are just not as sick as lots of us

are. I can appreciate what he says; however. I would rather try to

kill/minimize their population, because they will convert anyway during

Any kind of stress, cold temperatures, at will...you name it.

I do manage to live with no sugar, honey, fruit juice (too

concentrated), alcohol (a must for some Lymies - it seems that others

can tolerate it), flour products, etc.

The Buhner herbs seem like our best bet. I also take Tindamax. But I'm

also very, very sick. Not one of the sickest - just above that.

Thanks for all your good posts, Muriel

[ ] Diet

Does anyone follow a specific diet for Lyme? I've never seen mention of

one but I would imagine the emphasis would be on healthy foods to keep

the immune system as strong as possible. What I am wondering about are

the following:

Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

Wheat/gluten

Protein

Carbohydrates -------- I am assuming that the " bad " sugars (I always

forget which carbohydrates they are!)

Spices ----------- Asian food? Mexican food?

Alcohol - not hard, but beer & wine?

I am assuming that just about all veggies & fruits are good.

Any iinput?

PamN

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I was very sick two years ago, felt like I was going to die, but feel much

better these days.

I certainly owe it to the herbal protocol of Buhner. Certainly not my diet.

Take care,

jim.

###

Kendel <kendels@...> wrote:

Thanks Jim, it is good to hear others can't /don't strict to zero

carbs.

Actually, as per your comment, this doc Does say that zero carbs forces

them into their seed form, where they will remain until you feed them.

The truth is that he and his family are just not as sick as lots of us

are. I can appreciate what he says; however. I would rather try to

kill/minimize their population, because they will convert anyway during

Any kind of stress, cold temperatures, at will...you name it.

I do manage to live with no sugar, honey, fruit juice (too

concentrated), alcohol (a must for some Lymies - it seems that others

can tolerate it), flour products, etc.

The Buhner herbs seem like our best bet. I also take Tindamax. But I'm

also very, very sick. Not one of the sickest - just above that.

Thanks for all your good posts, Muriel

[ ] Diet

Does anyone follow a specific diet for Lyme? I've never seen mention of

one but I would imagine the emphasis would be on healthy foods to keep

the immune system as strong as possible. What I am wondering about are

the following:

Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)?

Wheat/gluten

Protein

Carbohydrates -------- I am assuming that the " bad " sugars (I always

forget which carbohydrates they are!)

Spices ----------- Asian food? Mexican food?

Alcohol - not hard, but beer & wine?

I am assuming that just about all veggies & fruits are good.

Any iinput?

PamN

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  • 1 month later...

Hello and welcome to our group!

I hate to say this but soy milk, berries, potato chips, and oats are

all not recommended when you first start on Bee's diet. You may want

to reread the files that were orginially emailed to you when you

joined. Bee's diet is very specific and will help you immensely, but

you have to follow her recommendations to see progress.

If you can't find the files that should have been emailed to you, you

can also read the documents in the file called

B) Bee's Candida Articles & How To Get Started

This should help answer a lot of your questions. Hope this helps.

Jecca

I was hospitalised last year and was diagnosed with Crohns but had no

markers and now the doctor says its not crohns I have the following

symptoms; eye floaters, pain in my right side, arthritic pain, hives,

bloating, digestive disturbances, hair loss, extreme tiredness etc. I

tried the diet partially and nystantin but had really bad migraines

after taking the nystantin and felt so nauseas. what do you

reccommend for this? also is non GM soy milk ok? And when can you re

introduce berries as I normally have a health shake every morning with

berries? Also in some candida sites they say smiths potato chips

(crisps) plain and oat cakes are ok? are these ok to eat? what

probiotics do you recommend?

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thank you, for your advice :)... no I didn't receive anything but

will look for the files. Do you knwo when you can re introduce

nuts? If you keep your carb count down to under 40gms a day a few

nuts would be ok is this correct?

>

> I was hospitalised last year and was diagnosed with Crohns but had

no

> markers and now the doctor says its not crohns I have the following

> symptoms; eye floaters, pain in my right side, arthritic pain,

hives,

> bloating, digestive disturbances, hair loss, extreme tiredness

etc. I

> tried the diet partially and nystantin but had really bad migraines

> after taking the nystantin and felt so nauseas. what do you

> reccommend for this? also is non GM soy milk ok? And when can you

re

> introduce berries as I normally have a health shake every morning

with

> berries? Also in some candida sites they say smiths potato chips

> (crisps) plain and oat cakes are ok? are these ok to eat? what

> probiotics do you recommend?

>

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Nope... nuts are moldy, and would probably create a reaction. They

are never okay during a candida diet. I believe much later on,

almonds might be acceptable.

> >

> > I was hospitalised last year and was diagnosed with Crohns but

had

> no

> > markers and now the doctor says its not crohns I have the

following

> > symptoms; eye floaters, pain in my right side, arthritic pain,

> hives,

> > bloating, digestive disturbances, hair loss, extreme tiredness

> etc. I

> > tried the diet partially and nystantin but had really bad

migraines

> > after taking the nystantin and felt so nauseas. what do you

> > reccommend for this? also is non GM soy milk ok? And when can

you

> re

> > introduce berries as I normally have a health shake every morning

> with

> > berries? Also in some candida sites they say smiths potato chips

> > (crisps) plain and oat cakes are ok? are these ok to eat? what

> > probiotics do you recommend?

> >

>

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