Guest guest Posted April 17, 2012 Report Share Posted April 17, 2012 Welcome : This is a great group for learning how to cope and the truth about this disorder... Everybody's story is a bit different...and the marvels of modern medicine treats each case differently...and rarely works as well as you might hope. What you will learn here will be of more use then most anywhere else.. Rarely is a cause isolated...often correlated with a variety of dysfunctions (crohns etc)..it hurts...raising and resting your legs will help...there is a selection of activities you can do to attempt to offer relief...but for the most part...it will go away after a couple of months...it can leave scars...it can come back.... Some dietary changes can help... I think you will find other members will share their approaches and you can see if they can help with your case... You are not alone...you didn't cause it...it can be painful in other regions of your body...you can be very fatigued...Rest and sleep will help it to pass... Good Luck! W----------------------------------------------------------------------------------------------------------------------Subject: newbie helloTo: erythema_nodosum_Group Date: Tuesday, April 17, 2012, 11:35 AM Hi to everyone. I am a newbie here and still into my first exhibit of EN. I dont know much about it, have not gotten many test results back yet, and am sort of suprised that Ive got something there is a Group about(really, a rare disorder???). I want to know more, anticipate what's ahead for me without creating psychosomatic issues, and learn some things that might help alleviate the discomfort. in MN aka Herbi, either one works for me ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2012 Report Share Posted April 17, 2012 W; thanks for the welcome. I dont even know where to begin with questions. It seems as if it is moot to even try to find a cause if one if rarely found. Im wondering every day now if this or that ache and pain is being facilitated by what's going on with the EN. How much of a whiner do I have a right to be? It looks as if some folks have some pretty nasty plaque like regions and others have very large lumps. Im having a lot of joint pain, some kinda weird joint pain, and much more frequent sinus and chest crap( tested neg for swab strep and sarcoid)than usual too. My headaches have changed from typical light/sound migraine to motion sickness migraine, among other things which Im sure Ill get to explaining over time here. I am already a fat person who stereotypically is seen as a loafer, I fear being really resented as this condition keeps me from moving. I was told that there really isnt anything that can be done, was suprised to already read that some were on meds of various kinds. I have found some relief with the OTC pressure stockings, like an ACE bandage pull on thingy. Really helps the edema and the topical discomfort of the lesions. Just wish I read the box...contains one stocking....cant remember to buy another when Im at a store LOL Anyway, thank you for the greeting. Now where to start surfing this group? > > > Subject: newbie hello > To: erythema_nodosum_Group > Date: Tuesday, April 17, 2012, 11:35 AM > > > > > > > > > > > > > > > > > Â > > > > > > > > > > Hi to everyone. I am a newbie here and still into my first exhibit of EN. I dont know much about it, have not gotten many test results back yet, and am sort of suprised that Ive got something there is a Group about(really, a rare disorder???). I want to know more, anticipate what's ahead for me without creating psychosomatic issues, and learn some things that might help alleviate the discomfort. > > > > in MN > > aka Herbi, either one works for me ; ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2012 Report Share Posted April 17, 2012 I was wondering where you live? I live in Central California and I have Valley Fever (Cocci). Your symptoms sound very familiar. The Central Ca., Arizona, are endemic areas for VF. The condition and the medicine (Diflucan) are connected to EN. > > > > From: the_fauve13 <the_fauve13@> > > Subject: newbie hello > > To: erythema_nodosum_Group > > Date: Tuesday, April 17, 2012, 11:35 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Â > > > > > > > > > > > > > > > > > > > > Hi to everyone. I am a newbie here and still into my first exhibit of EN. I dont know much about it, have not gotten many test results back yet, and am sort of suprised that Ive got something there is a Group about(really, a rare disorder???). I want to know more, anticipate what's ahead for me without creating psychosomatic issues, and learn some things that might help alleviate the discomfort. > > > > > > > > in MN > > > > aka Herbi, either one works for me ; ) > > > Quote Link to comment Share on other sites More sharing options...
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