Re: How do I know if my son has Misophonia or something else?

[Guest guest]

Your son is lucky to have such an insightful father. Everything you describe matches misophonia perfectly, I’m sad to say, including the increase in the number of sounds and the social withdrawal. I used to describe the feeling as “painâ€. Later a more accurate description was fear and dread. Some anger can be expected, but it’s not personal.

The universal treatment so far is avoidance of the sounds. Are you saying that earplugs do not block the sounds, but that closing his ears does? There are many types of earplugs: foam, gel, wax-impregnated fiber, etc. My advice is to give them all to him, and let him experiment to find what works. I used to cut mine in half, and I continually adjusted them so that I could block most of the sounds yet still hear the teacher. Just having them in my pocket increased my comfort level, since it meant I had protection from the sounds handy.

Research into misophonia is only now beginning. Hopefully a treatment will become available. I am not a father, but your support and a pleasant distraction from his problems would make sense. I’m sure we all made it through high school, despite the hardships that misophonia presented. Encouragement to socialize as he can would seem helpful.

People here can recommend treatments that have helped them. Personally, Lactobacillus rhamnosus helped me with a similar type of “painâ€.

You sound like a wonderful father who will be a tremendous asset to your son. We are here for you both.

From: rajendamani

Sent: Monday, May 14, 2012 12:16 AM

To: Soundsensitivity

Subject: How do I know if my son has Misophonia or something else?

Hi,I recently found out about this group. And need some help and advice.Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia? I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.We have visited his physician, ENT, Psychologist but no help so far. How can he cope with this?Anyone tried Hypnotherapy? Will that work with all of these sounds?What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)Thanks for your help and advice.

[Guest guest]

It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html I also encourage you to read the following links http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89 http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46 http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53 I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and all children living with this condition. Its tough enough to be a teenager without this

problem To: Soundsensitivity Sent: Monday, May 14, 2012 3:16 AM Subject: How do I know if my son has Misophonia or something else?

Hi,

I recently found out about this group. And need some help and advice.

Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

We have visited his physician, ENT, Psychologist but no help so far.

How can he cope with this?

Anyone tried Hypnotherapy? Will that work with all of these sounds?

What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

Thanks for your help and advice.

[Guest guest]

Your son has classic Misophonia symptoms! I was the same way at that age. I have spent close to 50 years trying to find a cure. My advice is to not waste your money with psychologists or physicians. It is out of their area of expertise. The only thing at this time that seems to be of use in treating this condition is CBT to some degree( as a coping technique) and NFB. A number of us at this site are currently using NFB with one person and his son almost eliminating all symptoms. Just my opinion. More may follow.....Good luck with your boy. Just continue to be loving and understanding at this point.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, May 14, 2012 3:24 AM Subject: Re: How do I know if my son has Misophonia or something else?

It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html I also encourage you to read the following

links http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89 http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46 http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53 I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and all children living with this condition. Its tough enough to be a teenager without this

problem To: Soundsensitivity Sent: Monday, May 14, 2012 3:16 AM Subject: How do I know if my son has Misophonia or something else?

Hi,

I recently found out about this group. And need some help and advice.

Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

We have visited his physician, ENT, Psychologist but no help so far.

How can he cope with this?

Anyone tried Hypnotherapy? Will that work with all of these sounds?

What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

Thanks for your help and advice.

[Guest guest]

Sounds like what my son goes through as well and I'm pretty sure he's got

misophonia. Some have suggested OCD and anxiety play a part. A behavioral

therapist he saw for a while said he had a touch of anxiety, but never suggested

OCD. My son is 9 and does not like chewing, typing, tapping, and is mostly

bothered by family members doing these things. He manages to deal fairly well

around his friends because he doesn't want to let on. If we eat out, he chooses

to sit at another table. At home we let him eat separately from us.

My son does best on a low sugar diet (no soda, juice, and very few desserts),

getting plenty of rest, and keeping stress to a minimum. The misophonia does

not usually disappear, but he does not react as badly if we keep him even keel.

I have seen it disappear completely a few times when he is super happy and

having a great time - almost like he hasn't a care in the world. Too bad we

can't maintain that state!

The idea the the has a touch of OCD might be true because he can juggle a soccer

ball over 300 times straight. He loves to go outside where there is quiet from

annoying sounds and that is what he does. I consider it the silver lining to

his problem. He loves soccer and is on a competitive team. He has great ball

control and all his teammates are trying to beat his juggling record.

One woman recently posted something about a headband that helps. It puts

pressure on the head or something. Someone had told her that the misophonia was

caused by a swelling in the brain.... I could not tell if it was a hoax to buy

headbands or real.

As a parent, this is hard to understand, but compassion and love seem to be the

right path to take as we wait for some answers. I know my son wants to get

better and would not choose this and am sure yours feels the same way.

A.

>

> Hi,

> I recently found out about this group. And need some help and advice.

>

> Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle

Restaurant bowl scraping sound. We thought its just a phase and it will pass.

Since about last two months his sensitivity got worse, he is now sensitive to

Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another

paper, Chewing, Shoes scraping against floor. I believe because of these sounds

occurring in school, his performance has degraded suddenly and its affecting him

making friends in school and outside. He is avoiding talking to friends because

of fear of these sounds. He cannot bear these sounds and when I ask him, he is

not able to describe how he feels. He just says, he cannot stand and has to

close his ears. Does this mean misophonia?

>

> I have read here that there is no cure for this, but was hoping to find some

coping advise so that he can resume his learning in school and resume his life

in general. Wearing earplugs does not seem to work for him and i've read that

it actually makes the sensitivity worse.

>

> We have visited his physician, ENT, Psychologist but no help so far.

>

> How can he cope with this?

> Anyone tried Hypnotherapy? Will that work with all of these sounds?

> What can he do so he doesn't have to close his ears in classroom? (earplugs

doesn't suppress these and he needs to listen to teachers in classroom)

>

> Thanks for your help and advice.

>

[Guest guest]

Im not sure that just because he likes to juggle a ball for a long time makes him OCD. You'd notice other signs of OCD, like having to wash hands several times a day, or touching something because he feels compelled to do it, or counting because he feels compelled. However, OCD seems to be something many of us have and with this condition who wouldnt be depressed and anxious? To: Soundsensitivity Sent: Monday, May 14, 2012 4:20 PM Subject: Re: How do I know if my son has Misophonia or something else?

Sounds like what my son goes through as well and I'm pretty sure he's got misophonia. Some have suggested OCD and anxiety play a part. A behavioral therapist he saw for a while said he had a touch of anxiety, but never suggested OCD. My son is 9 and does not like chewing, typing, tapping, and is mostly bothered by family members doing these things. He manages to deal fairly well around his friends because he doesn't want to let on. If we eat out, he chooses to sit at another table. At home we let him eat separately from us.

My son does best on a low sugar diet (no soda, juice, and very few desserts), getting plenty of rest, and keeping stress to a minimum. The misophonia does not usually disappear, but he does not react as badly if we keep him even keel. I have seen it disappear completely a few times when he is super happy and having a great time - almost like he hasn't a care in the world. Too bad we can't maintain that state!

The idea the the has a touch of OCD might be true because he can juggle a soccer ball over 300 times straight. He loves to go outside where there is quiet from annoying sounds and that is what he does. I consider it the silver lining to his problem. He loves soccer and is on a competitive team. He has great ball control and all his teammates are trying to beat his juggling record.

One woman recently posted something about a headband that helps. It puts pressure on the head or something. Someone had told her that the misophonia was caused by a swelling in the brain.... I could not tell if it was a hoax to buy headbands or real.

As a parent, this is hard to understand, but compassion and love seem to be the right path to take as we wait for some answers. I know my son wants to get better and would not choose this and am sure yours feels the same way.

A.

>

> Hi,

> I recently found out about this group. And need some help and advice.

>

> Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

>

> I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

>

> We have visited his physician, ENT, Psychologist but no help so far.

>

> How can he cope with this?

> Anyone tried Hypnotherapy? Will that work with all of these sounds?

> What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

>

> Thanks for your help and advice.

>

[Guest guest]

I do not have OCD, anxiety or depression. While they may coexist I personally do not believe you have to have any to have Misophonia. I have been trying NFB for a bit to try to allievate this condition. I would urge all new members to please try to read older threads and see what everyone has been talking about for awhile.HeidiSent from my iPhone

Im not sure that just because he likes to juggle a ball for a long time makes him OCD. You'd notice other signs of OCD, like having to wash hands several times a day, or touching something because he feels compelled to do it, or counting because he feels compelled. However, OCD seems to be something many of us have and with this condition who wouldnt be depressed and anxious? To: Soundsensitivity Sent: Monday, May 14, 2012 4:20 PM Subject: Re: How do I know if my son has Misophonia or something else?

Sounds like what my son goes through as well and I'm pretty sure he's got misophonia. Some have suggested OCD and anxiety play a part. A behavioral therapist he saw for a while said he had a touch of anxiety, but never suggested OCD. My son is 9 and does not like chewing, typing, tapping, and is mostly bothered by family members doing these things. He manages to deal fairly well around his friends because he doesn't want to let on. If we eat out, he chooses to sit at another table. At home we let him eat separately from us.

My son does best on a low sugar diet (no soda, juice, and very few desserts), getting plenty of rest, and keeping stress to a minimum. The misophonia does not usually disappear, but he does not react as badly if we keep him even keel. I have seen it disappear completely a few times when he is super happy and having a great time - almost like he hasn't a care in the world. Too bad we can't maintain that state!

The idea the the has a touch of OCD might be true because he can juggle a soccer ball over 300 times straight. He loves to go outside where there is quiet from annoying sounds and that is what he does. I consider it the silver lining to his problem. He loves soccer and is on a competitive team. He has great ball control and all his teammates are trying to beat his juggling record.

One woman recently posted something about a headband that helps. It puts pressure on the head or something. Someone had told her that the misophonia was caused by a swelling in the brain.... I could not tell if it was a hoax to buy headbands or real.

As a parent, this is hard to understand, but compassion and love seem to be the right path to take as we wait for some answers. I know my son wants to get better and would not choose this and am sure yours feels the same way.

A.

>

> Hi,

> I recently found out about this group. And need some help and advice.

>

> Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

>

> I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

>

> We have visited his physician, ENT, Psychologist but no help so far.

>

> How can he cope with this?

> Anyone tried Hypnotherapy? Will that work with all of these sounds?

> What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

>

> Thanks for your help and advice.

>

[Guest guest]

I do not have a correlation to either Aspergers or OCD. Until we have research that states that such is the case I don't think we should tell others that there is a correlation. Yes some people on this list have Aspergers and some OCD and others nothing but Misophonia. I encourage people to getevaluated for everything as some with a combination of issues have a hard time controlling the rage and anger, but that does not necessarily mean there is a correlation.HeidiSent from my iPhone

It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html I also encourage you to read the following links http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89 http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46 http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53 I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and all children living with this condition. Its tough enough to be a teenager without this

problem To: Soundsensitivity Sent: Monday, May 14, 2012 3:16 AM Subject: How do I know if my son has Misophonia or something else?

Hi,

I recently found out about this group. And need some help and advice.

Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

We have visited his physician, ENT, Psychologist but no help so far.

How can he cope with this?

Anyone tried Hypnotherapy? Will that work with all of these sounds?

What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

Thanks for your help and advice.

[Guest guest]

I agree with Heidi. I don't have OCD or Asperger's, and have not noticed many

people on here with them either. It could be a comorbid condition but it

doesn't have to be. Saying it correlates to these conditions is inaccurate at

this point and potentially misleading, though I understand the intent was to be

helpful.

>

> > It sounds like misophonia to me. Unfortunately, since this is a newly

recognized condition there are not many drs, psychologists, or psychiatrists

that have heard of it. There is a list of doctors that 4S has put together, if

you are lucky enough to live near one of these few providers

http://misophonia-provider.com/PROVIDERS_BY_REGION.html

> >

> > I also encourage you to read the following links

> >

> >

http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid\

=89

> >

> >

http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis\

& catid=31 & Itemid=46

> >

> >

http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid\

=53

> >

> > I have suffered since I was 8 yrs old. Nowadays, you should be able to get

disability accommodations for him, but you will need a doctor to do that. Note

that by talking back and forth, we have found a correlation with OCD and/or

Aspergers. I feel for your son, and all children living with this condition.

Its tough enough to be a teenager without this problem

> >

> >

> >

> >

> > To: Soundsensitivity

> > Sent: Monday, May 14, 2012 3:16 AM

> > Subject: How do I know if my son has Misophonia or

something else?

> >

> >

> > Hi,

> > I recently found out about this group. And need some help and advice.

> >

> > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle

Restaurant bowl scraping sound. We thought its just a phase and it will pass.

Since about last two months his sensitivity got worse, he is now sensitive to

Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another

paper, Chewing, Shoes scraping against floor. I believe because of these sounds

occurring in school, his performance has degraded suddenly and its affecting him

making friends in school and outside. He is avoiding talking to friends because

of fear of these sounds. He cannot bear these sounds and when I ask him, he is

not able to describe how he feels. He just says, he cannot stand and has to

close his ears. Does this mean misophonia?

> >

> > I have read here that there is no cure for this, but was hoping to find some

coping advise so that he can resume his learning in school and resume his life

in general. Wearing earplugs does not seem to work for him and i've read that it

actually makes the sensitivity worse.

> >

> > We have visited his physician, ENT, Psychologist but no help so far.

> >

> > How can he cope with this?

> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs

doesn't suppress these and he needs to listen to teachers in classroom)

> >

> > Thanks for your help and advice.

> >

> >

> >

> >

>

[Guest guest]

I didnt mean to say everyone had OCD or Aspergers, but I have noticed that those have been mentioned on here many times - maybe I pick up on that because I can relate. Or maybe its the same few people mentioning it over and over and I just don't notice the names are the same. But its like any condition, where some people show signs of a certain symptom or extenuating condition but others do not. Just because not everyone has that symptom/condition, does not mean there cant be a potential correlation for some people. For example, in Aspergers there are tons of symptoms listed but most people don't have all the symptoms and they also have varying degrees of the symptoms they do have. More likely, Misophonia is an extenuating symptom of OCD and

Aspergers, not the other way around. The following is from the Sound Sensitivity page entitled "What is Selective Sound Sensitivity Syndrome or "4S"? " http://soundsensitive.org/index.php?option=com_content & view=article & id=46 & Itemid=102"There appears to be evidence of a genetic component as the condition appears in family members. A certain percentage of people with 4S have also demonstrated signs of Obsessive Compulsive Disorder, and 4S has been also associated with other pervasive conditions such as the Autism Spectrum. However, the vast majority of people with 4S do not appear to have other pervasive or obviously identifiable disorder." To: Soundsensitivity Sent: Tuesday, May 15, 2012 1:12 AM Subject: Re: How do I know if my son has Misophonia or something else?

I agree with Heidi. I don't have OCD or Asperger's, and have not noticed many people on here with them either. It could be a comorbid condition but it doesn't have to be. Saying it correlates to these conditions is inaccurate at this point and potentially misleading, though I understand the intent was to be helpful.

>

> > It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html

> >

> > I also encourage you to read the following links

> >

> > http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89

> >

> > http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46

> >

> > http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53

> >

> > I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and all children living with this condition. Its tough enough to be a teenager without this problem

> >

> >

> >

> >

> > To: Soundsensitivity

> > Sent: Monday, May 14, 2012 3:16 AM

> > Subject: How do I know if my son has Misophonia or something else?

> >

> >

> > Hi,

> > I recently found out about this group. And need some help and advice.

> >

> > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

> >

> > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

> >

> > We have visited his physician, ENT, Psychologist but no help so far.

> >

> > How can he cope with this?

> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

> >

> > Thanks for your help and advice.

> >

> >

> >

> >

>

[Guest guest]

I am the parent of a 12 year old with severe misophonia.  She was never diagnosed, but I am certain she also has Asperger's (due to our observations, teachers, and other extended family members).  However much trouble she has socially, she is learning social skills more and more as she goes.  The misophonia however, is a whole different problem.

I am believing and praying for a healing .  I know to many that may sound crazy, but when someone says there is " no cure " ...my first thought is: " With God all things are possible. "  

 

M

 

I didnt mean to say everyone had OCD or Aspergers, but I have noticed that those have been mentioned on here many times - maybe I pick up on that because I can relate.  Or  maybe its the same few people mentioning it over and over and I just don't notice the names are the same.  But its like any condition, where some people show signs of a certain symptom or extenuating condition but others do not.  Just because not everyone has that symptom/condition, does not mean there cant be a potential correlation for some people.  For example, in Aspergers there are tons of symptoms listed but most people don't have all the symptoms and they also have varying degrees of the symptoms they do have.      More likely, Misophonia is an extenuating symptom of OCD and Aspergers, not the other way around. 

 

The following is from the Sound Sensitivity page entitled " What is Selective Sound Sensitivity Syndrome or " 4S " ?  "  

 

http://soundsensitive.org/index.php?option=com_content & view=article & id=46 & Itemid=102

" There appears to be evidence of a genetic component as the condition appears in family members. A certain percentage of people with 4S have also demonstrated signs of Obsessive Compulsive Disorder, and 4S has been also associated with other pervasive conditions such as the Autism Spectrum. However, the vast majority of people with 4S do not appear to have other pervasive or obviously identifiable disorder. "

To: Soundsensitivity

Sent: Tuesday, May 15, 2012 1:12 AMSubject: Re: How do I know if my son has Misophonia or something else?

 

I agree with Heidi. I don't have OCD or Asperger's, and have not noticed many people on here with them either. It could be a comorbid condition but it doesn't have to be. Saying it correlates to these conditions is inaccurate at this point and potentially misleading, though I understand the intent was to be helpful.

> > > It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html

> > > > I also encourage you to read the following links> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89

> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46

> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53

> > > > I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and all children living with this condition. Its tough enough to be a teenager without this problem

> > > > > > > > > > To: Soundsensitivity

> > Sent: Monday, May 14, 2012 3:16 AM> > Subject: How do I know if my son has Misophonia or something else?> > > > > > Hi,> > I recently found out about this group. And need some help and advice.

> > > > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

> > > > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

> > > > We have visited his physician, ENT, Psychologist but no help so far. > > > > How can he cope with this?> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)> > > > Thanks for your help and advice.

> > > > > > > >>

[Guest guest]

M, I totally agree.For us reading one of Kay Arthur's books on spiritual warfare (can't remember which one) helped my son tremendously.

Ginger

How do I know if my son has Misophonia or something else?

> >

> >

> > Hi,

> > I recently found out about this group. And need some help and advice.

> >

> > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

> >

> > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

> >

> > We have visited his physician, ENT, Psychologist but no help so far.

> >

> > How can he cope with this?

> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

> >

> > Thanks for your help and advice.

> >

> >

> >

> >

>

[Guest guest]

I'm curious.. how did it help?I have 10 chronic conditions and I pray every day for treatments to be found that work.. or a cure.. or a miraculous healing. None have happened, yet.. but I keep asking.

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

Follow my story: http://www.caringbridge.org/visit/sarahmaeWish Upon A Hero Cafe Moderator and Fee's Assistant

 

M, I totally agree.For us reading one of Kay Arthur's books on spiritual warfare (can't remember which one) helped my son tremendously.

 

Ginger

 

 

 

How do I know if my son has Misophonia or something else?

> >

> >

> > Hi,

> > I recently found out about this group. And need some help and advice.

> >

> > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

> >

> > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

> >

> > We have visited his physician, ENT, Psychologist but no help so far.

> >

> > How can he cope with this?

> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

> >

> > Thanks for your help and advice.

> >

> >

> >

> >

>

[Guest guest]

I wouldn't be surprised if people with misophonia were more at risk of

Asperger's or OCD than the general population, but that is because people with

*any* significant condition are more at risk of having other conditions than the

average person.

To quote a book about the major psychological disorders of childhood:

" Who says that kids have just one problem? Multiple issues often cluster

together in any combination .... If a child has any one of the problems out of

the syndrome mix {=long list of things like ADHD, Tourette's, OCD, depression,

autism, etc etc}, then there is a very significant chance of one or more of the

other problems occurring " .

So yes, there is an association between misophonia and {pick any condition}. But

then, there is an association between every one of these conditions and all the

others. For what it's worth, I think Asperger's has a much stronger association

with ADHD than it has with misophonia. And I suspect that misophonia has a

stronger association with sensory processing disorder than it has with

Asperger's syndrome.

>

> I didnt mean to say everyone had OCD or Aspergers, but I have noticed

that those have been mentioned on here many times - maybe I pick up on that

because I can relate.  Or  maybe its the same few people mentioning it over

and over and I just don't notice the names are the same.  But its like any

condition, where some people show signs of a certain symptom or extenuating

condition but others do not.  Just because not everyone has that

symptom/condition, does not mean there cant be a potential correlation for some

people.  For example, in Aspergers there are tons of symptoms listed but most

people don't have all the symptoms and they also have varying degrees of the

symptoms they do have.      More likely, Misophonia is an

extenuating symptom of OCD and Aspergers, not the other way around. 

>  

> The following is from the Sound Sensitivity page entitled " What is Selective

Sound Sensitivity Syndrome or " 4S " ?  "  

>  

>

http://soundsensitive.org/index.php?option=com_content & view=article & id=46 & Itemid\

=102

> " There appears to be evidence of a genetic component as the condition appears

in family members. A certain percentage of people with 4S have also demonstrated

signs of Obsessive Compulsive Disorder, and 4S has been also associated with

other pervasive conditions such as the Autism Spectrum. However, the vast

majority of people with 4S do not appear to have other pervasive or obviously

identifiable disorder. "

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Tuesday, May 15, 2012 1:12 AM

> Subject: Re: How do I know if my son has Misophonia or

something else?

[Guest guest]

Maybe you might also consider if people who develop 4S/Miso, are most likely to

develop OCD habits and behaviors?

I have done a few surveys and about 20% of random respondents have stated they

were diagnosed as OCD at some point in time, however, many commented the

diagnosing professional remarked on an 'atypical' variant.

MJ

[Guest guest]

thanks ginger,,, i will pray for my daughter..... iam so graateful that yours has been cured.. my worst nightmare has come true. my 9 yr. old is definatelty showing signs oh misophonia.. both me and my twin have suffered from this for the past 35 yrs.. thanks for writing what you belaive. it gives me hope..

I didnt mean to say everyone had OCD or Aspergers, but I have noticed that those have been mentioned on here many times - maybe I pick up on that because I can relate. Or maybe its the same few people mentioning it over and over and I just don't notice the names are the same. But its like any condition, where some people show signs of a certain symptom or extenuating condition but others do not. Just because not everyone has that symptom/condition, does not mean there cant be a potential correlation for some people. For example, in Aspergers there are tons of symptoms listed but most people don't have all the symptoms and they also have varying degrees of the symptoms they do have. More likely, Misophonia is an extenuating symptom of OCD and Aspergers, not the other way around.

The following is from the Sound Sensitivity page entitled "What is Selective Sound Sensitivity Syndrome or "4S"? "

http://soundsensitive.org/index.php?option=com_content & view=article & id=46 & Itemid=102

"There appears to be evidence of a genetic component as the condition appears in family members. A certain percentage of people with 4S have also demonstrated signs of Obsessive Compulsive Disorder, and 4S has been also associated with other pervasive conditions such as the Autism Spectrum. However, the vast majority of people with 4S do not appear to have other pervasive or obviously identifiable disorder."

To: Soundsensitivity Sent: Tuesday, May 15, 2012 1:12 AMSubject: Re: How do I know if my son has Misophonia or something else?

I agree with Heidi. I don't have OCD or Asperger's, and have not noticed many people on here with them either. It could be a comorbid condition but it doesn't have to be. Saying it correlates to these conditions is inaccurate at this point and potentially misleading, though I understand the intent was to be helpful.> > > It sounds like misophonia to me. Unfortunately, since this is a newly recognized condition there are not many drs, psychologists, or psychiatrists that have heard of it. There is a list of doctors that 4S has put together, if you are lucky enough to live near one of these few providers http://misophonia-provider.com/PROVIDERS_BY_REGION.html> > > > I also encourage you to read the following links> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid=89> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis & catid=31 & Itemid=46> > > > http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid=53> > > > I have suffered since I was 8 yrs old. Nowadays, you should be able to get disability accommodations for him, but you will need a doctor to do that. Note that by talking back and forth, we have found a correlation with OCD and/or Aspergers. I feel for your son, and

all children living with this condition. Its tough enough to be a teenager without this problem> > > > > > > > > > To: Soundsensitivity > > Sent: Monday, May 14, 2012 3:16 AM> > Subject: How do I know if my son has Misophonia or something else?> > > > > > Hi,> > I recently found out about this group. And need some help and advice.> > > > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing

on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia? > > > > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.> > > > We have visited his physician, ENT, Psychologist but no help so far. > > > > How can he cope with this?>

> Anyone tried Hypnotherapy? Will that work with all of these sounds?> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)> > > > Thanks for your help and advice.> > > > > > > >>

[Guest guest]

I'm glad your son is better.

Well I wish he still were---it came back on him about a year later. We have been doing NFB since January. I didn't think he was making much progress with it, but I also wonder how much of it is just a control mechanism. He has no desire to want to get better, it's like he enjoys lashing out at us (me and his sisters). However last week he asked me that if he could get over his 'pencil problem' if he could get a video game he wanted. I never actually agreed to it (it's an Mature rated game), but he was almost instantly over it and said they no longer bother him. However later that day he was complaining about his sisters using crayons at a restaurant. But then on Mothers Day he was using a crayon himself at a restaurant (something he hasn't used for a few years). So either it is gone, or it is better, or it was never as bad as he said, and he just wants to get this video game....I don't know. For the record, chewing sounds never bothered him--unless he is trying to study or concentrate on something, which in that case ANY sound bothers him. So he doesn't seem to have the same misophonia as most people here.

How do I know if my son has Misophonia or something else?

> >

> >

> > Hi,

> > I recently found out about this group. And need some help and advice.

> >

> > Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle Restaurant bowl scraping sound. We thought its just a phase and it will pass. Since about last two months his sensitivity got worse, he is now sensitive to Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another paper, Chewing, Shoes scraping against floor. I believe because of these sounds occurring in school, his performance has degraded suddenly and its affecting him making friends in school and outside. He is avoiding talking to friends because of fear of these sounds. He cannot bear these sounds and when I ask him, he is not able to describe how he feels. He just says, he cannot stand and has to close his ears. Does this mean misophonia?

> >

> > I have read here that there is no cure for this, but was hoping to find some coping advise so that he can resume his learning in school and resume his life in general. Wearing earplugs does not seem to work for him and i've read that it actually makes the sensitivity worse.

> >

> > We have visited his physician, ENT, Psychologist but no help so far.

> >

> > How can he cope with this?

> > Anyone tried Hypnotherapy? Will that work with all of these sounds?

> > What can he do so he doesn't have to close his ears in classroom? (earplugs doesn't suppress these and he needs to listen to teachers in classroom)

> >

> > Thanks for your help and advice.

> >

> >

> >

> >

>

[Guest guest]

Thanks everyone for your overwhelming support and information you have provided.

>

> It sounds like misophonia to me.  Unfortunately, since this is a newly

recognized condition there are not many drs, psychologists, or psychiatrists

that have heard of it.  There is a list of doctors that 4S has put together, if

you are lucky enough to live near one of these few providers

http://misophonia-provider.com/PROVIDERS_BY_REGION.html

>  

> I also encourage you to read the following links

>  

>

http://soundsensitive.org/index.php?option=com_content & view=article & id=63 & Itemid\

=89

>  

>

http://soundsensitive.org/index.php?option=com_content & view=article & id=46:whatis\

& catid=31 & Itemid=46

>  

>

http://soundsensitive.org/index.php?option=com_content & view=article & id=44 & Itemid\

=53

>  

> I have suffered since I was 8 yrs old.  Nowadays, you should be able to get

disability accommodations for him, but you will need a doctor to do that.  Note

that by talking back and forth, we have found a correlation with OCD and/or

Aspergers.  I feel for your son, and all children living with this

condition. Its tough enough to be a teenager without this problem

>  

>  

>

>

> ________________________________

>

> To: Soundsensitivity

> Sent: Monday, May 14, 2012 3:16 AM

> Subject: How do I know if my son has Misophonia or

something else?

>

>

>

>  

>

> Hi,

> I recently found out about this group. And need some help and advice.

>

> Around 6 to 8 months back, my son (14 years old) had sensitivity to Chipotle

Restaurant bowl scraping sound. We thought its just a phase and it will pass.

Since about last two months his sensitivity got worse, he is now sensitive to

Pencil writing on paper, Sliding fingers on paper, Paper rubbing against another

paper, Chewing, Shoes scraping against floor. I believe because of these sounds

occurring in school, his performance has degraded suddenly and its affecting him

making friends in school and outside. He is avoiding talking to friends because

of fear of these sounds. He cannot bear these sounds and when I ask him, he is

not able to describe how he feels. He just says, he cannot stand and has to

close his ears. Does this mean misophonia?

>

> I have read here that there is no cure for this, but was hoping to find some

coping advise so that he can resume his learning in school and resume his life

in general. Wearing earplugs does not seem to work for him and i've read that

it actually makes the sensitivity worse.

>

> We have visited his physician, ENT, Psychologist but no help so far.

>

> How can he cope with this?

> Anyone tried Hypnotherapy? Will that work with all of these sounds?

> What can he do so he doesn't have to close his ears in classroom? (earplugs

doesn't suppress these and he needs to listen to teachers in classroom)

>

> Thanks for your help and advice.

>

[Guest guest]

I urge you to reconsider that your son is doing this to control you and/or that

he has much control over it himself. I'm not sure you can see his level of

desire: maybe you could ask yourself if he is afraid of certain failure or if

he just doesn't want to dissapoint you. He is probably too young to manage all

of that: I know very few adults who can. As he is young, his misophonia may

still be developing and he is trying to find ways to cope. I remember my

misophonia " growing " to include more triggers and I was amazed and dismayed that

it would change. I do know for a fact that drinking and drugging were the

things that helped me the most to get through my early adolescence because being

stoned numb was the only way I could survive. Your agreeing to reward him to

stop being triggered is a great distraction: just like when I wasn't stoned I

could think about my next score and high. And your rewarding him for not being

reactive is like asking him to not limp when walking while his foot is broken.

He'll be able to do it but not for long. All the while, the rage in him is

growing with no outlet. It is crucial to acknowledge that he will not trigger

himself. His own use of crayons or pencils or eating won't hurt him anywhere

near as much as hearing it from outside himself. If he was a homosexual, you

would not ask him why he chose that. You cannot ask him to " unchoose " or just

get over misophonia.

>

> I'm glad your son is better.

>

>

>

> Well I wish he still were---it came back on him about a year later. We have

been doing NFB since January. I didn't think he was making much progress with

it, but I also wonder how much of it is just a control mechanism. He has no

desire to want to get better, it's like he enjoys lashing out at us (me and his

sisters). However last week he asked me that if he could get over his 'pencil

problem' if he could get a video game he wanted. I never actually agreed to it

(it's an Mature rated game), but he was almost instantly over it and said they

no longer bother him. However later that day he was complaining about his

sisters using crayons at a restaurant. But then on Mothers Day he was using a

crayon himself at a restaurant (something he hasn't used for a few years). So

either it is gone, or it is better, or it was never as bad as he said, and he

just wants to get this video game....I don't know. For the record, chewing

sounds never bothered him--unless he is trying to study or concentrate on

something, which in that case ANY sound bothers him. So he doesn't seem to have

the same misophonia as most people here.

>

>

>

> Re: Re: How do I know if my son has Misophonia or

something else?

>

>

>

>

> I am a Christian and I definitely know all about strongholds as I have been

delivered (or whatever word you'd like to use) from many of them...

>

> But I've prayed for healing for all of these medical issues (all 10 of them)

and haven't gotten one yet... so I sure wish it was that easy for all of us!

>

> Though I have been healed of other things.. so I know it is possible.. but for

whatever reason, I guess it isn't the right time for God to take this trial away

from me.

>

> Though if I could pick, I'd much rather be healed from my peripheral

neuropathy and POTS... since those affect my life much more than the sound

issues (though those continue to worsen so someday they may all 3 be equal)

>

> I'm glad your son is better.

>

> ---------------------------------------------------------

>

> ♥ " Hope is more than a word; it's a state of being. It's a firm belief God

will come through. Life brings rain... hope turns every drop into the power to

bloom like never before. " -Holley Gerth ♥

> Follow my story: http://www.caringbridge.org/visit/sarahmae

>

> Wish Upon A Hero Cafe Moderator and Fee's Assistant

>

>

>

>

>

>

>

>

>