Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 Hi ,I know how you feel. I've spent 300 on Bose headphones. 200 on custom fitted musician earplugs from my audiologist. Been to my family doctor, several audiologists, behavior therapist, etc. Like most here, are hearing is normal to above. Can we fault physicians for not knowing what we have? It's "different" or "odd". They either write us off or send us off to another practitioner they feel better suited for our "issues". Thank goodness for this group because that's where most feel that first sigh of relief that we're not crazy or "overly sensitive". Thanks goodness my sleep doctor has heard of it when I went for a follow up yesterday. I'm getting blood work done in the morning and it will be sent to the Mayo Clinic for analysis. As I posted yesterday, it'll take a week and my doctor will be focusing on dopamine, adrenaline and a third variable. Through this blood work he can detect where my levels are and they can be adjusted through shots. That fight/flee response can be calibrated. I'm so excited! If it doesn't work he said he was excited to see if he can help me. ShonnaSent from my iPhone I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 In response to , my heart goes out to you. Thank God there is a forum where people understand us, because they ARE us! My case may not be as extreme as yours, but I think that may be a lifestyle difference. So much about the symptoms seem to be about whether you have any control. I'm thinking that if it's humanly possible, no sufferer should have to sit near a source of these agonizing noises while they work. It's like a disability. It IS a disability. You know what's weird and interesting? I described my condition to a friend who is deaf, and he understood it instantly. He didn't laugh or belittle it at all; in fact he put in on almost the same level as his disability. If possible, talk to your boss and get a place to work away from trigger noises. Or try to change jobs or even careers. Life is too short to spend every day in agony! God speed... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I feel for you . I have a problem with the "sss" sound and "p" sound. Some people I'm around everything is fine. All it takes is one person to talk in a way that enunciates those sounds and I have to leave the area. So how do you work in a place where someone talks like that every time they open their mouth? Or if you're lucky enough that no one does it, then one day you walk into work and someone is there that starts talking that way? Because of the panic sensation and rage it sends through every fiber of your body, there is no way I could continue to work there. If I interviewed for a job and the interviewer or anyone I saw in there talked like that, I would have to decline the job if it were offered. This limits all aspects of our lives. And you're right, this is a real disability - one that is just coming to light and not many people (including doctors) have even heard of let alone know what it is or understand it. As of now, there is no cure. We are all looking for ways to cope with this, we seem to have been doing so since childhood. What works for one doesnt always work, or may be impractical, for another. How do you wear headphones in an office where you have to relate to other workers? To: "Soundsensitivity " <Soundsensitivity > Cc: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, April 25, 2012 2:56 PM Subject: Re: Why?? Hi ,I know how you feel. I've spent 300 on Bose headphones. 200 on custom fitted musician earplugs from my audiologist. Been to my family doctor, several audiologists, behavior therapist, etc. Like most here, are hearing is normal to above. Can we fault physicians for not knowing what we have? It's "different" or "odd". They either write us off or send us off to another practitioner they feel better suited for our "issues". Thank goodness for this group because that's where most feel that first sigh of relief that we're not crazy or "overly sensitive". Thanks goodness my sleep doctor has heard of it when I went for a follow up yesterday. I'm getting blood work done in the morning and it will be sent to the Mayo Clinic for analysis. As I posted yesterday, it'll take a week and my doctor will be focusing on dopamine, adrenaline and a third variable. Through this blood work he can detect where my levels are and they can be adjusted through shots. That fight/flee response can be calibrated. I'm so excited! If it doesn't work he said he was excited to see if he can help me. ShonnaSent from my iPhone I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2012 Report Share Posted April 25, 2012 I remember that feeling. Hopefully the recent attention from the medical community will bear fruit. My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper. Hope you find relief, From: Sent: Wednesday, April 25, 2012 9:25 AM To: Soundsensitivity Subject: Why?? I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 I answer phones and sometimes talk to people who come into the office, so I can't completely shut out sound. But, I do what I can and just put one earplug in the ear thats facing people. Or I play music, pink noise, in one earbud in the same ear. It certainly doesn't drown out the noise, but it can sometimes make it less offensive if I catch it early. When it comes to co-workers, I don't really relate much to them. I don't really chit chat and, at lunch, I go off somewhere quiet to read a book. > > >  > >I just started with this group a few weeks ago and have been just reading people's posts until now. > > > >I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. > > > >We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. > > > >I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. > > > >I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. > > > >How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? > > > >I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? > > > > = > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 ,That is the *exact* same setup I use, including the choice of brown noise over the other colors.I also have started to loop a "crowded hallway" noise so that I can't pick out voices when people are chatting around me. To: Soundsensitivity Sent: Wednesday, April 25, 2012 8:32 PM Subject: Re: Why?? I remember that feeling. Hopefully the recent attention from the medical community will bear fruit. My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper. Hope you find relief, From: Sent: Wednesday, April 25, 2012 9:25 AM To: Soundsensitivity Subject: Why?? I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 "How do you keep going?" For one keep seeing your therapist. It sounds like she/he accept your situation and are helping you find answers. That is awesome! Not everyone has a good experience like that. Keep working with them on finding ways to better cope with this condition. Especially, non-medicated solutions that will help reduce your anxiety. My therapist helped me through the guilt, associated with feeling like I had to hide this condition from others and for wearing headphones all the time. My therapist calls what we deal with a real medical condition. There should be no shame or guilt with it. That's where you therapist can be of biggest help. This is real, and we deal with it every single day of our lives. I empathize with you. It is hard to live in this society when (especially the "expert" doctors) no one understands what's causing this. I saw an ear doctor before and he had no clue, you would think he'd know right? I even had my ears tested and the audiologist looked at me funny and not believe me when I could perceive a sound above the "normal" range of human hearing. It's frustrating, I know. But the thing I've learned, is that if someone is causing you discomfort, you have the right to request that they stop. You also have the right to not be around them or to leave that situation. It gets harder when it is family or close friends, I know. I learned who really were my friends and who weren't, when I spoke to them about this. That can be a wake up call, but very hard and emotionally difficult to deal with. That's where your therapist can help. I'm lucky my family finally after many years came to some understanding of what I deal with. There is hope, yours might too. As long as I speak up and set my boundaries around them, they are more receptive and willing to not do the things that cause me pain and discomfort from this condition. In an office situation, it can be more difficult. Wearing headphones can help drown out the sounds and setting your space up so you can't directly see someone else, to block out the visual triggers. It's tough. You either look for another job or you can talk with your supervisor and see what accommodations they can help with. Especially, if it helps you be a better worker at your job. One day I hope this condition will get full recognition as a disability. For now, it's a case by case situation, and you have to speak up for yourself. You have a right to live and a right to peace. If that means putting up boundaries when around others, that is okay. That is what we must do to survive. You have a right not stay in a situation that is causing you pain, discomfort and anxiety. Many times, though, we feel we are in a situation where we are stuck and can't leave. That is when we explode inside, rage, fume, feel crazy and twisted up, want to hit something... I implore you to work on this with your therapist. To better know when you are reaching that uncomfortable place of being, so you can divert yourself in a better direction. I'll be blunt. When I reach that place, I find myself hitting my head trying to knock the horrible feeling and pain out. But, with help from my therapist, I've learned to anticipate when I'm heading down that road... when around family, I speak up and say "I'm at that place where I want to hit my head"... they are receptive to that and let me go and take care of myself. They'd rather have me take care of myself then be on edge around them. I go off to my room and be alone for a while. If it was a visual trigger, I watch a movie or something visual to help rid myself of what I saw. If audible trigger, I put on headphones and listen to something that helps me find my balance again. For me, I survive because I wear headphones all the time. Where ever I go. Even at home. It is better not to endure a trigger if you can. Until there is a "cure", I'm always trying to find ways to block out the triggers. Headphones help block out the audible triggers. I say no to doing dishes, for example. I eat with paper plates and plastic dishes. I limit my time around others. That helps to reduce the number of visual triggers I have to deal with. Find something that helps you calm down and relax. For me that's the steam room at my local gym. Or taking a shower and having the water rush over my head. Or doing something solitary. There is so much technology around us to keep us occupied even when by ourselves or in our room. It's what we must do to have some peace in our lives and lessen our anxiety. We have this real medical condition and your therapist should help you to accept that. I fought it and tried to hide it most of my life futilely, until as an adult my therapist helped me accept it's a part of my life. As she said to me in one of my sessions: "today is the first day of your new life." I hope I've been helpful to anyone who read this. It was quite a big post, but I had a lot to say. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 I prefer brown noise, as it's on a similar frequency to the sound of ocean waves. Which to me is soothing. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message.  , That is the *exact* same setup I use, including the choice of brown noise over the other colors. I also have started to loop a "crowded hallway" noise so that I can't pick out voices when people are chatting around me. Chris From: To: Soundsensitivity Sent: Wednesday, April 25, 2012 8:32 PM Subject: Re: Why??  I remember that feeling. Hopefully the recent attention from the medical community will bear fruit.  My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper.  Hope you find relief,  From: Sent: Wednesday, April 25, 2012 9:25 AM To: Soundsensitivity Subject: Why??   I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Thanks Randall, I will send this to my 14 year old son who is struggling with this at his treatment center.I'm just wondering, are you the Randall that lived in Dallas? Ann "How do you keep going?" For one keep seeing your therapist. It sounds like she/he accept your situation and are helping you find answers. That is awesome! Not everyone has a good experience like that. Keep working with them on finding ways to better cope with this condition. Especially, non-medicated solutions that will help reduce your anxiety. My therapist helped me through the guilt, associated with feeling like I had to hide this condition from others and for wearing headphones all the time. My therapist calls what we deal with a real medical condition. There should be no shame or guilt with it. That's where you therapist can be of biggest help. This is real, and we deal with it every single day of our lives. I empathize with you. It is hard to live in this society when (especially the "expert" doctors) no one understands what's causing this. I saw an ear doctor before and he had no clue, you would think he'd know right? I even had my ears tested and the audiologist looked at me funny and not believe me when I could perceive a sound above the "normal" range of human hearing. It's frustrating, I know. But the thing I've learned, is that if someone is causing you discomfort, you have the right to request that they stop. You also have the right to not be around them or to leave that situation. It gets harder when it is family or close friends, I know. I learned who really were my friends and who weren't, when I spoke to them about this. That can be a wake up call, but very hard and emotionally difficult to deal with. That's where your therapist can help. I'm lucky my family finally after many years came to some understanding of what I deal with. There is hope, yours might too. As long as I speak up and set my boundaries around them, they are more receptive and willing to not do the things that cause me pain and discomfort from this condition. In an office situation, it can be more difficult. Wearing headphones can help drown out the sounds and setting your space up so you can't directly see someone else, to block out the visual triggers. It's tough. You either look for another job or you can talk with your supervisor and see what accommodations they can help with. Especially, if it helps you be a better worker at your job. One day I hope this condition will get full recognition as a disability. For now, it's a case by case situation, and you have to speak up for yourself. You have a right to live and a right to peace. If that means putting up boundaries when around others, that is okay. That is what we must do to survive. You have a right not stay in a situation that is causing you pain, discomfort and anxiety. Many times, though, we feel we are in a situation where we are stuck and can't leave. That is when we explode inside, rage, fume, feel crazy and twisted up, want to hit something... I implore you to work on this with your therapist. To better know when you are reaching that uncomfortable place of being, so you can divert yourself in a better direction. I'll be blunt. When I reach that place, I find myself hitting my head trying to knock the horrible feeling and pain out. But, with help from my therapist, I've learned to anticipate when I'm heading down that road... when around family, I speak up and say "I'm at that place where I want to hit my head"... they are receptive to that and let me go and take care of myself. They'd rather have me take care of myself then be on edge around them. I go off to my room and be alone for a while. If it was a visual trigger, I watch a movie or something visual to help rid myself of what I saw. If audible trigger, I put on headphones and listen to something that helps me find my balance again. For me, I survive because I wear headphones all the time. Where ever I go. Even at home. It is better not to endure a trigger if you can. Until there is a "cure", I'm always trying to find ways to block out the triggers. Headphones help block out the audible triggers. I say no to doing dishes, for example. I eat with paper plates and plastic dishes. I limit my time around others. That helps to reduce the number of visual triggers I have to deal with. Find something that helps you calm down and relax. For me that's the steam room at my local gym. Or taking a shower and having the water rush over my head. Or doing something solitary. There is so much technology around us to keep us occupied even when by ourselves or in our room. It's what we must do to have some peace in our lives and lessen our anxiety. We have this real medical condition and your therapist should help you to accept that. I fought it and tried to hide it most of my life futilely, until as an adult my therapist helped me accept it's a part of my life. As she said to me in one of my sessions: "today is the first day of your new life." I hope I've been helpful to anyone who read this. It was quite a big post, but I had a lot to say. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Thank you for the reply. I'm not the Randall that lived in Dallas. That would be someone else. I hope your son finds what I wrote helpful. He isn't alone with what he struggles with. You're an awesome mother to help him! I wish your son the best at his treatment center. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. Â Thanks Randall, I will send this to my 14 year old son who is struggling with this at his treatment center. I'm just wondering, are you the Randall that lived in Dallas? Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Great lessons! I found I had to walk away from some therapists that weren’t right for me, and seek another. From: Randall Sent: Thursday, April 26, 2012 6:30 PM To: Soundsensitivity Subject: Re: Why?? "How do you keep going?" For one keep seeing your therapist. It sounds like she/he accept your situation and are helping you find answers. That is awesome! Not everyone has a good experience like that. Keep working with them on finding ways to better cope with this condition. Especially, non-medicated solutions that will help reduce your anxiety. My therapist helped me through the guilt, associated with feeling like I had to hide this condition from others and for wearing headphones all the time.My therapist calls what we deal with a real medical condition. There should be no shame or guilt with it. That's where you therapist can be of biggest help. This is real, and we deal with it every single day of our lives. I empathize with you. It is hard to live in this society when (especially the "expert" doctors) no one understands what's causing this. I saw an ear doctor before and he had no clue, you would think he'd know right? I even had my ears tested and the audiologist looked at me funny and not believe me when I could perceive a sound above the "normal" range of human hearing.It's frustrating, I know. But the thing I've learned, is that if someone is causing you discomfort, you have the right to request that they stop. You also have the right to not be around them or to leave that situation. It gets harder when it is family or close friends, I know. I learned who really were my friends and who weren't, when I spoke to them about this. That can be a wake up call, but very hard and emotionally difficult to deal with. That's where your therapist can help. I'm lucky my family finally after many years came to some understanding of what I deal with. There is hope, yours might too.As long as I speak up and set my boundaries around them, they are more receptive and willing to not do the things that cause me pain and discomfort from this condition. In an office situation, it can be more difficult. Wearing headphones can help drown out the sounds and setting your space up so you can't directly see someone else, to block out the visual triggers. It's tough. You either look for another job or you can talk with your supervisor and see what accommodations they can help with. Especially, if it helps you be a better worker at your job. One day I hope this condition will get full recognition as a disability. For now, it's a case by case situation, and you have to speak up for yourself.You have a right to live and a right to peace. If that means putting up boundaries when around others, that is okay. That is what we must do to survive. You have a right not stay in a situation that is causing you pain, discomfort and anxiety. Many times, though, we feel we are in a situation where we are stuck and can't leave. That is when we explode inside, rage, fume, feel crazy and twisted up, want to hit something... I implore you to work on this with your therapist. To better know when you are reaching that uncomfortable place of being, so you can divert yourself in a better direction.I'll be blunt. When I reach that place, I find myself hitting my head trying to knock the horrible feeling and pain out. But, with help from my therapist, I've learned to anticipate when I'm heading down that road... when around family, I speak up and say "I'm at that place where I want to hit my head"... they are receptive to that and let me go and take care of myself. They'd rather have me take care of myself then be on edge around them. I go off to my room and be alone for a while. If it was a visual trigger, I watch a movie or something visual to help rid myself of what I saw. If audible trigger, I put on headphones and listen to something that helps me find my balance again. For me, I survive because I wear headphones all the time. Where ever I go. Even at home.It is better not to endure a trigger if you can. Until there is a "cure", I'm always trying to find ways to block out the triggers. Headphones help block out the audible triggers. I say no to doing dishes, for example. I eat with paper plates and plastic dishes. I limit my time around others. That helps to reduce the number of visual triggers I have to deal with. Find something that helps you calm down and relax. For me that's the steam room at my local gym. Or taking a shower and having the water rush over my head. Or doing something solitary. There is so much technology around us to keep us occupied even when by ourselves or in our room.It's what we must do to have some peace in our lives and lessen our anxiety. We have this real medical condition and your therapist should help you to accept that. I fought it and tried to hide it most of my life futilely, until as an adult my therapist helped me accept it's a part of my life. As she said to me in one of my sessions: "today is the first day of your new life."I hope I've been helpful to anyone who read this. It was quite a big post, but I had a lot to say. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2012 Report Share Posted April 26, 2012 Hi Nice addition with the crowded hallway! It’s possible to connect the Bose input to a telephone handset connector, with a volume knob and a switch to kill the noise (in one ear?). The microphone is simple electronically but maybe tougher mechanically. That might help some of our fellow sufferers at their jobs. Would you or anyone else be interested in such a thing? From: Misophonia Sufferer Sent: Thursday, April 26, 2012 9:25 AM To: Soundsensitivity Subject: Re: Why?? , That is the *exact* same setup I use, including the choice of brown noise over the other colors. I also have started to loop a "crowded hallway" noise so that I can't pick out voices when people are chatting around me. Chris To: Soundsensitivity Sent: Wednesday, April 25, 2012 8:32 PMSubject: Re: Why?? I remember that feeling. Hopefully the recent attention from the medical community will bear fruit. My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper. Hope you find relief, From: Sent: Wednesday, April 25, 2012 9:25 AM To: Soundsensitivity Subject: Why?? I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 Randall, thanks for your post - it's helped me for the place I'm in right now: trying to figure out if my therapist can help me (even just to make me cope better, if not cure it). I hope it helped too. thanks Soo From: Randall Sent: Friday, April 27, 2012 2:30 AM To: Soundsensitivity Subject: Re: Why?? "How do you keep going?" For one keep seeing your therapist. It sounds like she/he accept your situation and are helping you find answers. That is awesome! Not everyone has a good experience like that. Keep working with them on finding ways to better cope with this condition. Especially, non-medicated solutions that will help reduce your anxiety. My therapist helped me through the guilt, associated with feeling like I had to hide this condition from others and for wearing headphones all the time.My therapist calls what we deal with a real medical condition. There should be no shame or guilt with it. That's where you therapist can be of biggest help. This is real, and we deal with it every single day of our lives. I empathize with you. It is hard to live in this society when (especially the "expert" doctors) no one understands what's causing this. I saw an ear doctor before and he had no clue, you would think he'd know right? I even had my ears tested and the audiologist looked at me funny and not believe me when I could perceive a sound above the "normal" range of human hearing.It's frustrating, I know. But the thing I've learned, is that if someone is causing you discomfort, you have the right to request that they stop. You also have the right to not be around them or to leave that situation. It gets harder when it is family or close friends, I know. I learned who really were my friends and who weren't, when I spoke to them about this. That can be a wake up call, but very hard and emotionally difficult to deal with. That's where your therapist can help. I'm lucky my family finally after many years came to some understanding of what I deal with. There is hope, yours might too.As long as I speak up and set my boundaries around them, they are more receptive and willing to not do the things that cause me pain and discomfort from this condition. In an office situation, it can be more difficult. Wearing headphones can help drown out the sounds and setting your space up so you can't directly see someone else, to block out the visual triggers. It's tough. You either look for another job or you can talk with your supervisor and see what accommodations they can help with. Especially, if it helps you be a better worker at your job. One day I hope this condition will get full recognition as a disability. For now, it's a case by case situation, and you have to speak up for yourself.You have a right to live and a right to peace. If that means putting up boundaries when around others, that is okay. That is what we must do to survive. You have a right not stay in a situation that is causing you pain, discomfort and anxiety. Many times, though, we feel we are in a situation where we are stuck and can't leave. That is when we explode inside, rage, fume, feel crazy and twisted up, want to hit something... I implore you to work on this with your therapist. To better know when you are reaching that uncomfortable place of being, so you can divert yourself in a better direction.I'll be blunt. When I reach that place, I find myself hitting my head trying to knock the horrible feeling and pain out. But, with help from my therapist, I've learned to anticipate when I'm heading down that road... when around family, I speak up and say "I'm at that place where I want to hit my head"... they are receptive to that and let me go and take care of myself. They'd rather have me take care of myself then be on edge around them. I go off to my room and be alone for a while. If it was a visual trigger, I watch a movie or something visual to help rid myself of what I saw. If audible trigger, I put on headphones and listen to something that helps me find my balance again. For me, I survive because I wear headphones all the time. Where ever I go. Even at home.It is better not to endure a trigger if you can. Until there is a "cure", I'm always trying to find ways to block out the triggers. Headphones help block out the audible triggers. I say no to doing dishes, for example. I eat with paper plates and plastic dishes. I limit my time around others. That helps to reduce the number of visual triggers I have to deal with. Find something that helps you calm down and relax. For me that's the steam room at my local gym. Or taking a shower and having the water rush over my head. Or doing something solitary. There is so much technology around us to keep us occupied even when by ourselves or in our room.It's what we must do to have some peace in our lives and lessen our anxiety. We have this real medical condition and your therapist should help you to accept that. I fought it and tried to hide it most of my life futilely, until as an adult my therapist helped me accept it's a part of my life. As she said to me in one of my sessions: "today is the first day of your new life."I hope I've been helpful to anyone who read this. It was quite a big post, but I had a lot to say. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? 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Guest guest Posted April 27, 2012 Report Share Posted April 27, 2012 I've been there. Deeply depressed. Not wanting to live anymore because of this condition. I'm glad what I wrote was helpful to you. Those skills that my therapist worked with me on, are what helped me pull myself up out of that deep dark hole. I still have depression, but it's not as deep and oppressing as before. Having better ways to cope and not feeling guilty for it, really does help a lot. Sadly no cure yet for this condition that I've seen! But, I do have faith it will be in our lifetime... my fingers are crossed! -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. Randall, thanks for your post - it's helped me for the place I'm in right now: trying to figure out if my therapist can help me (even just to make me cope better, if not cure it). I hope it helped too. thanks Soo From: Randall Sent: Friday, April 27, 2012 2:30 AM To: Soundsensitivity Subject: Re: Why?? "How do you keep going?" For one keep seeing your therapist. It sounds like she/he accept your situation and are helping you find answers. That is awesome! Not everyone has a good experience like that. Keep working with them on finding ways to better cope with this condition. Especially, non-medicated solutions that will help reduce your anxiety. My therapist helped me through the guilt, associated with feeling like I had to hide this condition from others and for wearing headphones all the time. My therapist calls what we deal with a real medical condition. There should be no shame or guilt with it. That's where you therapist can be of biggest help. This is real, and we deal with it every single day of our lives. I empathize with you. It is hard to live in this society when (especially the "expert" doctors) no one understands what's causing this. I saw an ear doctor before and he had no clue, you would think he'd know right? I even had my ears tested and the audiologist looked at me funny and not believe me when I could perceive a sound above the "normal" range of human hearing. It's frustrating, I know. But the thing I've learned, is that if someone is causing you discomfort, you have the right to request that they stop. You also have the right to not be around them or to leave that situation. It gets harder when it is family or close friends, I know. I learned who really were my friends and who weren't, when I spoke to them about this. That can be a wake up call, but very hard and emotionally difficult to deal with. That's where your therapist can help. I'm lucky my family finally after many years came to some understanding of what I deal with. There is hope, yours might too. As long as I speak up and set my boundaries around them, they are more receptive and willing to not do the things that cause me pain and discomfort from this condition. In an office situation, it can be more difficult. Wearing headphones can help drown out the sounds and setting your space up so you can't directly see someone else, to block out the visual triggers. It's tough. You either look for another job or you can talk with your supervisor and see what accommodations they can help with. Especially, if it helps you be a better worker at your job. One day I hope this condition will get full recognition as a disability. For now, it's a case by case situation, and you have to speak up for yourself. You have a right to live and a right to peace. If that means putting up boundaries when around others, that is okay. That is what we must do to survive. You have a right not stay in a situation that is causing you pain, discomfort and anxiety. Many times, though, we feel we are in a situation where we are stuck and can't leave. That is when we explode inside, rage, fume, feel crazy and twisted up, want to hit something... I implore you to work on this with your therapist. To better know when you are reaching that uncomfortable place of being, so you can divert yourself in a better direction. I'll be blunt. When I reach that place, I find myself hitting my head trying to knock the horrible feeling and pain out. But, with help from my therapist, I've learned to anticipate when I'm heading down that road... when around family, I speak up and say "I'm at that place where I want to hit my head"... they are receptive to that and let me go and take care of myself. They'd rather have me take care of myself then be on edge around them. I go off to my room and be alone for a while. If it was a visual trigger, I watch a movie or something visual to help rid myself of what I saw. If audible trigger, I put on headphones and listen to something that helps me find my balance again. For me, I survive because I wear headphones all the time. Where ever I go. Even at home. It is better not to endure a trigger if you can. Until there is a "cure", I'm always trying to find ways to block out the triggers. Headphones help block out the audible triggers. I say no to doing dishes, for example. I eat with paper plates and plastic dishes. I limit my time around others. That helps to reduce the number of visual triggers I have to deal with. Find something that helps you calm down and relax. For me that's the steam room at my local gym. Or taking a shower and having the water rush over my head. Or doing something solitary. There is so much technology around us to keep us occupied even when by ourselves or in our room. It's what we must do to have some peace in our lives and lessen our anxiety. We have this real medical condition and your therapist should help you to accept that. I fought it and tried to hide it most of my life futilely, until as an adult my therapist helped me accept it's a part of my life. As she said to me in one of my sessions: "today is the first day of your new life." I hope I've been helpful to anyone who read this. It was quite a big post, but I had a lot to say. -Randall This message is intended solely for the use of the individual and entity to whom it is addressed, and contains information that is private, privileged, confidential and exempt from disclosure under applicable state and federal laws. If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein. If you have received this message in error, immediately advise the sender by reply email and destroy this message. I just started with this group a few weeks ago and have been just reading people's posts until now. I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 I saw this comment above from : " I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. " , do you notice that white noise is a trigger (it seems to be for me)? I can handle pink noise but still don't like it...yet brown noise relaxes me. So far everyone seems to just love white noise but that's my biggest trigger. > > Hi > > Nice addition with the crowded hallway! > > It’s possible to connect the Bose input to a telephone handset connector, with a volume knob and a switch to kill the noise (in one ear?). The microphone is simple electronically but maybe tougher mechanically. > > That might help some of our fellow sufferers at their jobs. Would you or anyone else be interested in such a thing? > > > From: Misophonia Sufferer > Sent: Thursday, April 26, 2012 9:25 AM > To: Soundsensitivity > Subject: Re: Why?? > > > > , > > > That is the *exact* same setup I use, including the choice of brown noise over the other colors. > I also have started to loop a " crowded hallway " noise so that I can't pick out voices when people are chatting around me. > > > Chris > > > -------------------------------------------------------------------------------- > > To: Soundsensitivity > Sent: Wednesday, April 25, 2012 8:32 PM > Subject: Re: Why?? > > > > I remember that feeling. Hopefully the recent attention from the medical community will bear fruit. > > My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper. > > Hope you find relief, > > > From: > Sent: Wednesday, April 25, 2012 9:25 AM > To: Soundsensitivity > Subject: Why?? > > > I just started with this group a few weeks ago and have been just reading people's posts until now. > > I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. > > We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. > > I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. > > I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing. > > How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help? > > I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 I choose brown noise because it is better at masking the throat-clearing sounds at work. One gifted misophonic said he played “hallway noises†to mask his trigger. I’m lucky not to be triggered by white noise. As you read, I wear Hearos Ultimate Softness Series earplugs inside the headphones so I can turn up the brown noise without damaging my hearing. The Bose and Hearos are seldom uncomfortable. Cheers, From: staci.clark@... Sent: Saturday, May 19, 2012 9:06 AM To: Soundsensitivity Subject: Re: Why?? I saw this comment above from : " I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown.", do you notice that white noise is a trigger (it seems to be for me)? I can handle pink noise but still don't like it...yet brown noise relaxes me. So far everyone seems to just love white noise but that's my biggest trigger.>> Hi > > Nice addition with the crowded hallway!> > It’s possible to connect the Bose input to a telephone handset connector, with a volume knob and a switch to kill the noise (in one ear?). The microphone is simple electronically but maybe tougher mechanically.> > That might help some of our fellow sufferers at their jobs. Would you or anyone else be interested in such a thing?> > > From: Misophonia Sufferer > Sent: Thursday, April 26, 2012 9:25 AM> To: mailto:Soundsensitivity%40yahoogroups.com > Subject: Re: Why??> > > > ,> > > That is the *exact* same setup I use, including the choice of brown noise over the other colors.> I also have started to loop a "crowded hallway" noise so that I can't pick out voices when people are chatting around me.> > > Chris> > > ----------------------------------------------------------> > To: mailto:Soundsensitivity%40yahoogroups.com > Sent: Wednesday, April 25, 2012 8:32 PM> Subject: Re: Why??> > > > I remember that feeling. Hopefully the recent attention from the medical community will bear fruit.> > My headphone setup can block out some pretty loud noises. It took awhile to figure out how to place my Hearos Ultimate Softness earplugs properly in my ears (instructions on the package helped). I bought $300 Bose noise cancelling earphones, and I play brown noise after trying white, pink, and ocean-brown. The trick is that I can play the noise quite loudly without damaging my hearing because of the earplugs. If someone is being extra noisy, I temporarily turn up the noise volume, and stuff the earplugs deeper.> > Hope you find relief,> > > From: > Sent: Wednesday, April 25, 2012 9:25 AM> To: mailto:Soundsensitivity%40yahoogroups.com > Subject: Why??> > > I just started with this group a few weeks ago and have been just reading people's posts until now. > > I was diagnosed by a psychiatrist with Hyperacusis, but, the more she learned about my issues, she changed the dx to Misophonia. My issues don't reside soley with loud noises, but rather with the everyday ones - chewing, crumpled bags, vaccums, normal things. > > We are trying to control my anxiety with medication, but it doesn't help with my sound sensitivity at all. Each day is awful. I have a co-worker who constantly chews and eats and crumples bags and plays jazz music...all of which drive me crazy. Some days I feel like I'm going to explode, like my insides are hurting so much that I can't take it anymore. I can't keep doing this. > > I've used any advice that I've found - earplugs, earphones with music or with pink noise. I take the anti-anxiety medication. I try to relax and breathe. Nothing is working though. > > I've googled and called audiologist, occupational therapists, but no one treats or even knows about Misophonia. My psychiatrist has tried finding people, my therapist is currently searching for some answers, and I keep trying, but we've come up with nothing.> > How is it that specialists, doctors, no one knows what Misophonia is? How am I supposed to ever believe that things can get better if there seems to be NOTHING out there to help?> > I know I'm probably not saying anything that everyone else here hasn't already said. I guess I'm just wondering how you deal with this? How do you accept something that, seemingly, can't be helped? How do you keep going?> Quote Link to comment Share on other sites More sharing options...
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