MESSAGE FOR JILL TAYLOR 'FIVELITTLEDUCKS'

[Guest guest]

This is a reply to Dana who sent a letter to your group with regards to

her swollen legs, Dana, please dont worry, my legs were totally doubled

in size and I had hives also, I couldnt get rid of the swelling, my

right thist and fingers were all swollen up one day when I woke, the

condition was at its worse, so please do not panic, what you need to do

is get a referral to your Rhumatologist, you need a specialist one who

specialises in auto immune conditions, get them to do a anti nuclear

antibody blood test to rule out auto immune, you really need a thorough

check over with your bloods as soon as you get chance to get to a

hospital that is good, I dont know if your in the UK or in the US, but

in UK Addenbrooks Hospital deals with a lot of things in great depth

you need to insist on a referral, you have a right to that and please

get seen to, but dont panic as I went through all this myself, you will

be okay, good luck!!

[Guest guest]

Thank you for this message. Yes I was a worried at first, but am much more

relieved after seeing all of the messages on here.

I am seeing a rheumy and my labs don't make a whole lot of sense at the moment.

In fact he is rerunning them...I don't know if he suspects lab error or just

wants to verify. My ANA is positive at 1:320 speckled, but I did not test

positive for anything except a weak positive on Anti-histone antibodies. He ran

a ton of labs too. I just wait and see what these new labs say and then go from

there. The swelling seemed better for a short time today, but it's bad again

tonight. A LOT more pain too, so I think a new flare is on its way.

Thanks to everyone for all of your support!

--Dana

>

> This is a reply to Dana who sent a letter to your group with regards to

> her swollen legs, Dana, please dont worry, my legs were totally doubled

> in size and I had hives also, I couldnt get rid of the swelling, my

> right thist and fingers were all swollen up one day when I woke, the

> condition was at its worse, so please do not panic, what you need to do

> is get a referral to your Rhumatologist, you need a specialist one who

> specialises in auto immune conditions, get them to do a anti nuclear

> antibody blood test to rule out auto immune, you really need a thorough

> check over with your bloods as soon as you get chance to get to a

> hospital that is good, I dont know if your in the UK or in the US, but

> in UK Addenbrooks Hospital deals with a lot of things in great depth

> you need to insist on a referral, you have a right to that and please

> get seen to, but dont panic as I went through all this myself, you will

> be okay, good luck!!

>