Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Hi Everyone, I am pretty new to this board. I have been on Misophonia UK for some time. My thirteen year old son, Jack, just began Neurofeedback for Misophonia last month, and I am happy to find this thread. I hope we can help each other as we try this new treatment. Jack has had three appointments so far. The first was an initial consultation, the second brain maps... Jack had his third appointment just today. We looked at his brain maps. There were areas all over the brain that had abnormal readings. I guess there are two ways brain waves can be abnormal. They can be erratic and jumping all over or they can be stuck and hardly fluctuating at all. Jack had both. For those who are familiar with the geography of the brain, Dr. Calabrese saw the greatest issues at CZ and C4 at the center of the top of the head. FP1 which is right above the left eyebrow and o2. She decided to start working first at o2. This is the occipital lobe (back of the head). Jack's brain waves at this site are almost completely locked up. They hop back and forth between 9.5 and 10, that's it. To work on "stuck" waves, the neurofeedback machine just hums. We watched the monitor for ten minutes. Not much change occurred though I guess this takes time! More to come... :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I guess I haven't checked my email in a while because I was unaware Of treatment like this.. The " treatment" I have received has not helped. Is there any treatment like this in the US particularly in the area surrounding NYC that anyone knows of? Thanks. Hi Everyone, I am pretty new to this board. I have been on Misophonia UK for some time. My thirteen year old son, Jack, just began Neurofeedback for Misophonia last month, and I am happy to find this thread. I hope we can help each other as we try this new treatment. Jack has had three appointments so far. The first was an initial consultation, the second brain maps... Jack had his third appointment just today. We looked at his brain maps. There were areas all over the brain that had abnormal readings. I guess there are two ways brain waves can be abnormal. They can be erratic and jumping all over or they can be stuck and hardly fluctuating at all. Jack had both. For those who are familiar with the geography of the brain, Dr. Calabrese saw the greatest issues at CZ and C4 at the center of the top of the head. FP1 which is right above the left eyebrow and o2. She decided to start working first at o2. This is the occipital lobe (back of the head). Jack's brain waves at this site are almost completely locked up. They hop back and forth between 9.5 and 10, that's it. To work on "stuck" waves, the neurofeedback machine just hums. We watched the monitor for ten minutes. Not much change occurred though I guess this takes time! More to come... :-) = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 I think I might have a bit of insomnia... Does that coincide with 4s? I have an appointment next week with a psychologist who does Neurofeedback. First appointment includes testing (QEEG) and evaluation. There are multi-session packages, so there's a little bit of a price break. This is not Brain State Tech, which I did last year without success, but only had 10 sessions. Because it didn't improve my SPD, insomnia or anything else, the provider discouraged me from continuing. Didn't know then that there were other options and that it takes many sessions. This place is cheaper and closer to home, anyway. I'll keep you informed of progress. Wish me luck (or a miracle if that's what it takes...) Colleen = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 I use a pillow over my head. Somehow this not only blocks a lot but causes its own white noise. Probably from brushing up against the ear. Having someone snoring was impossible. The problem was solved . Also, when I get acclimated to expected noises they don't wake me up as much. To: Soundsensitivity Sent: Friday, June 22, 2012 11:58 AM Subject: Re: Neurofeedback I am just talking from myself here so don't take it as truth lol I've seen many in these support groups say they don't sleep well but all of them seemed to be related specifically to sounds keeping them from sleep.I myself have no sleep problems...as I use a heavy fan to block out noises..once I am asleep I tend to stay asleep....wondering if the brain functions the same with sounds when you are asleep? Could be related but I dunno. I'd think it could definitely have some effect on sleep for some! I have an appointment next week with a psychologist who does Neurofeedback. First appointment includes testing (QEEG) and evaluation. There are multi-session packages, so there's a little bit of a price break. This is not Brain State Tech, which I did last year without success, but only had 10 sessions. Because it didn't improve my SPD, insomnia or anything else, the provider discouraged me from continuing. Didn't know then that there were other options and that it takes many sessions. This place is cheaper and closer to home, anyway. I'll keep you informed of progress. Wish me luck (or a miracle if that's what it takes...) Colleen = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 I've had sound sensitivity for over 50 years. I slept well as long as I could block out annoying sounds. Never had insomnia till I hit menopause. Doc says that's common. I don't believe there's a link to " typical " insomnia and 4S, but you can definitely have both. Colleen > > > > > >Â > >>I have an appointment next week with a psychologist who does Neurofeedback. First appointment includes testing (QEEG) and evaluation. There are multi-session packages, so there's a little bit of a price break. > >> > >>This is not Brain State Tech, which I did last year without success, but only had 10 sessions. Because it didn't improve my SPD, insomnia or anything else, the provider discouraged me from continuing. Didn't know then that there were other options and that it takes many sessions. This place is cheaper and closer to home, anyway. > >> > >>I'll keep you informed of progress. > >> > >>Wish me luck (or a miracle if that's what it takes...) > >> > >>Colleen > >> > >>= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Thanks everyone. I've had sound sensitivity for over 50 years. I slept well as long as I could block out annoying sounds. Never had insomnia till I hit menopause. Doc says that's common. I don't believe there's a link to "typical" insomnia and 4S, but you can definitely have both. Colleen > > > > > >Â > >>I have an appointment next week with a psychologist who does Neurofeedback. First appointment includes testing (QEEG) and evaluation. There are multi-session packages, so there's a little bit of a price break. > >> > >>This is not Brain State Tech, which I did last year without success, but only had 10 sessions. Because it didn't improve my SPD, insomnia or anything else, the provider discouraged me from continuing. Didn't know then that there were other options and that it takes many sessions. This place is cheaper and closer to home, anyway. > >> > >>I'll keep you informed of progress. > >> > >>Wish me luck (or a miracle if that's what it takes...) > >> > >>Colleen > >> > >>= > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2012 Report Share Posted June 22, 2012 Well I have to say NFB improved my sleep and hence made me less irritable- which in turn slightly affects my reaction to triggers. I'm hoping that with more NFB treatments that will continue to improve but I have to tell you I used to sleep 12 hours a night and now I sleep 8.5 and feel more rested- this is due to the NFB. They actually said I was an insomniac because I didn't get enough deep sleep (REM)Audrey To: "Soundsensitivity " <Soundsensitivity > Sent: Friday, June 22, 2012 2:41 PM Subject: Re: Neurofeedback I think I might have a bit of insomnia... Does that coincide with 4s? I have an appointment next week with a psychologist who does Neurofeedback. First appointment includes testing (QEEG) and evaluation. There are multi-session packages, so there's a little bit of a price break. This is not Brain State Tech, which I did last year without success, but only had 10 sessions. Because it didn't improve my SPD, insomnia or anything else, the provider discouraged me from continuing. Didn't know then that there were other options and that it takes many sessions. This place is cheaper and closer to home, anyway. I'll keep you informed of progress. Wish me luck (or a miracle if that's what it takes...) Colleen = Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.