Re: Disappointing Reaction

[Guest guest]

I think it is real, too. So do the others, here. Be patient, we are working on

to educate others, organize ourselves, and create support and research.

Dr. Marsha , AuD

>

> When my adult daughter came over tonight, I asked her and her fiance to watch

> the 20/20 piece. Not long after it started, she started saying that there is

no

> such thing, that the diagnoses are false, and that the people on the show were

> acting. Her reaction was a total shock to me, and I took it personally. My

hope

> was that the show would help her understand why I have such a violent aversion

> to gum popping. She finished watching both segments while rolling her eyes.

>

> For the record, once misophonia is better understood, I hope that I don't have

> the disorder. It would be fabulous to be evaluated and told that I don't have

> enough symptoms for a positive diagnosis. However, at this point, I'm somewhat

> relieved to know that other people suffer with some of the same seemingly

> irrational sound issues I have.

>

> And also for the record, I believe that the disorder is real, even if there

are

> false and even abusive diagnoses.

>

[Guest guest]

Mike, I honestly believe that there are just some people in this world that

simply will not believe anything unless it happens to them. That because they

cannot comprehend 'why' something like this would happen they just disregard it

and think it's impossible. Well, we can't comprehend 'why' this is happening

either but we all know and understand how real it is. Hang in there.

>

> When my adult daughter came over tonight, I asked her and her fiance to watch

> the 20/20 piece. Not long after it started, she started saying that there is

no

> such thing, that the diagnoses are false, and that the people on the show were

> acting. Her reaction was a total shock to me, and I took it personally. My

hope

> was that the show would help her understand why I have such a violent aversion

> to gum popping. She finished watching both segments while rolling her eyes.

>

> For the record, once misophonia is better understood, I hope that I don't have

> the disorder. It would be fabulous to be evaluated and told that I don't have

> enough symptoms for a positive diagnosis. However, at this point, I'm somewhat

> relieved to know that other people suffer with some of the same seemingly

> irrational sound issues I have.

>

> And also for the record, I believe that the disorder is real, even if there

are

> false and even abusive diagnoses.

>

[Guest guest]

It is definately real!! I think it's something you can't understand unless you

have it.

>

> When my adult daughter came over tonight, I asked her and her fiance to watch

> the 20/20 piece. Not long after it started, she started saying that there is

no

> such thing, that the diagnoses are false, and that the people on the show were

> acting. Her reaction was a total shock to me, and I took it personally. My

hope

> was that the show would help her understand why I have such a violent aversion

> to gum popping. She finished watching both segments while rolling her eyes.

>

> For the record, once misophonia is better understood, I hope that I don't have

> the disorder. It would be fabulous to be evaluated and told that I don't have

> enough symptoms for a positive diagnosis. However, at this point, I'm somewhat

> relieved to know that other people suffer with some of the same seemingly

> irrational sound issues I have.

>

> And also for the record, I believe that the disorder is real, even if there

are

> false and even abusive diagnoses.

>

[Guest guest]

Just imagine how many people suffered with dyslexia before it was understood.

Now that would really be a horrible thing, not to mention the name-calling that

would go along with it. It makes me sad just thinking about it. I think part of

our collective problem is that for so long our coping mechanisms, while doing

the best we know how to help ourselves, leads others to be less than

sympathetic.

[Guest guest]

Wow sorry but I feel like shes closed minded. Its very hard for a "normal" person to even fathom what we are going through. It takes an empathetic person to even try to understand. I hope that she will open her mind and realize that not every one is blessed with the ability to function in the world as she is. There are so many off the wall illnesses out there - neurological, psychological, auditory etc. - that to say one is fake is narrow minded, illogical, and ill-informed

[Guest guest]

Mike, I'm so sorry about your daughter's reaction. It is so frustrating when

loved ones seem to refuse to see things from our perspective. You know what you

know; you can't control other people's narrow-mindedness, even your own

children's. :-( What makes a set of symptoms a " real " medical condition,

anyway, if not simply the say-so of the medical community? None of us " want " to

react this way. I hope that a treatment can be found so that we CAN " make it go

away " .

>

> When my adult daughter came over tonight, I asked her and her fiance to watch

> the 20/20 piece. Not long after it started, she started saying that there is

no

> such thing, that the diagnoses are false, and that the people on the show were

> acting. Her reaction was a total shock to me, and I took it personally. My

hope

> was that the show would help her understand why I have such a violent aversion

> to gum popping. She finished watching both segments while rolling her eyes.

>

> For the record, once misophonia is better understood, I hope that I don't have

> the disorder. It would be fabulous to be evaluated and told that I don't have

> enough symptoms for a positive diagnosis. However, at this point, I'm somewhat

> relieved to know that other people suffer with some of the same seemingly

> irrational sound issues I have.

>

> And also for the record, I believe that the disorder is real, even if there

are

> false and even abusive diagnoses.

>

[Guest guest]

Mike,I was sitting on my back porch when the 20/20 piece was aired. My husband called me into the house and said you have to watch this because this is you! I'm not nearly as severe as the young girl with her mother, but there are similarities, just not to that extreme. I can talk to those who create the trigger sounds and don't need them to write things down for me to communicate. However, I can definitely relate to Rippa in her personal relationship with her husband. I often wonder how I will possibly be able to stay married to someone whom I love so dearly but cannot stand to listen to the sound of his breathing, chewing, lip smacking, sighing, coughing, sneezing and even walking in the house. As your daughter did to you, my friend at work did to me, I thought she would be understanding, however, she turned around and told me that if I had nothing better to do with my time then to diagnose myself with some disease, then it is probably why I feel so bad. I really thought she would understand once she read about it, but instead she told me I should calm down, it's not AIDS. I took total offense to her comment, considering I've confided in her about those in the office that are so bothersome to me and never once have I claimed of having any disease to warrant a comment as such. I suppose if you don't live with this it's impossible to understand what we are feeling and having to deal with, day in and day out. Sent via BlackBerry by AT&TSender: Soundsensitivity Date: Mon, 21 May 2012 01:58:06 +0000To: <Soundsensitivity >ReplyTo: Soundsensitivity Subject: Re: Disappointing Reaction Mike, I honestly believe that there are just some people in this world that simply will not believe anything unless it happens to them. That because they cannot comprehend 'why' something like this would happen they just disregard it and think it's impossible. Well, we can't comprehend 'why' this is happening either but we all know and understand how real it is. Hang in there. >> When my adult daughter came over tonight, I asked her and her fiance to watch> the 20/20 piece. Not long after it started, she started saying that there is no> such thing, that the diagnoses are false, and that the people on the show were> acting. Her reaction was a total shock to me, and I took it personally. My hope> was that the show would help her understand why I have such a violent aversion> to gum popping. She finished watching both segments while rolling her eyes.> > For the record, once misophonia is better understood, I hope that I don't have> the disorder. It would be fabulous to be evaluated and told that I don't have> enough symptoms for a positive diagnosis. However, at this point, I'm somewhat> relieved to know that other people suffer with some of the same seemingly> irrational sound issues I have.> > And also for the record, I believe that the disorder is real, even if there are> false and even abusive diagnoses.>