Re: Thank You Dr. J, Josh, and Bernadette

[Guest guest]

I second that. Thank you for being so brave and for being willing to represent

us. Dr. J... it was nice to " see " you again. These are exciting times. I

expect our numbers will be growing here very shortly and hope we can finally get

some research done.

>

> Wow, what a fantastic segment on 20/20! I want to thank you from the

> bottom of my heart for representing me so well, and for sharing this part

> of your life with 20/20. I have all of my friends and family watching

> tonight from across the country so that they can understand my Misophonia

> better. Thanks to you for being so brave and helping others to understand.

> And Dr J, we are so lucky to have you!

>

> Sherri

>

[Guest guest]

Don't think that it will eventually lead to isolation. I have had this 27

years. Though my list of sounds that bug me have grown over time, some that

used to bother me more as a kid are a bit easier for me to deal with now. My

initial first trigger was my dad eating. Now I can eat with him. I'm still

sensitive to eating sounds, but I can handle it a little better. Gum popping,

dogs barking and my dogs licking their paws are my battles right now.

>

> There are varying intensities, but from most of what I've heard, it

> continues to get worse for many until they are isolating themselves due to

> its severity.

>

> Mine started out with a couple of triggers and in less than 2 years, my mom

> and I can hardly be in the same room for more than an hour at a time--a few

> times a week.

>

> So while the cases shown were more 'extreme' than most... it feels like we

> may all get there in time unless a cure or treatment is found!

>

> The ones who haven't gotten worse in time--I envy you... in two years I

> have gotten so much worse.. it scares me to think about the next 40, 50,

> 60+ years of my life.

> ---------------------------------------------------------

> *♥ * " ***Hope *is more than a word; it's a state of being. It's a firm

> belief God will come through. Life brings rain... hope turns every drop

> into the power to bloom like never before. " -Holley Gerth ♥ ***

>

> *

[Guest guest]

You're very welcome, Sherri! Thanks for the positive feedback.

Bernadette

>

> Wow, what a fantastic segment on 20/20! I want to thank you from the

> bottom of my heart for representing me so well, and for sharing this part

> of your life with 20/20. I have all of my friends and family watching

> tonight from across the country so that they can understand my Misophonia

> better. Thanks to you for being so brave and helping others to understand.

> And Dr J, we are so lucky to have you!

>

> Sherri

>

[Guest guest]

I was in the video for about 2 seconds just after they cut off people speaking a

few words.. the lady that made the slopping noise actually bothered me which is

interesting since she " gets " it.

I agree with you saying that it's not as rare as people think. I have a feeling

that we've just been trained to think it's not something normal, but it's not

anything that we can't deal with.. but it definitely feels like something we

can't always deal with, and that's why so many of us have outbursts and say or

do hurtful things. I'm not sure if I'm making sense..

When screamed and told her story I felt like I could identify with her so

much, just not to that extreme. I wanted to hug her because I feel like nobody

understands or gets it. Some people even turn it into a joke, but it's not

funny, it's scary.

My triggers are eating, occasional drinking if people gulp or take in a lot, gum

chewing, ice chewing, rock chewing (that's a new one,) nasally

breathing/talking, snoring, basically living.

I don't like to go to the movies because of the people that eat popcorn. My dad

does chewing tobacco and I can hear it when nobody else even notices. When I eat

I usually feel a lot better if people are making trigger sounds because I know

that to a certain extent I can control what I hear.. or just drown them out. My

biggest question is why don't I go crazy when I do all of these things?

Sorry for the rant.

> >

> > Wow, what a fantastic segment on 20/20! I want to thank you from the

> > bottom of my heart for representing me so well, and for sharing this part

> > of your life with 20/20. I have all of my friends and family watching

> > tonight from across the country so that they can understand my Misophonia

> > better. Thanks to you for being so brave and helping others to understand.

> > And Dr J, we are so lucky to have you!

> >

> > Sherri

> >

>

[Guest guest]

check out the headphones for the hearing impaired, you will love movies again :-) don't worry they have plenty to go around

Wow, what a fantastic segment on 20/20! I want to thank you from the bottom of my heart for representing me so well, and for sharing this part of your life with 20/20. I have all of my friends and family watching tonight from across the country so that they can understand my Misophonia better. Thanks to you for being so brave and helping others to understand. And Dr J, we are so lucky to have you!

Sherri

[Guest guest]

Yes! HI headphones are the only way I can go to movies anymore! Also, noise

canceling ones work too, because the movie is loud enough to get through without

all the popcorn crunching coming through.

>

> > Wow, what a fantastic segment on 20/20! I want to thank you from the bottom

of my heart for representing me so well, and for sharing this part of your life

with 20/20. I have all of my friends and family watching tonight from across

the country so that they can understand my Misophonia better. Thanks to you for

being so brave and helping others to understand. And Dr J, we are so lucky to

have you!

> >

> >

> > Sherri

> >

> >

>