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Exactly.. Go with your gut Hon.. But try to get a doctor to give you the

diagnoses. It can make a world of difference with funding.

Girls are rare.. But again maybe they just present differently.. And doctors

believe its more rare.. Than it really is!

-- Re: ( ) EYES

My son used to do that... well, he still does sometimes... I don't think it

is anything to worry about... his counselor said that wasn't unusual:)

( ) EYES

I WAS WONDERING IF ANY ONE HAS HAD THERE CHILD WHEN THEY LOOK AT

SOMETHING THEY TURN THERE HEAD AND DO FUNNY THINGS TO THERE EYES.

PLEASE HELP.

THANKS MICHELLE

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  • 3 weeks later...
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Kristi

Please have this checked with an opthamologist as this COULD ge optic nerve

inflammation, which is one of the early warning signs for MS which is another

autoimmune disease.

Hugs

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Thanks for your replies about my eyes.. It is very disturbing- as are the rest

of symptoms of RA that I am getting used to.. I see my Rhuemy on Monday and I

did make an eye appt. for Tuesday. I am not on MTX at this point, so it

concerns me even more.

Kristi

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

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  • 4 weeks later...
Guest guest

Lynn,

How long was it between your cataract surgery in your right eye and the pain

in your right eye?

According to the surgeon, what was the foreign object in your eye?

How long was it between the time that the surgeon said that he removed the

foreign object and the recurrence of pain?

Did your physician's partner give you a diagnosis for the eye inflammation

(a name)?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] eyes

> Hello Everyone,

> I had cataract surgery on both eyes, recently. It went so well, I don't

> even need my glasses. However I have had a problem with my right eye. It

> was hurting terrible 10 days ago so I went back to the surgeon. He said

> there was something in my eye and got it out. It was fine then on Friday

> it started to bother me again. By Saturday the pain was just awful, my

> eye was all red. I called and he wanted to come in right away. Here is

> the part I have never heard before. He says my eye is fine and the

> pressure is great. Since I have RA, he says that the ra can not go into

> the eye but the inflammation from the disease can. This is what is

> happening and causing this problem. I don't know, anyone heard of this?

> I was thinking maybe it was inflamed from the original foreign object in

> the eye that was removed. My own doctor was on vacation and I saw his

> partner. I like him and he took a lot of time. But he said you have an

> inflammatory disease and it can inflame anything.

> Help I am confused!!!

> Lynn (memom)

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personally, i've never heard it put that way but that's not to say it

doesn't exist. it's just news to me. i suppose we could research it

ourselves.

my problem with that is your doctor didn't seem to offer much of a

solution. My experience has been every time there's a problem ra gets

blamed for it. a medication can cause a problem and people will say

that ra caused it or a medical error caused a problem and it will be

said ra caused it. makes you wonder if anyone is really trying to

solve any problems because they can always say i didn't do it, ra did

it.

all just my opinon of course.

peace and healing

Ebony

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Hi ,

How are you and the kids doing, it has been so long? I had the eye

operated on five weeks ago. The object in my occurred a week ago

Thursday. On Friday I was fine and went to Cape Cod, came home on Tuesday

and then on this Friday I knew something wasn't right. At first I thought

maybe I had gotten sand in the eye. He didn't tell me what the object was,

said he got it out and that was that.

His partner feels it is coming from the RA. He said everything looks fine,

except that my eye was inflamed. He gave me two different drops and said by

late last night I would start to feel better. I did too. Today so far he

has been right and I do feel better. I am wondering if there wasn't an

infection in my eye from either the surgery or the foreign object. I am

slow at healing. The eye surgery went so well. Actually it wasn't suppose

to turn out as well as it did. I don't need glasses anymore. He said on

rare occasions a persons benefits both sight and distance vision and this is

what happen to me. No complaint here.

Thank you, you know I value your opinion. You are my angel.

Lynn

[ ] eyes

>

>

>> Hello Everyone,

>> I had cataract surgery on both eyes, recently. It went so well, I don't

>> even need my glasses. However I have had a problem with my right eye.

>> It

>> was hurting terrible 10 days ago so I went back to the surgeon. He said

>> there was something in my eye and got it out. It was fine then on Friday

>> it started to bother me again. By Saturday the pain was just awful, my

>> eye was all red. I called and he wanted to come in right away. Here is

>> the part I have never heard before. He says my eye is fine and the

>> pressure is great. Since I have RA, he says that the ra can not go into

>> the eye but the inflammation from the disease can. This is what is

>> happening and causing this problem. I don't know, anyone heard of this?

>> I was thinking maybe it was inflamed from the original foreign object in

>> the eye that was removed. My own doctor was on vacation and I saw his

>> partner. I like him and he took a lot of time. But he said you have an

>> inflammatory disease and it can inflame anything.

>> Help I am confused!!!

>> Lynn (memom)

>

>

>

>

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Hi Ebony,

I am just wondering since it takes me awhile to heal, if there wasn't an

underlying infection from either the surgery or the foreign object. I know

Ra causes a lot but like you, I never heard this one.

Thanks for your help,

Lynn

[ ] Re: eyes

> personally, i've never heard it put that way but that's not to say it

> doesn't exist. it's just news to me. i suppose we could research it

> ourselves.

>

> my problem with that is your doctor didn't seem to offer much of a

> solution. My experience has been every time there's a problem ra gets

> blamed for it. a medication can cause a problem and people will say

> that ra caused it or a medical error caused a problem and it will be

> said ra caused it. makes you wonder if anyone is really trying to

> solve any problems because they can always say i didn't do it, ra did

> it.

>

> all just my opinon of course.

>

> peace and healing

> Ebony

>

>

>

>

>

>

>

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Guest guest

-Ebony,

I remember when I had small (and larger even) children in my house

when things happened NOBODY did it. Who broke the lamp...everyone

looks at the floor....Nobody. WHo lost the remote control for the new

tv?? everyone looks at the floor again...nobody. It sounds like RA is

DR. jargon for.......you guessed in......nobody!!! If they dono't

know.......it was nobody!!!!(haha).......jenna

-- In , " Ebony " <stillbreathing29@...>

wrote:

>

> personally, i've never heard it put that way but that's not to say

it

> doesn't exist. it's just news to me. i suppose we could research

it

> ourselves.

>

> my problem with that is your doctor didn't seem to offer much of a

> solution. My experience has been every time there's a problem ra

gets

> blamed for it. a medication can cause a problem and people will

say

> that ra caused it or a medical error caused a problem and it will

be

> said ra caused it. makes you wonder if anyone is really trying to

> solve any problems because they can always say i didn't do it, ra

did

> it.

>

> all just my opinon of course.

>

> peace and healing

> Ebony

>

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Guest guest

LOL! I could pictue that with the kids.:)

Yeah, I know. It's just kind of scary that RA is the culprit, so oh

well. I have dry eye syndrome and having lots of problems with the

eye, blurred vision, etc. then everything goes back to normal for a

while with the vision. Some days eyes are drier than others. So

definitely need the eyes checked by a specialist. Rheumy knows but

doesn't recommend anything. My focus is to find a pcp then get

recommendations for the docs I need. Just really scary when it comes

to the eyes.

peace,

Ebony

>

> -Ebony,

> I remember when I had small (and larger even) children in my house

> when things happened NOBODY did it. Who broke the lamp...everyone

> looks at the floor....Nobody. WHo lost the remote control for the

new

> tv?? everyone looks at the floor again...nobody. It sounds like RA

is

> DR. jargon for.......you guessed in......nobody!!! If they dono't

> know.......it was nobody!!!!(haha).......jenna

>

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  • 3 weeks later...

In a message dated 8/20/2006 11:14:52 A.M. Pacific Daylight Time, mmmorris@... writes:

I take both bilberry and lutein for my eyes. Either those or LDN seems to be "breaking up" the dark spot in my vision. I have ON in my left eye. For three years it has been like wearing DARK shades with only one lens. Now I have brighter patches. I am hopeful it will continue to improve.>> Does anyone know of anything to help the vision?> Thanks,> >

Thanks, for info

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,

Bilberry and Lutien are inexpensive supplements that help the eyes.

Regards,

Tom

Re: [low dose naltrexone] Re: eyes

Does anyone know of anything to help the vision?

Thanks,

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I take both bilberry and lutein for my eyes. Either those or LDN seems

to be " breaking up " the dark spot in my vision. I have ON in my left

eye. For three years it has been like wearing DARK shades with only one

lens. Now I have brighter patches. I am hopeful it will continue to

improve.

>

> Does anyone know of anything to help the vision?

> Thanks,

>

>

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Donna

Most people eat cranberries to help with a urinary tract infection.

Most other folks take bilberries and vitamin A to help with their eyesight.

Bilberries are cousins to blueberries, by the way.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Re: eyes

Posted by: "donna chopyak" colorsntrees@... colorsntrees

Sun Aug 20, 2006 11:28 am (PST)

DOES ANYONE KNOW IF YOU'D TAKE THE BILBERRY AS YOU DOFOR A UTI OR IS ONCE A DAY ENOUGH? AND WOULD YOU JUSTTAKE 1 OR MORE?THANKSDONNA

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calcium orotate also helps the eyes.

[low dose naltrexone] Re: eyes

I take both bilberry and lutein for my eyes. Either those or LDN seems to be "breaking up" the dark spot in my vision. I have ON in my left eye. For three years it has been like wearing DARK shades with only one lens. Now I have brighter patches. I am hopeful it will continue to improve.>> Does anyone know of anything to help the vision?> Thanks,> >

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An herbal maintenance dosage is usually lx3 a day. When you are trying to alleviate a symptom, 3x3 is a good amount. This is what an herbalist will most often recommend. Kathy

Re: [low dose naltrexone] Re: eyes

DOES ANYONE KNOW IF YOU'D TAKE THE BILBERRY AS YOU DOFOR A UTI OR IS ONCE A DAY ENOUGH? AND WOULD YOU JUSTTAKE 1 OR MORE?THANKSDONNA

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bilberry and zinc are the better combo for eyes.

maureen

--- perfectlysunnyday <mmmorris@...> wrote:

> I take both bilberry and lutein for my eyes. Either

> those or LDN seems

> to be " breaking up " the dark spot in my vision. I

> have ON in my left

> eye. For three years it has been like wearing DARK

> shades with only one

> lens. Now I have brighter patches. I am hopeful it

> will continue to

> improve.

>

> >

> > Does anyone know of anything to help the vision?

> > Thanks,

> >

> >

>

>

>

>

>

__________________________________________________

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I take 2 bilberry daily and cranberry 1 daily to help

prevent uti's. maureen

--- donna chopyak <colorsntrees@...> wrote:

> DOES ANYONE KNOW IF YOU'D TAKE THE BILBERRY AS YOU

> DO

> FOR A UTI OR IS ONCE A DAY ENOUGH? AND WOULD YOU

> JUST

> TAKE 1 OR MORE?

> THANKS

> DONNA

>

__________________________________________________

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opps the bilberry i take for eyes only.

--- donna chopyak <colorsntrees@...> wrote:

> DOES ANYONE KNOW IF YOU'D TAKE THE BILBERRY AS YOU

> DO

> FOR A UTI OR IS ONCE A DAY ENOUGH? AND WOULD YOU

> JUST

> TAKE 1 OR MORE?

> THANKS

> DONNA

>

__________________________________________________

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bilberry and zinc

--- lkilcollin@... wrote:

> Does anyone know of anything to help the vision?

> Thanks,

>

>

>

>

>

>

>

__________________________________________________

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  • 2 months later...

>> Has anyone noticed the look in the eyes I

described? He " Looks " like he is coming back. I am

hopeful this is improvement, is it? Is school helping

the improvements I wonder and am I wrong to think he

has autism? They all say its just a global delay and

that he is " snapping out of it " I don't know what to

think.

Any thoughts would be nice.

April<<

Hi April,

I'm no expert, and we are now looking for a dx for my

18 year old. I now exactly what you mean. This son

was mostly " gone " ; his eyes didn't " quite " focus on

the moment, etc. (he would look at us and I'd sense

not quite " see " us; at least, not enough to always

respond.) My husband (who is very ADHD and a slow

processer) would always say " give him time to respond "

but in the time it would take my husband to respond to

the same question, my son would have completely lost

focus/forgotten that we were waiting for a response

LOL) My son now says (after 2 years on

glyconutrients-a lot of that aloe vera and

arabinogalactin) that he never felt " present " for most

of his life.

(he is still not " all here " , but is much better, to

the point we can have short conversations about his

areas of interest)

Seems to me that if anything describes autistic

spectrum, that would be that " vacant sign " in the

eyes. YMMV Maybe that isn't true for everyone??

I don't know why the aloe vera/glyconutrients help so

much (they are not a cure-all but very helpful) but I

read that they reduce gut inflammation and help my

enzyme processes.

BTW, this son is also extremely gifted in maths and

science; so apparently are many Aspergers. (it is said

that Aspies are " overrepresented " in these departments

in universities, which sounds very believeable...I

have a brother who is brilliant in those areas, but

incredibly niave socially)'

It is interesting that for those kids who have spatial

issues and trouble with coordination (ie tend to be

" clumsy " ), that " challenge " often spills over into

higher level math difficulty.

Margaret

__________________________________________________

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Gosh, this sounds so much like my son when he was 2 -3+ years old. We had

done tons of intervention (he is 5.5 now). Naturopathic, homeopathy, and

lots of speech and OT and he scored at beginning Kindergarten level last

week for his IEP! We are getting by day to day and notice the daily

improvement, but it is unbelievable when I look at my notes from when he was

3, how far he has come. His EYES was a big piece that other people noticed.

He looked through everything and acted like he didn't hear you either (lots

of hearing tests.but he passed). My other son has 'body-in-space' issues

and is in OT for sensory/balance and low muscle tone and he is very bright

and a math and reading wiz, so I thought that comment was interesting.

Didn't I hear that Bill Gates has aspergers?

_____

From:

[mailto: ] On Behalf Of Margaret R

Sent: Sunday, November 05, 2006 11:18 AM

Subject: Re: eyes

>> Has anyone noticed the look in the eyes I

described? He " Looks " like he is coming back. I am

hopeful this is improvement, is it? Is school helping

the improvements I wonder and am I wrong to think he

has autism? They all say its just a global delay and

that he is " snapping out of it " I don't know what to

think.

Any thoughts would be nice.

April<<

Hi April,

I'm no expert, and we are now looking for a dx for my

18 year old. I now exactly what you mean. This son

was mostly " gone " ; his eyes didn't " quite " focus on

the moment, etc. (he would look at us and I'd sense

not quite " see " us; at least, not enough to always

respond.) My husband (who is very ADHD and a slow

processer) would always say " give him time to respond "

but in the time it would take my husband to respond to

the same question, my son would have completely lost

focus/forgotten that we were waiting for a response

LOL) My son now says (after 2 years on

glyconutrients-a lot of that aloe vera and

arabinogalactin) that he never felt " present " for most

of his life.

(he is still not " all here " , but is much better, to

the point we can have short conversations about his

areas of interest)

Seems to me that if anything describes autistic

spectrum, that would be that " vacant sign " in the

eyes. YMMV Maybe that isn't true for everyone??

I don't know why the aloe vera/glyconutrients help so

much (they are not a cure-all but very helpful) but I

read that they reduce gut inflammation and help my

enzyme processes.

BTW, this son is also extremely gifted in maths and

science; so apparently are many Aspergers. (it is said

that Aspies are " overrepresented " in these departments

in universities, which sounds very believeable...I

have a brother who is brilliant in those areas, but

incredibly niave socially)'

It is interesting that for those kids who have spatial

issues and trouble with coordination (ie tend to be

" clumsy " ), that " challenge " often spills over into

higher level math difficulty.

Margaret

__________________________________________________

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  • 1 month later...

I too have psoriasis in my ears.....took a dermatologist to diagnose. But

if you are having any type of eye problem, please see an Opthamalogist,

possible one that also has an optomotrist in the office, too. This helps make

one

visit not two. I just saw my eye Dr. and he rx'd Restasis, he gave me

samples first. I did not hear him and assumed that my clumsy hands did not put

in

enough of a drop, so I made sure I filled my eyes with the medication!!! Wow

was I sorry! My eyes got so sore, red and black underneath that I could

hardly open my eyes. I called the Dr, and he was upset that he did not make

sure I understood, had me take a 1 week rest and then start 1 time per day. I

am now up to two times per day, but only 1 small drop in each eye, IT IS

GREAT! I can read better, see better, and my eyes are not so red.

Gentle Hugs & Prayers,

Carol M. in CA

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