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I've started neurofeedback, and intend to report on it faithfully

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Although so far, there's not much to report. They did a quantitative EEG, which,

as far as I understand, is supposed to scan my brain for abnormalities. The

results won't be in until next week; this ought to be fascinating.

My practitioner also said she'd contact Dr. Randall Lyle to ask about his

treatment protocols, so life is becoming quite exciting.

I'll be adding to this thread when I know more.

-Kate K.

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I just got my brain mapping QEEG done as well, and the interpretation was fascinating! It confirmed everything I already knew about myself, and showed me in detailed color the areas of my brain that had abnormalities. For example the report said: "beta is atypically localized to the parietal sites" and there were "deficits of alpha, and elevations of beta with maximal deviations in the parietal and occipital sites"In other words I would have learning challenges with sensory integration issues. Language and word retrieval would be difficult, along with anxiety, agitation, sleep disregulation, irritability and easy distractibility.It was extremely accurate which gives me hope. I'll keep you all posted:)

To: Soundsensitivity Sent: Wednesday, March 21, 2012 4:11 PM Subject: I've started neurofeedback, and intend to report on it faithfully

Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

I'll be adding to this thread when I know more.

-Kate K.

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I am in a quandry about whether or not to go for neurofeedback as i need to make

doubly sure the person is qualified to treat miso with it and also that it won't

make me worse. Its so great that you both are having it done and i can follow

your progress! Its reassuring to know that the brain scan eeg thing confirms

what it should!

>

> I just got my brain mapping QEEG done as well, and the interpretation was

fascinating! It confirmed everything I already knew about myself, and showed me

in detailed color the areas of my brain that had abnormalities. For example

the report said: " beta is atypically localized to the parietal sites " and

there were " deficits of alpha, and elevations of beta with maximal deviations in

the parietal and occipital sites "

> In other words I would have learning challenges with sensory integration

issues. Language and word retrieval would be difficult, along with anxiety,

agitation, sleep disregulation, irritability and easy distractibility.

> It was extremely accurate which gives me hope. I'll keep you all posted:)

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Wednesday, March 21, 2012 4:11 PM

> Subject: I've started neurofeedback, and intend to report

on it faithfully

>

>

>

>  

>

> Although so far, there's not much to report. They did a quantitative EEG,

which, as far as I understand, is supposed to scan my brain for abnormalities.

The results won't be in until next week; this ought to be fascinating.

>

> My practitioner also said she'd contact Dr. Randall Lyle to ask about his

treatment protocols, so life is becoming quite exciting.

>

> I'll be adding to this thread when I know more.

>

> -Kate K.

>

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  • 3 weeks later...
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I've gotten my qEEG results, and apparently there's a large " problem spot " in

the center of my brain, where high-frequency waves occur far more than usual.

The practitioner said that they see this a lot in people who have anxiety

issues, (which I know I do), but that it could also be related to my sound

sensitivity. The practitioner also said that it was AWESOME that my problem was

so pronounced: like a giant bulls-eye, the problem spot shows us exactly what to

target.

I'm really curious: how does the location of my " problem spot " compare to that

of other people who have done a qEEG?

I've only been to 3 sessions so far, and they said it would take 20 to start

seeing results, but in one way they've already helped me: practicing steady,

rhythmic breathing (six seconds inhale, six seconds exhale) whenever I'm

triggered has helped reduce murderous thoughts quite a bit.

I will keep reporting on my progress faithfully, and urge anyone else who's

doing neurofeedback to add to this thread or create their own to compare

results.

-Kate K.

> >

> > I just got my brain mapping QEEG done as well, and the interpretation was

fascinating! It confirmed everything I already knew about myself, and showed me

in detailed color the areas of my brain that had abnormalities. For example

the report said: " beta is atypically localized to the parietal sites " and

there were " deficits of alpha, and elevations of beta with maximal deviations in

the parietal and occipital sites "

> > In other words I would have learning challenges with sensory integration

issues. Language and word retrieval would be difficult, along with anxiety,

agitation, sleep disregulation, irritability and easy distractibility.

> > It was extremely accurate which gives me hope. I'll keep you all posted:)

> >

> >

> > ________________________________

> > From: katekozhukhova <katekozhukhova@>

> > To: Soundsensitivity

> > Sent: Wednesday, March 21, 2012 4:11 PM

> > Subject: I've started neurofeedback, and intend to report

on it faithfully

> >

> >

> >

> >  

> >

> > Although so far, there's not much to report. They did a quantitative EEG,

which, as far as I understand, is supposed to scan my brain for abnormalities.

The results won't be in until next week; this ought to be fascinating.

> >

> > My practitioner also said she'd contact Dr. Randall Lyle to ask about his

treatment protocols, so life is becoming quite exciting.

> >

> > I'll be adding to this thread when I know more.

> >

> > -Kate K.

> >

>

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That's really exciting!I just got a qEEG done last week; I'll report my results as soon as they are in. To: Soundsensitivity Sent: Sunday, April 8, 2012 9:59 PM Subject: Re: I've started

neurofeedback, and intend to report on it faithfully

I've gotten my qEEG results, and apparently there's a large "problem spot" in the center of my brain, where high-frequency waves occur far more than usual. The practitioner said that they see this a lot in people who have anxiety issues, (which I know I do), but that it could also be related to my sound sensitivity. The practitioner also said that it was AWESOME that my problem was so pronounced: like a giant bulls-eye, the problem spot shows us exactly what to target.

I'm really curious: how does the location of my "problem spot" compare to that of other people who have done a qEEG?

I've only been to 3 sessions so far, and they said it would take 20 to start seeing results, but in one way they've already helped me: practicing steady, rhythmic breathing (six seconds inhale, six seconds exhale) whenever I'm triggered has helped reduce murderous thoughts quite a bit.

I will keep reporting on my progress faithfully, and urge anyone else who's doing neurofeedback to add to this thread or create their own to compare results.

-Kate K.

> >

> > I just got my brain mapping QEEG done as well, and the interpretation was fascinating! It confirmed everything I already knew about myself, and showed me in detailed color the areas of my brain that had abnormalities. For example the report said: "beta is atypically localized to the parietal sites" and there were "deficits of alpha, and elevations of beta with maximal deviations in the parietal and occipital sites"

> > In other words I would have learning challenges with sensory integration issues. Language and word retrieval would be difficult, along with anxiety, agitation, sleep disregulation, irritability and easy distractibility.

> > It was extremely accurate which gives me hope. I'll keep you all posted:)

> >

> >

> > ________________________________

> > From: katekozhukhova <katekozhukhova@>

> > To: Soundsensitivity

> > Sent: Wednesday, March 21, 2012 4:11 PM

> > Subject: I've started neurofeedback, and intend to report on it faithfully

> >

> >

> >

> > Â

> >

> > Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

> >

> > My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

> >

> > I'll be adding to this thread when I know more.

> >

> > -Kate K.

> >

>

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That's interesting Kate- thanks for sharing. My NFB practitioner said something about the middle of my brain being a wreck as well. Though I haven't noticed any improvement in the miso department, I have noticed a definite mood shift- I am happier more often and much less irritable. This has been going on for weeks now, I was just reluctant to believe it. I just had my 13th session and am feeling better than ever- I didn't realize I was so down before. The practioners believe that my misophonia will get better with more treatments and I hope they're right. But I must say, even if it didn't get better- I wouldn't regret it because I didn't know I could be this happy!!:) To: Soundsensitivity Sent: Monday, April 9, 2012 12:59 AM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

I've gotten my qEEG results, and apparently there's a large "problem spot" in the center of my brain, where high-frequency waves occur far more than usual. The practitioner said that they see this a lot in people who have anxiety issues, (which I know I do), but that it could also be related to my sound sensitivity. The practitioner also said that it was AWESOME that my problem was so pronounced: like a giant bulls-eye, the problem spot shows us exactly what to target.

I'm really curious: how does the location of my "problem spot" compare to that of other people who have done a qEEG?

I've only been to 3 sessions so far, and they said it would take 20 to start seeing results, but in one way they've already helped me: practicing steady, rhythmic breathing (six seconds inhale, six seconds exhale) whenever I'm triggered has helped reduce murderous thoughts quite a bit.

I will keep reporting on my progress faithfully, and urge anyone else who's doing neurofeedback to add to this thread or create their own to compare results.

-Kate K.

> >

> > I just got my brain mapping QEEG done as well, and the interpretation was fascinating! It confirmed everything I already knew about myself, and showed me in detailed color the areas of my brain that had abnormalities. For example the report said: "beta is atypically localized to the parietal sites" and there were "deficits of alpha, and elevations of beta with maximal deviations in the parietal and occipital sites"

> > In other words I would have learning challenges with sensory integration issues. Language and word retrieval would be difficult, along with anxiety, agitation, sleep disregulation, irritability and easy distractibility.

> > It was extremely accurate which gives me hope. I'll keep you all posted:)

> >

> >

> > ________________________________

> > From: katekozhukhova <katekozhukhova@>

> > To: Soundsensitivity

> > Sent: Wednesday, March 21, 2012 4:11 PM

> > Subject: I've started neurofeedback, and intend to report on it faithfully

> >

> >

> >

> > Â

> >

> > Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

> >

> > My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

> >

> > I'll be adding to this thread when I know more.

> >

> > -Kate K.

> >

>

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My son also has a high frequency spot in the center of his brain that the doctor said was attributed to anxiety and OCD behaviors. But he also had/has many more problem areas. I asked his practitioner yesterday if we could target that area, and he said that he had started there, but it actually made his behavior worse (per my report) so he moved to some other areas which has calmed him down. We've been going since the end of January. I've noticed improvement in overall mood stability, but still acts up in response to pencil sounds(his trigger), however, I'm wondering if some of that is habit and a way to manipulate since last week he sat right next to a girl writing with a pencil for an hour, and he never complained to me about it later, nor did his tutor notice any reaction from him. I'll have to see if the practitioner can figure out another way to target that spot and see what happens.

Ginger

I've started neurofeedback, and intend to report on it faithfully

> >

> >

> >

> > Â

> >

> > Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

> >

> > My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

> >

> > I'll be adding to this thread when I know more.

> >

> > -Kate K.

> >

>

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Hi Kate,Interesting to hear your experiences with neurofeedback. Can you explain more about what happens in these sessions and what it's supposed to achieve, especially in relation to sound sensitivity? I've googled it trying to understand what it's all about, but am not feeling much enlightened.

Thanks,LiesaOn Tue, Apr 10, 2012 at 1:45 AM, <Soundsensitivity > wrote:

3a. Re: I've started neurofeedback, and intend to report on it faithfull

   Posted by: " katekozhukhova " katekozhukhova@... katekozhukhova

I've gotten my qEEG results, and apparently there's a large " problem spot " in the center of my brain, where high-frequency waves occur far more than usual. The practitioner said that they see this a lot in people who have anxiety issues, (which I know I do), but that it could also be related to my sound sensitivity. The practitioner also said that it was AWESOME that my problem was so pronounced: like a giant bulls-eye, the problem spot shows us exactly what to target.

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Not sure what 'kind'. I asked about the type that was mentioned here--can't remember the name of it, but our practitioneer doesn't use that. He said he had used it in the past but didn't care for it...so I really don't know what the different kinds are and I just assume some prefer different things, and I'm sure there is a cost basis component as well.

Did that make sense? LOL.

Ginger

Re: I've started neurofeedback, and intend to report on it faithfully

Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

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I forget the name of it as well but it's just the basic kind- nothing too modern. To: Soundsensitivity Sent: Tuesday, April 10, 2012 1:41 PM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

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Hey Liesa,

I'm not great at explaining neurofeedback, so you might get a more complete

picture from searching through some older posts on this board: there are people

here who REALLY know about this stuff.

In the simplest terms, neurofeedback tries to figure out what parts of your

brain are giving off an abnormal number of low or high-frequency waves, and

train it to do that less. They hook you up to a machine that measures electrical

impulses from the brain, and if your brain fires the right wavelengths you get

rewarded with music or something else cool. Eventually, your brain " learns " to

stop firing off so many unhealthy waves.

The hope is that we can identify the part of the brain responsible for

misophonia and train it to stop reacting so abnormally to triggers.

Um, I hope that helped. Like I said, I'm not really good at this.

Best wishes,

Kate K.

>

> > 3a. Re: I've started neurofeedback, and intend to report on it faithfull

> > Posted by: " katekozhukhova " katekozhukhova@... katekozhukhova

> >

> > I've gotten my qEEG results, and apparently there's a large " problem spot "

> > in the center of my brain, where high-frequency waves occur far more than

> > usual. The practitioner said that they see this a lot in people who have

> > anxiety issues, (which I know I do), but that it could also be related to

> > my sound sensitivity. The practitioner also said that it was AWESOME that

> > my problem was so pronounced: like a giant bulls-eye, the problem spot

> > shows us exactly what to target.

> >

> >

>

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I know this isn't much, but I had a small victory today: a guy in my Japanese

class yawned, and I TOTALLY didn't care. Maybe I was having a good day, or maybe

the neurofeedback is starting to work a little?

-Kate K.

>

>

> Ginger and Audrey those are fantastic reports! What kind of NFB is being

used?

>

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Wonderful Kate!! So please Kate, Ginger and Audrey let me know what kind of NFB you are using. Can you ask yourProviders and report back?Thanks and congrats!HeidiSent from my iPhone

I know this isn't much, but I had a small victory today: a guy in my Japanese class yawned, and I TOTALLY didn't care. Maybe I was having a good day, or maybe the neurofeedback is starting to work a little?

-Kate K.

>

>

> Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

>

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That's something! keep us posted:) To: Soundsensitivity Sent: Friday, April 20, 2012 5:24 PM Subject: Re: I've

started neurofeedback, and intend to report on it faithfully

I know this isn't much, but I had a small victory today: a guy in my Japanese class yawned, and I TOTALLY didn't care. Maybe I was having a good day, or maybe the neurofeedback is starting to work a little?

-Kate K.

>

>

> Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

>

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I believe it is EEG guided neurofeedback but I will ask again Monday and let you know:) To: "Soundsensitivity " <Soundsensitivity > Sent: Friday, April 20,

2012 6:09 PM Subject: Re: Re: I've started neurofeedback, and intend to report on it faithfully

Wonderful Kate!! So please Kate, Ginger and Audrey let me know what kind of NFB you are using. Can you ask yourProviders and report back?Thanks and congrats!HeidiSent from my iPhone

I know this isn't much, but I had a small victory today: a guy in my Japanese class yawned, and I TOTALLY didn't care. Maybe I was having a good day, or maybe the neurofeedback is starting to work a little?

-Kate K.

>

>

> Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

>

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Thanks please ask which system is being used and ask if the focus is on increasing alpha. Sent from my iPhone

I believe it is EEG guided neurofeedback but I will ask again Monday and let you know:) To: "Soundsensitivity " <Soundsensitivity > Sent: Friday, April 20,

2012 6:09 PM Subject: Re: Re: I've started neurofeedback, and intend to report on it faithfully

Wonderful Kate!! So please Kate, Ginger and Audrey let me know what kind of NFB you are using. Can you ask yourProviders and report back?Thanks and congrats!HeidiSent from my iPhone

I know this isn't much, but I had a small victory today: a guy in my Japanese class yawned, and I TOTALLY didn't care. Maybe I was having a good day, or maybe the neurofeedback is starting to work a little?

-Kate K.

>

>

> Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

>

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That is wonderful news!!! Any small victory is huge in my book. So happy for

you.

> >

> >

> > Ginger and Audrey those are fantastic reports! What kind of NFB is being

used?

> >

>

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Thank you for all the feedback and reports on doing neurofeedback.

I'm hoping to be able to try that sometime in the near future.

-Randall

This message is intended solely for

the use of the individual and entity to whom it is addressed,

and contains information that is private, privileged,

confidential and exempt from disclosure under applicable state

and federal laws. If you are not the addressee, or are not

authorized to receive for the intended addressee, you are hereby

notified that you may not use, copy, distribute, or disclose to

anyone this message or the information contained herein. If you

have received this message in error, immediately advise the

sender by reply email and destroy this message.

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Dear Heidi,

I'm not really sure what " kind " of neurofeedback is being used in my case, but

the purpose of it is to bring my qEEG score closer to the norm by sending my

brain to send less beta waves. The reason it's beta waves is that a part in the

center of my brain generates an abnormal amount of them. I've heard that

increasing alpha waves is a good thing, but the focus of my therapy is on

decreasing beta waves in that part of the brain.

Next week, my practitioner was going to run my qEEG results through a program

called Loretta, which is supposed to calculate which parts of the lower brain

are firing so often. Has anyone else had this done?

-Kate

> >> >

> >> >

> >> > Ginger and Audrey those are fantastic reports! What kind of NFB is being

used?

> >> >

> >>

> >

> >

> >

>

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My 14 year old daughter has been doing NFB since the end of January. She is

sleeping sooo much better. She never used to sleep. She is also much happier.

She does not feel depressed anymore. As far as misophonia when I triggered her

last week she went into a full one hour rage. I timed it. She can not control

the rage. This included physical and verbal rage attacks. If she is not

triggered, happy as can be. I hate this condition.

>

> Thank you for all the feedback and reports on doing neurofeedback. I'm

> hoping to be able to try that sometime in the near future.

>

> -Randall

>

> ------------------------------------------------------------------------

> This message is intended solely for the use of the individual and entity

> to whom it is addressed, and contains information that is private,

> privileged, confidential and exempt from disclosure under applicable

> state and federal laws. If you are not the addressee, or are not

> authorized to receive for the intended addressee, you are hereby

> notified that you may not use, copy, distribute, or disclose to anyone

> this message or the information contained herein. If you have received

> this message in error, immediately advise the sender by reply email and

> destroy this message.

> ------------------------------------------------------------------------

>

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You are an amazing parent to recognise her condition as a serious problem. After hearing about the success of NFB I am dying to try it. I have an 8 month old son and even though he doesn't trigger me now, I'm sure when he gets older that will change. My family is aware of my condition but they do not take me seriously and they mock me by saying things like "what DOESN'T bother you?" I have been able to kind of control my misophonia through mind over matter. I am still triggered but it takes a longer exposure to the offensive sounds to really irritate me. Deep breathing, focal points, and "flight reflex" have seriously benefited me. I recall just today, my fiance and I went out to eat at a deli and a woman sat at a table near us and I looked at my man and said "we might have to move" when she picked up her bag of chips, I scrambled across to the other end of the restaurant and all was good. I do find that when I am triggered, I'm sent into a really angry, depressed state for the rest of the day. Hopefully your daughters treatment continues to go well and good for you to recognise this condition as a disease and not just a personality flaw. Much love.Sent from my Verizon Wireless Phone----- Reply message -----To: <Soundsensitivity >Subject: Re: I've started neurofeedback, and intend to report on it faithfullyDate: Sat, Apr 21, 2012 7:18 pm My 14 year old daughter has been doing NFB since the end of January. She is sleeping sooo much better. She never used to sleep. She is also much happier. She does not feel depressed anymore. As far as misophonia when I triggered her last week she went into a full one hour rage. I timed it. She can not control the rage. This included physical and verbal rage attacks. If she is not triggered, happy as can be. I hate this condition. >> Thank you for all the feedback and reports on doing neurofeedback. I'm > hoping to be able to try that sometime in the near future.> > -Randall> > ----------------------------------------------------------> This message is intended solely for the use of the individual and entity > to whom it is addressed, and contains information that is private, > privileged, confidential and exempt from disclosure under applicable > state and federal laws. If you are not the addressee, or are not > authorized to receive for the intended addressee, you are hereby > notified that you may not use, copy, distribute, or disclose to anyone > this message or the information contained herein. If you have received > this message in error, immediately advise the sender by reply email and > destroy this message.> ---------------------------------------------------------->

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That sounds like me- my NFB practitioner said the main focus of treatment is to decrease the beta in certain areas of my brain, and increase my ability to produce alpha waves. To: Soundsensitivity Sent: Saturday, April 21, 2012 6:42 PM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

Dear Heidi,

I'm not really sure what "kind" of neurofeedback is being used in my case, but the purpose of it is to bring my qEEG score closer to the norm by sending my brain to send less beta waves. The reason it's beta waves is that a part in the center of my brain generates an abnormal amount of them. I've heard that increasing alpha waves is a good thing, but the focus of my therapy is on decreasing beta waves in that part of the brain.

Next week, my practitioner was going to run my qEEG results through a program called Loretta, which is supposed to calculate which parts of the lower brain are firing so often. Has anyone else had this done?

-Kate

> >> >

> >> >

> >> > Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

> >> >

> >>

> >

> >

> >

>

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Thank you Audrey, Kate and Would love.There are different kinds of machines/softward and some are QEEG guided and some aren't, if everyone can ask there practioner the name of the software they are suing then I can track which kinds are working best. Wouldlove your daughter is using Zengar ;-) the other two are using QEED guided (still interested in exactly which software though.)The more info everyone can provide the better to assist with my make a chart and as we have more data we can let people know what questions to ask potential providers so that they can optimize their experience, especially since it's so expensive.Thanks,Heidi

That sounds like me- my NFB practitioner said the main focus of treatment is to decrease the beta in certain areas of my brain, and increase my ability to produce alpha waves. To: Soundsensitivity Sent: Saturday, April 21, 2012 6:42 PM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

Dear Heidi,

I'm not really sure what "kind" of neurofeedback is being used in my case, but the purpose of it is to bring my qEEG score closer to the norm by sending my brain to send less beta waves. The reason it's beta waves is that a part in the center of my brain generates an abnormal amount of them. I've heard that increasing alpha waves is a good thing, but the focus of my therapy is on decreasing beta waves in that part of the brain.

Next week, my practitioner was going to run my qEEG results through a program called Loretta, which is supposed to calculate which parts of the lower brain are firing so often. Has anyone else had this done?

-Kate

> >> >

> >> >

> >> > Ginger and Audrey those are fantastic reports! What kind of NFB is being used?

> >> >

> >>

> >

> >

> >

>

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I'm aslo excited because I've gotten my neurofeedback results today and it shows

the same you all have been posting here!! I have anxiety issues and obsessive

behaviour (that is what my brain activity present). They are going to decrease

the beta waves and increase the alpha.

The practitioner also told me that he has never seen this kind of results, as he

found the sensory system altered.

I'm really happy to start the treatment next week. Another thing is that he's

been the first one that made and effort to uderstand misophonia. He does not

treat me like a crazy person.

I'll post as soon as I notice something interesting.

.

>

> Although so far, there's not much to report. They did a quantitative EEG,

which, as far as I understand, is supposed to scan my brain for abnormalities.

The results won't be in until next week; this ought to be fascinating.

>

> My practitioner also said she'd contact Dr. Randall Lyle to ask about his

treatment protocols, so life is becoming quite exciting.

>

> I'll be adding to this thread when I know more.

>

> -Kate K.

>

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