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Re:SCS

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Hi everyone,

Finally heard from the dr. office who is supposed to do the SCS. She's

saying maybe the end of March. Told her how my dr. feels it will cure me.

She says it won't, of course. Said she's never seen RSD cured. My dr.

thinks if they pinpoint where my RSD started, it will stop the pain

elsewhere & stop the spreading. Was told today that they would need to use

more than one cathedar to reach everywhere. That sounds so scary. I don't

think I want to do this but how do I make my dr. understand. She said she'd

send my dr. some info as he has no hands on experience with SCS. She also

suggested Topomax? Similar to Neurotin. Anyone on it or have tried it?

She said it will make you tired and there is no weight gain which is

important for me w/eating disorder.

Sinus infection still here & feeling lousy & all this stress about the

SCS is only causing more pain.

Hugs, Tracey

rsd Reminder - Chat Room(come on in)!!!!

> From: CRPSonelist

>

> We would like to remind you of this upcoming event.

>

> Chat Room(come on in)!!!!

>

> Date: Thursday, February 24, 2000

> Time: 7:30PM - 8:30PM EST (GMT-05:00)

>

> We want to remind you that the chat address is now

> onelist.com/chat/crps .It is very easy to use and fun too!

> Come on and chat with us. Hope to see you there.Please note the

> time change.

> Hugs,Deb & Jo

>

>

>

>

>

>

>

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