Re: Re: Setting up a non-profit for misophonia

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I have worked for a lot of non-profits but never helped form one. Likewise, I would be happy to help with set up.Gabi To: Soundsensitivity Sent: Monday, May 7, 2012 4:57 PM Subject: Re: Setting up a non-profit for misophonia

I have a tiny, tiny bit of experience observing the way a nonprofit runs. Like other people have said, I'll gladly donate (money as well as time, whatever I can do), but I don't have a ton of knowledge.

But you're right, this needs to be done. Desperately.

-Kate K.

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> >> > > >>Â I need to report on the progress I Â have made with a type of neuro-feedback. About 6 weeks ago I spent one week at Brain State Tech. in sdale, AZ, because it

> >> > > >>came up in a list of neurofeedback practitioners in my area. It is a bit different from some other neurofeedback practices, none of which I have any experience with, but wantedÂ

> >> > > >>to try because of the results that have been discussed on this site.Â

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> >> > > >>I had ten 1 1/2 hour sessions over the course of 5 days (at a total cost of $2,000.00), where I basically sit and listen to various tones and am hooked up to electrodes that are attached to my head and movedÂ

> >> > > >>every 15 minutes of so. Very simple  and I slept through much of it. ( I am always tired because I have severe insomnia). Sleeping they said would not affect the results.Â

> >> > > >>Anyway I have been hoping for some results with my Misophonia, but have not yet felt any reduction in symptoms.Â

> >> > > >>But I have been doing much better with it because for the first time in over 3 decades I am sleeping 7-8 hours a night of very restful sleep, for about a month now.Â

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> >> > > >>AMAZING!Â

> >> > > >>Â I have tried everything for insomnia spent thousands of dollars on treatments, medications, you name it, nothing would even put a dent in it. Â I did get some sleep when I usedÂ

> >> > > >>drugs, but I became addicted to sleeping pills and in time they didn't work well. I have been walking dead for over 30 years but now sleep like a baby.Â

> >> > > >>And my Misophonia, while still there is a bit easier to cope with since I am not tired and stressed and am well rested.Â

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> >> > > >>I am just reporting my results here. Nothing in it for me. I hope to eventually get some help with Neurofeedback. I may try another type and see if that works. I am monitoring theÂ

> >> > > >>results of others on this site to see how it is working for them.Â

> >> > > >>I do feel hopeful that there will be help for this disease in the near future.Â

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> >> > > >>Thanks for all that goes on here. I love the help and support I get here.Â

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> >> > > >>Mike L.Â

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