Re: Neuro-feedback and insomnia/Misophonia

[Guest guest]

That’s wonderful, ! My boss actually went to neurofeedback for her insomnia also. She said it really helped her too. Take care! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Wednesday, May 02, 2012 6:49 PMTo: Soundsensitivity Subject: Neuro-feedback and insomnia/Misophonia I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Thanks Kathy, I can't believe it took me so many years to find something that actually works. Just hope in time it will put a dent in the Miso.Mike To: Soundsensitivity Sent: Wednesday, May 2,

2012 4:13 PM Subject: RE: Neuro-feedback and insomnia/Misophonia

That’s wonderful, ! My boss actually went to neurofeedback for her insomnia also. She said it really helped her too. Take care! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of LawrenceSent: Wednesday, May 02, 2012 6:49 PMTo:

Soundsensitivity Subject: Neuro-feedback and insomnia/Misophonia I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit

different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple

and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Hi FolksJust wanted to report that I just completed my 20th NFB session, and as I mentioned earlier my mood has been happier and less irritable. I also believe that the quality of my sleep has been better because I haven't woke up in the middle of the night as much as I used to. I am slightly more tolerant and not as quick to anger with my reaction to noises/ visual triggers, but I have a long way to go in that department. My NFB practioner has been in touch with Dr Randall Lyle for advice on how to proceed with treatment of the misophonia. Dr Lyle is the one who treated someone on this site and got positive results after 80 sessions. He told my practioner that he has integrated LORETA NFB and it seems to be helping, and the response has been good but

slow. He also said that in his opinion he doesn't think the miso can be resolved in less than 80 sessions. (My practioner said she doesn't think it will take half that long though). Dr. Lyle also added that he has integrated PirHEG in all cases- believing that HEG has the ability to produce a more general integration of change by activating the frontal lobes. So treatment generally looks like- Monday- traditional NFB, Weds.- LORETA, Fri.-PirHEG (generally speaking). I hope this helps people because I have no idea what I just said lol! My practioner is going to do her own version of what I just mentioned and I'm praying it helps. I'll do this for as long as it takes Just keep positive we're going to get rid of this thing!Audrey To: "Soundsensitivity " <Soundsensitivity > Sent: Thursday, May 3, 2012 12:05 AM Subject: Re: Neuro-feedback and insomnia/Misophonia

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep area. Not sure exactly what they

signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

MichealThere are several mapping approaches to NFB. There's the QEEG which maps and can be used with a variety of systems for feedback and some add in LORRETA. There's the one my Dr uses which is LENS for mapping and Cynet for the feedback. Most practitioners don't own all of them, too expensive. So they get trained on what they've decided on and maybe over time buy something new depending on what they're hearing from others or the additional training they get. I do not profess to know which will work best. I used Zengar for awhile and got impatient felt it was moving too slow for me. Cyle was successful with QEED guided approach. I am now doing LENS because it's what my Dr uses (she started me with LENS then Zengar) and she enjoys a terrific reputation. Not everyone doing NFB knows what they are doing. Also the QEEG map is expensive and usually has to be sent somewhere for reading wheras my Dr does LENS herself. So there's many approaches and we do not yet know if they all or only some will work. I'm hoping we who are trying can all report which approach our practitioners are using so we can learn from it and provide what we learn to others. HeidiSent from my iPhone

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

I just asked what kind of nfb our practitioner uses and he said that he uses coherence for my son (who has the miso plus a lot of other issues) and amplitude for my daughter (pretty much straight ADHD). When I asked for more specific a description he said the unit is called Brainmaster. Ginger Sent on the Sprint® Now Network from my BlackBerry®Sender: Soundsensitivity Date: Fri, 4 May 2012 11:26:48 -0700To: Soundsensitivity <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Neuro-feedback and insomnia/Misophonia MichealThere are several mapping approaches to NFB. There's the QEEG which maps and can be used with a variety of systems for feedback and some add in LORRETA. There's the one my Dr uses which is LENS for mapping and Cynet for the feedback. Most practitioners don't own all of them, too expensive. So they get trained on what they've decided on and maybe over time buy something new depending on what they're hearing from others or the additional training they get. I do not profess to know which will work best. I used Zengar for awhile and got impatient felt it was moving too slow for me. Cyle was successful with QEED guided approach. I am now doing LENS because it's what my Dr uses (she started me with LENS then Zengar) and she enjoys a terrific reputation. Not everyone doing NFB knows what they are doing. Also the QEEG map is expensive and usually has to be sent somewhere for reading wheras my Dr does LENS herself. So there's many approaches and we do not yet know if they all or only some will work. I'm hoping we who are trying can all report which approach our practitioners are using so we can learn from it and provide what we learn to others. HeidiSent from my iPhone Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep forthe first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and insomnia/Misophonia Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requestedit. Sent from my iPhone I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( Iam always tired because I havesevere insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am justreporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

I will see if I can find someone here that will do LENS and Zengar. And also the QEED guided it that worked for Cyle. I think is two or more people get true lasting results with this, then we are on to something. I will do a little more research.What a miracle that would be if this really was a cure for Misophonia. Mike To:

"Soundsensitivity " <Soundsensitivity > Sent: Friday, May 4, 2012 11:26 AM Subject: Re: Neuro-feedback and insomnia/Misophonia

MichealThere are several mapping approaches to NFB. There's the QEEG which maps and can be used with a variety of systems for feedback and some add in LORRETA. There's the one my Dr uses which is LENS for mapping and Cynet for the feedback. Most practitioners don't own all of them, too expensive. So they get trained on what they've decided on and maybe over time buy something new depending on what they're hearing from others or the additional training they get. I do not profess to know which will work best. I used Zengar for awhile and got impatient felt it was moving too slow for me. Cyle was successful with QEED guided approach. I am now doing LENS because it's what my Dr uses (she started me with LENS then Zengar) and she enjoys a terrific reputation. Not everyone doing NFB knows what they are doing. Also the QEEG map is expensive and usually

has to be sent somewhere for reading wheras my Dr does LENS herself. So there's many approaches and we do not yet know if they all or only some will work. I'm hoping we who are trying can all report which approach our practitioners are using so we can learn from it and provide what we learn to others. HeidiSent from my iPhone

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep

area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and

insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Really it will take more time than that. First we must have a few people who do

the same course of treatment, and then we need them to complete it, and then

wait some time, perhaps six months and so on, then see how they are doing. It

would take at lesat 30 subjects to begin to qualify as a good sample.

So far I have heard mostly reports of improved sleeping, etc. but we should be

hopeful and interested.

In addition, we need to track the type of therapies used so we are all, as they

say, on the same boat. : )

Dr. J

> >

> >

> > 

> >>

> >>

> >> I need to report on the progress I  have made with a type of

neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in

sdale, AZ, because it

> >>came up in a list of neurofeedback practitioners in my area. It is a bit

different from some other neurofeedback practices, none of which I have any

experience with, but wanted 

> >>to try because of the results that have been discussed on this site. 

> >>

> >>

> >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of

$2,000.00), where I basically sit and listen to various tones and am hooked up

to electrodes that are attached to my head and moved 

> >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am

always tired because I have severe insomnia). Sleeping they said would not

affect the results. 

> >>Anyway I have been hoping for some results with my Misophonia, but have not

yet felt any reduction in symptoms. 

> >>But I have been doing much better with it because for the first time in over

3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a

month now. 

> >>

> >>

> >>AMAZING! 

> >> I have tried everything for insomnia spent thousands of dollars on

treatments, medications, you name it, nothing would even put a dent in it.  I

did get some sleep when I used 

> >>drugs, but I became addicted to sleeping pills and in time they didn't work

well. I have been walking dead for over 30 years but now sleep like a baby. 

> >>And my Misophonia, while still there is a bit easier to cope with since I am

not tired and stressed and am well rested. 

> >>

> >>

> >>I am just reporting my results here. Nothing in it for me. I hope to

eventually get some help with Neurofeedback. I may try another type and see if

that works. I am monitoring the 

> >>results of others on this site to see how it is working for them. 

> >>I do feel hopeful that there will be help for this disease in the near

future. 

> >>

> >>

> >>Thanks for all that goes on here. I love the help and support I get here. 

> >>

> >>

> >>Mike L. 

> >>

> >>

> >>

> >>

> >> 

> >

> >

>

[Guest guest]

I would like to see if it improves depression as well as suicidal thoughts. Most of the time when I'm triggered, in addition to rage, I fall deeper in the grip of my depression. Any reports on improved mood would immediately have me on the phone with a doctor. I look forward to hearing more good news.Sent from my Verizon Wireless Phone----- Reply message -----To: <Soundsensitivity >Subject: Re: Neuro-feedback and insomnia/MisophoniaDate: Sat, May 5, 2012 5:09 pm

Really it will take more time than that. First we must have a few people who do the same course of treatment, and then we need them to complete it, and then wait some time, perhaps six months and so on, then see how they are doing. It would take at lesat 30 subjects to begin to qualify as a good sample.

So far I have heard mostly reports of improved sleeping, etc. but we should be hopeful and interested.

In addition, we need to track the type of therapies used so we are all, as they say, on the same boat. : )

Dr. J

> >

> >

> > 

> >>

> >>

> >> I need to report on the progress I  have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because it

> >>came up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted 

> >>to try because of the results that have been discussed on this site. 

> >>

> >>

> >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved 

> >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results. 

> >>Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. 

> >>But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. 

> >>

> >>

> >>AMAZING! 

> >> I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it.  I did get some sleep when I used 

> >>drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. 

> >>And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. 

> >>

> >>

> >>I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the 

> >>results of others on this site to see how it is working for them. 

> >>I do feel hopeful that there will be help for this disease in the near future. 

> >>

> >>

> >>Thanks for all that goes on here. I love the help and support I get here. 

> >>

> >>

> >>Mike L. 

> >>

> >>

> >>

> >>

> >> 

> >

> >

>

[Guest guest]

Like I said chances are your not going to find someone who does all of that. Find some one with a good reputation and is willing to talk to you before they jump in and hook u up. And is willing to talk to of NFB providers who are working with one of us so they can all network. If the period. Is rugged in their ways and not willing to talk to others , then they're not for you. Personally I think that stuff is more important than which equipment. My dr had even said if her equipment doesn't work she will fix someone with different stuff and work with them. you want a person who is willing to do whatever it takes to tackle this. HeidiSent from my iPhone

I will see if I can find someone here that will do LENS and Zengar. And also the QEED guided it that worked for Cyle. I think is two or more people get true lasting results with this, then we are on to something. I will do a little more research.What a miracle that would be if this really was a cure for Misophonia. Mike To:

"Soundsensitivity " <Soundsensitivity > Sent: Friday, May 4, 2012 11:26 AM Subject: Re: Neuro-feedback and insomnia/Misophonia

MichealThere are several mapping approaches to NFB. There's the QEEG which maps and can be used with a variety of systems for feedback and some add in LORRETA. There's the one my Dr uses which is LENS for mapping and Cynet for the feedback. Most practitioners don't own all of them, too expensive. So they get trained on what they've decided on and maybe over time buy something new depending on what they're hearing from others or the additional training they get. I do not profess to know which will work best. I used Zengar for awhile and got impatient felt it was moving too slow for me. Cyle was successful with QEED guided approach. I am now doing LENS because it's what my Dr uses (she started me with LENS then Zengar) and she enjoys a terrific reputation. Not everyone doing NFB knows what they are doing. Also the QEEG map is expensive and usually

has to be sent somewhere for reading wheras my Dr does LENS herself. So there's many approaches and we do not yet know if they all or only some will work. I'm hoping we who are trying can all report which approach our practitioners are using so we can learn from it and provide what we learn to others. HeidiSent from my iPhone

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep

area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and

insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

[Guest guest]

Oh absolutely. I would say NFB has helped a lot with mood. Mind u I stay on the upbeat side but even I have noticed an improvement as has as her mom has reported. Sent from my iPhone

I would like to see if it improves depression as well as suicidal thoughts. Most of the time when I'm triggered, in addition to rage, I fall deeper in the grip of my depression. Any reports on improved mood would immediately have me on the phone with a doctor. I look forward to hearing more good news.Sent from my Verizon Wireless Phone----- Reply message -----To: <Soundsensitivity >Subject: Re: Neuro-feedback and insomnia/MisophoniaDate: Sat, May 5, 2012 5:09 pm

Really it will take more time than that. First we must have a few people who do the same course of treatment, and then we need them to complete it, and then wait some time, perhaps six months and so on, then see how they are doing. It would take at lesat 30 subjects to begin to qualify as a good sample.

So far I have heard mostly reports of improved sleeping, etc. but we should be hopeful and interested.

In addition, we need to track the type of therapies used so we are all, as they say, on the same boat. : )

Dr. J

> >

> >

> >Â

> >>

> >>

> >>Â I need to report on the progress I Â have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because it

> >>came up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wantedÂ

> >>to try because of the results that have been discussed on this site.Â

> >>

> >>

> >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and movedÂ

> >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results.Â

> >>Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms.Â

> >>But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now.Â

> >>

> >>

> >>AMAZING!Â

> >>Â I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. Â I did get some sleep when I usedÂ

> >>drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby.Â

> >>And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested.Â

> >>

> >>

> >>I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring theÂ

> >>results of others on this site to see how it is working for them.Â

> >>I do feel hopeful that there will be help for this disease in the near future.Â

> >>

> >>

> >>Thanks for all that goes on here. I love the help and support I get here.Â

> >>

> >>

> >>Mike L.Â

> >>

> >>

> >>

> >>

> >>Â

> >

> >

>

[Guest guest]

,

Yes NFB has helped greatly with my 14 year old daughter regarding depression and

suicidal thoughts. January 2nd while on antidepressants, she attempted suicide.

After she left the hospital she began NFB. She NEVER slept before nfb and now

she sleeps! Also she is soooo much happier. She has said to me many times she

is no longer depressed. She is the same, when she is triggered she goes into a

rage, then feels guilty then falls into a depression. She is doing soooo much

better now after NFB. In fact one day she was in a bad mood and said to me I

don't want to go to NFB, she said it's just a waste of your money.Well my

husband got her to get out of bed and go and when she came home she was singing

and dancing. I just chuckled. I said to myself...even if it doesn't help with

the misophonia it is worth it to see her happy again. Of course things aren't

always perfect but she is out of her bed now and for that I am grateful. She

spent most of last year isolating herself in her bed. She also went back to the

two things she loves to do, dance and play soccer. Everyday is still a

challenge with misophonia but I really feel NFB is helping her mood.

>

> > >

>

> > >

>

> > > 

>

> > >>

>

> > >>

>

> > >> I need to report on the progress I  have made with a type of

neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in

sdale, AZ, because it

>

> > >>came up in a list of neurofeedback practitioners in my area. It is a bit

different from some other neurofeedback practices, none of which I have any

experience with, but wanted 

>

> > >>to try because of the results that have been discussed on this site. 

>

> > >>

>

> > >>

>

> > >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost

of $2,000.00), where I basically sit and listen to various tones and am hooked

up to electrodes that are attached to my head and moved 

>

> > >>every 15 minutes of so. Very simple  and I slept through much of it. (

I am always tired because I have severe insomnia). Sleeping they said would not

affect the results. 

>

> > >>Anyway I have been hoping for some results with my Misophonia, but have

not yet felt any reduction in symptoms. 

>

> > >>But I have been doing much better with it because for the first time in

over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about

a month now. 

>

> > >>

>

> > >>

>

> > >>AMAZING! 

>

> > >> I have tried everything for insomnia spent thousands of dollars on

treatments, medications, you name it, nothing would even put a dent in it.  I

did get some sleep when I used 

>

> > >>drugs, but I became addicted to sleeping pills and in time they didn't

work well. I have been walking dead for over 30 years but now sleep like a

baby. 

>

> > >>And my Misophonia, while still there is a bit easier to cope with since I

am not tired and stressed and am well rested. 

>

> > >>

>

> > >>

>

> > >>I am just reporting my results here. Nothing in it for me. I hope to

eventually get some help with Neurofeedback. I may try another type and see if

that works. I am monitoring the 

>

> > >>results of others on this site to see how it is working for them. 

>

> > >>I do feel hopeful that there will be help for this disease in the near

future. 

>

> > >>

>

> > >>

>

> > >>Thanks for all that goes on here. I love the help and support I get

here. 

>

> > >>

>

> > >>

>

> > >>Mike L. 

>

> > >>

>

> > >>

>

> > >>

>

> > >>

>

> > >> 

>

> > >

>

> > >

>

> >

>

[Guest guest]

Good advice Heidi. Thanks. I will get as much info as I can since this is going to cost a lot of out of pocket money. I don't mind the cost if I feel like it is not wasted like so much of what I have done in the past. I have been promised so much in the past and got nothing but poorer. I'd like to poll the group here to see just how many of us are trying NFB and keep a thread going to update the results. I am excited about the possibilities with NFB. MikeSent from my iPad

Like I said chances are your not going to find someone who does all of that. Find some one with a good reputation and is willing to talk to you before they jump in and hook u up. And is willing to talk to of NFB providers who are working with one of us so they can all network. If the period. Is rugged in their ways and not willing to talk to others , then they're not for you. Personally I think that stuff is more important than which equipment. My dr had even said if her equipment doesn't work she will fix someone with different stuff and work with them. you want a person who is willing to do whatever it takes to tackle this. HeidiSent fromiPhoneOn May 5, 2012, at thistle 12:this 50 PM, Lawrence wrote:

I will see if I can find someone here that will do LENS and Zengar. And also the QEED guided it that worked for Cyle. I think is two or more people get true lasting results with this, then we are on to something. I will do a little more research.What a miracle that would be if this really was a cure for Misophonia. Mike To:

"Soundsensitivity " <Soundsensitivity > Sent: Friday, May 4, 2012 11:26 AM Subject: Re: Neuro-feedback and insomnia/Misophonia

MichealThere are several mapping approaches to NFB. There's the QEEG which maps and can be used with a variety of systems for feedback and some add in LORRETA. There's the one my Dr uses which is LENS for mapping and Cynet for the feedback. Most practitioners don't own all of them, too expensive. So they get trained on what they've decided on and maybe over time buy something new depending on what they're hearing from others or the additional training they get. I do not profess to know which will work best. I used Zengar for awhile and got impatient felt it was moving too slow for me. Cyle was successful with QEED guided approach. I am now doing LENS because it's what my Dr uses (she started me with LENS then Zengar) and she enjoys a terrific reputation. Not everyone doing NFB knows what they are doing. Also the QEEG map is expensive and usually

has to be sent somewhere for reading wheras my Dr does LENS herself. So there's many approaches and we do not yet know if they all or only some will work. I'm hoping we who are trying can all report which approach our practitioners are using so we can learn from it and provide what we learn to others. HeidiSent from my iPhone

Heidi,So glad you are getting positive results with NFB, and got rid of you tremor and can sleep better. You sent me a site to find NFB practitioners in my area and they came up. It is BrainStateTech.com. It just so happened that their world headquarters was right near my home in sdale. They have over 120 offices worldwide. Very well run and a very relaxing and enjoyable time. I didn't mention that the graphs they showed me of my brain waves at the beginning were all over the place, huge spikes and drops and very divergent. After a few days they were almost flat, especially in the sleep

area. Not sure exactly what they signify, but I just know they were very smooth and even. And I can sleep for

the first time in at least 30 years. I could never sleep more than 4 or 5 hours at a time. Always tired and groggy. Miserable. They usually only do the 10 sessions with an occasional follow up session or two. I am not sure if more will make a difference with this type of NFB. But great results with sleep anyway, which is a start. I will look into LENS and CYGNET. This seems to be more promising than other therapies. I don't think all the psychotherapy in the world can make any significant change in Misophonia. Drugs are out for me. And desensitization just seems futile. CBT I guess can help some. Good luck with yours.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, May 2, 2012 4:58 PM Subject: Re: Neuro-feedback and

insomnia/Misophonia

Micheal, that is great. I too have been remarkably helped in the sleep department by NFB, which in turn helps immensely with coping with 4S. And like I said it has helped with my essential tremor and overall calming which helps with everything including patience and not getting so upset. May I ask what kind of NFB you did? Just want to add that 10 sessions is sort of a starting point and most likely not enough to affect our deeply rooted problem with Misophonia. I'm at around 10 and know I still have a long way to go. I am now doing LENS and CYGNET (in hopes of reaching that deep my lymbic system.). LENS is does mapping similar to QEEG but not as intensive and then the systems are used based on the mapping results. The very first session I had was to get a LENS map done of my brain. We did Zengar for a while and now we're focusing on CYGNET because I requested

it. Sent from my iPhone

I need to report on the progress I have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because itcame up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wanted to try because of the results that have been discussed on this site. I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and moved every 15 minutes of so. Very simple and I slept through much of it. ( I

am always tired because I have

severe insomnia). Sleeping they said would not affect the results. Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms. But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now. AMAZING! I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. I did get some sleep when I used drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby. And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested. I am just

reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring the results of others on this site to see how it is working for them. I do feel hopeful that there will be help for this disease in the near future. Thanks for all that goes on here. I love the help and support I get here. Mike L.

=

[Guest guest]

Dr J,You are right about that. We need to monitor and compare results. I hope we can get 30 subjects from this group. Any chance that we may get some funding in the future especially after 20/20 airs?MikeSent from my iPad

Really it will take more time than that. First we must have a few people who do the same course of treatment, and then we need them to complete it, and then wait some time, perhaps six months and so on, then see how they are doing. It would take at lesat 30 subjects to begin to qualify as a good sample.

So far I have heard mostly reports of improved sleeping, etc. but we should be hopeful and interested.

In addition, we need to track the type of therapies used so we are all, as they say, on the same boat. : )

Dr. J

> >

> >

> >Â

> >>

> >>

> >>Â I need to report on the progress I Â have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because it

> >>came up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wantedÂ

> >>to try because of the results that have been discussed on this site.Â

> >>

> >>

> >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and movedÂ

> >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results.Â

> >>Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms.Â

> >>But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now.Â

> >>

> >>

> >>AMAZING!Â

> >>Â I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. Â I did get some sleep when I usedÂ

> >>drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby.Â

> >>And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested.Â

> >>

> >>

> >>I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring theÂ

> >>results of others on this site to see how it is working for them.Â

> >>I do feel hopeful that there will be help for this disease in the near future.Â

> >>

> >>

> >>Thanks for all that goes on here. I love the help and support I get here.Â

> >>

> >>

> >>Mike L.Â

> >>

> >>

> >>

> >>

> >>Â

> >

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Yes I've mentioned that NFB has improved my sleep and mood. I didn't realize I had mild depression until after about 10 treatments I noticed that I was laughing more and engaging more in life. I'm definitely a happier person as a result of NFB- so I say go for it!Audrey To: Soundsensitivity Sent: Saturday, May 5, 2012 8:15 PM Subject: Re: Re: Neuro-feedback and insomnia/Misophonia

I would like to see if it improves depression as well as suicidal thoughts. Most of the time when I'm triggered, in addition to rage, I fall deeper in the grip of my depression. Any reports on improved mood would immediately have me on the phone with a doctor. I look forward to hearing more good news.Sent from my Verizon Wireless Phone----- Reply message -----To: <Soundsensitivity >Subject: Re: Neuro-feedback and insomnia/MisophoniaDate: Sat, May 5, 2012 5:09 pm

Really it will take more time than that. First we must have a few people who do the same course of treatment, and then we need them to complete it, and then wait some time, perhaps six months and so on, then see how they are doing. It would take at lesat 30 subjects to begin to qualify as a good sample.

So far I have heard mostly reports of improved sleeping, etc. but we should be hopeful and interested.

In addition, we need to track the type of therapies used so we are all, as they say, on the same boat. : )

Dr. J

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> >>Â I need to report on the progress I Â have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because it

> >>came up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wantedÂ

> >>to try because of the results that have been discussed on this site.Â

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> >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and movedÂ

> >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results.Â

> >>Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms.Â

> >>But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now.Â

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> >>AMAZING!Â

> >>Â I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. Â I did get some sleep when I usedÂ

> >>drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby.Â

> >>And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested.Â

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> >>I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring theÂ

> >>results of others on this site to see how it is working for them.Â

> >>I do feel hopeful that there will be help for this disease in the near future.Â

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> >>Thanks for all that goes on here. I love the help and support I get here.Â

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> >>Mike L.Â

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