Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi everyone I have a mum coming to see me on Wed about her 6 year old daughter. Very little info at this point. Been gluten and milk free for two years. Changed to soya milk, was better for a while then worse (do not know what her main symptoms are) and now on rice milk but still suffering. GP wants to put her on immunospressant drugs and mum not happy. Can anyone point me to some good sources to read up more either on coeliac/gluten and also on ensuring that as a child she gets the correct nutrients into her body. Only very rarely do I attract children to my practice!! Many thanks. Gail Farrow East London Tel: 07815 168410 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi Gail, Coeliac UK are an excellent source of information. See: http://www.coeliac.org.uk/ You need to find out if she has had a definitive diagnosis of coeliac disease as confirmed by duodenal biopsies. If she has, it sounds like she may have refractory coeliac disease (CD) - particularly if her symptoms are not resolving and her doctor is considering immunosuppressants, in which case she should definitely be under a gastroenterologist and specialist paediatric dietitian who would help with maintaining/improving her nutritional status, check the diet thoroughly for possible sources of gluten (e.g. from cross contamination) that they may be unknowingly ingesting and address the milk/lactose/soya intolerance issue. Paediatric nutrition is a specialist area and it may be better to refer on if it is refractory CD? Best wishes, Charlotte (Dietitian) From: Lindens Sent: Monday, November 24, 2008 10:03 AM To: ukherbal-list Subject: Re: 6 year old coeliac I have a mum coming to see me on Wed about her 6 year old daughter. Very little info at this point. Been gluten and milk free for two years. Changed to soya milk, was better for a while then worse (do not know what her main symptoms are) and now on rice milk but still suffering. GP wants to put her on immunospressant drugs and mum not happy. Can anyone point me to some good sources to read up more either on coeliac/gluten and also on ensuring that as a child she gets the correct nutrients into her body. Only very rarely do I attract children to my practice!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2008 Report Share Posted November 27, 2008 Thank you all for your replies. The talk with the mother last night was exploratory. The daughter is on her third biopsy, hopefully, this time to rule out for sure, refractory CD yet dietary changes have apparently meant that the microvilli have grown back and bloods are coming back negative! She is under the gasroenterlologist at Great Ormond Street and the mother says she has not found advice from the paediatric dieticians of much use. She is more concerned about the symptoms that developed first with cow's milk (mild problems compared to the symptoms she feels have been caused by soya milk) and then soya milk particularly diarrhoea. Her daughter is now using rice milk quite happily but it is increasingly difficult to find foods that don't contain any of these things. The worryis now the amount of sugar and lack of complex carbs in her daughter's diet. She told me that besides this her daughter is fit, well and bubbly but a very fussy eater. She did not bring her daughter along and we have left it that she will decide further about using herbal medicine once the biopsy results are back. With thanks. Gail Farrow East London Tel: 07815 168410 Quote Link to comment Share on other sites More sharing options...
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