Re: (new here!) Age of onset?

[Guest guest]

I understand how you feel. I was always embarassed to tell people. And people always got irritated at me for being irritated!! So relieving to know it's a real thing!

Subject: (new here!) Age of onset?To: Soundsensitivity Date: Tuesday, May 22, 2012, 11:23 AM

Hello... always thought I was the only one like this. I'm blown away that there is a name for this issue. I thought I was just crazy.. no one understood what I was talking about. I was told to just get over it and block everything out. Obviously, I can't. I was about 4 when I started having problems.. I also have touch and some visual triggers too. My sister also has sound sensitivity. Glad to have found this group =)

[Guest guest]

Wow.. 4 is so young. My sound problems didn't start until I was 23, but I have had chronic pain since I was 8 and it was tough to deal with that--being so different from the other kids and not knowing why I hurt so badly all the time. I can't imagine having this problem at 4 years old!

---------------------------------------------------------

♥

" Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before. " -Holley Gerth ♥

 

Hello... always thought I was the only one like this. I'm blown away that there is a name for this issue. I thought I was just crazy.. no one understood what I was talking about. I was told to just get over it and block everything out. Obviously, I can't. I was about 4 when I started having problems.. I also have touch and some visual triggers too. My sister also has sound sensitivity.

Glad to have found this group =)

[Guest guest]

Hi! I too thought this was something I could just " turn off " , so I felt very

bad for not being able to. People have told me I'm " too sensitive " , as if I

could control that!

I've read that onset may be related to some sort of traumatic experience, which

may explain the difference in age of onset... I didn't notice sound sensitivity

until well into my mid-to-late 20s. But as I discussed the 20/20 program with

my mom (who called to tell me about it), I found out that my younger brother

ALSO sounds like he has 4s! I had never realized this before, but I have heard

him comment and get frustrated over his triggers (seemingly all related to our

dad), and I didn't know why (this was before I started having my own symptoms).

In this case, there was a traumatic experience shortly beforehand - my father

was in a serious vehicular accident that left him brain injured and aphasic,

with the reasoning ability of a 7 year old. After an induced coma and a couple

of years in assisted living situations, lack of government funding forced him to

move back home, when my brother's symptoms sound like they began.

I don't think this had the same effect on me as it did my brother, because I

didn't start noticing my own symptoms for another several years. However, when

I was about 8, I did have a weird compulsion to move my hands/arms/fingers in

such a way so as to " smooth over " rough edges of tables and the like. I

literally " felt " too much energy coming from the corner, so I'd wave my arm

around it, but then I'd have all that energy around that one arm, so I'd use my

other arm to take some of that energy off the first arm. Sounds ridiculous as

I'm typing this, and even now I'm vaguely aware of " excess energy " on my right

side/eye (who knows why), but I'm able to ignore it and it goes away rather

quickly.

Still, since I've read some folks on here suggest OCD and 4S may have links, I

started thinking about this weird habit that I had that developed shortly after

my family immigrated to the US ( " traumatic experience " )... but it dissipated

over time, followed by years of no symptoms, and then the misophonia began.

Sorry, kinda hijacked your thread there. Over and out.

>

> Hello... always thought I was the only one like this. I'm blown away that

there is a name for this issue. I thought I was just crazy.. no one understood

what I was talking about. I was told to just get over it and block everything

out. Obviously, I can't. I was about 4 when I started having problems.. I also

have touch and some visual triggers too. My sister also has sound sensitivity.

> Glad to have found this group =)

>

[Guest guest]

I see that you have touch and visual, in addition to auditory, triggers. I think

you may have Sensory Processing Disorder (SPD). I was tested and diagnosed with

SPD several years ago. I also have Misophonia symptoms. I'm not sure how the two

sensory disorders are related, but the symptoms are the same.

Children are successfully treated by occupational therapists who are trained for

this specific disorder (hard to find). Few adults have been treated, but I think

it's because we tend to hide our " illness " . I talked to a 36 year-old who

experienced a 90% improvement in her condition. I was not so fortunate. No

improvement at all after 15 months of intense therapy. Maybe I've had SPD & Miso

too long.

You can get more information from this site (also Google sensory integration

dysfunction):

http://www.sensory-processing-disorder.com/

I could be completely off base about your condition, but we're here to share

ideas. I hope information is helpful in some way.

Colleen

>

> Hello... always thought I was the only one like this. I'm blown away that

there is a name for this issue. I thought I was just crazy.. no one understood

what I was talking about. I was told to just get over it and block everything

out. Obviously, I can't. I was about 4 when I started having problems.. I also

have touch and some visual triggers too. My sister also has sound sensitivity.

> Glad to have found this group =)

>