Re: Here come our new members, prepare my friends, reach out

[Guest guest]

BTW it is estimated six million people will watch tonight's 20/20 show...what a

gift in spreading the word about this situation to the entire world.

Congrats to all YOUR hard work.

MJ

>

> Already many people asking to join the site. Please be kind and supportive

and helpful to our new members!

>

> Just like you already are.....

>

> We can make our circle larger.

>

> Everyone wins.

>

> Dr. Marsha , AuD

>

[Guest guest]

Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20 website with many

relieved to know they are not alone anymore.

> >

> > Already many people asking to join the site. Please be kind and supportive

and helpful to our new members!

> >

> > Just like you already are.....

> >

> > We can make our circle larger.

> >

> > Everyone wins.

> >

> > Dr. Marsha , AuD

> >

>

[Guest guest]

Can you post that ABC site again so we can all visit and celebrate;share

> > >

> > > Already many people asking to join the site. Please be kind and

supportive and helpful to our new members!

> > >

> > > Just like you already are.....

> > >

> > > We can make our circle larger.

> > >

> > > Everyone wins.

> > >

> > > Dr. Marsha , AuD

> > >

> >

>

[Guest guest]

Thank you Dr. . Honestly, you probably saved countless lives today. To: Soundsensitivity Sent: Saturday, May 19, 2012 12:19 AM Subject: Here come our new members, prepare my friends, reach out

Already many people asking to join the site. Please be kind and supportive and helpful to our new members!

Just like you already are.....

We can make our circle larger.

Everyone wins.

Dr. Marsha , AuD

[Guest guest]

Sure thing. This is the website where you can watch the 20/20 segment and leave comments. The sound has been removed from the crunching and slurping but you will still 'see' it for those with visual triggers. You can leave comments at the bottom.... lets all send out thanks to ABC 20/20 for doing this story. ABC 20/20 > >> > Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20 website with many relieved to know they are not alone anymore. > >

[Guest guest]

Dr. , If you could have seen the comments flying on my face book tonight....two daughters and niece with misophonia (and myself) and many friends commenting...wonderful. Thanks. in Ca

Thank you Dr. . Honestly, you probably saved countless lives today.

[Guest guest]

It is amazing to finally have a name, to finally know I'm not alone, I'm not

crazy. My mother happened to see 20/20 tonight, and she reached out to me. Just

knowing changes my life. All in one night. Thanks to all of you on this site.

And especially you, Martha for researching and striving to understand this

condition. Equally wonderful is that I'm a fellow Oregonian, and only 90 miles

from you.

> > >

> > > Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20

> website with many relieved to know they are not alone anymore.

> > >

>

[Guest guest]

I agree on the foot shaking, fingers wiggling--I try so hard to forget it or block it from my view but that's not easy. In movie theaters I will get up and move if someone is eating loudly--but mostly I try to sit in the last row--that way they cannot kick my seat, eat right behind me, etc. As for friends I just try to be honest. Please don't scrap your fork against your teeth. If they are a good friend they will try. To: Soundsensitivity Sent: Saturday, May 19, 2012 10:23 AM Subject: Re: Re: Here come our new members, prepare my friends, reach out

yes thanks to all.... very encouraging times.. as to the i q thing dont waste your time.. me and my twin are not the sharpest tools in the shed. ha ha he..( and i just wanted to touch on the visual aspect ) of misophonia.. not many people commenting... for me the visuals are just as bad as the hearing.. any comments??????? i.e. fingers wiggling, shakinig their feet repetidly,even the sight of people mouths chewing drives me up the wall.. thanks jason in cal.

Subject: Re: Here come our new members, prepare my friends, reach outTo: Soundsensitivity Date: Friday, May 18, 2012, 9:24 PM

Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20 website with many relieved to know they are not alone anymore. > >> > Already many people asking to join the site.

Please be kind and supportive and helpful to our new members! > > > > Just like you already are.....> > > > We can make our circle larger.> > > > Everyone wins.> > > > Dr. Marsha , AuD> >>

[Guest guest]

I just read the comments on the ABC website and it brought tears to my eyes to

see how many people have this and thought they were the only ones. It's a

blessing that ABC ran this story. Thank you so much Dr J. and all involved for

continuing to bring awareness to the world!!

> > >

> > > Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20

> website with many relieved to know they are not alone anymore.

> > >

>

[Guest guest]

Has anyone found a copy with the trigger sounds left in? I have some friends who want to see it, and I don't think it will have the same effect for them with no noise in those areas.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Sure thing.  This is the website where you can watch the 20/20 segment and leave comments.  The sound has been removed from the crunching and slurping but you will still 'see' it for those with visual triggers.  You can leave comments at the bottom.... lets all send out thanks to ABC 20/20 for doing this story. 

ABC 20/20 

> >> > Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20 website with many relieved to know they are not alone anymore. > >

[Guest guest]

2941 members in this group as of right now (5/19/12 Saturday afternoon after the Friday night of the 20/20 airing)...it will be interesting to keep an eye on the membership and activity here. Although I am already having a hard time keeping up, and to be honest I usually just delete or skim through the daily digests because like many others I have noticed just reading other triggers (beyond the countless ones I already have) that I miraculously HAVEN'T noticed, I start to notice them. I am 33 have had this since childhood, maybe 4th grade or so, maybe sooner...and sadly it is getting worse with age, although it helps to know it is REAL and not my fault, and that I am not alone. That in itself is the reason I stay here, and also that hope that someday somehow there will be an easy fix or even to help if there are

professionals looking for volunteers for research studies, questionairres, etc. I am very greatful whenever a mainstream media source sheds light on this little known condition, because I know how deeply I was moved to discover there were others suffering this insanity. Even if there is never a cure, simply finding 'misophonia/4s' groups online like this one removed a HUGE weight of guilt and confusion from my shoulders, where even when I feel the rage and horrible churning in response to a trigger, I don't have to add to those horrible feelings with thoughts of why can't I just stop and ignore, like everyone else seems to be able to...and instead I can focus on remembering that I simply have a condition, and rather than silently suffer, I have a right to remove myself from the situation or even find the courage to explain the condition and ask for understanding from the offender (still working on the courage to do that more often).

Thanks for reading friends...Best wishes to all of you!! Wishing you PEACE and love and light xoxo Kaci Anne McCall Professional FACE PAINTING, personalized crafts, and more! Please visit:http://www.MysticalRainbowCreations.com "What a privilege to be here on the planet to contribute your unique donation to humankind. Each face in the rainbow of colors that populate our world is

precious and special." ~ Dees

[Guest guest]

Just watched the 20/20 show - had to keep it muted because of the announcers voice and her tendency to enunciate the SSSS sound. Everyone interviewed did a great job! Thank you so much for explaining things to her so well! To: Soundsensitivity

Sent: Saturday, May 19, 2012 11:23 AM Subject: Re: Re: Here come our new members, prepare my friends, reach out

yes thanks to all.... very encouraging times.. as to the i q thing dont waste your time.. me and my twin are not the sharpest tools in the shed. ha ha he..( and i just wanted to touch on the visual aspect ) of misophonia.. not many people commenting... for me the visuals are just as bad as the hearing.. any comments??????? i.e. fingers wiggling, shakinig their feet repetidly,even the sight of people mouths chewing drives me up the wall.. thanks jason in cal.

Subject: Re: Here come our new members, prepare my friends, reach outTo: Soundsensitivity Date: Friday, May 18, 2012, 9:24 PM

Thank YOU Dr. J!!! The comments are rolling in on ABC's 20/20 website with many relieved to know they are not alone anymore. > >> > Already many people asking to join the site.

Please be kind and supportive and helpful to our new members! > > > > Just like you already are.....> > > > We can make our circle larger.> > > > Everyone wins.> > > > Dr. Marsha , AuD> >>