Re: Misophonia Letters Again, re-Post

[Guest guest]

>Thank you ...thank you ....thank you

for those informational letters. I am starting family counseling for

issues related to this and other problems, but this is exactly what I can

hand over to my counselor. I had just been thinking this week I didn't

really know how to explain what I have without sounding " weird " .

Vicki

Hi all,

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> It has been a privilege to work alongside a small group of like-minded

> people in creating template letters that help describe the condition

> Misophonia.

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> Presently there are three letters you can download, each targeted towards

> a particular group. To see the letters please open the following web link

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> http://www.misophonia.info/resources/letters/

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> 1. Letter For Friends & Family

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> · This letter has been designed to help you express to your

> friends and/or family how this condition is affecting your life. It can be

> used as a template or a guideline upon which you can build, expand or

> change to suit your particular situation.

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> 2. Letter For Doctors

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> · This letter consists of four different hand-outs for health

> professionals–a traditional letter, a fact sheet, a copy of the recent New

> York Times article, and the Misophonia Activation Scale. Feel free to use

> this as a template upon which you can build and discuss with your health

> care professional. Remember, it is critical to help raise awareness in the

> medical community.

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> 3. Letter For Research

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> · This letter has been designed in order to raise awareness in the

> academic research community. This is a template letter in which you will

> need to add your own experiences tailored towards the research institution

> that you are contacting.

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> I would like to express my deepest thanks to the following people. Without

> whom this project would never have been completed, each of you worked

> exceptionally hard. I am in your debt.

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> Adah Siganoff

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> Heidi Salerno

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> Kessler

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> Lynda Mayers

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> And to those who wish to remain anonymous, my thanks to you as well.

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> We all hope you find these template letters helpful.

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> Projects such as this are only made possible through a shared goal and

> close teamwork. I am very glad to have been involved with such a great

> team.

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> We would love to hear your feedback on the letters so please either

> respond directly to this post or write at the below link:

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> http://www.misophonia.info/Forum/viewtopic.php?f=15 & t=600

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> With the upcoming piece on 20 / 20 it is critical now more than ever that

> we rise up as a collective group with focused intent and a shared goal. To

> raise awareness of this condition aiming towards research which will in

> time lead towards a cure for all of us. Of that I am sure.

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> Remember the letters can be reached at this address:

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> http://www.misophonia.info/resources/letters/

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> With Hope,

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> McKenna

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