Re: Re: Thank You Dr. J, Josh, and Bernadette

[Guest guest]

Who from this group was on the show besides Dr. J?

They showed the most extreme cases and reported the condition as being rare. I don't believe it's as rare as it was portrayed. The condition varies in intensity. Listening to someone pop gum leads me almost to an outburst. Other things simply annoy me. The latest problem is the idiot in the cubicle next to me is tipping a glass of ice to his lips every 45 seconds. He keeps the cup in his hand and sucks the water out of the cup as the ice melts. Plastic cups make the most noise; paper and Styrofoam cups are not quite as irritating.

I only became sensitive to the sound in the last few months. I asked me to stop, and he just looked at me like I was crazy. My co-workers, of course, think I'm just being difficult. I pray that I can find some sound that annoys the heck out of him. If I do, there's no way I would let up aggravating him. The sad part is, that's not the kind of person that I am.

Cubicle dwelling is torment for a misophonia sufferer.

Re: Thank You Dr. J, Josh, and Bernadette

I second that. Thank you for being so brave and for being willing to represent us. Dr. J... it was nice to "see" you again. These are exciting times. I expect our numbers will be growing here very shortly and hope we can finally get some research done.

>

> Wow, what a fantastic segment on 20/20! I want to thank you from the

> bottom of my heart for representing me so well, and for sharing this part

> of your life with 20/20. I have all of my friends and family watching

> tonight from across the country so that they can understand my Misophonia

> better. Thanks to you for being so brave and helping others to understand.

> And Dr J, we are so lucky to have you!

>

> Sherri

>

[Guest guest]

There are varying intensities, but from most of what I've heard, it continues to get worse for many until they are isolating themselves due to its severity.

Mine started out with a couple of triggers and in less than 2 years, my mom and I can hardly be in the same room for more than an hour at a time--a few times a week. So while the cases shown were more 'extreme' than most... it feels like we may all get there in time unless a cure or treatment is found!

The ones who haven't gotten worse in time--I envy you... in two years I have gotten so much worse.. it scares me to think about the next 40, 50, 60+ years of my life.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Who from this group was on the show besides Dr. J?

They showed the most extreme cases and reported the condition as being rare. I don't believe it's as rare as it was portrayed. The condition varies in intensity. Listening to someone pop gum leads me almost to an outburst. Other things simply annoy me. The latest problem is the idiot in the cubicle next to me is tipping a glass of ice to his lips every 45 seconds. He keeps the cup in his hand and sucks the water out of the cup as the ice melts. Plastic cups make the most noise; paper and Styrofoam cups are not quite as irritating.

I only became sensitive to the sound in the last few months. I asked me to stop, and he just looked at me like I was crazy. My co-workers, of course, think I'm just being difficult. I pray that I can find some sound that annoys the heck out of him. If I do, there's no way I would let up aggravating him. The sad part is, that's not the kind of person that I am.

Cubicle dwelling is torment for a misophonia sufferer. 

Re: Thank You Dr. J, Josh, and Bernadette

 

I second that. Thank you for being so brave and for being willing to represent us. Dr. J... it was nice to " see " you again. These are exciting times. I expect our numbers will be growing here very shortly and hope we can finally get some research done.

>

> Wow, what a fantastic segment on 20/20! I want to thank you from the

> bottom of my heart for representing me so well, and for sharing this part

> of your life with 20/20. I have all of my friends and family watching

> tonight from across the country so that they can understand my Misophonia

> better. Thanks to you for being so brave and helping others to understand.

> And Dr J, we are so lucky to have you!

>

> Sherri

>

[Guest guest]

It already is for me. Great if that's not the case for everyone... but I am mostly bedridden due to many medical problems. The little I DO get out of the house, I now try to avoid because of sounds. If I do go out, I wear earplugs and try to stay away from anyone making the noises that bother me (which is not practical). And even when my mom is home from work, I can't stand to be in the same room as her--I spend 90% of my time in my bed and about 80% of that is spent totally alone.

I'm glad it hasn't taken you down the path to total isolation... but if mine continues to change the way it has these last two years, isolation isn't that far away.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Don't think that it will eventually lead to isolation. I have had this 27 years. Though my list of sounds that bug me have grown over time, some that used to bother me more as a kid are a bit easier for me to deal with now. My initial first trigger was my dad eating. Now I can eat with him. I'm still sensitive to eating sounds, but I can handle it a little better. Gum popping, dogs barking and my dogs licking their paws are my battles right now.

>

> There are varying intensities, but from most of what I've heard, it

> continues to get worse for many until they are isolating themselves due to

> its severity.

>

> Mine started out with a couple of triggers and in less than 2 years, my mom

> and I can hardly be in the same room for more than an hour at a time--a few

> times a week.

>

> So while the cases shown were more 'extreme' than most... it feels like we

> may all get there in time unless a cure or treatment is found!

>

> The ones who haven't gotten worse in time--I envy you... in two years I

> have gotten so much worse.. it scares me to think about the next 40, 50,

> 60+ years of my life.

> ---------------------------------------------------------

> *♥ * " ***Hope *is more than a word; it's a state of being. It's a firm

> belief God will come through. Life brings rain... hope turns every drop

> into the power to bloom like never before. " -Holley Gerth ♥ ***

>

> *

[Guest guest]

So happy with how the 20/20 segment turned out! I posted a link to it on my Facebook page and am hoping more of my friends and loved ones will watch it so they will understand me more. I have posted on FB about my Misophonia many times before and not many people respond, so I don't know what to make of that. But every chance I get, I post something. I so desperately want to be understood and not thought of as a nutcase. Thank you, Dr. J for being a part of this, and many thanks to those who shared their stories in the segment.

On Sat, May 19, 2012 at 1:03 AM, wouldlovetofindacurefor4s wrote:

 

You're very welcome, Sherri! Thanks for the positive feedback.

Bernadette

>

> Wow, what a fantastic segment on 20/20! I want to thank you from the

> bottom of my heart for representing me so well, and for sharing this part

> of your life with 20/20. I have all of my friends and family watching

> tonight from across the country so that they can understand my Misophonia

> better. Thanks to you for being so brave and helping others to understand.

> And Dr J, we are so lucky to have you!

>

> Sherri

>

[Guest guest]

Oh the movies! I forced myself to go see the final harry potter....and that

night it was buy one get one bag of twizzler night.....crinkly plastic bags that

apparantly take the average adult 5 minutes to open! I yelled " there is a

reason why movie candy comes in boxes,!!! " , and a few people clapped to my

surprise.

------------------------------

>

>

>I was in the video for about 2 seconds just after they cut off people speaking

a few words.. the lady that made the slopping noise actually bothered me which

is interesting since she " gets " it.

>

>I agree with you saying that it's not as rare as people think. I have a feeling

that we've just been trained to think it's not something normal, but it's not

anything that we can't deal with.. but it definitely feels like something we

can't always deal with, and that's why so many of us have outbursts and say or

do hurtful things. I'm not sure if I'm making sense..

>

>When screamed and told her story I felt like I could identify with her

so much, just not to that extreme. I wanted to hug her because I feel like

nobody understands or gets it. Some people even turn it into a joke, but it's

not funny, it's scary.

>

>My triggers are eating, occasional drinking if people gulp or take in a lot,

gum chewing, ice chewing, rock chewing (that's a new one,) nasally

breathing/talking, snoring, basically living.

>

>I don't like to go to the movies because of the people that eat popcorn. My dad

does chewing tobacco and I can hear it when nobody else even notices. When I eat

I usually feel a lot better if people are making trigger sounds because I know

that to a certain extent I can control what I hear.. or just drown them out. My

biggest question is why don't I go crazy when I do all of these things?

>

>Sorry for the rant.

>

>

>> >

>> > Wow, what a fantastic segment on 20/20! I want to thank you from the

>> > bottom of my heart for representing me so well, and for sharing this part

>> > of your life with 20/20. I have all of my friends and family watching

>> > tonight from across the country so that they can understand my Misophonia

>> > better. Thanks to you for being so brave and helping others to understand.

>> > And Dr J, we are so lucky to have you!

>> >

>> > Sherri

>> >

>>

>

>

[Guest guest]

I was on for a few seconds talking about how crunching ice bothers me. (A huge understatement!).Mike To: Soundsensitivity Sent: Friday, May 18, 2012 10:55 PM Subject: Re:

Thank You Dr. J, Josh, and Bernadette

I was in the video for about 2 seconds just after they cut off people speaking a few words.. the lady that made the slopping noise actually bothered me which is interesting since she "gets" it.

I agree with you saying that it's not as rare as people think. I have a feeling that we've just been trained to think it's not something normal, but it's not anything that we can't deal with.. but it definitely feels like something we can't always deal with, and that's why so many of us have outbursts and say or do hurtful things. I'm not sure if I'm making sense..

When screamed and told her story I felt like I could identify with her so much, just not to that extreme. I wanted to hug her because I feel like nobody understands or gets it. Some people even turn it into a joke, but it's not funny, it's scary.

My triggers are eating, occasional drinking if people gulp or take in a lot, gum chewing, ice chewing, rock chewing (that's a new one,) nasally breathing/talking, snoring, basically living.

I don't like to go to the movies because of the people that eat popcorn. My dad does chewing tobacco and I can hear it when nobody else even notices. When I eat I usually feel a lot better if people are making trigger sounds because I know that to a certain extent I can control what I hear.. or just drown them out. My biggest question is why don't I go crazy when I do all of these things?

Sorry for the rant.

> >

> > Wow, what a fantastic segment on 20/20! I want to thank you from the

> > bottom of my heart for representing me so well, and for sharing this part

> > of your life with 20/20. I have all of my friends and family watching

> > tonight from across the country so that they can understand my Misophonia

> > better. Thanks to you for being so brave and helping others to understand.

> > And Dr J, we are so lucky to have you!

> >

> > Sherri

> >

>

[Guest guest]

I agree, Mike. Crunching ice gets me going faster than anything. It has every component of a good misophonic trigger.Invariably the person doing it knows and does not care that it annoys even normal people. It is a statement that, 'my pleasure is worth any amount of pain others have to endure.' I not only avoid the sound, but I permanently detach from those who do it within earshot of even one other person.

[Guest guest]

Glad I am not the only one Bob. I hate the sound of a persons scull echoing. Sounds crazy. I get suicidal and homicidal simultaneously. Haven't acted on it yet though. I am grateful that 20/20 put that in. It will help for the people who know me and saw the show, not to have to explain it.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Saturday, May 19, 2012 7:12 AM Subject: Re: Re: Thank You Dr. J, Josh, and Bernadette

I agree, Mike. Crunching ice gets me going faster than anything. It has every component of a good misophonic trigger.Invariably the person doing it knows and does not care that it annoys even normal people. It is a statement that, 'my pleasure is worth any amount of pain others have to endure.' I not only avoid the sound, but I permanently detach from those who do it within earshot of even one other person.

[Guest guest]

My goodness Mike, you keep saying things I have not found words for. My wife takes her first bite of everything with her lips still open, and the remaining chomps are lips closed. But even then, a thousand people could be eating Capt Crunch cereal out of the box, all with their lips closed, as quietly as they could, and you could blindfold me and I would walk right to her. Her skull resonates like a megaphone.I've learned at least two new phrases this week: Skull echo, and performance eater.Bob

[Guest guest]

Ear plugs are a MUST for movies!!! You can hear the movie just fine but not the horrible manners of the people porking away on their snacks! We could hear one guy a little bit still once but it is soooo much better!

To: soundsensitivity Sent: Fri, May 18, 2012 11:27:31 PMSubject: Re: Re: Thank You Dr. J, Josh, and Bernadette

Oh the movies! I forced myself to go see the final harry potter....and that night it was buy one get one bag of twizzler night.....crinkly plastic bags that apparantly take the average adult 5 minutes to open! I yelled " there is a reason why movie candy comes in boxes,!!!", and a few people clapped to my surprise. ------------------------------>>>I was in the video for about 2 seconds just after they cut off people speaking a few words.. the lady that made the slopping noise actually bothered me which is interesting since she "gets" it.>>I agree with you saying that it's not as rare as people think. I have a feeling that we've just been trained to think it's not something normal, but it's not anything that we can't deal with.. but it definitely feels like something we can't always deal with, and that's why so many of us have outbursts and

say or do hurtful things. I'm not sure if I'm making sense..>>When screamed and told her story I felt like I could identify with her so much, just not to that extreme. I wanted to hug her because I feel like nobody understands or gets it. Some people even turn it into a joke, but it's not funny, it's scary.>>My triggers are eating, occasional drinking if people gulp or take in a lot, gum chewing, ice chewing, rock chewing (that's a new one,) nasally breathing/talking, snoring, basically living.>>I don't like to go to the movies because of the people that eat popcorn. My dad does chewing tobacco and I can hear it when nobody else even notices. When I eat I usually feel a lot better if people are making trigger sounds because I know that to a certain extent I can control what I hear.. or just drown them out. My biggest question is why don't I go crazy when I do all of these things?>>Sorry for

the rant.>>>> >>> > Wow, what a fantastic segment on 20/20! I want to thank you from the>> > bottom of my heart for representing me so well, and for sharing this part>> > of your life with 20/20. I have all of my friends and family watching>> > tonight from across the country so that they can understand my Misophonia>> > better. Thanks to you for being so brave and helping others to

understand.>> > And Dr J, we are so lucky to have you!>> > >> > Sherri>> >>>>>

[Guest guest]

I don't know why that sound ,head echo, makes me go insane. No one else would understand. Wish I didn't. Sent from my iPad

My goodness Mike, you keep saying things I have not found words for. My wife takes her first bite of everything with her lips still open, and the remaining chomps are lips closed. But even then, a thousand people could be eating Capt Crunch cereal out of the box, all with their lips closed, as quietly as they could, and you could blindfold me and I would walk right to her. Her skull resonates like a megaphone.I've learned at least two new phrases this week: Skull echo, and performance eater.Bob

=

[Guest guest]

I had a boyfriend who chewed hard candy and his head echoed. I just threw his candy away, and eventually threw him away.To: "Soundsensitivity " <Soundsensitivity >Sent: Sat, May 19, 2012 12:38:45 PMSubject: Re:

Re: Thank You Dr. J, Josh, and Bernadette

I don't know why that sound ,head echo, makes me go insane. No one else would understand. Wish I didn't. Sent from my iPad

My goodness Mike, you keep saying things I have not found words for. My wife takes her first bite of everything with her lips still open, and the remaining chomps are lips closed. But even then, a thousand people could be eating Capt Crunch cereal out of the box, all with their lips closed, as quietly as they could, and you could blindfold me and I would walk right to her. Her skull resonates like a megaphone.I've learned at least two new phrases this week: Skull echo, and performance eater.Bob

=

[Guest guest]

, I understand. My husband's chewing sounds very much like a horse chewing on hay. It's teeth scraping on teeth, echoing loudly. I think he must have either thin skin in his cheeks or extra large sinus cavities to cause the reverberations. I rarely serve salad.

I don't know why that sound ,head echo, makes me go insane. No one else would understand. Wish I didn't. Sent from my iPad

My goodness Mike, you keep saying things I have not found words for. My wife takes her first bite of everything with her lips still open, and the remaining chomps are lips closed. But even then, a thousand people could be eating Capt Crunch cereal out of the box, all with their lips closed, as quietly as they could, and you could blindfold me and I would walk right to her. Her skull resonates like a megaphone.I've learned at least two new phrases this week: Skull echo, and performance eater.Bob

=

=

[Guest guest]

I just hope I don't ever have to be with someone that eats rocks:) They really make your head echo!! To: Soundsensitivity Sent: Saturday, May 19, 2012 11:26 AM Subject: Re: Re: Thank You Dr. J, Josh, and Bernadette

I had a boyfriend who chewed hard candy and his head echoed. I just threw his candy away, and eventually threw him away.To: "Soundsensitivity " <Soundsensitivity >Sent: Sat, May 19, 2012 12:38:45 PMSubject: Re:

Re: Thank You Dr. J, Josh, and Bernadette

I don't know why that sound ,head echo, makes me go insane. No one else would understand. Wish I didn't. Sent from my iPad

My goodness Mike, you keep saying things I have not found words for. My wife takes her first bite of everything with her lips still open, and the remaining chomps are lips closed. But even then, a thousand people could be eating Capt Crunch cereal out of the box, all with their lips closed, as quietly as they could, and you could blindfold me and I would walk right to her. Her skull resonates like a megaphone.I've learned at least two new phrases this week: Skull echo, and performance eater.Bob

=

[Guest guest]

Many theaters have special head phones for the hearing impaired and these will block out other noises while being able to hear the movie.  They will usually let you use these. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of sarah rubioSent: Saturday, May 19, 2012 9:36 AMTo: Soundsensitivity Subject: Re: Re: Thank You Dr. J, Josh, and Bernadette Ear plugs are a MUST for movies!!! You can hear the movie just fine but not the horrible manners of the people porking away on their snacks! We could hear one guy a little bit still once but it is soooo much better! To: soundsensitivity Sent: Fri, May 18, 2012 11:27:31 PMSubject: Re: Re: Thank You Dr. J, Josh, and Bernadette Oh the movies! I forced myself to go see the final harry potter....and that night it was buy one get one bag of twizzler night.....crinkly plastic bags that apparantly take the average adult 5 minutes to open! I yelled " there is a reason why movie candy comes in boxes,!!! " , and a few people clapped to my surprise. ------------------------------>>>I was in the video for about 2 seconds just after they cut off people speaking a few words.. the lady that made the slopping noise actually bothered me which is interesting since she " gets " it.>>I agree with you saying that it's not as rare as people think. I have a feeling that we've just been trained to think it's not something normal, but it's not anything that we can't deal with.. but it definitely feels like something we can't always deal with, and that's why so many of us have outbursts and say or do hurtful things. I'm not sure if I'm making sense..>>When screamed and told her story I felt like I could identify with her so much, just not to that extreme. I wanted to hug her because I feel like nobody understands or gets it. Some people even turn it into a joke, but it's not funny, it's scary.>>My triggers are eating, occasional drinking if people gulp or take in a lot, gum chewing, ice chewing, rock chewing (that's a new one,) nasally breathing/talking, snoring, basically living.>>I don't like to go to the movies because of the people that eat popcorn. My dad does chewing tobacco and I can hear it when nobody else even notices. When I eat I usually feel a lot better if people are making trigger sounds because I know that to a certain extent I can control what I hear.. or just drown them out. My biggest question is why don't I go crazy when I do all of these things?>>Sorry for the rant.>>>> >>> > Wow, what a fantastic segment on 20/20! I want to thank you from the>> > bottom of my heart for representing me so well, and for sharing this part>> > of your life with 20/20. I have all of my friends and family watching>> > tonight from across the country so that they can understand my Misophonia>> > better. Thanks to you for being so brave and helping others to understand.>> > And Dr J, we are so lucky to have you!>> > >> > Sherri>> >>>>>