Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Hang in there, ! I can’t speak for hyperasusis, but misophonia is a new diagnosis, and the research is starting only now. I’ve created an oasis at work, using earplugs and noise cancelling earphones playing brown noise, and it really gives me comfort. I take small doses of benzodiazepines (Xanax and the like) from my GP, and it really helps my nervousness. Maybe you’ve heard that before, but we’re here for you! From: lisa o Sent: Monday, April 23, 2012 10:16 AM To: Soundsensitivity Subject: After my diagnosis Having suffered from misophonia/hyperacusis for years, along with tinnitus since I was a teenager, I finally went to an audiologist and got a diagnosis, just last week.But that's all I got. No recommended treatment, no referrals, no suggestions, nothing. She seemed adamant that hyperacusis was psychological, and no physiological, and I need to see my GP for anxiety. (I was shaking and crying during our consult, because talking about the auditory disturbances upset me so much)She said the problem was with how I process the sounds and react to them, no the actual volume of the sounds or frequency, etc.My hearing is perfect, and their tests showed as such. I knew that. What I wanted was some help, where to go, what to do.I asked her about the Neurofeedback, QEEG, hypnosis, etc, and she said none of them are proven to treat or help my conditions, and some might even be scams. She said not even TRT, because it can sometimes be annoying or aggravating, not helpful.I could not believe she just left our consult at that - nothing to help me with at all. A written diagnosis so I can get out of my lease, and out from underneath my noisy neighbors. I know I should get a second opinion, and she's not the final word in this search for treatment for me. I have done my own research, and I've called therapists that do NFB but got shuffled around scheduling appointments, that I just gave up trying to get in for the apparently hard to get consultations.They had never treated misophonia/hyperacusis as the main complaint, anyways. Plus, NFB is expensive, as far as I can tell, and not covered by my insurance, of course.I guess I'm just feeling helpless at the moment, although I am optimistic about getting out of my lease with my diagnosis and disability laws to back me up. But what I do now? Shut myself off from the world so I can live in peaceful silence - a hermit? I can't do that. I'm tired of feeling panicked and anxious and jumping through my blood at the onset of any sudden noises in my apartment building or elsewhere. I just don't know what direction to take next. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2012 Report Share Posted April 24, 2012 Thanks. I don't fully understand the difference between misophonia and hyperacusis. Maybe I have both, because I can't tolerate loud sounds (even if they're sounds I don't hate), like bands or loud crowds. I get physical pain in my ears from it. Then I have the trigger sounds that I hate, like eating sounds and stomping in my apartment, which cause anxiety and all. My friend gave me some Lorazepam to try next time I feel an anxiety attack. Thanks for your support. > > Hang in there, ! I can’t speak for hyperasusis, but misophonia is a new diagnosis, and the research is starting only now. > > I’ve created an oasis at work, using earplugs and noise cancelling earphones playing brown noise, and it really gives me comfort. I take small doses of benzodiazepines (Xanax and the like) from my GP, and it really helps my nervousness. > > Maybe you’ve heard that before, but we’re here for you! > > > > From: lisa o > Sent: Monday, April 23, 2012 10:16 AM > To: Soundsensitivity > Subject: After my diagnosis > > > Having suffered from misophonia/hyperacusis for years, along with tinnitus since I was a teenager, I finally went to an audiologist and got a diagnosis, just last week. > But that's all I got. No recommended treatment, no referrals, no suggestions, nothing. She seemed adamant that hyperacusis was psychological, and no physiological, and I need to see my GP for anxiety. (I was shaking and crying during our consult, because talking about the auditory disturbances upset me so much) > She said the problem was with how I process the sounds and react to them, no the actual volume of the sounds or frequency, etc. > > My hearing is perfect, and their tests showed as such. I knew that. > What I wanted was some help, where to go, what to do. > I asked her about the Neurofeedback, QEEG, hypnosis, etc, and she said none of them are proven to treat or help my conditions, and some might even be scams. She said not even TRT, because it can sometimes be annoying or aggravating, not helpful. > > I could not believe she just left our consult at that - nothing to help me with at all. > A written diagnosis so I can get out of my lease, and out from underneath my noisy neighbors. > I know I should get a second opinion, and she's not the final word in this search for treatment for me. > > I have done my own research, and I've called therapists that do NFB but got shuffled around scheduling appointments, that I just gave up trying to get in for the apparently hard to get consultations. > They had never treated misophonia/hyperacusis as the main complaint, anyways. > Plus, NFB is expensive, as far as I can tell, and not covered by my insurance, of course. > > I guess I'm just feeling helpless at the moment, although I am optimistic about getting out of my lease with my diagnosis and disability laws to back me up. > But what I do now? Shut myself off from the world so I can live in peaceful silence - a hermit? I can't do that. > I'm tired of feeling panicked and anxious and jumping through my blood at the onset of any sudden noises in my apartment building or elsewhere. > I just don't know what direction to take next. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2012 Report Share Posted April 24, 2012 I have the same thing. I hate the eating noises with a passion... and some others.. but then there are sounds (some of them overlap) that cause pain in my ears, and one sound that makes the muscles in my feet spasm... An ENT I went to said I had hyperacusis.. but I think I probably have both.--------------------------------------------------------- ♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ Follow my story: http://www.caringbridge.org/visit/sarahmaeWish Upon A Hero Cafe Moderator and Fee's Assistant  Thanks. I don't fully understand the difference between misophonia and hyperacusis. Maybe I have both, because I can't tolerate loud sounds (even if they're sounds I don't hate), like bands or loud crowds. I get physical pain in my ears from it. Then I have the trigger sounds that I hate, like eating sounds and stomping in my apartment, which cause anxiety and all. My friend gave me some Lorazepam to try next time I feel an anxiety attack. Thanks for your support. > > Hang in there, ! I can’t speak for hyperasusis, but misophonia is a new diagnosis, and the research is starting only now. > > I’ve created an oasis at work, using earplugs and noise cancelling earphones playing brown noise, and it really gives me comfort. I take small doses of benzodiazepines (Xanax and the like) from my GP, and it really helps my nervousness. > > Maybe you’ve heard that before, but we’re here for you! > > > > From: lisa o > Sent: Monday, April 23, 2012 10:16 AM > To: Soundsensitivity > Subject: After my diagnosis > > > Having suffered from misophonia/hyperacusis for years, along with tinnitus since I was a teenager, I finally went to an audiologist and got a diagnosis, just last week. > But that's all I got. No recommended treatment, no referrals, no suggestions, nothing. She seemed adamant that hyperacusis was psychological, and no physiological, and I need to see my GP for anxiety. (I was shaking and crying during our consult, because talking about the auditory disturbances upset me so much) > She said the problem was with how I process the sounds and react to them, no the actual volume of the sounds or frequency, etc. > > My hearing is perfect, and their tests showed as such. I knew that. > What I wanted was some help, where to go, what to do. > I asked her about the Neurofeedback, QEEG, hypnosis, etc, and she said none of them are proven to treat or help my conditions, and some might even be scams. She said not even TRT, because it can sometimes be annoying or aggravating, not helpful. > > I could not believe she just left our consult at that - nothing to help me with at all. > A written diagnosis so I can get out of my lease, and out from underneath my noisy neighbors. > I know I should get a second opinion, and she's not the final word in this search for treatment for me. > > I have done my own research, and I've called therapists that do NFB but got shuffled around scheduling appointments, that I just gave up trying to get in for the apparently hard to get consultations. > They had never treated misophonia/hyperacusis as the main complaint, anyways. > Plus, NFB is expensive, as far as I can tell, and not covered by my insurance, of course. > > I guess I'm just feeling helpless at the moment, although I am optimistic about getting out of my lease with my diagnosis and disability laws to back me up. > But what I do now? Shut myself off from the world so I can live in peaceful silence - a hermit? I can't do that. > I'm tired of feeling panicked and anxious and jumping through my blood at the onset of any sudden noises in my apartment building or elsewhere. > I just don't know what direction to take next. > Quote Link to comment Share on other sites More sharing options...
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