Websites for these two conditions

[Guest guest]

Okay, I am confused.Last year I saw an ENT here in town to discuss my sound sensitivity issues. I showed him the information on 4S/misophonia that I found online. He said it sounded like what I was dealing with, but he had no experience with it and couldn't really help me. He sent me to another ENT an hour from here.

That ENT said it sounded like I maybe had hyperacusis... but from my research online, I felt like misophonia fit much better.Fast forward to today... my mom called the ENT to get a letter stating that due to my sound sensitivities, it is medically necissary for me to be sedated to have dental work done because of the noises. He was more than willing to send a letter... and the nurse said he'd mention the hyperacusis. That is all that I have officially been diagnosed with, though the first ENT and my family doctor (who left in September) both said the misophonia seemed to fit. They didn't feel qualified to give it as a diagnosis, though.

For my dental work, it doesn't matter if I have hyperacusis or misophonia. Just as long as Medicaid knows that I can't handle the sounds.I've tried to do some research this week on hyperacusis... and all I really find are:

Wikipedia, which says " Hyperacusis (also spelled hyperacousis) is a health condition characterized by an over-sensitivity to certain frequency ranges of sound (a collapsed tolerance to normal environmental sound). A

person with severe hyperacusis has difficulty tolerating everyday sounds, some of which may seem unpleasantly loud to that person but not to others. " which sounds JUST like misophoniahyperacusis network, which I don't really trust due to all the drama I've read about herehttp://www.hyperacusis.org/ which Dr. is involved with or created.. but it seems as if now it has become just another misophonia website as most of the information and links are for that

So my question is... does anyone know of any reliable websites that will give me more information about hyperacusis... or even better, the difference between hyperacusis and misophonia?

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♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

Follow my story: http://www.caringbridge.org/visit/sarahmaeWish Upon A Hero Cafe Moderator and Fee's Assistant

[Guest guest]

This link hopefully takes you to my publication list (90% accurate) on Google

Scholar

http://scholar.google.co.uk/citations? user=yEsgjrAAAAAJ & hl=en & pagesize=100

This list includes my 1986 paper showing that audiosensitivity

(oversensitivity to loud sound) is due to inner/middle ear abnormality, my 2000

paper on " hyperacusis " discussing terminology for loudness disorders, and

various other publications on audiosensitivity.

I am not surprised you are confused -- the terminology is confusing and

contradictory. Also, loudness disorders often co-occur, eg audiosensitivity and

misophonia, recruitment and/or phonophobia, etc.

**********************************************************************

>

> Okay, I am confused.

>

> Last year I saw an ENT here in town to discuss my sound sensitivity issues.

> I showed him the information on 4S/misophonia that I found online. He said

> it sounded like what I was dealing with, but he had no experience with it

> and couldn't really help me. He sent me to another ENT an hour from here.

>

> That ENT said it sounded like I maybe had hyperacusis... but from my

> research online, I felt like misophonia fit much better.

>

> Fast forward to today... my mom called the ENT to get a letter stating that

> due to my sound sensitivities, it is medically necissary for me to be

> sedated to have dental work done because of the noises. He was more than

> willing to send a letter... and the nurse said he'd mention the

> hyperacusis. That is all that I have officially been diagnosed with, though

> the first ENT and my family doctor (who left in September) both said the

> misophonia seemed to fit. They didn't feel qualified to give it as a

> diagnosis, though.

>

> For my dental work, it doesn't matter if I have hyperacusis or misophonia.

> Just as long as Medicaid knows that I can't handle the sounds.

>

> I've tried to do some research this week on hyperacusis... and all I really

> find are:

>

>

> - Wikipedia, which says " *Hyperacusis* (also spelled *hyperacousis*) is

> a health condition characterized by an over-sensitivity to certain

> frequency ranges of sound (a collapsed tolerance to normal environmental

> sound). A person with severe hyperacusis has difficulty tolerating

> everyday sounds, some of which may seem unpleasantly loud to that person

> but not to others. " which sounds JUST like misophonia

> - hyperacusis network, which I don't really trust due to all the drama

> I've read about here

> - http://www.hyperacusis.org/ which Dr. is involved with or

> created.. but it seems as if now it has become just another misophonia

> website as most of the information and links are for that

>

> *So my question is... does anyone know of any reliable websites that will

> give me more information about hyperacusis... or even better, the

> difference between hyperacusis and misophonia?*

>

>

> ---------------------------------------------------------

> *♥ * " ***Hope *is more than a word; it's a state of being. It's a firm

> belief God will come through. Life brings rain... hope turns every drop

> into the power to bloom like never before. " -Holley Gerth ♥ *Follow my

> story: http://www.caringbridge.org/visit/sarahmae

>

> Wish Upon A Hero Cafe <https://www.facebook.com/WC.YESI>* Moderator and

> Fee's Assistant

> *

>

> *

>

[Guest guest]

Here are my definitions:

Hyperacusis: reduced range of auditory tolerance for normal everyday sounds, so

for example, louder sounds that normally would not bother, annoy or cause pain,

do. Loud talking, dishes clinking, sharp dog barks, bus brakes, Generally

speaking, softer sounds are no problem.

Misophonia: means hatred of sound. The classic person with this detests ALL

sounds. Those are rare cases.

Newer definition: extreme dislike of particular sounds, often softer sounds or

even very soft sounds. Can also be humming or engine noises, train rumbles,

throat clearning, gum chewing and so on.

I started with calling this Selective Sound Sensitivity Syndrome or 4S in the

1990s when no one had a name for it.

Since then, Dr. Jastreboff produced misophonia and it seems to have stuck.

Many people with 4S/miso wander on the Hyperacusis Network but they do not

belong there since they do not have hyperacusis.

What I need to say is, I am a practicing Doctor of Audiology who specializes in

these areas, since 1997. Sometimes you will hear opinions from lay people out

in the world who have no medical training or backgrounds. Sometimes you will

hear even crazier stuff from medical people who have no background in auditory

science but who have migrated over to this area for diverse reasons.

Sometimes you will simply nonsense from well meaning people and sometimes you

will encounter bizarre info from deranged disturbed individuals. Who can appear

to be reputable, but who are not!

So you must do your homework and read up and investigate and google and sift

through things as best you can on this site and other misophonia sites.

Soon we will know more and do better.

Dr. Marsha , Audiologist

[Guest guest]

I have some problems with this definition of " hyperacusis " I'm afraid.

1. To me hyperacusis implies very good or better than normal hearing for very

quiet sounds. It is used in this sense for example in PLoS ONE 2010;5:e15141 for

Hyperacute Directional Hearing in Crickets.

2. Dorland's Medical Dictionary (2000) supports this interpretation.

Hyperacusis is " exceptionally acute hearing, the hearing threshold being

unusually low " . " Hyperosmia " is increased sensitivity of smell.

3. I agree with the phrase " softer sounds are no problem " , but would extend that

to moderately loud sounds as well. There are definite conditions where it is

only the reaction to loud sounds that is abnormal or excessive.

4. In my 2000 paper I discuss some of the conceptual problems with loudness

disorders. This review needs expanding and revamping, but is only worth doing if

it promotes consensus rather than unconstructive criticism. Follow this link to

my Google Scholar publication list:

http://scholar.google.co.uk/citations?user=yEsgjrAAAAAJ & hl=en & pagesize=100

5. In my 1986 paper I confirmed the acoustic reflex correlates of

audiosensitivity, strictly defined as having to turn down the volume on TV or

radio when entering a room when someone else was listening to audio speech or

music. I also listed in my paper many other noises or sounds like those

mentioned below, sensitivity to which was not related to reflex abnormalities.

*********************************************************************

>

> Here are my definitions:

>

> Hyperacusis: reduced range of auditory tolerance for normal everyday sounds,

so for example, louder sounds that normally would not bother, annoy or cause

pain, do. Loud talking, dishes clinking, sharp dog barks, bus brakes, Generally

speaking, softer sounds are no problem.

>

> Misophonia: means hatred of sound. The classic person with this detests ALL

sounds. Those are rare cases.

>

> Newer definition: extreme dislike of particular sounds, often softer sounds

or even very soft sounds. Can also be humming or engine noises, train rumbles,

throat clearning, gum chewing and so on.

>

> I started with calling this Selective Sound Sensitivity Syndrome or 4S in the

1990s when no one had a name for it.

>

> Since then, Dr. Jastreboff produced misophonia and it seems to have stuck.

>

> Many people with 4S/miso wander on the Hyperacusis Network but they do not

belong there since they do not have hyperacusis.

>

> What I need to say is, I am a practicing Doctor of Audiology who specializes

in these areas, since 1997. Sometimes you will hear opinions from lay people

out in the world who have no medical training or backgrounds. Sometimes you

will hear even crazier stuff from medical people who have no background in

auditory science but who have migrated over to this area for diverse reasons.

>

> Sometimes you will simply nonsense from well meaning people and sometimes you

will encounter bizarre info from deranged disturbed individuals. Who can appear

to be reputable, but who are not!

>

> So you must do your homework and read up and investigate and google and sift

through things as best you can on this site and other misophonia sites.

>

> Soon we will know more and do better.

>

> Dr. Marsha , Audiologist

>