Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Hi ! I read your last post about being evaluated for a lung transplant. I am going the second week of Feb. to be evaluated. Where did you go? I will be going to Jewish Hospital in St. Louis, MO. What kinds of tests did they do on you? Any info you have would be greatly appreciated! Thanks! McCaw wrote: Hi Joy, I was dx at age 19 with bronch. Just went for lung tx eval in Nov (2 wks of testing) and they discovered that I have CF - this was new news. So now I face a 6month program of inhalation meds (5 diff ones every day) and pulm rehab program for 3 months. Drs want to see if my lung fcn will improve so that they can do surgery to remove 1/2 of each lung. THat's planned for this summer. At some point about 5 yrs ago (I'm 51) all orals stopped working. The Pseud A bacteria has taken over lungs and sinuses and with my last flare-up I was on Tobi for 6 wks - after surgery in Sept 07. I had a PICC line a few times - inserted in upper rt arm and threaded into heart for IV ABX. Had a couple of infections at the site but they cleared up. Meds were pumped in from a machine or from IV stand or as out-patient. Had it all different ways. I just stopped working middle of last year - been pretty active til then. Guess we just have to keep going....right? joy hensby <endiandraixa (DOT) net.au> wrote: Hi ,How long since dx? How long treated with abx, til came to the point where they don’t work? How long did Ciprox work b4 it became resistant to it too? I have been using since around 2003 (I think), and is the last one left as oral ab. I know the effect now is not as immediate or as good, but pathology results ‘say’ that the Ciprox is still working... Here’s crossing fingers and toes it will last . Always a dilemma, every time unwell, sit it out, see if will pick up without ab, or if I get it wrong get really sick and need to be on a longer dose? Drs – even specialists - just do not know. What is your experience with PICC line? Where is it inserted, any probs, any introduced infection such as Staph?Anyhow, I am thankful Ciprox IS still working for now,cheersJoy (from Oz)-- Sentient beings, all our very own mothers, are as limitless as space Looking for last minute shopping deals? Find them fast with Yahoo! Search. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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