Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 http://www.nids.net/diet.htm While the website hasn't been updated in a very long time, this is really the only thing available online. He has gotten stricter about the diet, though. Really, you find out what is okay and what isn't by telling him what your child eats. I think I'm giving him a weekly food report every 2-3 months, sometimes more often. Cheryl On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > Is there a link to the diet Dr. Goldberg recommends? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Cheryl, My son has been a patient of Dr. G for 5 years and we are doing our first food diary for him (at least, that I recall.) What symptoms does your child have that you have to do food reports so often? My son has had a significant return of the dark circles around his eyes and a decrease in focus/brightness. My son is nine years old and a very picky/self limiting eater. I had him on GFCF for almost a year before switching him to the diet at 4 years old. He switched pretty easily back then, but I know I'll have a fight when/if we have to take something away or make him broaden his horizons. - in Mobile, AL _________________________ Reality lies beyond the horizon... Wonderwegian Re: diet http://www.nids.net/diet.htm While the website hasn't been updated in a very long time, this is really the only thing available online. He has gotten stricter about the diet, though. Really, you find out what is okay and what isn't by telling him what your child eats. I think I'm giving him a weekly food report every 2-3 months, sometimes more often. Cheryl On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > Is there a link to the diet Dr. Goldberg recommends? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Oh man, am I the only one that has to give food reports so often?!? Seriously, I think that a big part of why we have to do is that we just can't seem to get everything under control. Yes, he's progressing very well but we can't get his titers down, his dark circles haven't even remotely budged, he is not only very self limiting in his foods but he also simply doesn't want to eat. He eats very little and usually waits until he is absolutely starving and even then, he will *only* eat certain things. I will say that we may have found our first clue as to why he doesn't eat, though. I just took him to the dentist for the first time and he had *six* (!!!!!!) cavities! (Yes, we brush his teeth!) So we're actually hoping that that's the reason why he won't eat - it hurts! He never did eat a lot but he would at least eat. He did start to pick up his eating for a few months but was still limiting but then all of a sudden he stopped and is eating waaay less than he ever did and *always* wants to drink. He gets his cavities filled on Thursday so I'm hoping next week will bring about more eating (cross your fingers for me, everyone!). I really don't know why I'm giving him a food diary so much since, quite honestly, it doesn't ever change except to get smaller when Dr. G tells me to cut something. Every once in a while something new will show up on the radar but it never lasts very long before it's rejected again. Cheryl On Oct 12, 2007, at 8:30 PM, Wonderwegian & Chile J & C wrote: > Cheryl, > > My son has been a patient of Dr. G for 5 years and we are doing our > first food diary for him (at least, that I recall.) What symptoms > does your child have that you have to do food reports so often? My > son has had a significant return of the dark circles around his > eyes and a decrease in focus/brightness. > > My son is nine years old and a very picky/self limiting eater. I > had him on GFCF for almost a year before switching him to the > diet at 4 years old. He switched pretty easily back then, but I > know I'll have a fight when/if we have to take something away or > make him broaden his horizons. > > - in Mobile, AL > > _________________________ > Reality lies beyond the horizon... > Wonderwegian > > Re: diet > > http://www.nids.net/diet.htm > > While the website hasn't been updated in a very long time, this is > really the only thing available online. He has gotten stricter about > the diet, though. Really, you find out what is okay and what isn't > by telling him what your child eats. I think I'm giving him a weekly > food report every 2-3 months, sometimes more often. > > Cheryl > > On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > > > Is there a link to the diet Dr. Goldberg recommends? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Hey - I'm in the same position as you w/my 8yr old as far as the self-limiting, extremely picky eater. I have no success in bribing him w/most foods. Even if I offered him the greatest food (like ice cream) if he would just try a bite of this, he'd cry because " So that means I can't have such and such? " Not - ok I'll try it to get this ... It would almost be funny. But it's not. My brother was like this as a child ... still is as a 30 year old. He only eats meat, bread, pasta and rice, always has, probably always will. The only newest concession he has made w/foods is that in a fine restaurant, he's discovered he likes some sauces. I hope my son won't be like that. At least he'll eat broccoli and occasionally raw carrott, or apples. He used to eat battered and fried squash and fried okra, but no more. Right now he doesn't have any circles or puffy eyes (shock of all shockers), but his brother does. Are you sure it's not viral or environmental? None of this helps, I know. Just sharing the struggle. --- Wonderwegian & Chile J & C <carriecox@...> wrote: > Cheryl, > > My son has been a patient of Dr. G for 5 years and > we are doing our first food diary for him (at least, > that I recall.) What symptoms does your child have > that you have to do food reports so often? My son > has had a significant return of the dark circles > around his eyes and a decrease in focus/brightness. > > > My son is nine years old and a very picky/self > limiting eater. I had him on GFCF for almost a year > before switching him to the diet at 4 years > old. He switched pretty easily back then, but I > know I'll have a fight when/if we have to take > something away or make him broaden his horizons. > > - in Mobile, AL > > _________________________ > Reality lies beyond the horizon... > Wonderwegian > > Re: diet > > > http://www.nids.net/diet.htm > > While the website hasn't been updated in a very > long time, this is > really the only thing available online. He has > gotten stricter about > the diet, though. Really, you find out what is > okay and what isn't > by telling him what your child eats. I think I'm > giving him a weekly > food report every 2-3 months, sometimes more > often. > > Cheryl > > On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > > > Is there a link to the diet Dr. Goldberg > recommends? > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos & more. http://mobile./go?refer=1GNXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Cheryl, We're being asked for food diets often too, and I feel the same way. He's eating the same items over and over, which are supposedly OK, yet his eosiniphils are high and the ASO and HHV6 titers are high. We've done so many food diaries I'm ready to scream. I wouldn't mind so much if we were actually finding what the triggers are, but it seems we never do. I'm considering checking into whether it's more environmental allergies (Dr. G doesn't think so), or having him checked by an allergist/immunologist. I don't know what else to do. Heidi -------------- Original message -------------- From: Cheryl Lowrance <c.lowrance@...> http://www.nids.net/diet.htm While the website hasn't been updated in a very long time, this is really the only thing available online. He has gotten stricter about the diet, though. Really, you find out what is okay and what isn't by telling him what your child eats. I think I'm giving him a weekly food report every 2-3 months, sometimes more often. Cheryl On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > Is there a link to the diet Dr. Goldberg recommends? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 I did see an allergist at the request of our ped when he saw the food panel from Dr. G. It was pointless. Gryffin's eosinophils have gone down but they fluctuate anyway so there's really no telling. I'm pretty sure his dark circles are viral, though but since we haven't been able to get a handle the viral problem, they've definitely not gone away. I will say that I don't feel like we aren't doing anything, though. We've got a plan but getting to it has been slow. He want's to up his zoloft and change his antifungal and we added Tenex at our last appointment so we've got a couple more months before we try to hit the virals with something else. I don't know what to do, either, though for allergies. Gryffin is such a viral kid that until we get the viruses under control, I'm not sure doing anything will really help. I'm strict with the food if he eats but our food diaries certainly don't change. Cheryl On Oct 13, 2007, at 11:30 AM, theshabbysheep@... wrote: > Cheryl, > > We're being asked for food diets often too, and I feel the same > way. He's eating the same items over and over, which are supposedly > OK, yet his eosiniphils are high and the ASO and HHV6 titers are > high. We've done so many food diaries I'm ready to scream. I > wouldn't mind so much if we were actually finding what the triggers > are, but it seems we never do. I'm considering checking into > whether it's more environmental allergies (Dr. G doesn't think so), > or having him checked by an allergist/immunologist. I don't know > what else to do. > > Heidi > > -------------- Original message -------------- > From: Cheryl Lowrance <c.lowrance@...> > http://www.nids.net/diet.htm > > While the website hasn't been updated in a very long time, this is > really the only thing available online. He has gotten stricter about > the diet, though. Really, you find out what is okay and what isn't > by telling him what your child eats. I think I'm giving him a weekly > food report every 2-3 months, sometimes more often. > > Cheryl > > On Oct 12, 2007, at 7:26 PM, sydbugg wrote: > > > Is there a link to the diet Dr. Goldberg recommends? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Pam: I eat EVERYTHING you have mentioned below. I don't recommend it, but that is what I am doing. I probably would have felt better SOONER, IF I had NOT. Jim ### Pam Norman <pam_norman@...> wrote: Does anyone follow a specific diet for Lyme? I've never seen mention of one but I would imagine the emphasis would be on healthy foods to keep the immune system as strong as possible. What I am wondering about are the following: Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? Wheat/gluten Protein Carbohydrates -------- I am assuming that the " bad " sugars (I always forget which carbohydrates they are!) Spices ----------- Asian food? Mexican food? Alcohol - not hard, but beer & wine? I am assuming that just about all veggies & fruits are good. Any iinput? PamN __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hi Pam, I think I've seen you on the other list? If you go there and look for posts by " Angel " aka Tormey (not sure of the last name)- she has posted in detail about her very strict diet which she follows for Lyme and I believe for other conditions. Which plus supplements has worked very successfully for her. As for me, while I know what is good and what is bad - ie sugar and unrefined, etc - I have resigned myself now that I am 60 yrs old, my diet is not going to be any better than it is now. I eat very very little meat or fish. I try to eat one serving of organic vegie once a day. My diet has been as healthy as I have the discipline to make it, but it is not a particularly anti-Lyme diet. ellen > > Does anyone follow a specific diet for Lyme? I've never seen mention of > one but I would imagine the emphasis would be on healthy foods to keep > the immune system as strong as possible. What I am wondering about are > the following: > > Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? > Wheat/gluten > Protein > Carbohydrates -------- I am assuming that the " bad " sugars (I always > forget which carbohydrates they are!) > Spices ----------- Asian food? Mexican food? > Alcohol - not hard, but beer & wine? > I am assuming that just about all veggies & fruits are good. > > Any iinput? > > PamN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 I am following the (D'Adamo) Blood Type Diet. I am type A, so for me, it involves being vegetarian (which I already was anyways) plus limiting amounts of dairy and wheat. I also avoid cabbage, nightshades (tomatoes, potatoes, peppers, eggplant), tropical fruits, pickled foods & mouldy foods. It's only been 1.5 months since I started the diet but I think it is helping me to feel a bit better. In addition to the Type A diet, I stay away from sweets and alcohol entirely. I find even one beer will make me feel TERRIBLE these days. The lists of food for the different blood types can be found at: http://www.intraspec.ca/blood.php I purchased the book " Eat Right 4 Your Type " from Amazon. > > Does anyone follow a specific diet for Lyme? I've never seen mention of > one but I would imagine the emphasis would be on healthy foods to keep > the immune system as strong as possible. What I am wondering about are > the following: > > Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? > Wheat/gluten > Protein > Carbohydrates -------- I am assuming that the " bad " sugars (I always > forget which carbohydrates they are!) > Spices ----------- Asian food? Mexican food? > Alcohol - not hard, but beer & wine? > I am assuming that just about all veggies & fruits are good. > > Any iinput? > > PamN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 The diet I follow is highly restrictive, because having had lyme all my life (45 years plus), I have subseqently developed almost a complete allergy syndrome to everything.....including most foods. I am existing on all organic veggies. I can't tolerate any fruits, grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but did test allergic to meats, poultry and fish any ways. What I would like to do eventually, is eat a lot of raw foods and stay vegetarian........but of course be able to add back in a lot of things I am missing. The lyme has caused a lot of autonomic nervous system dysfunction as well as the extreme allergies. One of the issues for me is gastroparesis alternating with dumping syndrome, and also blood sugar issues. It's a real mess. Eating healthy is extremely important to getting well, as well as avoiding chemicals in your food, home and personal products......not to mention herbs and supplements also. Love, Jnanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hello Pam, Gluten is best avoided for those with Lyme. It feeds the critters. Wine and beer are a no as well until you ar better. Sugar , white sugar is really best avoided. Even honey did cause my daughter problems and worsening. You can use Stevia as a sweetener. Cow milk is best avoided. It all depends how you are feeling. There are plenty of experts on this forum or search past messages for ideas. You basically try to alklize your body as the critters love an acidic environment. Best wishes Helga --------------------------------- Answers - Get better answers from someone who knows. Tryit now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Sorry to hear you are so susceptable to everything Jnanda. Hope you can eventually get at least better. I have the tendency to eat mostly junk food. I probably would be more healthy IF I could get myself to eat only organic stuff and less sugar, etc.. But not doing well in that department yet, though better than I used to be. YOU would probably DIE on MY diet. Jim. ### jnanda <jnanda@...> wrote: The diet I follow is highly restrictive, because having had lyme all my life (45 years plus), I have subseqently developed almost a complete allergy syndrome to everything.....including most foods. I am existing on all organic veggies. I can't tolerate any fruits, grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but did test allergic to meats, poultry and fish any ways. What I would like to do eventually, is eat a lot of raw foods and stay vegetarian........but of course be able to add back in a lot of things I am missing. The lyme has caused a lot of autonomic nervous system dysfunction as well as the extreme allergies. One of the issues for me is gastroparesis alternating with dumping syndrome, and also blood sugar issues. It's a real mess. Eating healthy is extremely important to getting well, as well as avoiding chemicals in your food, home and personal products......not to mention herbs and supplements also. Love, Jnanda __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Jnanda, I had tons of allergies also over the past few years and I went to an acupuncturist who practices NAET (an allergy elimination technique). I was wondering if you ever looked into this? It eliminates your allergies one by one immediately. -- [ ] Re: Diet The diet I follow is highly restrictive, because having had lyme all my life (45 years plus), I have subseqently developed almost a complete allergy syndrome to everything.....including most foods. I am existing on all organic veggies. I can't tolerate any fruits, grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but did test allergic to meats, poultry and fish any ways. What I would like to do eventually, is eat a lot of raw foods and stay vegetarian........but of course be able to add back in a lot of things I am missing. The lyme has caused a lot of autonomic nervous system dysfunction as well as the extreme allergies. One of the issues for me is gastroparesis alternating with dumping syndrome, and also blood sugar issues. It's a real mess. Eating healthy is extremely important to getting well, as well as avoiding chemicals in your food, home and personal products......not to mention herbs and supplements also. Love, Jnanda Buy Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections by Buhner at one of these locations: http://tinyurl.com/3bgm5d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to immediately stop all processed foods, artificial foods, and simple sugars. Bb does feed on them and so, in removing everything except very complex carbs, you are taking away their favored source of food. Some Doctors, (like one of mine) insist on a Zero carb diet. I don't strictly adhere to this; however, I eat only organic (non genetically engineered) food, period. No bread, ice cream, pasta, desserts, etc. I do eat some organic biodynamically grown yogurt, occasionally some whole rice, and some dark red & blue plain organic frozen fruit (wild blueberries, dark cherries). I'm hoping others will post some comments as well. [ ] Diet Does anyone follow a specific diet for Lyme? I've never seen mention of one but I would imagine the emphasis would be on healthy foods to keep the immune system as strong as possible. What I am wondering about are the following: Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? Wheat/gluten Protein Carbohydrates -------- I am assuming that the " bad " sugars (I always forget which carbohydrates they are!) Spices ----------- Asian food? Mexican food? Alcohol - not hard, but beer & wine? I am assuming that just about all veggies & fruits are good. Any iinput? PamN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 I follow a low-carb diet and it really feels to me like it helped me turn the corner with this illness (I was on Buhner protocol at the time, not anything else). Even some relatively conservative docs recommend this for us. It's not clear to me what causes carbs to make us worse, but I feel extremely well on low-carb. It easily could be that it's a yeast control issue in my case. Nothing other than diet had helped me deal with the candida before (and I " d been avoiding sugar for a year, it just took removing the other carbs from my diet for it to get under control). The symptoms of candida are really similar to Lyme and both diseases depress the immune system so avoiding candida (esp if you've been on antibiotics) seems really important. I also lost weight in the process and went back to my 'normal' weight (I was one of the Lymies who had gained some weight while sick, only 30 pounds though, and I don't have a thyroid problem or anything really obviously major that some other Lyme patients experience. I'm not sure what you'd have to do if you had the opposite problem and were one of those people who have trouble keeping weight on with this disease- you might have to add more eggs or something to the diet to keep from losing weight unnecessarily. If you cook low-carb desserts sweetened with stevia you'll find yourself using tons of eggs anyway if you're not allergic to them- they seem to be in everything on the Whole Approach diet recipe forums. I felt like I got to eat loads and loads of meat and fat when I started on the diet and yet 20 pounds came off in about a month (I was a skeptic about the whole Adkins Diet fad by the way). I feel immune to calories now, it's a great feeling in my case. One of these days they'll start putting stevia into foods in the US and we'll have 'good' ice cream easily available. Currently stevia is restricted to 'supplement' use which I'm really upset about (it's legal in other countries), but I heard that one of the soft drink manufacturers has broken the legal barrier against it and it'll be available in processed foods soon. Not that we should be eating processed foods, I just really regret it that my local health food store carries nothing that's stevia-sweetened even though it's really easy to bake/cook with and they can carry it separately as long as it's not in food. There are lots of great suggestions for low-carb/low-allergen diet at www.wholeapproach.com. Check out the forums and the recipe section of the forums for some ideas. A Kendel wrote: > > Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to > immediately stop all processed foods, artificial foods, and simple > sugars. Bb does feed on them and so, in removing everything except very > complex carbs, you are taking away their favored source of food. > > Some Doctors, (like one of mine) insist on a Zero carb diet. I don't > strictly adhere to this; however, I eat only organic (non genetically > engineered) food, period. No bread, ice cream, pasta, desserts, etc. I > do eat some organic biodynamically grown yogurt, occasionally some whole > rice, and some dark red & blue plain organic frozen fruit (wild > blueberries, dark cherries). > > I'm hoping others will post some comments as well. > > [ ] Diet > > Does anyone follow a specific diet for Lyme? I've never seen mention of > one but I would imagine the emphasis would be on healthy foods to keep > the immune system as strong as possible. What I am wondering about are > the following: > > Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? > Wheat/gluten > Protein > Carbohydrates -------- I am assuming that the " bad " sugars (I always > forget which carbohydrates they are!) > Spices ----------- Asian food? Mexican food? > Alcohol - not hard, but beer & wine? > I am assuming that just about all veggies & fruits are good. > > Any iinput? > > PamN > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 I agree with Helga! I also use Agave to sweeten things, so far not feeding my fungi. I'm back to wine now that I'm better and I feel great with it. During lyme days, nope, I felt crap with any form of alcohol (except for the little amount I took in ticntures). I was not on gluten free diet though, but avoided main allergens like wheat, spelt, corn when I could. I took potatoes and whole rice instead. cow milk and milk derivates. I used some goat cheese sometimes when I was getting better. Selma > > Hello Pam, > > Gluten is best avoided for those with Lyme. > It feeds the critters. > Wine and beer are a no as well until you ar better. > Sugar , white sugar is really best avoided. Even honey did cause my daughter problems and worsening. > You can use Stevia as a sweetener. > Cow milk is best avoided. > It all depends how you are feeling. There are plenty of experts on this forum or search past messages for ideas. You basically try to alklize your body as the critters love an acidic environment. > Best wishes > Helga > > > --------------------------------- > Answers - Get better answers from someone who knows. Tryit now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 > Hello everyone, I avoid wheat, cow's dairy, alcohol [mostly!] and sugar, and try to eat small portions of carbs, sticking mainly to complex ones such as brown Basmati rice, though I do eat rye yeast-free bread, occasional potatoes and quinoa, as it's a high protein 'seed': I still have gastric problems, so goodness knows how much is the diet- though if I'm not fairly strict about wheat and dairy, I get an even worse reaction. I have always eaten a broadly 'healthy' diet, with plenty of vegetables and for the last 12 years a largely organic one. When candida was confirmed 4 years ago [though probably long-standing], I started following the principles of the anti- candida diet and also, under the guidance of a therapist, had to avoid some allergens such as eggs, tea etc for a while. I think this is an important area for discussion: I would like to see much more research and info on Lyme and diet, particularly as I do not find that all the big Lyme doctors are consistent in their advice. Perhaps diet is not their expertise in many cases. Although most suggest restricted carb diets, Dr Jernigan, for example, warns against high protein ones, so where does that leave you?....hungry, that's for sure! Carolyn > Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to > immediately stop all processed foods, artificial foods, and simple > sugars. Bb does feed on them and so, in removing everything except very > complex carbs, you are taking away their favored source of food. > > Some Doctors, (like one of mine) insist on a Zero carb diet. I don't > strictly adhere to this; however, I eat only organic (non genetically > engineered) food, period. No bread, ice cream, pasta, desserts, etc. I > do eat some organic biodynamically grown yogurt, occasionally some whole > rice, and some dark red & blue plain organic frozen fruit (wild > blueberries, dark cherries). > > I'm hoping others will post some comments as well. > > [ ] Diet > ' > > > Does anyone follow a specific diet for Lyme? I've never seen mention of > one but I would imagine the emphasis would be on healthy foods to keep > the immune system as strong as possible. What I am wondering about are > the following: > > Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? > Wheat/gluten > Protein > Carbohydrates -------- I am assuming that the " bad " sugars (I always > forget which carbohydrates they are!) > Spices ----------- Asian food? Mexican food? > Alcohol - not hard, but beer & wine? > I am assuming that just about all veggies & fruits are good. > > Any iinput? > > PamN > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 I'm not as rigorous as I should be but after 8 months on the oh so healthy Cdiff diet, I just couldn't keep it up. Altho I am better than I used to be pre-Cdiff. Nowadays, I eat a good amount of veggies, apples, wild rice, chicken, fish, some beef. Little caffeine. My bad sugar is mostly confined to Whole Foods cranberry/oatmeal cookies & an occasional splurge. Now that it's cold, I don't have to worry about my frequent trips to the little ice cream stop on the boardwalk here in the village. But I do have a weakness for Culver's hamburgers with everything on them. But that's not TOO bad. The only baddie there is the bun & the mayo. Ketchup, mustard, onion, lettuce, meat are ok. And I am NOT willing YET to totally give up my wonderful dark locally brewed Scotch Ale which I have once or twice a week. Am going to see my LLMD & his naturopath tomorrow for an update on myself. Then I'm off to San Diego to see my grandkids which I am HUGELY stressed about as I am terrified of flying & worry about all my cats continuously while I am gone. So I am a mess right now. Pam R. Bayliss wrote: > > Sorry to hear you are so susceptable to everything Jnanda. > > Hope you can eventually get at least better. > > I have the tendency to eat mostly junk food. I probably would be more > healthy IF I could get myself to eat only organic stuff and less > sugar, etc.. But not doing well in that department yet, though better > than I used to be. > > YOU would probably DIE on MY diet. > > Jim. > ### > > jnanda <jnanda@... <mailto:jnanda%40peak.org>> wrote: > The diet I follow is highly restrictive, because having had lyme all > my life (45 years plus), I have subseqently developed almost a > complete allergy syndrome to everything.....including most foods. > > I am existing on all organic veggies. I can't tolerate any fruits, > grains, nuts, seeds, oils, dairy, soy, and also am vegetarian.....but > did test allergic to meats, poultry and fish any ways. > > What I would like to do eventually, is eat a lot of raw foods and > stay vegetarian........but of course be able to add back in a lot of > things I am missing. > > The lyme has caused a lot of autonomic nervous system dysfunction as > well as the extreme allergies. One of the issues for me is > gastroparesis alternating with dumping syndrome, and also blood sugar > issues. It's a real mess. > > Eating healthy is extremely important to getting well, as well as > avoiding chemicals in your food, home and personal products......not > to mention herbs and supplements also. > > Love, > Jnanda > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Helga, while I am pretty sure you are right about most of what you say below, I found that I STILL got much better eating all those things you say we should avoid. BUT it took lots of herbs, AND TIME! Maybe more time than IF I could have quit all my favorite foods and of course a couple gallons a week of cow's milk. (Skim only). Sugar is my biggest downfall though. Can't leave it alone. Been doing it for over 65 years, so gonna be pretty hard to quit now. Jim. ### Helga Frost <helgafrost2004@...> wrote: Hello Pam, Gluten is best avoided for those with Lyme. It feeds the critters. Wine and beer are a no as well until you ar better. Sugar , white sugar is really best avoided. Even honey did cause my daughter problems and worsening. You can use Stevia as a sweetener. Cow milk is best avoided. It all depends how you are feeling. There are plenty of experts on this forum or search past messages for ideas. You basically try to alklize your body as the critters love an acidic environment. Best wishes Helga --------------------------------- Answers - Get better answers from someone who knows. Tryit now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Pat: IF I were to go on a zero carb diet, I probably wouldn't want to live anymore. It is probably good that the ketes feed on that stuff too, then they will be around to get killed instead of going into hibernation. JMO. Jim ### Kendel <kendels@...> wrote: Hi PamN, most Doctors recommend a low carbohydrate diet, and for you to immediately stop all processed foods, artificial foods, and simple sugars. Bb does feed on them and so, in removing everything except very complex carbs, you are taking away their favored source of food. Some Doctors, (like one of mine) insist on a Zero carb diet. I don't strictly adhere to this; however, I eat only organic (non genetically engineered) food, period. No bread, ice cream, pasta, desserts, etc. I do eat some organic biodynamically grown yogurt, occasionally some whole rice, and some dark red & blue plain organic frozen fruit (wild blueberries, dark cherries). I'm hoping others will post some comments as well. [ ] Diet Does anyone follow a specific diet for Lyme? I've never seen mention of one but I would imagine the emphasis would be on healthy foods to keep the immune system as strong as possible. What I am wondering about are the following: Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? Wheat/gluten Protein Carbohydrates -------- I am assuming that the " bad " sugars (I always forget which carbohydrates they are!) Spices ----------- Asian food? Mexican food? Alcohol - not hard, but beer & wine? I am assuming that just about all veggies & fruits are good. Any iinput? PamN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Thanks Jim, it is good to hear others can't /don't strict to zero carbs. Actually, as per your comment, this doc Does say that zero carbs forces them into their seed form, where they will remain until you feed them. The truth is that he and his family are just not as sick as lots of us are. I can appreciate what he says; however. I would rather try to kill/minimize their population, because they will convert anyway during Any kind of stress, cold temperatures, at will...you name it. I do manage to live with no sugar, honey, fruit juice (too concentrated), alcohol (a must for some Lymies - it seems that others can tolerate it), flour products, etc. The Buhner herbs seem like our best bet. I also take Tindamax. But I'm also very, very sick. Not one of the sickest - just above that. Thanks for all your good posts, Muriel [ ] Diet Does anyone follow a specific diet for Lyme? I've never seen mention of one but I would imagine the emphasis would be on healthy foods to keep the immune system as strong as possible. What I am wondering about are the following: Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? Wheat/gluten Protein Carbohydrates -------- I am assuming that the " bad " sugars (I always forget which carbohydrates they are!) Spices ----------- Asian food? Mexican food? Alcohol - not hard, but beer & wine? I am assuming that just about all veggies & fruits are good. Any iinput? PamN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 I was very sick two years ago, felt like I was going to die, but feel much better these days. I certainly owe it to the herbal protocol of Buhner. Certainly not my diet. Take care, jim. ### Kendel <kendels@...> wrote: Thanks Jim, it is good to hear others can't /don't strict to zero carbs. Actually, as per your comment, this doc Does say that zero carbs forces them into their seed form, where they will remain until you feed them. The truth is that he and his family are just not as sick as lots of us are. I can appreciate what he says; however. I would rather try to kill/minimize their population, because they will convert anyway during Any kind of stress, cold temperatures, at will...you name it. I do manage to live with no sugar, honey, fruit juice (too concentrated), alcohol (a must for some Lymies - it seems that others can tolerate it), flour products, etc. The Buhner herbs seem like our best bet. I also take Tindamax. But I'm also very, very sick. Not one of the sickest - just above that. Thanks for all your good posts, Muriel [ ] Diet Does anyone follow a specific diet for Lyme? I've never seen mention of one but I would imagine the emphasis would be on healthy foods to keep the immune system as strong as possible. What I am wondering about are the following: Dairy - cheese, eggs, yogurt, milk, ICE CREAM !)? Wheat/gluten Protein Carbohydrates -------- I am assuming that the " bad " sugars (I always forget which carbohydrates they are!) Spices ----------- Asian food? Mexican food? Alcohol - not hard, but beer & wine? I am assuming that just about all veggies & fruits are good. Any iinput? PamN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 Hello and welcome to our group! I hate to say this but soy milk, berries, potato chips, and oats are all not recommended when you first start on Bee's diet. You may want to reread the files that were orginially emailed to you when you joined. Bee's diet is very specific and will help you immensely, but you have to follow her recommendations to see progress. If you can't find the files that should have been emailed to you, you can also read the documents in the file called Bee's Candida Articles & How To Get Started This should help answer a lot of your questions. Hope this helps. Jecca I was hospitalised last year and was diagnosed with Crohns but had no markers and now the doctor says its not crohns I have the following symptoms; eye floaters, pain in my right side, arthritic pain, hives, bloating, digestive disturbances, hair loss, extreme tiredness etc. I tried the diet partially and nystantin but had really bad migraines after taking the nystantin and felt so nauseas. what do you reccommend for this? also is non GM soy milk ok? And when can you re introduce berries as I normally have a health shake every morning with berries? Also in some candida sites they say smiths potato chips (crisps) plain and oat cakes are ok? are these ok to eat? what probiotics do you recommend? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 thank you, for your advice ... no I didn't receive anything but will look for the files. Do you knwo when you can re introduce nuts? If you keep your carb count down to under 40gms a day a few nuts would be ok is this correct? > > I was hospitalised last year and was diagnosed with Crohns but had no > markers and now the doctor says its not crohns I have the following > symptoms; eye floaters, pain in my right side, arthritic pain, hives, > bloating, digestive disturbances, hair loss, extreme tiredness etc. I > tried the diet partially and nystantin but had really bad migraines > after taking the nystantin and felt so nauseas. what do you > reccommend for this? also is non GM soy milk ok? And when can you re > introduce berries as I normally have a health shake every morning with > berries? Also in some candida sites they say smiths potato chips > (crisps) plain and oat cakes are ok? are these ok to eat? what > probiotics do you recommend? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 Nope... nuts are moldy, and would probably create a reaction. They are never okay during a candida diet. I believe much later on, almonds might be acceptable. > > > > I was hospitalised last year and was diagnosed with Crohns but had > no > > markers and now the doctor says its not crohns I have the following > > symptoms; eye floaters, pain in my right side, arthritic pain, > hives, > > bloating, digestive disturbances, hair loss, extreme tiredness > etc. I > > tried the diet partially and nystantin but had really bad migraines > > after taking the nystantin and felt so nauseas. what do you > > reccommend for this? also is non GM soy milk ok? And when can you > re > > introduce berries as I normally have a health shake every morning > with > > berries? Also in some candida sites they say smiths potato chips > > (crisps) plain and oat cakes are ok? are these ok to eat? what > > probiotics do you recommend? > > > Quote Link to comment Share on other sites More sharing options...
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