Guest guest Posted February 15, 1999 Report Share Posted February 15, 1999 In article <19990215204604.11206.qmail@...>, <daviscathy@...> writes >ust wondering what I should look for, just in case. " And he said, " if >it happens to you, you'll know it. " so, that's as much information as I >came away with. >Helpful? I think not....... >Any input would be greatly appreciated... > D. The absolute worst is when the eye ball perforates. As he said, you'll know about it when it happens ( " scleromalacia perforans " ). Never ever seen a case. ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Sjogren's Syndrome is an autoimmune disorder that causes dryness of the eyes, mouth, nose, skin as well as other symptoms. It can occur alone (Primary Sjogren's Syndrome) or in conjunction with other rheumatological disorders such as RA, lupus, sclerderma, etc. Carol E from NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Thanks, I Think.......................... What a frightening image! Glad to know it's not that common. >The absolute worst is when the eye ball perforates. As he said, you'll >know about it when it happens ( " scleromalacia perforans " ). Never ever >seen a case. > >------- >Regards, Dr Graham Chiu >Prospective Internet Observational Study in Arthritis >Home Page http://www.compkarori.com/arthritis/ >Contribute at http://www.compkarori.com/arthritis/contrib.htm >Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi > >------------------------------------------------------------------------ >To unsubscribe from this mailing list, or to change your subscription >to digest, go to the ONElist web site, at and >select the User Center link from the menu bar on the left. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 You wanna know what makes me mad is the dry eye syndrome won't allow you to wear contacts. I live in the rain forest and glasses that are fogged and wet are a tremendous detriment. Any ideas? I tried having the lower duct in the lid sown shut but that still didn't allow enough moisture to wear contacts. Im somewhat desperate here . I found if I use snap on sunglasses on the frame of my glasses I can put them in an up position this allows freedom from rain that falls straight down but that windblown rain from the side defeats this method. Plus when I walk I always over dress and the glasses for up with heat . I hate glasses . My nose will forever have a notch where they lay. Any ideas???? thank you and Bless you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Although I too like to be well informed, there is an upside to his approach: the psychological effect. Sometimes just hearing of new symptoms will create them.... -Mike- rheumatic eyes >From: " " <daviscathy@...> > >I recently went to the ophthalmologist because of a pain in my left eye. >It's not constant, but it does seem to happen when I move my eyes >quickly or when I look out of the corner of my eyes. When I told him I >had RA he insisted that the pain was due to dryness and he suggested a >product called TheraTears. According to him I should use this 4 times a >day continuously. He suggested I should get used to using it as people >with RA tend to have dryness, irritation, and inflammation of the eyes. >I haven't read too much about this and am wondering if any of you have >experienced this problem. >I must confess that the doctor was not very helpful. When I asked him >what other things could happening with my eyes he said, " not everyone >with this disease experiences all the maladies. " I said, " well, I'm >just wondering what I should look for, just in case. " And he said, " if >it happens to you, you'll know it. " so, that's as much information as I >came away with. >Helpful? I think not....... >Any input would be greatly appreciated... > D. >RA > >------------------------------------------------------------------------ >To unsubscribe from this mailing list, or to change your subscription >to digest, go to the ONElist web site, at and >select the User Center link from the menu bar on the left. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 1999 Report Share Posted February 16, 1999 Hi , If you're near sighted, you could consider RK (radiocaritotamy ... if I spelled that right). My husband had that done and it was pretty simple for him. They do one eye, then the other a week or so later, it's all outpatient and takes about 15 minute per eye. I even hear they do it with lasers now, so it's even more precise. Debra M Root wrote: > > From: " M Root " <ru42354@...> > > You wanna know what makes me mad is the dry eye syndrome > won't allow you to wear contacts. I live in the rain forest and > glasses that are fogged and wet are a tremendous detriment. > Any ideas? I tried having the lower duct in the lid sown shut > but that still didn't allow enough moisture to wear contacts. > Im somewhat desperate here . I found if I use snap on sunglasses > on the frame of my glasses I can put them in an up position > this allows freedom from rain that falls straight down but that windblown > rain from the side defeats this method. > Plus when I walk I always over dress and the glasses for up > with heat . I hate glasses . My nose will forever have a notch where > they lay. Any ideas???? thank you and Bless you > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 In article <00ec01be59a2$68b7c2c0$61cb9cd1@oemcomputer>, M Root <ru42354@...> writes >won't allow you to wear contacts. I live in the rain forest and >glasses that are fogged and wet are a tremendous detriment. Try soap or similar commercial products. It stops fogging on the glass. ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 In article <36C9AC3A.6F58@...>, D. King <dking@...> writes >If you're near sighted, you could consider RK (radiocaritotamy ... if I >spelled that right). My husband had that done and it was pretty simple >for him. They do one eye, then the other a week or so later, it's all >outpatient and takes about 15 minute per eye. I even hear they do it >with lasers now, so it's even more precise. Radialkeratotomy. Expensive though. NZ$1500 per eye here. ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 Hi I was under the impression if you had a auto immune that causes edema of any kind that you wern't a good candidate for that??? cooky Dr Graham Chiu wrote: > > From: Dr Graham Chiu <anon_emouse@...> > > In article <36C9AC3A.6F58@...>, D. King <dking@...> > writes > >If you're near sighted, you could consider RK (radiocaritotamy ... if I > >spelled that right). My husband had that done and it was pretty simple > >for him. They do one eye, then the other a week or so later, it's all > >outpatient and takes about 15 minute per eye. I even hear they do it > >with lasers now, so it's even more precise. > > Radialkeratotomy. Expensive though. NZ$1500 per eye here. > > ------- > Regards, Dr Graham Chiu > Prospective Internet Observational Study in Arthritis > Home Page http://www.compkarori.com/arthritis/ > Contribute at http://www.compkarori.com/arthritis/contrib.htm > Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 See!!! This proves it!!! My spelling has gone to poot. Debra Dr Graham Chiu wrote: > > From: Dr Graham Chiu <anon_emouse@...> > > In article <36C9AC3A.6F58@...>, D. King <dking@...> > writes > >If you're near sighted, you could consider RK (radiocaritotamy ... if I > >spelled that right). My husband had that done and it was pretty simple > >for him. They do one eye, then the other a week or so later, it's all > >outpatient and takes about 15 minute per eye. I even hear they do it > >with lasers now, so it's even more precise. > > Radialkeratotomy. Expensive though. NZ$1500 per eye here. > > ------- > Regards, Dr Graham Chiu > Prospective Internet Observational Study in Arthritis > Home Page http://www.compkarori.com/arthritis/ > Contribute at http://www.compkarori.com/arthritis/contrib.htm > Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi > > ------------------------------------------------------------------------ > To unsubscribe from this mailing list, or to change your subscription > to digest, go to the ONElist web site, at and > select the User Center link from the menu bar on the left. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 Has anyone had their eyes affected by lyme? My vision has gotten worse in the last year. I just picked up contacts today. I have never had to wear glasses or contacts before. I was on IV therapy for 8 weeks over the holidays. I was totally off any meds for 1 month. Now I am taking zithromax and ceftin orally. I am extremely achey and have alot of headaches. We all need to pray that someone out there will find a cure for this evil disease. Love and blessings to you all! Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 Hi Sandy, Yes my eyes got worse. I had just gotten new glasses, wore them all my life, when my vision went. I kept trying to talk myself out of paying big bucks again and had read that lyme affects the eyes. Well I finally decided about six months of this was enough and made an appointment and was ready to pay again when they started to clear up. I happens periodically, no specific time, not herx time or whatever. tonight they are bad, but now they only stay bad for a week or so. I also get conjunctivitis really easy now. I have drops that I use right away and it helps. I rreally think it is a lyme thing, Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 had to get bi focals in august for the first time.....then started having problems seeing even with glass's went back to doc.....he said he had never seen someones vision decrease so rapidly......got new prescribtion......seems to be working he said that it was probably related to the spiros and nuero problems Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 dear Connie and Reid, Thanks for responding to my question so quickly. I am 38 female and my doc said that I could use bifocals. NO WAY!!!! not yet...... I'm going to try contacts first. God Bless you both Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 1999 Report Share Posted February 17, 1999 Hi Sandy, I've worn glasses all my life. After I got Lyme in 1987 my eyes started changing a lot. At first I didn't realize what was going on. Now, I just rotate my previous prescriptions until I find one close enough to use, depending on how bad they are. The worst experience I have is waking up blurry eyed. It used to bother me a lot but now I just go back to bed until the blurriness and double vision are gone. I can do that now that I'm retired. Before that, it was a major problem. But then, all my symptoms were. On Wed, 17 Feb 1999 20:02:26 EST HolyGstPwr@... writes: >From: HolyGstPwr@... > >Has anyone had their eyes affected by lyme? My vision has gotten worse >in the >last year. I just picked up contacts today. I have never had to wear >glasses >or contacts before. >I was on IV therapy for 8 weeks over the holidays. I was totally off >any meds >for 1 month. Now I am taking zithromax and ceftin orally. I am >extremely achey >and have alot of headaches. We all need to pray that someone out there >will >find a cure for this evil disease. >Love and blessings to you all! >Sandy > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Hi Reid and all, and a big welcome all the newcomers, My vision changes day to day and is sooooooooo frustrating, since I am bedridden a lot of the time, my main pleasure is reading. One day the print of the book I am reading is fine, the next day a total blur. I don't use glasses for up close reading yet, but only need them for distance. I am thinking about getting one of those magnifying things that you can clip to a book for those bad days. I have tried the large print books available at my library, and they are pretty good but the choice is limited....anyone else having trouble reading the TV Guide? That was my clue that the eye trouble changes daily, as sometimes I have no trouble reading it, other times, impossible. >From: RMcmur3194@... > >had to get bi focals in august for the first time.....then started having >problems seeing even with glass's went back to doc.....he said he had never >seen someones vision decrease so rapidly......got new prescribtion......seems >to be working he said that it was probably related to the spiros and nuero >problems >Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 Hi I was under the impression if you had a auto immune that causes edema of any kind that you weren't a good candidate for that??? cooky Hey this one stopped me right in my tracks . That is a valid thought as I know that with Reiters and PA conjunctivitis and uvitis, are always a concern. I will ask thanks for the good question. At $1500 per eye for radial keratotamy I think its worth it if they can get one's vision at 20/20 or 20/30 at the worst anything less than that and Ill wear my glasses as they have enhanced my vision greatly. Root Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 thats the way i feel about my bifocals i read and watch tv in bed alot( the only place i am comfortqable.....they are a pain to get use to moving back andf forth in the lens but hey at least i can see clear now.........was driving me crazy when the whole world was fuzzy even with my first set of new glass's ....luckily i get my eyes and some other things done thru the vets admin at no cost due to being disabled.....could not have afforded two pairs of glass's in 3 months without them...... take care.......hey we have walked a mile in each others shoes ....it is a comfort to me to be able to go on line and talk to other lymies when weird stuff happens to me....then i find that it has happened to many others......u know sometimes u feel like its is all in ur head .....if we are hypos we all have esp cause we share a l;ot of symptoms....lol Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 1999 Report Share Posted February 18, 1999 marta. I know the feeling.....have always been a big reader .....being basically home bound....(due to lyme ) i read 4 papers a day....get some mags and weekly auto racing papers (big fan) and go to the library like crazy.....only problem some days i don't have the concentration to read or even watch tv......due to lyme brain.....boy are hose days long......read the same sentance over and over.......yuck........oh well makes life interesting....living with lyme Reid Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 DO NOT DO ANY EYE SURGERY! I have dry eyes too and have had to stop the contacts and go with glasses and I hate them too, though, as I get older they do hide the wrinkles and make me look younger. HERE " S THE REASON: I consulted an eye surgeon (TOPS!) about laser correction of bad near sightedness. One of the diseases on the NIH warning list that precludes you having it done is RA. RA is a disease of collegen and our eyes are made of collegen (at least the lens which is what they fool with). Any eye surgery, even RK, is sure to affect the collagen. There is a danger of losing vision. THe surgeon says much more research with arthritis patients is needed before it can be done. (who would volunteer !@#$!). He suggested I get my punctum plugged; these are the holes that tears come out of. , it sounds like you've already done that. You have my sympathy. , a fellow reluctant eye=glass wearer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 ,That's exactly what I thought too! Doctor explained that rather than preventing tears, it allows tears that come from other openings to pool and bathe the eye. Hope that helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 In article <36CDED68.E76B0177@...>, S C <sasc@...> writes >How come if you have dry eyes you can get the tear ducts plugged. This sounds >like just the opposite >of whats needed. I know you have an explanation for it. The drainage duct is closed off so more tears stick around. ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 Indeed I do to keep this simple: there are two ducts in the eye one moistens the eye allowing fluid into the eye and another that the fluid runs in to that drains in the sinuses . If you block the outlet duct then moisture should build up on the eye making it a better environment to float glass or plastic on . Even so there are people that just do not produce enough fluid to allow them to wear contacts. I remember a incident where I had traffic stopped during rush hour on a one way bridge because my contact was stuck to my eyeball and hurt so bad I had to stop and PEAL it off my eye . Needless to say I have avoided wearing contacts since.............. Root God Love ya and keep Ya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 1999 Report Share Posted February 20, 1999 I think you should learn something nude every day!!<g> Root Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 1999 Report Share Posted February 27, 1999 Hi Pat I am curious about Celebrex knowing that my good luck is not going to hold on forever and I may have to take some anti inflammatory toxin one of these days if I flare. I have heard ( as we all have I am sure) that the hype was way out of line with the truth. So aside from blood vessals popping ( I am fainting!) how do you find it in relation to other NSAIDs you have taken. And is PA your only illness? Kit Quote Link to comment Share on other sites More sharing options...
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