I've started neurofeedback, and intend to report on it faithfully

[Guest guest]

Wow, thank you so much for sharing this Kate! This is good news. I feel like my blood pressure rises because of it and I have a hard enough time keeping that down even without the misophonia. I need to talk to my doctor about it, I go to one of the Cleveland Clinics and am wondering if they know much about it there. I can keep you posted on that if they do. Once again, THANKSSuzanne To: Soundsensitivity Sent: Tuesday, April

24, 2012 9:38 PM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

I'm aslo excited because I've gotten my neurofeedback results today and it shows the same you all have been posting here!! I have anxiety issues and obsessive behaviour (that is what my brain activity present). They are going to decrease the beta waves and increase the alpha.

The practitioner also told me that he has never seen this kind of results, as he found the sensory system altered.

I'm really happy to start the treatment next week. Another thing is that he's been the first one that made and effort to uderstand misophonia. He does not treat me like a crazy person.

I'll post as soon as I notice something interesting.

.

>

> Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

>

> My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

>

> I'll be adding to this thread when I know more.

>

> -Kate K.

>

[Guest guest]

Wonderful !Sent from my iPhone

I'm aslo excited because I've gotten my neurofeedback results today and it shows the same you all have been posting here!! I have anxiety issues and obsessive behaviour (that is what my brain activity present). They are going to decrease the beta waves and increase the alpha.

The practitioner also told me that he has never seen this kind of results, as he found the sensory system altered.

I'm really happy to start the treatment next week. Another thing is that he's been the first one that made and effort to uderstand misophonia. He does not treat me like a crazy person.

I'll post as soon as I notice something interesting.

.

>

> Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

>

> My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

>

> I'll be adding to this thread when I know more.

>

> -Kate K.

>

[Guest guest]

I see the enthusiasm, just keep in mind that it takes careful process and longer

term follow up to see how something truly 'works'.

Do good documentation and try to find a way to judge how you are reacting or not

reacting.

I realize this is so very hard to do.

We all want to find THE way!

Keep us posted.

Dr. J

[Guest guest]

I got my qEEG results just recently.I'm not really sure how to interpret them, but here's what the results had to say about Misophonia:"There are no specific patterns associated with Misophonia however the findings of theta, alpha and beta atypically localized to the left temporal cortex overlying the auditory cortex may have some contribution along with atypical distributions and elevations of fast frequency activity in the parietal sites where sensory integration and processing occur." To: Soundsensitivity Sent: Tuesday, April 24, 2012 6:55 PM Subject: Re: Re: I've started neurofeedback, and intend to report on it faithfully

Wow, thank you so much for sharing this Kate! This is good news. I feel like my blood pressure rises because of it and I have a hard enough time keeping that down even without the misophonia. I need to talk to my doctor about it, I go to one of the Cleveland Clinics and am wondering if they know much about it there. I can keep you posted on that if they do. Once again, THANKSSuzanne To: Soundsensitivity Sent: Tuesday, April

24, 2012 9:38 PM Subject: Re: I've started neurofeedback, and intend to report on it faithfully

I'm aslo excited because I've gotten my neurofeedback results today and it shows the same you all have been posting here!! I have anxiety issues and obsessive behaviour (that is what my brain activity present). They are going to decrease the beta waves and increase the alpha.

The practitioner also told me that he has never seen this kind of results, as he found the sensory system altered.

I'm really happy to start the treatment next week. Another thing is that he's been the first one that made and effort to uderstand misophonia. He does not treat me like a crazy person.

I'll post as soon as I notice something interesting.

.

>

> Although so far, there's not much to report. They did a quantitative EEG, which, as far as I understand, is supposed to scan my brain for abnormalities. The results won't be in until next week; this ought to be fascinating.

>

> My practitioner also said she'd contact Dr. Randall Lyle to ask about his treatment protocols, so life is becoming quite exciting.

>

> I'll be adding to this thread when I know more.

>

> -Kate K.

>

[Guest guest]

Hi everyone,I just saw an ENT doctor. He never heard of misophonia. So I took copies of miso info to him. I do not think he will read it but at least I made him aware of it. The doctor told me I have hyperacusis. That all. Hopefully he reads the information.Just be prepare when you go to see a doctor for miso and bring your information about Misophonia.I just want to say that maybe I am the oldest person in this group with miso. I did just have hyperacusis. As time pass on the movements started bothering me, so I am misophonian now. I try to control my anxiety by playing loud music and get my mind off that particular trigger by just saying to myself "I cannot control it so let it go" it helps alittle. I

posted something before about us getting the word out. Any suggestions

[Guest guest]

Sorry to hear that he just put you in a box, but then if you dont know better you have to make the best decision you can with the information available to you, in saying that however, I believe a quick glance over the information you brought would have helped open their minds a bit. A team of us put together some letters which you might find useful

http://www.misophonia.info/resources/letters/And a much larger team is currently working on brining the information we have up to date before we push forward into a massive awareness campaign. Keep an eye on this space, work is being done.

 

Hi everyone,I just saw an ENT doctor.  He never heard of misophonia.  So I took copies of miso info to him.  I do not think he will read it but at least I made him aware of it.  The doctor told me I have hyperacusis.  That all.  Hopefully he reads the information.

Just be prepare when you go to see a doctor for miso and bring your information about Misophonia.I just want to say that maybe I am the oldest person in this group with miso.   I did just have hyperacusis.  As time pass on the movements started bothering me, so I am misophonian now.  I try to control my anxiety by playing loud music and get my mind off that particular trigger by just saying to myself " I cannot control it so let it go " it helps alittle. 

I

posted something before about us getting the word out.  Any suggestions

[Guest guest]

On the other side of the coin are doctors like mine. When I mentioned it to him he told me he had not heard of it but wanted to learn more about it. So on my next visit I took copies of the file (letters for doctors) and gave that to him. It was my " Welcome to Medicare " visit so we didn't have time to discuss it. But, he did thank me for bringing him the info. I expect by my next visit he will have researched it and have some ideas for me. I wish all doctors were like him.

[Guest guest]

Excellent letter, ! I'm sure it will be a wonderful tool in informing the

medical community, family and friends, and will hopefully generate understanding

and compassion.

Colleen

>

> > **

> >

> >

> > Hi everyone,

> > I just saw an ENT doctor. He never heard of misophonia. So I took copies

> > of miso info to him. I do not think he will read it but at least I made

> > him aware of it. The doctor told me I have hyperacusis. That all.

> > Hopefully he reads the information.

> > Just be prepare when you go to see a doctor for miso and bring your

> > information about Misophonia.

> > I just want to say that maybe I am the oldest person in this group with

> > miso. I did just have hyperacusis. As time pass on the movements started

> > bothering me, so I am misophonian now. I try to control my anxiety by

> > playing loud music and get my mind off that particular trigger by just

> > saying to myself " I cannot control it so let it go " it helps alittle.

> > I posted something before about us getting the word out. Any suggestions

> >

> >

> >

>

[Guest guest]

Thanks! it was a team effort so we hope it is helpful. Watch this space, more to come

 

Excellent letter, ! I'm sure it will be a wonderful tool in informing the medical community, family and friends, and will hopefully generate understanding and compassion.

Colleen

>

> > **

> >

> >

> > Hi everyone,

> > I just saw an ENT doctor. He never heard of misophonia. So I took copies

> > of miso info to him. I do not think he will read it but at least I made

> > him aware of it. The doctor told me I have hyperacusis. That all.

> > Hopefully he reads the information.

> > Just be prepare when you go to see a doctor for miso and bring your

> > information about Misophonia.

> > I just want to say that maybe I am the oldest person in this group with

> > miso. I did just have hyperacusis. As time pass on the movements started

> > bothering me, so I am misophonian now. I try to control my anxiety by

> > playing loud music and get my mind off that particular trigger by just

> > saying to myself " I cannot control it so let it go " it helps alittle.

> > I posted something before about us getting the word out. Any suggestions

> >

> >

> >

>