Guest guest Posted March 18, 1999 Report Share Posted March 18, 1999 Suzie, My daughter has never had any eye inflammation, and she has been Systemic JRA since age 2. Sorry I don't know. I hope it is nothing more than an allergy. All the best, ---------- > From: suziejones@... > onelist > Subject: [ ] eyes > Date: Thursday, March 18, 1999 6:49 PM > > From: suziejones@... > > Hi all, > Another question: My son had his eyes checked in Jan. and everything was fine. Our docs said it is very uncommon (1%) for systemic JRA kids to have eye inflammation and that although his chances are low, they will check him regularly and that I am to notify them immed. if there is any irritation. This past week he has started blinking rapidly and often. I asked him what was wrong w/ them and he can't explain - he's 4. He now says it feels like there is dirt in them. He may be just saying this because I am bugging him about it. Anyway, I really had to push hard to get him a sooner (than May) appointment and we are still not being seen until next Wed. The assistant said that blinking isn't a sign of inflammation and that I was preoccupied w/ it... UGH! Do any of you have experiences you can share w/ the onset of eye problems due to JRA? Have your children started by blinking? (this very well could be allergies as the trees are starting to blossom or could be the start of a nervous habbit as he does Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 <!doctype html public " -//w3c//dtd html 4.0 transitional//en " > <html> Hi Suzie, <p>I wish I could be of more help but my son Josh hasn't had any eye problems due to the jra, aside from the 'early cataracts' that his eye doctor discovered. He has no symptoms from that, though. I was looking briefly on drdoc's website and found the following info listed not under the systemic jra subset but under the pauciarticular onset subset: <p>1) Pauciarticular onset JCA <p>These patients have involvement of up to 4 joints. A number of these may evolve <br>into Juvenile Spondylo Arthropathy or Psoriasis. The majority of these present <br>between 1 and 3 years of age. It occurs more frequently in females and usually <br>present because the child has a limp. They usually have no significant fevers or <br>constitutional symptoms. Commonest joints involved, are the knee - <br>approximately 50%, but the ankles, elbows or small joints of the hand can also be <br>involved. There is a large association with Anti-nuclear Antibodies - between 40 - 75% of <br>these children, and they are <b>frequently associated with a Chronic eye disease -</b> <br><b>Uveitis - especially if the child is female and under 2 years with positive</b> <br><b>Anti-nuclear Antibodies. Routine eye examinations therefore, become essential</b> <br><b>and Iris irregularity may be seen on slit lamp microscopic examination. The eye</b> <br><b>disease can be unilateral or bilateral - the eye disease is not related to the pattern</b> <br><b>of the arthritis course. </b>With Pauciarticular Arthritis in males - there is a stronger association with Sacroiliitis and Spondyloarthropathy with enthosopathy. There is an association in <br>these children, with HLA B27 gene subtype.<b> Iritis is also common in this group.</b> <br>Another type of this Arthritis occurs with children with small joint involvement in <br>the hands and usually this occurs in girls - rather than the boys, and these patients <br>may subsequently develop psoriasis. <p>Okay, but remember this was listed in the pauciarticular and not systemic subset! <p>Then, I found out a little more about uveitis: <p>Uveitis is a subspecialty of Ophthalmology that deals with inflammation in or around the eye. Many cases of uveitis are caused by infections (such as bacteria, fungi or viruses), autoimmune diseases (such as rheumatoid arthritis or lupus) or tumours. There are a <br>large group of patients in which an underlying etiology cannot be found and these are known as idiopathic. <p>Because uveitis has such varied etiologies and can affect any structure of the eye, uveitis subspecialists work closely with other ophthalmologists in the fields of cornea, retina and glaucoma as well as other medical specialists including rheumatologists, oncologists, and infectious disease physicians. <p>The treatment of uveitis depends on its cause. Commonly used methods include corticosteroid and nonsteroidal anti-inflammatory drops. In severe cases, systemic steroids and other medications that alter the immune system have to be used. Occasionally, surgery is also necessary. <br>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ <br>Anterior uveitis <br>Anterior uveitis, the most common form, occurs in the iris. Most often it is associated with autoimmune diseases such as rheumatoid arthritis and Lupus. This disease is most common between 20 and 50 years old and can affect one or both eyes. Also called iritis or non-granulomatous uveitis, anterior uveitis can be treated by applying warm compresses, analgesics or dilating eye drops to help decrease pain. Steroid drops can help decrease the inflammation. Anterior uveitis usually lasts a few days to a few weeks even with treatment and recurrences are common. <p>Well, now we've all learned a little more about uveitis :-) & nbsp; Suzie, good luck at the eye doctor appointment. You're probably right, that it's a symptom of some form of allergy or maybe, like you said, a nervous habit. Try not to worry too much. And be sure to let us know what they say about your son's exam. <p>Take care, <br>Georgina <p>suziejones@... wrote: <blockquote TYPE=CITE>From: suziejones@... <p>Hi all, <br>Another question: & nbsp; My son had his eyes checked in Jan. and everything was fine. & nbsp; Our docs said it is very uncommon (1%) for systemic JRA kids to have eye inflammation and that although his chances are low, they will check him regularly and that I am to notify them immed. if there is any irritation. & nbsp; This past week he has started blinking rapidly and often. & nbsp; I asked him what was wrong w/ them and he can't explain - he's 4. & nbsp; He now says it feels like there is dirt in them. & nbsp; He may be just saying this because I am bugging him about it. & nbsp; Anyway, I really had to push hard to get him a sooner (than May) appointment and we are still not being seen until next Wed. & nbsp; The assistant said that blinking isn't a sign of inflammation and that I was preoccupied w/ it... UGH! & nbsp; Do any of you have experiences you can share w/ the onset of eye problems due to JRA? & nbsp; Have your children started by blinking? & nbsp; (this very well could be allergies as the trees are starting to blossom or could be the start of a <br>nervous habbit as he does bite his nails but I am not taking any chances!). <p>Thanks for your response, <br>Suzie <p>------------------------------------------------------------------------ <br>Ta Da! Come see our new web site! <br><a href= " " ></a> <br>Onelist: A free email community service</blockquote> </html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hi Suzie, My son Diego had a eye infection the last week.. The doctor said maybe was a spider sting... (I'm not sure). He is taking dicloxiciline and ophtalmic drops and he is better again... Regards, -------------- [ ] eyes From: suziejones@... Hi all, Another question: My son had his eyes checked in Jan. and everything was fine. Our docs said it is very uncommon (1%) for systemic JRA kids to have eye inflammation and that although his chances are low, they will check him regularly and that I am to notify them immed. if there is any irritation. This past week he has started blinking rapidly and often. I asked him what was wrong w/ them and he can't explain - he's 4. He now says it feels like there is dirt in them. He may be just saying this because I am bugging him about it. Anyway, I really had to push hard to get him a sooner (than May) appointment and we are still not being seen until next Wed. The assistant said that blinking isn't a sign of inflammation and that I was preoccupied w/ it... UGH! Do any of you have experiences you can share w/ the onset of eye problems due to JRA? Have your children started by blinking? (this very well could be allergies as the trees are starting to blossom or could be the start! of a nervous habbit as he does bite his nails but I am not taking any chances!). Thanks for your response, Suzie ------------------------------------------------------------------------ Ta Da! Come see our new web site! Onelist: A free email community service Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 Hello Suzie My daughter (8) has systemic JRA (and is also so-called ANA positiv). She had eye inflammation a few years ago which was discovered early in the progress and treated by cortisone eye liquid drops. It is now of prime importance for us to check her eyes regularly to avoid this coming back (in worst case it may cause blindness if is not detected early - they say). Shalom Helge ---------- > Fra: suziejones@... > Til: onelist > Emne: [ ] eyes > Dato: 18. mars 1999 23:19 > > From: suziejones@... > > Hi all, > Another question: My son had his eyes checked in Jan. and everything was fine. Our docs said it is very uncommon (1%) for systemic JRA kids to have eye inflammation and that although his chances are low, they will check him regularly and that I am to notify them immed. if there is any irritation. This past week he has started blinking rapidly and often. I asked him what was wrong w/ them and he can't explain - he's 4. He now says it feels like there is dirt in them. He may be just saying this because I am bugging him about it. Anyway, I really had to push hard to get him a sooner (than May) appointment and we are still not being seen until next Wed. The assistant said that blinking isn't a sign of inflammation and that I was preoccupied w/ it... UGH! Do any of you have experiences you can share w/ the onset of eye problems due to JRA? Have your children started by blinking? (this very well could be allergies as the trees are starting to blossom or could be the start of a nervous habbit as he does Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Dear Jane, First a note about Internet manners. Capitals are a no-no. It means you are yelling. Your eyes are probably suffering with Sjogrens Syndrome. I also have this nasty problem as do several others on the list. You probably need to go to a university based opthamologist (not an optometrist) and discuss getting tiny silicone plugs put into the tiny drain holes called punctum in the eyes. They start with the larger punctum -- one each eye on the lower lid in the corner. If that is not enough the following month they will plug the upper ones too. It is a simple office procedure and the plugs stay in for years and years! You also can use the preservative free eye drops. There are several brands. My doctor now recommends Theratears. If you eyes do not respond well enough to the punctal plugs then you can have special glasses made called " moisture chambers. " I will include a link on this note for the Sjogrens site which is excellent. I highly recommend their newsletter too. click here for: <A HREF= " http://www.sjogrens.com " >Sjogrens Fpundation</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 To Jane... and everybody else... I had problems with my eyes and contact lenses when I first developed psoriasis 25 years ago. (Incidentally, the psoriasis wasn't actually diagnosed until about 5 years later.) I believe the problem was caused by psoriatic flakes of skin getting into my eyes. I had the same symptoms that you described. I gave up on my contact lenses. However, I think I know enough now, to know a possible solution. I think using something like Eucerin Plus lotion on the skin around my eyes would help to reduce the buildup of dry scaly skin, which would prevent it from falling into my eyes. Eucerin Plus is an over-the-counter lotion. I used to use a precription product (Lac-Hydrin lotion) until this over-the-counter product became availabe and my insurance would no longer cover the prescription product. The over-the-counter product works just as well as the prescription product. For me, Eucerin Plus does a very good job. And if you were to only use it around the eyes and face it would be VERY easy to use... just rub a little in before going to bed. And if you only used it 2 or 3 times a week, that would probably also work, There are about 7 or 8 other over-the-counter lotions that are designed to do the same thing. i.e., break down the whatever-it-is that keeps the dead dry scaly skin attached and lets it be shed before it becomes big clumps. My doctor gave me a list of these lotions, and if you (or anybody else) is interested I can post the list. Rick In a message dated 4/26/99 12:14:20 PM Pacific Daylight Time, zinsmeister@... writes: > DOE ANYONE ELSE OUT THERE HAVE PROBLEMS WITH THEIR EYES. I HAVE BEEN FOR A > WHILE NOW. RED, BLOOD SHOT AND FEELING GRITTY. I WEAR CONTACT LENSES AND > NOW Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 , I don't have any information on the eye ailment from RA but another thing you might want to consider is effects from any medications you're taking. My rheum had me on Plaquinel and I kept complaining to him of progressively worsening blurred vision. It got bad enough that I was starting to wonder if I should be driving. He kept dismissing my complaints because the standard eye check-ups they give you when you're on Plaquenil were okay. I finally decided to dump the Plaquinel and surprise, surprise, my blurred vision cleared up almost right away. I also found my eyes felt better over-all, less dryness and irritation. Just something to think about. Hope you get some answers and help. a > Sala wrote: > > Would someone please repeat some of the information about the eye > ailment that seems to be a part of RA. I'm seeing my eye doctor before > long and would like to be prepared with this information. Sometimes I > think I must be on the brink of going blind, the way my eyes have > been. Any info will be greatly appreciated...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Hi Group - FYI. (You probably already know this but here goes...) Because I'm on Placquinel, I have my eyes checked every 6 months by a ophthalmologist (not an optometrist). He does a color recognition test (I hear this is the first sign of trouble from the drug), then dilates my eyes for a thorough exam. I would suggest this for anyone on this drug. It's bad enough having arthritis we don't need to be blind too!!! Lea a Peden wrote: > From: a Peden <paula.peden@...> > > , > I don't have any information on the eye ailment from RA but another > thing you might want to consider is effects from any medications you're > taking. My rheum had me on Plaquinel and I kept complaining to him of > progressively worsening blurred vision. It got bad enough that I was > starting to wonder if I should be driving. He kept dismissing my > complaints because the standard eye check-ups they give you when you're > on Plaquenil were okay. I finally decided to dump the Plaquinel and > surprise, surprise, my blurred vision cleared up almost right away. I > also found my eyes felt better over-all, less dryness and irritation. > Just something to think about. Hope you get some answers and help. > a > > > Sala wrote: > > > > Would someone please repeat some of the information about the eye > > ailment that seems to be a part of RA. I'm seeing my eye doctor before > > long and would like to be prepared with this information. Sometimes I > > think I must be on the brink of going blind, the way my eyes have > > been. Any info will be greatly appreciated...... > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Lea, That is what I meant by standard Plaquinel tests. I had those done every 6 months and was told everything was fine, but I still had blurred vision, which went away when I stopped the Plaquinel. I also know someone else who had this happen, so I don't think it's that uncommon. a Lea Tanner wrote: > > Hi Group - FYI. (You probably already know this but here goes...) > Because I'm on Placquinel, I have my eyes checked every 6 months by a > ophthalmologist (not an optometrist). He does a color recognition > test (I hear this is the first sign of trouble from the drug), then > dilates my eyes for a thorough exam. I would suggest this for anyone > on this drug. It's bad enough having arthritis we don't need to be > blind too!!! > Lea > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 1999 Report Share Posted July 28, 1999 Gwen, That was exactly what I was told, which was a laugh because I had just had my eyes tested and got new contacts three weeks before I started the Plaquenil and they were fine until shortly after I started taking Plaquenil. The other interesting thing was how quickly these new contacts deteriorated while I was on the Plaquenil. They lasted less than half as long as my contacts usually do. It was as if something was pitting and dissolving them in my eyes. I'm using a new pair since going off the Plaquenil and they aren't doing this. So, even though I wasn't getting the recognized eye damage that can occur with Plaquenil, it was definitely doing something to my eyes and I didn't like it. You'll have to make your own decision but I didn't think it was helping me either and when I went off it, the only change I had was better vision. If it had been helping me, I guess the decision would have been harder to make. a Gwen Armstrong wrote: > > Thanks for the info on Plaquenil. I too was told it wasn't a problem and that my eyes were > fine, but I have blurriness and dry eyes. The eye Dr told me it was probably my contacts and > that isn't true--didn't bother me before. I have about 4 plaquenil left in my presc. and I > think I will stop them and see if it helps. I can't see what good the plaq is doing anyway, > Gwen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Hi: Same thing happened to me about he Plaquenil - after dumping, my eyes are clearer and no longer feel gritty (sp.?). Mado Re: rheumatic eyes >From: a Peden <paula.peden@...> > >, >I don't have any information on the eye ailment from RA but another >thing you might want to consider is effects from any medications you're >taking. My rheum had me on Plaquinel and I kept complaining to him of >progressively worsening blurred vision. It got bad enough that I was >starting to wonder if I should be driving. He kept dismissing my >complaints because the standard eye check-ups they give you when you're >on Plaquenil were okay. I finally decided to dump the Plaquinel and >surprise, surprise, my blurred vision cleared up almost right away. I >also found my eyes felt better over-all, less dryness and irritation. >Just something to think about. Hope you get some answers and help. >a > >> Sala wrote: >> >> Would someone please repeat some of the information about the eye >> ailment that seems to be a part of RA. I'm seeing my eye doctor before >> long and would like to be prepared with this information. Sometimes I >> think I must be on the brink of going blind, the way my eyes have >> been. Any info will be greatly appreciated...... > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Hi to all Sure hope this proves out to be my problem. I have aleady talked to a re -this. I have been on Plaquenil for a couple of years and have had dry, blurry , and gritty eyes. This has been a real problem and the eye specialist that checks for Plaquenil caused problems kept telling me all was well--- " it must be your contact lenses--which is " crap " because I didn't wear them for a year or so when my RA was so bad I couldn't use my fingers to get them in. Thanks for the help -all of you-- BTW I stopped Plaquenil yesterday-never did see what good it did. Best to all Gwen mahay wrote: > From: " mahay " <mahay@...> > > Hi: > > Same thing happened to me about he Plaquenil - after dumping, my eyes are > clearer and no longer feel gritty (sp.?). > Mado > Re: rheumatic eyes > > >From: a Peden <paula.peden@...> > > > >, > >I don't have any information on the eye ailment from RA but another > >thing you might want to consider is effects from any medications you're > >taking. My rheum had me on Plaquinel and I kept complaining to him of > >progressively worsening blurred vision. It got bad enough that I was > >starting to wonder if I should be driving. He kept dismissing my > >complaints because the standard eye check-ups they give you when you're > >on Plaquenil were okay. I finally decided to dump the Plaquinel and > >surprise, surprise, my blurred vision cleared up almost right away. I > >also found my eyes felt better over-all, less dryness and irritation. > >Just something to think about. Hope you get some answers and help. > >a > > > >> Sala wrote: > >> > >> Would someone please repeat some of the information about the eye > >> ailment that seems to be a part of RA. I'm seeing my eye doctor before > >> long and would like to be prepared with this information. Sometimes I > >> think I must be on the brink of going blind, the way my eyes have > >> been. Any info will be greatly appreciated...... > > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Hi I really didn't quit it cold turkey......in the last few months I cut the dose in half , with no effects and then started every other day, so it's not abrupt. I will let you all know what the results are. Gwen M Carroll wrote: > HI Gwen, > I am no authority but do you think that you should have gone of the > plaquenil so suddenly? I was advised by some of the others that when I > first cut back to 200 from 400 it was probably too fast and they were > right. I was doing great on the mincocin ( normal labs, very little pain, > and within several weeks of cutting the plaquenil down, I started gradually > getting worse and worse. My labs also returned to positive. > Ethel gave me some good advice on this. > > > At 09:38 AM 7/29/99 -0600, you wrote: > >From: Gwen Armstrong <armstrog@...> > > > >Hi to all > >Sure hope this proves out to be my problem. I have aleady talked to a > re -this. I have > >been on Plaquenil for a couple of years and have had dry, blurry , and > gritty eyes. This has > >been a real problem and the eye specialist that checks for Plaquenil > caused problems kept > >telling me all was well--- " it must be your contact lenses--which is " crap " > because I didn't > >wear them for a year or so when my RA was so bad I couldn't use my fingers > to get them in. > >Thanks for the help -all of you-- > >BTW I stopped Plaquenil yesterday-never did see what good it did. > >Best to all > >Gwen > > > >mahay wrote: > > > >> From: " mahay " <mahay@...> > >> > >> Hi: > >> > >> Same thing happened to me about he Plaquenil - after dumping, my eyes are > >> clearer and no longer feel gritty (sp.?). > >> Mado > >> Re: rheumatic eyes > >> > >> >From: a Peden <paula.peden@...> > >> > > >> >, > >> >I don't have any information on the eye ailment from RA but another > >> >thing you might want to consider is effects from any medications you're > >> >taking. My rheum had me on Plaquinel and I kept complaining to him of > >> >progressively worsening blurred vision. It got bad enough that I was > >> >starting to wonder if I should be driving. He kept dismissing my > >> >complaints because the standard eye check-ups they give you when you're > >> >on Plaquenil were okay. I finally decided to dump the Plaquinel and > >> >surprise, surprise, my blurred vision cleared up almost right away. I > >> >also found my eyes felt better over-all, less dryness and irritation. > >> >Just something to think about. Hope you get some answers and help. > >> >a > >> > > >> >> Sala wrote: > >> >> > >> >> Would someone please repeat some of the information about the eye > >> >> ailment that seems to be a part of RA. I'm seeing my eye doctor before > >> >> long and would like to be prepared with this information. Sometimes I > >> >> think I must be on the brink of going blind, the way my eyes have > >> >> been. Any info will be greatly appreciated...... > >> > > >> >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Just to expand on Gwen's comments, another thing we both noticed while on Plaquenil was that our contacts deteriorated at least twice as fast as they had before we were taking it. It was almost like something was etching and pitting the contacts. Since going off the Plaquenil, that problem has also stopped for me. Makes you wonder just what this stuff does do to your eyes. a Gwen Armstrong wrote: > > Hi to all > Sure hope this proves out to be my problem. I have aleady talked to a re -this. I have > been on Plaquenil for a couple of years and have had dry, blurry , and gritty eyes. This has > been a real problem and the eye specialist that checks for Plaquenil caused problems kept > telling me all was well--- " it must be your contact lenses--which is " crap " because I didn't > wear them for a year or so when my RA was so bad I couldn't use my fingers to get them in. > Thanks for the help -all of you-- > BTW I stopped Plaquenil yesterday-never did see what good it did. > Best to all > Gwen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Gwen and , I think the decision on whether or not to stay on Plaquenil has to take into account whether it seems to be helping at all. I stayed on it for 7 months and never felt it helped me at all. Even my rheum had to concede it was not helping so with that, combined with my eye problems, I decided to quit taking it cold turkey and see what happened. To be fair, I wasn't in great shape at the time, but I didn't get any worse and my vision and other eye problems improved almost immediately. Shortly after, I decided to try a different nsaid (changed from Naproxen to Relafen), and I've gotten progressively better ever since. If the Plaquenil had been helping, obviously it would have been a more difficult decision to make but I felt I had nothing to lose at the time so I took a gamble. I could be wrong but my feeling is if Gwen has been cutting back without any negative effects, the Plaquenil probably isn't doing anything for her either and she won't have any serious repercussions from quitting, at least, I hope that's what happens for her. a Gwen Armstrong wrote: > > From: Gwen Armstrong <armstrog@...> > > Hi > I really didn't quit it cold turkey......in the last few months I cut the dose in half , > with no effects and then started every other day, so it's not abrupt. > I will let you all know what the results are. > Gwen > > M Carroll wrote: > > > HI Gwen, > > I am no authority but do you think that you should have gone of the > > plaquenil so suddenly? I was advised by some of the others that when I > > first cut back to 200 from 400 it was probably too fast and they were > > right. I was doing great on the mincocin ( normal labs, very little pain, > > and within several weeks of cutting the plaquenil down, I started gradually > > getting worse and worse. My labs also returned to positive. > > Ethel gave me some good advice on this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Lynn, Yes, that is exactly how it feels, like vinegar in my eyes. Do you know cause and cure for this? J >From: Lynn <CEN32195@...> >Reply- onelist > onelist >Subject: Re: [ ] Just need to talk about stuff >Date: Thu, 29 Jul 1999 19:18:54 -0700 >MIME-Version: 1.0 >From errors-165537-4481-shireen42 Thu Jul 29 19:28:17 1999 >Received: from [209.207.164.237] by hotmail.com (2.1) with ESMTP id >MHotMailB96A58C00195D820F3A8D1CFA4ED0BFA0; Thu Jul 29 19:28:17 1999 >Received: (qmail 6142 invoked by alias); 30 Jul 1999 02:28:13 -0000 >Received: (qmail 6131 invoked from network); 30 Jul 1999 02:28:13 -0000 >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by >pop.onelist.com with SMTP; 30 Jul 1999 02:28:13 -0000 >Received: from ptinet.net (ppp044.mon.centuryinter.net [209.206.163.75]) by >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id TAA01801 for >< onelist>; Thu, 29 Jul 1999 19:28:08 -0700 (PDT) >Message-ID: <37A10B8E.C47B71B7@...> >X-Mailer: Mozilla 4.05 [en] (Win95; I) >References: <19990729221540.28434.qmail@...> >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Lynn <CEN32195@...> > >Hi, sometimes I have, not severe, but enough to know it is not right. Kind >of a >stinging like I got a solution of some type in my eyes. Lynn > >susan johnson wrote: > > > From: " susan johnson " <shireen42@...> > > > > Has anyone else had problem with burning eyes? > > > > J > > > > >From: " Lori Cummins " <tlknj@...> > > >Reply- onelist > > >< onelist> > > >Subject: Re: [ ] Just need to talk about stuff > > >Date: Thu, 29 Jul 1999 13:27:44 -0500 > > >MIME-Version: 1.0 > > >From errors-165537-4429-shireen42 Thu Jul 29 11:28:32 1999 > > >Received: from [209.207.164.213] by hotmail.com (2.1) with ESMTP id > > >MHotMailB969E85001B1D82197B2D1CFA4D57DF50; Thu Jul 29 11:28:32 1999 > > >Received: (qmail 4177 invoked by alias); 29 Jul 1999 18:29:04 -0000 > > >Received: (qmail 4170 invoked from network); 29 Jul 1999 18:29:04 -0000 > > >Received: from unknown (HELO ns1.rconnect.com) (209.163.30.1) by > > >pop.onelist.com with SMTP; 29 Jul 1999 18:29:04 -0000 > > >Received: from tknlj (pmfair1-202.rconnect.com [209.163.11.202]) by > > >ns1.rconnect.com (8.9.3/8.9.1) with SMTP id NAA22715 for > > >< onelist>; Thu, 29 Jul 1999 13:29:26 -0500 (CDT) > > >Message-ID: <001a01bed9f0$0eadc440$ca0ba3d1@tknlj> > > >X-Priority: 3 > > >X-MSMail-Priority: Normal > > >X-Mailer: Microsoft Outlook Express 4.72.3110.1 > > >X-MimeOLE: Produced By Microsoft MimeOLE V4.72.3110.3 > > >Mailing-List: list onelist; contact > > > -owneronelist > > >Delivered-mailing list onelist > > >Precedence: bulk > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > >From: " Lori Cummins " <tlknj@...> > > > > > >Jody, It's sounds like me three years ago, right before I was diagnose. > > >Actually it was 3 years ago today July 29th 1996 when I was diagnosed >with > > >AIH with cirrhosis. My acne was bad and nothing cleared it up, not even > > >Retin -A. I think the memory thing is due to the build up of ammonia >in > > >your system, which says to me that your liver function must be >decreasing. > > >The acne did not clear up until after I was transplanted with my new >liver. > > >If there are any other questions you would like to ask-ask away. I've >been > > >there ~ DONE THAT!! > > >Lori C. AIH~ Liver tx 3~11~97 > > > [ ] Just need to talk about stuff > > > > > > > > > >From: Jody Compton <compton_61@...> > > > > > > > >Hi everyone, > > > >First I want to thank you guys for being here and sharing your > > > >experiences and listening to mine. > > > >Lately, I feel like my memory is getting worse along with my fatigue. > > > >It seems to make it more difficult to deal with crisis' that arise in > > > >life.. I feel overwhelmed over the little things it seems. I don't >know > > > >if this is a side effect of the fatigue but I dont like it. Its just > > > >not me. It seems I become more and more stressed out as I fight for > > > >what's left of my mental faculties. Does anyone else have this >problem. > > > >I also have the acne lately. I had a time a year ago when I had a >huge > > > >break out and it cleared up but now its returned. Has anyone felt >this > > > >way??? > > > >I cant wait to see the Hep doc next week.. > > > >Thanks again for listening > > > >Jody > > > > > > > > > > > >=== > > > >Jody Compton > > > >Dance like no one is watching. Love like it will never end. > > > > > > > >In search of answers.. > > > >_____________________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 Lynn, Yes, that is exactly how it feels, like vinegar in my eyes. Do you know cause and cure for this? J >From: Lynn <CEN32195@...> >Reply- onelist > onelist >Subject: Re: [ ] Just need to talk about stuff >Date: Thu, 29 Jul 1999 19:18:54 -0700 >MIME-Version: 1.0 >From errors-165537-4481-shireen42 Thu Jul 29 19:28:17 1999 >Received: from [209.207.164.237] by hotmail.com (2.1) with ESMTP id >MHotMailB96A58C00195D820F3A8D1CFA4ED0BFA0; Thu Jul 29 19:28:17 1999 >Received: (qmail 6142 invoked by alias); 30 Jul 1999 02:28:13 -0000 >Received: (qmail 6131 invoked from network); 30 Jul 1999 02:28:13 -0000 >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by >pop.onelist.com with SMTP; 30 Jul 1999 02:28:13 -0000 >Received: from ptinet.net (ppp044.mon.centuryinter.net [209.206.163.75]) by >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id TAA01801 for >< onelist>; Thu, 29 Jul 1999 19:28:08 -0700 (PDT) >Message-ID: <37A10B8E.C47B71B7@...> >X-Mailer: Mozilla 4.05 [en] (Win95; I) >References: <19990729221540.28434.qmail@...> >Mailing-List: list onelist; contact > -owneronelist >Delivered-mailing list onelist >Precedence: bulk >List-Unsubscribe: <mailto: -unsubscribeONElist> > >From: Lynn <CEN32195@...> > >Hi, sometimes I have, not severe, but enough to know it is not right. Kind >of a >stinging like I got a solution of some type in my eyes. Lynn > >susan johnson wrote: > > > From: " susan johnson " <shireen42@...> > > > > Has anyone else had problem with burning eyes? > > > > J > > > > >From: " Lori Cummins " <tlknj@...> > > >Reply- onelist > > >< onelist> > > >Subject: Re: [ ] Just need to talk about stuff > > >Date: Thu, 29 Jul 1999 13:27:44 -0500 > > >MIME-Version: 1.0 > > >From errors-165537-4429-shireen42 Thu Jul 29 11:28:32 1999 > > >Received: from [209.207.164.213] by hotmail.com (2.1) with ESMTP id > > >MHotMailB969E85001B1D82197B2D1CFA4D57DF50; Thu Jul 29 11:28:32 1999 > > >Received: (qmail 4177 invoked by alias); 29 Jul 1999 18:29:04 -0000 > > >Received: (qmail 4170 invoked from network); 29 Jul 1999 18:29:04 -0000 > > >Received: from unknown (HELO ns1.rconnect.com) (209.163.30.1) by > > >pop.onelist.com with SMTP; 29 Jul 1999 18:29:04 -0000 > > >Received: from tknlj (pmfair1-202.rconnect.com [209.163.11.202]) by > > >ns1.rconnect.com (8.9.3/8.9.1) with SMTP id NAA22715 for > > >< onelist>; Thu, 29 Jul 1999 13:29:26 -0500 (CDT) > > >Message-ID: <001a01bed9f0$0eadc440$ca0ba3d1@tknlj> > > >X-Priority: 3 > > >X-MSMail-Priority: Normal > > >X-Mailer: Microsoft Outlook Express 4.72.3110.1 > > >X-MimeOLE: Produced By Microsoft MimeOLE V4.72.3110.3 > > >Mailing-List: list onelist; contact > > > -owneronelist > > >Delivered-mailing list onelist > > >Precedence: bulk > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > >From: " Lori Cummins " <tlknj@...> > > > > > >Jody, It's sounds like me three years ago, right before I was diagnose. > > >Actually it was 3 years ago today July 29th 1996 when I was diagnosed >with > > >AIH with cirrhosis. My acne was bad and nothing cleared it up, not even > > >Retin -A. I think the memory thing is due to the build up of ammonia >in > > >your system, which says to me that your liver function must be >decreasing. > > >The acne did not clear up until after I was transplanted with my new >liver. > > >If there are any other questions you would like to ask-ask away. I've >been > > >there ~ DONE THAT!! > > >Lori C. AIH~ Liver tx 3~11~97 > > > [ ] Just need to talk about stuff > > > > > > > > > >From: Jody Compton <compton_61@...> > > > > > > > >Hi everyone, > > > >First I want to thank you guys for being here and sharing your > > > >experiences and listening to mine. > > > >Lately, I feel like my memory is getting worse along with my fatigue. > > > >It seems to make it more difficult to deal with crisis' that arise in > > > >life.. I feel overwhelmed over the little things it seems. I don't >know > > > >if this is a side effect of the fatigue but I dont like it. Its just > > > >not me. It seems I become more and more stressed out as I fight for > > > >what's left of my mental faculties. Does anyone else have this >problem. > > > >I also have the acne lately. I had a time a year ago when I had a >huge > > > >break out and it cleared up but now its returned. Has anyone felt >this > > > >way??? > > > >I cant wait to see the Hep doc next week.. > > > >Thanks again for listening > > > >Jody > > > > > > > > > > > >=== > > > >Jody Compton > > > >Dance like no one is watching. Love like it will never end. > > > > > > > >In search of answers.. > > > >_____________________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 I do get stinging eyes not often tho. Mostly my eyes are dry and feel like there's something in them. Jody --- susan johnson <shireen42@...> wrote: > From: " susan johnson " <shireen42@...> > > Lynn, > > Yes, that is exactly how it feels, like vinegar in > my eyes. Do you know > cause and cure for this? > > J > > > >From: Lynn <CEN32195@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] Just need to talk > about stuff > >Date: Thu, 29 Jul 1999 19:18:54 -0700 > >MIME-Version: 1.0 > >From errors-165537-4481-shireen42 Thu Jul 29 > 19:28:17 1999 > >Received: from [209.207.164.237] by hotmail.com > (2.1) with ESMTP id > >MHotMailB96A58C00195D820F3A8D1CFA4ED0BFA0; Thu Jul > 29 19:28:17 1999 > >Received: (qmail 6142 invoked by alias); 30 Jul > 1999 02:28:13 -0000 > >Received: (qmail 6131 invoked from network); 30 Jul > 1999 02:28:13 -0000 > >Received: from unknown (HELO mail.ptinet.net) > (208.157.241.5) by > >pop.onelist.com with SMTP; 30 Jul 1999 02:28:13 > -0000 > >Received: from ptinet.net > (ppp044.mon.centuryinter.net [209.206.163.75]) by > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id > TAA01801 for > >< onelist>; Thu, 29 Jul 1999 > 19:28:08 -0700 (PDT) > >Message-ID: <37A10B8E.C47B71B7@...> > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > >References: > <19990729221540.28434.qmail@...> > >Mailing-List: list onelist; > contact > > -owneronelist > >Delivered-mailing list > onelist > >Precedence: bulk > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > >From: Lynn <CEN32195@...> > > > >Hi, sometimes I have, not severe, but enough to > know it is not right. Kind > >of a > >stinging like I got a solution of some type in my > eyes. Lynn > > > >susan johnson wrote: > > > > > From: " susan johnson " <shireen42@...> > > > > > > Has anyone else had problem with burning eyes? > > > > > > J > > > > > > >From: " Lori Cummins " <tlknj@...> > > > >Reply- onelist > > > >< onelist> > > > >Subject: Re: [ ] Just need to talk > about stuff > > > >Date: Thu, 29 Jul 1999 13:27:44 -0500 > > > >MIME-Version: 1.0 > > > >From errors-165537-4429-shireen42 Thu Jul 29 > 11:28:32 1999 > > > >Received: from [209.207.164.213] by hotmail.com > (2.1) with ESMTP id > > > >MHotMailB969E85001B1D82197B2D1CFA4D57DF50; Thu > Jul 29 11:28:32 1999 > > > >Received: (qmail 4177 invoked by alias); 29 Jul > 1999 18:29:04 -0000 > > > >Received: (qmail 4170 invoked from network); 29 > Jul 1999 18:29:04 -0000 > > > >Received: from unknown (HELO ns1.rconnect.com) > (209.163.30.1) by > > > >pop.onelist.com with SMTP; 29 Jul 1999 18:29:04 > -0000 > > > >Received: from tknlj (pmfair1-202.rconnect.com > [209.163.11.202]) by > > > >ns1.rconnect.com (8.9.3/8.9.1) with SMTP id > NAA22715 for > > > >< onelist>; Thu, 29 Jul 1999 > 13:29:26 -0500 (CDT) > > > >Message-ID: > <001a01bed9f0$0eadc440$ca0ba3d1@tknlj> > > > >X-Priority: 3 > > > >X-MSMail-Priority: Normal > > > >X-Mailer: Microsoft Outlook Express 4.72.3110.1 > > > >X-MimeOLE: Produced By Microsoft MimeOLE > V4.72.3110.3 > > > >Mailing-List: list onelist; > contact > > > > -owneronelist > > > >Delivered-mailing list > onelist > > > >Precedence: bulk > > > >List-Unsubscribe: > <mailto: -unsubscribeONElist> > > > > > > > >From: " Lori Cummins " <tlknj@...> > > > > > > > >Jody, It's sounds like me three years ago, > right before I was diagnose. > > > >Actually it was 3 years ago today July 29th > 1996 when I was diagnosed > >with > > > >AIH with cirrhosis. My acne was bad and nothing > cleared it up, not even > > > >Retin -A. I think the memory thing is due to > the build up of ammonia > >in > > > >your system, which says to me that your liver > function must be > >decreasing. > > > >The acne did not clear up until after I was > transplanted with my new > >liver. > > > >If there are any other questions you would like > to ask-ask away. I've > >been > > > >there ~ DONE THAT!! > > > >Lori C. AIH~ Liver tx 3~11~97 > > > > [ ] Just need to talk > about stuff > > > > > > > > > > > > >From: Jody Compton <compton_61@...> > > > > > > > > > >Hi everyone, > > > > >First I want to thank you guys for being here > and sharing your > > > > >experiences and listening to mine. > > > > >Lately, I feel like my memory is getting > worse along with my fatigue. > > > > >It seems to make it more difficult to deal > with crisis' that arise in > > > > >life.. I feel overwhelmed over the little > things it seems. I don't > >know > > > > >if this is a side effect of the fatigue but I > dont like it. Its just > > > > >not me. It seems I become more and more > stressed out as I fight for > > > > >what's left of my mental faculties. Does > anyone else have this > >problem. > > > > >I also have the acne lately. I had a time a > year ago when I had a > >huge > > > > >break out and it cleared up but now its > returned. Has anyone felt > >this > > > > >way??? > > > > >I cant wait to see the Hep doc next week.. > > > > >Thanks again for listening > > > > >Jody > > > > > > > > > > > > > > >=== > > > > >Jody Compton > > > > >Dance like no one is watching. Love like it > will never end. > > > > > > > > > >In search of answers.. > > > > > >_____________________________________________________________ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 1999 Report Share Posted July 30, 1999 Hi J, I have no idea what to do about it, I just thought it was another " thing " to have to put up with. Lynn susan johnson wrote: > From: " susan johnson " <shireen42@...> > > Lynn, > > Yes, that is exactly how it feels, like vinegar in my eyes. Do you know > cause and cure for this? > > J > > >From: Lynn <CEN32195@...> > >Reply- onelist > > onelist > >Subject: Re: [ ] Just need to talk about stuff > >Date: Thu, 29 Jul 1999 19:18:54 -0700 > >MIME-Version: 1.0 > >From errors-165537-4481-shireen42 Thu Jul 29 19:28:17 1999 > >Received: from [209.207.164.237] by hotmail.com (2.1) with ESMTP id > >MHotMailB96A58C00195D820F3A8D1CFA4ED0BFA0; Thu Jul 29 19:28:17 1999 > >Received: (qmail 6142 invoked by alias); 30 Jul 1999 02:28:13 -0000 > >Received: (qmail 6131 invoked from network); 30 Jul 1999 02:28:13 -0000 > >Received: from unknown (HELO mail.ptinet.net) (208.157.241.5) by > >pop.onelist.com with SMTP; 30 Jul 1999 02:28:13 -0000 > >Received: from ptinet.net (ppp044.mon.centuryinter.net [209.206.163.75]) by > >mail.ptinet.net (8.8.8/8.8.8) with ESMTP id TAA01801 for > >< onelist>; Thu, 29 Jul 1999 19:28:08 -0700 (PDT) > >Message-ID: <37A10B8E.C47B71B7@...> > >X-Mailer: Mozilla 4.05 [en] (Win95; I) > >References: <19990729221540.28434.qmail@...> > >Mailing-List: list onelist; contact > > -owneronelist > >Delivered-mailing list onelist > >Precedence: bulk > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > >From: Lynn <CEN32195@...> > > > >Hi, sometimes I have, not severe, but enough to know it is not right. Kind > >of a > >stinging like I got a solution of some type in my eyes. Lynn > > > >susan johnson wrote: > > > > > From: " susan johnson " <shireen42@...> > > > > > > Has anyone else had problem with burning eyes? > > > > > > J > > > > > > >From: " Lori Cummins " <tlknj@...> > > > >Reply- onelist > > > >< onelist> > > > >Subject: Re: [ ] Just need to talk about stuff > > > >Date: Thu, 29 Jul 1999 13:27:44 -0500 > > > >MIME-Version: 1.0 > > > >From errors-165537-4429-shireen42 Thu Jul 29 11:28:32 1999 > > > >Received: from [209.207.164.213] by hotmail.com (2.1) with ESMTP id > > > >MHotMailB969E85001B1D82197B2D1CFA4D57DF50; Thu Jul 29 11:28:32 1999 > > > >Received: (qmail 4177 invoked by alias); 29 Jul 1999 18:29:04 -0000 > > > >Received: (qmail 4170 invoked from network); 29 Jul 1999 18:29:04 -0000 > > > >Received: from unknown (HELO ns1.rconnect.com) (209.163.30.1) by > > > >pop.onelist.com with SMTP; 29 Jul 1999 18:29:04 -0000 > > > >Received: from tknlj (pmfair1-202.rconnect.com [209.163.11.202]) by > > > >ns1.rconnect.com (8.9.3/8.9.1) with SMTP id NAA22715 for > > > >< onelist>; Thu, 29 Jul 1999 13:29:26 -0500 (CDT) > > > >Message-ID: <001a01bed9f0$0eadc440$ca0ba3d1@tknlj> > > > >X-Priority: 3 > > > >X-MSMail-Priority: Normal > > > >X-Mailer: Microsoft Outlook Express 4.72.3110.1 > > > >X-MimeOLE: Produced By Microsoft MimeOLE V4.72.3110.3 > > > >Mailing-List: list onelist; contact > > > > -owneronelist > > > >Delivered-mailing list onelist > > > >Precedence: bulk > > > >List-Unsubscribe: <mailto: -unsubscribeONElist> > > > > > > > >From: " Lori Cummins " <tlknj@...> > > > > > > > >Jody, It's sounds like me three years ago, right before I was diagnose. > > > >Actually it was 3 years ago today July 29th 1996 when I was diagnosed > >with > > > >AIH with cirrhosis. My acne was bad and nothing cleared it up, not even > > > >Retin -A. I think the memory thing is due to the build up of ammonia > >in > > > >your system, which says to me that your liver function must be > >decreasing. > > > >The acne did not clear up until after I was transplanted with my new > >liver. > > > >If there are any other questions you would like to ask-ask away. I've > >been > > > >there ~ DONE THAT!! > > > >Lori C. AIH~ Liver tx 3~11~97 > > > > [ ] Just need to talk about stuff > > > > > > > > > > > > >From: Jody Compton <compton_61@...> > > > > > > > > > >Hi everyone, > > > > >First I want to thank you guys for being here and sharing your > > > > >experiences and listening to mine. > > > > >Lately, I feel like my memory is getting worse along with my fatigue. > > > > >It seems to make it more difficult to deal with crisis' that arise in > > > > >life.. I feel overwhelmed over the little things it seems. I don't > >know > > > > >if this is a side effect of the fatigue but I dont like it. Its just > > > > >not me. It seems I become more and more stressed out as I fight for > > > > >what's left of my mental faculties. Does anyone else have this > >problem. > > > > >I also have the acne lately. I had a time a year ago when I had a > >huge > > > > >break out and it cleared up but now its returned. Has anyone felt > >this > > > > >way??? > > > > >I cant wait to see the Hep doc next week.. > > > > >Thanks again for listening > > > > >Jody > > > > > > > > > > > > > > >=== > > > > >Jody Compton > > > > >Dance like no one is watching. Love like it will never end. > > > > > > > > > >In search of answers.. > > > > >_____________________________________________________________ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 Do not use this program for eye cancer. It does not work! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Mark, Are you aware of Sjogren's syndrome? Sjogren's is a specific autoimmune dysfunction of the glands which lubricate the eyes, and can also effect the salivary glands, causing dry mouth. It is associated with specific autoantibodies which can be detected with blood tests. There is also a dry eye syndrome which doesn't have anything to do with autoimmunity just aging, dry skin, sensitivities, etc. Sjogens often accompanies RA and other collagen diseases, or can exist as a " stand-alone " rheumatic disease. Ophthalmologists recommend artificial tears, preferably without preservatives, for the daytime, and ophthalmic ointment, a light mineral oil and petroleum mixture, for nighttime. Preservatives can be the cause of the stinging. Artificial tears without preservatives come in small individual applicators which you throw away after one use. I don't know what the recommendation is for contact wearers. I would ask your rheumatologist or see an ophthalmologist. Jean ---------- From: MHOLMES@... (HOLMES, MARK T.) <rheumaticonelist> Subject: rheumatic eyes Date: Mon, Oct 4, 1999, 9:20 PM Has anyone with RA had problems with their eyes burning? Actually it's my eyelids - feel kind of like they've been sandpapered at times. I put in some moisture drops, which can sting like crazy at first (kind of bizarre I think), and they help a bit but not much. Seems to bother me more at night and first thing in the morning, but can on some days persist throughout the day. Causes me to blink a lot. Perhaps is allergies, as I've been sneezing a lot lately - maybe the dead leaves - not sure. If you have RA, do you think a yearly appt w/ an opthomologist is necessary or would an optometrist suffice? None of my docs have suggested I should be doing this, but with my eyes bugging me, I'm wondering. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Mark, I have had similar problems with my eyes. I did go to an optometrist and found my prescription had changed dramatically in the last six months. My eyes still have excessive itching and dryness but at least I see better. I didn't mention my arthritis to him because at the time I didn't make a connection or I would have asked his opinion. Can't hurt to get them checked, especially if you wear contacts like I do. By the way, my prescription change in the last three years prior to this had been minimal and just in one eye. T. HOLMES, MARK T. wrote: > Has anyone with RA had problems with their eyes burning? Actually > it's my eyelids - feel kind of like they've been sandpapered at > times. I put in some moisture drops, which can sting like crazy at > first (kind of bizarre I think), and they help a bit but not much. > Seems to bother me more at night and first thing in the morning, but > can on some days persist throughout the day. Causes me to blink a lot. > Perhaps is allergies, as I've been sneezing a lot lately - maybe the > dead leaves - not sure. If you have RA, do you think a yearly appt w/ > an opthomologist is necessary or would an optometrist suffice? None > of my docs have suggested I should be doing this, but with my eyes > bugging me, I'm wondering. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 Mark, I have seen an opthalmologist every year since I was 9. Children with milder forms of arthritis frequently develop iritis, an inflammation of the iris. Luckily, I never did. Even during the 13 years my arthritis seemed to be in remission, I was told I should keep having my eyes checked yearly. I also experience the dry, burning sensation in my eyes, and it's worse in the morning when I wake up. Sometimes when outside on a windy day, they can get so irritated that they actually feel swollen.Ma For the past year I have been experiencing throbbing pains in the eye sockets, which worries me, but so far, so good. I'm sure that adults with rheumatoid or other types of arthritis are at a greater risk for eye diseases. The fact that my mom has iritis is another reason I keep going. I would go to an opthalmologist, not an optometrist. An optometrist sometimes checks a person for glaucoma, but they don't have the experience or special equipment to check for auto-immune eye diseases, such as iritis and uveitis. An opthalmologist puts in special drops to dilate the pupils so they can check for any possible abnormalities or early eye disease. Iritis and uveitis seen in those with various types of rheumatic disease can be there without one even knowing. It definately can't hurt to see an eye doctor once a year. Eyes cannot be replaced! Take care, Kyla From: MHOLMES@... (HOLMES, MARK T.) <rheumaticonelist> Subject: rheumatic eyes Date: Mon, Oct 4, 1999, 9:20 PM Has anyone with RA had problems with their eyes burning? Actually it's my eyelids - feel kind of like they've been sandpapered at times. I put in some moisture drops, which can sting like crazy at first (kind of bizarre I think), and they help a bit but not much. Seems to bother me more at night and first thing in the morning, but can on some days persist throughout the day. Causes me to blink a lot. Perhaps is allergies, as I've been sneezing a lot lately - maybe the dead leaves - not sure. If you have RA, do you think a yearly appt w/ an opthomologist is necessary or would an optometrist suffice? None of my docs have suggested I should be doing this, but with my eyes bugging me, I'm wondering. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 , I also had a dramatic change in my prescription in the past year since my arthritis came back. I have always been very nearsighted. In the past several months, I started experiencing eye pain and blurring and having trouble focusing on things. So I went to my opthalmologist and he was shocked to see how much my prescription had changed. But it wasn't my actual eyesight that had changed. I had developed a severe astigmatism in both eyes. I had only had a very slight astigmatism in my eyes prior to this. He asked if I was pregnant or on the Pill, which the latter I was. But I have been on them for many years, and it has never affected my eyes to such a degree. The water retention that pregnant women and women on the Pill experience is responsible, because it puts pressure on the eye, changing it's shape from round to football shaped. Are you on prednisone or any other steroid for your arthritis? I imagine the water retention associated with steroid use could possibly cause pressure in the eyes also. Just a thought. ~Kyla >I have had similar problems with my eyes. I did go to an optometrist and found my prescription had >changed dramatically in the last six months. My eyes still have excessive itching and dryness but at least >I see better. I didn't mention my arthritis to him because at the time I didn't make a connection or I >would have asked his opinion. Can't hurt to get them checked, especially if you wear contacts like I do. By >the way, my prescription change in the last three years prior to this had been minimal and just in one eye. T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 1999 Report Share Posted October 5, 1999 hi mark i am going through the same thing right now. went to the ophthalmologist and we first put in plugs in my drain ducts to see if that would help. they are still in, but didnt make a differance because im not generating any tears. so now i use a natural tear product everyday to keep them from burning all the time. i also use celluvisc when i go to bed....that really feels great at the end of the day. its a bit thicker than drops. sorry to hear you are going through this same thing dave > Has anyone with RA had problems with their eyes burning? Actually > it's my eyelids - feel kind of like they've been sandpapered at > times. I put in some moisture drops, which can sting like crazy > at first (kind of bizarre I think), and they help a bit but not > much. Seems to bother me more at night and first thing in the > morning, but can on some days persist throughout the day. Causes > me to blink a lot. Perhaps is allergies, as I've been sneezing a > lot lately - maybe the dead leaves - not sure. > > If you have RA, do you think a yearly appt w/ an opthomologist is > necessary or would an optometrist suffice? None of my docs have > suggested I should be doing this, but with my eyes bugging me, > I'm wondering. > > Mark > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.