Guest guest Posted May 14, 2012 Report Share Posted May 14, 2012 9 minutes? Wow..Guess it is better than nothing, but was hoping in an hour long show, it would be a little longer. --------------------------------------------------------- ♥ " Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥ Follow my story: http://www.caringbridge.org/visit/sarahmaeWish Upon A Hero Cafe Moderator and Fee's Assistant On Mon, May 14, 2012 at 2:57 PM, wouldlovetofindacurefor4s wrote:  I know a lot of you are asking when the show will be on. The show about misophonia will be on this Friday, May 18th on ABC 20/20. The theme of the show is " Make it stop " The segment will be about 9 minutes unless that has changed again since I last talked with the producer. Originally it was suppose to be longer. If you check the 20/20 page, it will show what is coming up this week. So far it hasn't been promoted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Check out the 20/20 ABC Facebook page. This story already has 130 comments and it hadn't even aired yet. Heidi Sent from my iPhoneOn May 15, 2012, at 3:32 PM, "wouldlovetofindacurefor4s" wrote: They change the length of the segment again. Now it will be about 14 minutes talking about misophonia. > > > ** > > > > > > I know a lot of you are asking when the show will be on. The show about > > misophonia will be on this Friday, May 18th on ABC 20/20. > > > > The theme of the show is "Make it stop" > > > > The segment will be about 9 minutes unless that has changed again since I > > last talked with the producer. Originally it was suppose to be longer. > > > > If you check the 20/20 page, it will show what is coming up this week. So > > far it hasn't been promoted. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Wow that is amazing! > > > > > > > ** > > > > > > > > > > > > I know a lot of you are asking when the show will be on. The show about > > > > misophonia will be on this Friday, May 18th on ABC 20/20. > > > > > > > > The theme of the show is " Make it stop " > > > > > > > > The segment will be about 9 minutes unless that has changed again since I > > > > last talked with the producer. Originally it was suppose to be longer. > > > > > > > > If you check the 20/20 page, it will show what is coming up this week. So > > > > far it hasn't been promoted. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 I made a comment on ABC's 20/20 facebook page too. It's been shared over 60 times also which translates to gobs of others who will see it. I'm going to be brave and write on my own facebook urging my friends and family, most of which I've never told about my Misophonia, to watch and learn. I may find out who is really my friend after that. Ha ha! But, I'm willing to do it just to make more people aware. I'm tired of hiding in the shadows, I'm tired of being ashamed. I'm tired of feeling this way so whatever I have to do to end it, I will. > > > > > > > ** > > > > > > > > > > > > I know a lot of you are asking when the show will be on. The show about > > > > misophonia will be on this Friday, May 18th on ABC 20/20. > > > > > > > > The theme of the show is " Make it stop " > > > > > > > > The segment will be about 9 minutes unless that has changed again since I > > > > last talked with the producer. Originally it was suppose to be longer. > > > > > > > > If you check the 20/20 page, it will show what is coming up this week. So > > > > far it hasn't been promoted. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 > I put it on my FB profile, but I didn't put any comments with it. There has been no likes or shares or comments on it at all. I hope you have better luck than me! Vicki I made a comment on ABC's 20/20 facebook page too. It's been shared over > 60 times also which translates to gobs of others who will see it. I'm > going to be brave and write on my own facebook urging my friends and > family, most of which I've never told about my Misophonia, to watch and > learn. I may find out who is really my friend after that. Ha ha! But, > I'm willing to do it just to make more people aware. I'm tired of hiding > in the shadows, I'm tired of being ashamed. I'm tired of feeling this way > so whatever I have to do to end it, I will. > > > >> > > >> > > > ** >> > > > >> > > > >> > > > I know a lot of you are asking when the show will be on. The show >> about >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. >> > > > >> > > > The theme of the show is " Make it stop " >> > > > >> > > > The segment will be about 9 minutes unless that has changed again >> since I >> > > > last talked with the producer. Originally it was suppose to be >> longer. >> > > > >> > > > If you check the 20/20 page, it will show what is coming up this >> week. So >> > > > far it hasn't been promoted. >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 I posted a comment as well. I said "hello" to Heidi Solerno (sp). I'm horrible at remembering names but she was one of the commenters I recognized :)Sent from my iPhone > I put it on my FB profile, but I didn't put any comments with it. There has been no likes or shares or comments on it at all. I hope you have better luck than me! Vicki I made a comment on ABC's 20/20 facebook page too. It's been shared over > 60 times also which translates to gobs of others who will see it. I'm > going to be brave and write on my own facebook urging my friends and > family, most of which I've never told about my Misophonia, to watch and > learn. I may find out who is really my friend after that. Ha ha! But, > I'm willing to do it just to make more people aware. I'm tired of hiding > in the shadows, I'm tired of being ashamed. I'm tired of feeling this way > so whatever I have to do to end it, I will. > > > >> > > >> > > > ** >> > > > >> > > > >> > > > I know a lot of you are asking when the show will be on. The show >> about >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. >> > > > >> > > > The theme of the show is "Make it stop" >> > > > >> > > > The segment will be about 9 minutes unless that has changed again >> since I >> > > > last talked with the producer. Originally it was suppose to be >> longer. >> > > > >> > > > If you check the 20/20 page, it will show what is coming up this >> week. So >> > > > far it hasn't been promoted. >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Wonderful to hear Darlene. Way to take control. Some will judge but most will be supportive. Take the criticism with a grain of salt. Those people just lack empathy. You have over a 1000 people supporting you as do the people who are about to go public Friday night. I told my neighbors who removed the carpet from their house and now stomp up and down the stairs how hard it is for me to live in the townhouse next to them. I asked them to watch 20/20 so that they could understand why. I hope they do. Sent from my iPhone I made a comment on ABC's 20/20 facebook page too. It's been shared over 60 times also which translates to gobs of others who will see it. I'm going to be brave and write on my own facebook urging my friends and family, most of which I've never told about my Misophonia, to watch and learn. I may find out who is really my friend after that. Ha ha! But, I'm willing to do it just to make more people aware. I'm tired of hiding in the shadows, I'm tired of being ashamed. I'm tired of feeling this way so whatever I have to do to end it, I will. > > > > > > > ** > > > > > > > > > > > > I know a lot of you are asking when the show will be on. The show about > > > > misophonia will be on this Friday, May 18th on ABC 20/20. > > > > > > > > The theme of the show is "Make it stop" > > > > > > > > The segment will be about 9 minutes unless that has changed again since I > > > > last talked with the producer. Originally it was suppose to be longer. > > > > > > > > If you check the 20/20 page, it will show what is coming up this week. So > > > > far it hasn't been promoted. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 That's me. Heidi Salerno :-). Good Job everyone. Spread the word. I just posted in the nuerofeedback yahoo discussion group to let all the practitioners know to watch it. Dr J is there an audiologist discussion group you've told to watch it too?Such exciting times!HeidiSent from my iPhone I posted a comment as well. I said "hello" to Heidi Solerno (sp). I'm horrible at remembering names but she was one of the commenters I recognized :)Sent from my iPhone > I put it on my FB profile, but I didn't put any comments with it. There has been no likes or shares or comments on it at all. I hope you have better luck than me! Vicki I made a comment on ABC's 20/20 facebook page too. It's been shared over > 60 times also which translates to gobs of others who will see it. I'm > going to be brave and write on my own facebook urging my friends and > family, most of which I've never told about my Misophonia, to watch and > learn. I may find out who is really my friend after that. Ha ha! But, > I'm willing to do it just to make more people aware. I'm tired of hiding > in the shadows, I'm tired of being ashamed. I'm tired of feeling this way > so whatever I have to do to end it, I will. > > > >> > > >> > > > ** >> > > > >> > > > >> > > > I know a lot of you are asking when the show will be on. The show >> about >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. >> > > > >> > > > The theme of the show is "Make it stop" >> > > > >> > > > The segment will be about 9 minutes unless that has changed again >> since I >> > > > last talked with the producer. Originally it was suppose to be >> longer. >> > > > >> > > > If you check the 20/20 page, it will show what is coming up this >> week. So >> > > > far it hasn't been promoted. >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Yes it is Heidi! Thanks for name correction . I've shared the link to family and coworkers. Oddly enough, a coworker diagnosed himself as a sufferer. I agree. Awareness + Exciting times= Closer to cure/better management of the condition! Sent from my iPhone That's me. Heidi Salerno :-). Good Job everyone. Spread the word. I just posted in the nuerofeedback yahoo discussion group to let all the practitioners know to watch it. Dr J is there an audiologist discussion group you've told to watch it too?Such exciting times!HeidiSent from my iPhone I posted a comment as well. I said "hello" to Heidi Solerno (sp). I'm horrible at remembering names but she was one of the commenters I recognized :)Sent from my iPhone > I put it on my FB profile, but I didn't put any comments with it. There has been no likes or shares or comments on it at all. I hope you have better luck than me! Vicki I made a comment on ABC's 20/20 facebook page too. It's been shared over > 60 times also which translates to gobs of others who will see it. I'm > going to be brave and write on my own facebook urging my friends and > family, most of which I've never told about my Misophonia, to watch and > learn. I may find out who is really my friend after that. Ha ha! But, > I'm willing to do it just to make more people aware. I'm tired of hiding > in the shadows, I'm tired of being ashamed. I'm tired of feeling this way > so whatever I have to do to end it, I will. > > > >> > > >> > > > ** >> > > > >> > > > >> > > > I know a lot of you are asking when the show will be on. The show >> about >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. >> > > > >> > > > The theme of the show is "Make it stop" >> > > > >> > > > The segment will be about 9 minutes unless that has changed again >> since I >> > > > last talked with the producer. Originally it was suppose to be >> longer. >> > > > >> > > > If you check the 20/20 page, it will show what is coming up this >> week. So >> > > > far it hasn't been promoted. >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Thanks Heidi. This is what I am posting on my Facebook..... " Friday night, on ABC's 20/20, they will be doing a story about a condition called Misophonia. I hope if people watch it, they will withhold judgement and simply try to understand that there are things in life that people are dealing with on a daily basis, that just because you don't understand them, doesn't mean they are 'weird' or 'crazy'. Until now, only 4 people know that I have been dealing with this condition for 27 years. I wouldn't wish it on my worst enemy " . I think for the most part the people on my facebook will be intrigued more than judgmental, since I am VERY selective as to who I am " friends " with. However, I'm preparing myself for anything and like you said, those that criticize simply lack empathy and it doesn't matter because have a whole army behind me here. > > > I made a comment on ABC's 20/20 facebook page too. It's been shared over 60 times also which translates to gobs of others who will see it. I'm going to be brave and write on my own facebook urging my friends and family, most of which I've never told about my Misophonia, to watch and learn. I may find out who is really my friend after that. Ha ha! But, I'm willing to do it just to make more people aware. I'm tired of hiding in the shadows, I'm tired of being ashamed. I'm tired of feeling this way so whatever I have to do to end it, I will. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 It will be tomorrow night. Two segments divided by a commercial. Hope to see you all 'there'. Dr. Marsha , AuD > > > > > > > ** > > > > > > > > > > > > I know a lot of you are asking when the show will be on. The show about > > > > misophonia will be on this Friday, May 18th on ABC 20/20. > > > > > > > > The theme of the show is " Make it stop " > > > > > > > > The segment will be about 9 minutes unless that has changed again since I > > > > last talked with the producer. Originally it was suppose to be longer. > > > > > > > > If you check the 20/20 page, it will show what is coming up this week. So > > > > far it hasn't been promoted. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 > I will be there...lol. I am looking forward to watching it with everyone! Vicki It will be tomorrow night. Two segments divided by a commercial. Hope to > see you all 'there'. > > Dr. Marsha , AuD > > >> > > >> > > > ** >> > > > >> > > > >> > > > I know a lot of you are asking when the show will be on. The show >> about >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. >> > > > >> > > > The theme of the show is " Make it stop " >> > > > >> > > > The segment will be about 9 minutes unless that has changed again >> since I >> > > > last talked with the producer. Originally it was suppose to be >> longer. >> > > > >> > > > If you check the 20/20 page, it will show what is coming up this >> week. So >> > > > far it hasn't been promoted. >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 YEs the audiology Miso Focus Group is alert and ready! Way to go, everyone. We worked hard to get here, don't forget the marvelous Joyce Cohen that started the ball rolling last fall! Thank you JOYCE. Dr. J > >> >> > > > >> >> > > > ** > >> >> > > > > >> >> > > > > >> >> > > > I know a lot of you are asking when the show will be on. The show > >> >> about > >> >> > > > misophonia will be on this Friday, May 18th on ABC 20/20. > >> >> > > > > >> >> > > > The theme of the show is " Make it stop " > >> >> > > > > >> >> > > > The segment will be about 9 minutes unless that has changed again > >> >> since I > >> >> > > > last talked with the producer. Originally it was suppose to be > >> >> longer. > >> >> > > > > >> >> > > > If you check the 20/20 page, it will show what is coming up this > >> >> week. So > >> >> > > > far it hasn't been promoted. > >> >> > > > > >> >> > > > > >> >> > > > > >> >> > > > >> >> > > >> >> > > >> >> > >> > > >> > > >> > > >> > > = > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 I have had great success with posting on my facebook page. A lot of my friends and family have told me that they had NO idea I was struggling with this and that their hearts went out to me. They are also very intrigued by this and plan to watch. I'm very happy I decided to post it on my wall. I feel like more weight has been lifted off my shoulders. > >> > >> Check out the 20/20 ABC Facebook page. This story already has 130 > >> comments and it hadn't even aired yet. > >> Heidi > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 First, thanks to the group moderator for letting me in. This post is my first one. Hello, fellow sufferers! Yesterday must have been a lucky day for me. For starters, I heard the word " misophonia " on a radio show that I don't normally listen to. The word struck a nerve with me, so I looked it up. What I found was astonishing. I'm really not crazy. There are others suffering with this debilitation condition. While researching the condition, I found a link to this group. After I logged in, I discovered much to my pleasant surprise that 20/20 is doing a piece on the condition tonight! How coincidental is that? I'll make another post with my experiences with misophonia, but for now, thanks for the information and support. > > > I will be there...lol. > I am looking forward to watching it with everyone! > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Many of us in the group are a part of that show welcome and I'm glad you found us! Its shocking isn't it?? I had no idea there were 'others'! But the emails from all thesee people in this group make me realize I'm not alone... and that is great! (Well, for me, I'm sad they are suffering too though :)Sent from my Verizon Wireless Phone Re: 20/20 First, thanks to the group moderator for letting me in. This post is my first one. Hello, fellow sufferers!Yesterday must have been a lucky day for me. For starters, I heard the word " misophonia " on a radio show that I don't normally listen to. The word struck a nerve with me, so I looked it up. What I found was astonishing. I'm really not crazy. There are others suffering with this debilitation condition.While researching the condition, I found a link to this group. After I logged in, I discovered much to my pleasant surprise that 20/20 is doing a piece on the condition tonight! How coincidental is that?I'll make another post with my experiences with misophonia, but for now, thanks for the information and support.>> > I will be there...lol.> I am looking forward to watching it with everyone!> Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Here’s the description from TVGuide.com of tonight’s episode of 20/20: Episode Detail: 20/20 - 20/20Case studies of rare medical conditions, including misophonia, a hatred of ordinary sounds; pica, a craving for inedible objects; gelastic seizures, which cause uncontrollable giggling; and a parasitic bacterial infection that causes strange behaviors. Interviewees include Ripa. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of jmerae54@...Sent: Friday, May 18, 2012 5:43 AMTo: Soundsensitivity Subject: Re: Re: 20/20 Many of us in the group are a part of that show welcome and I'm glad you found us! Its shocking isn't it?? I had no idea there were 'others'! But the emails from all thesee people in this group make me realize I'm not alone... and that is great! (Well, for me, I'm sad they are suffering too though :)Sent from my Verizon Wireless Phone Re: 20/20 First, thanks to the group moderator for letting me in. This post is my first one. Hello, fellow sufferers!Yesterday must have been a lucky day for me. For starters, I heard the word " misophonia " on a radio show that I don't normally listen to. The word struck a nerve with me, so I looked it up. What I found was astonishing. I'm really not crazy. There are others suffering with this debilitation condition.While researching the condition, I found a link to this group. After I logged in, I discovered much to my pleasant surprise that 20/20 is doing a piece on the condition tonight! How coincidental is that?I'll make another post with my experiences with misophonia, but for now, thanks for the information and support.>> > I will be there...lol.> I am looking forward to watching it with everyone!> Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 Did anyone tape the 20 20 piece last night? I had my grandson with me, so I was stuck with cartoons. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2012 Report Share Posted May 19, 2012 , you can watch it again here: 20/20 >> Did anyone tape the 20 20 piece last night? I had my grandson with me, so I was > stuck with cartoons.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2012 Report Share Posted May 20, 2012 Thanks Darlene.To: Soundsensitivity Sent: Sat, May 19, 2012 11:17:59 PMSubject: Re: 20/20 , you can watch it again here: 20/20 >> Did anyone tape the 20 20 piece last night? I had my grandson with me, so I was > stuck with cartoons.> Quote Link to comment Share on other sites More sharing options...
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