I am so close to losing it.

[Guest guest]

It's been a while since I've been in the group interacting... we've had a lot

happen here. My son and I have both been diagnosed with Lyme Disease and it

seems we've had it for nearly ten years. It's bad. Finding a doctor is next to

impossible, at least one who knows what the heck to do about it. On top of it,

it's making it more difficult to handle sound.

Mom's here helping take care of us while husband is at work. we're both

completely wiped out and my son is sleeping most of the time. He's so exhausted

from this illness that he can barely keep himself awake even when he's standing

up. I have more of the pain and exhaustion and neurological lyme now. Both of us

are getting horribly sensitive to sound, even more than usual.

mom is a huge trigger for me. I am trying to sleep and all I can hear are

footsteps stomping around the house. Footsteps and the vibrations from them are

very difficult for me to tolerate. Mom is very loud when she walks and she's

been pacing practically downstairs and it's sending waves so vibrations through

me and the rage is growing so badly that I started cussing and slamming things

around the bedroom.

She is driving us to the doctors today and that means being in a car with her. I

am not sure if that's difficult for others, but the car is sooooo horrible to be

in when she is talking. She lipsmacks and she has a soft quiet voice that is

getting more raspy soft as she gets older. Her lips make a ton of little popping

sounds... you know the sounds people make when they start getting older and they

dry out a bit and the lips stick together and the tongue makes those sticky

sounds. I AM GOING OUT OF MY MIND EVEN THINKING OF IT.

I don't know what to do. I have tried to explain this to her over and over again

but I love my mother dearly andthi shurts her because she wants to be there for

us and help us and we do need the help, but I don't know if I can stand it

anymore. There is no one else to help us, either. Sister lives out of state, we

don't know anyone out here really, and most everyone is very busy with their

lives.

I ptu my headset in so I could handle the little sounds that get me horribly but

the vibrations of the walking still come through my body, even thorugh my huge

kingsized bed. She does not know how to just sit and rest and read. She has to

do something all the time. She talks a lot too.... she loves to talk. We're a

quiet family and we tend to go off and do our own things. Mom eats for long

periods of time. She's a tiny little thing and it takes her about 30 to 40

minutes to eat her breakfast or a freaking bowl of yogurt even. She takes a bit

off her spoon or fork and then processes it in her mouth for the longest time

letting it linger as long as she can. She scrapes and taps her silverware on her

bowl or plate over and over that whole time. I'm supposed to greatly reduce

stress in my life becaus the Lyme gets worse with stress and this is not doing

it. I could scream my brains out. I don't know what to do. I don't know what to

do.

[Guest guest]

In am so sorry to hear of your plight. I can only imagine feeling that you are

trapped with your trigger noises while you are trying to heal.

One thing that would help would be steps to free yourself from feeling trapped.

Can you sit outside for a while? Are your headphones noise-cancelling with

earplugs? Playing brown noise can mask low frequency mom-stomping if you crank

it while she walks around. (Turn it down after and wear earplugs to protect

your hearing.) That volume control adds control to your environment, and maybe

some emotional relief.

Our best hopes,

--?-- gardenofbirds wrote:

> It's been a while since I've been in the group interacting... we've had a lot

happen here. My son and I have both been diagnosed with Lyme Disease and it

seems we've had it for nearly ten years. It's bad. Finding a doctor is next to

impossible, at least one who knows what the heck to do about it. On top of it,

it's making it more difficult to handle sound.

>

> Mom's here helping take care of us while husband is at work. we're both

completely wiped out and my son is sleeping most of the time. He's so exhausted

from this illness that he can barely keep himself awake even when he's standing

up. I have more of the pain and exhaustion and neurological lyme now. Both of us

are getting horribly sensitive to sound, even more than usual.

>

> mom is a huge trigger for me. I am trying to sleep and all I can hear are

footsteps stomping around the house. Footsteps and the vibrations from them are

very difficult for me to tolerate. Mom is very loud when she walks and she's

been pacing practically downstairs and it's sending waves so vibrations through

me and the rage is growing so badly that I started cussing and slamming things

around the bedroom.

>

> She is driving us to the doctors today and that means being in a car with her.

I am not sure if that's difficult for others, but the car is sooooo horrible to

be in when she is talking. She lipsmacks and she has a soft quiet voice that is

getting more raspy soft as she gets older. Her lips make a ton of little popping

sounds... you know the sounds people make when they start getting older and they

dry out a bit and the lips stick together and the tongue makes those sticky

sounds. I AM GOING OUT OF MY MIND EVEN THINKING OF IT.

>

> I don't know what to do. I have tried to explain this to her over and over

again but I love my mother dearly andthi shurts her because she wants to be

there for us and help us and we do need the help, but I don't know if I can

stand it anymore. There is no one else to help us, either. Sister lives out of

state, we don't know anyone out here really, and most everyone is very busy with

their lives.

>

> I ptu my headset in so I could handle the little sounds that get me horribly

but the vibrations of the walking still come through my body, even thorugh my

huge kingsized bed. She does not know how to just sit and rest and read. She has

to do something all the time. She talks a lot too.... she loves to talk. We're a

quiet family and we tend to go off and do our own things. Mom eats for long

periods of time. She's a tiny little thing and it takes her about 30 to 40

minutes to eat her breakfast or a freaking bowl of yogurt even. She takes a bit

off her spoon or fork and then processes it in her mouth for the longest time

letting it linger as long as she can. She scrapes and taps her silverware on her

bowl or plate over and over that whole time. I'm supposed to greatly reduce

stress in my life becaus the Lyme gets worse with stress and this is not doing

it. I could scream my brains out. I don't know what to do. I don't know what to

do.

>

>

>

[Guest guest]

Wow – you are in a tough situation and I feel so bad for you. Here are a few ideas that maybe you can try, which I do in my house because my son has Miso: Buy paper plates, cups, bowls, and plastic spoons – This mostly eliminates the scraping sounds. Insist that shoes be taken off at the door (if you haven’t already), and put down some area rugs or runners to help absorb the footsteps (but make sure they’re secure to avoid tripping/sliding). I have hardwood floors and this helps some with the vibrations. Talk to your mom and emphasize that stress makes your illness worse and insist (nicely) that she either stop constantly moving, or go for a walk or a drive if she can’t stop, or do gardening. You must get good sleep also, so she needs to stop moving at bedtime. She must have to sleep sometimes, too. When she’s eating, maybe you can either be in separate rooms, or have some background noise going like the TV to help mask those sounds. Have you shown your mother some of the information on misophonia so that she really understands the seriousness of this? If not, that would probably help. As far as the car ride goes, I would wear noise-cancellation headphones, with or without music. You can tell your mom you are very stressed from the illness or say you have a bad headache from the illness that’s making you feel nauseas so you need to be very still and have quiet so you won’t get car sick. Whenever she speaks or there’s any other noise (so she doesn’t think it’s only her), roll down the window or pick up a bag as if you’re about to need it J (This is how I actually feel when I have a migraine). If she keeps doing what you’ve asked her to please stop doing, you might ask your doctor to talk to her directly to help her to really understand that although her help is needed and appreciated and you very much want to continue having her be there with you, at the same time she really must do everything possible to help comply with doctor’s orders to avoid stress (and that means your definition of stress) or else your illness will become worse. Of course you’ll need to make sure she knows how much you love and need her and want her there. Just some brainstorming – I hope it helps. Hugs to you! From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of gardenofbirdsSent: Tuesday, June 05, 2012 5:06 AMTo: Soundsensitivity Subject: I am so close to losing it. It's been a while since I've been in the group interacting... we've had a lot happen here. My son and I have both been diagnosed with Lyme Disease and it seems we've had it for nearly ten years. It's bad. Finding a doctor is next to impossible, at least one who knows what the heck to do about it. On top of it, it's making it more difficult to handle sound.Mom's here helping take care of us while husband is at work. we're both completely wiped out and my son is sleeping most of the time. He's so exhausted from this illness that he can barely keep himself awake even when he's standing up. I have more of the pain and exhaustion and neurological lyme now. Both of us are getting horribly sensitive to sound, even more than usual.mom is a huge trigger for me. I am trying to sleep and all I can hear are footsteps stomping around the house. Footsteps and the vibrations from them are very difficult for me to tolerate. Mom is very loud when she walks and she's been pacing practically downstairs and it's sending waves so vibrations through me and the rage is growing so badly that I started cussing and slamming things around the bedroom. She is driving us to the doctors today and that means being in a car with her. I am not sure if that's difficult for others, but the car is sooooo horrible to be in when she is talking. She lipsmacks and she has a soft quiet voice that is getting more raspy soft as she gets older. Her lips make a ton of little popping sounds... you know the sounds people make when they start getting older and they dry out a bit and the lips stick together and the tongue makes those sticky sounds. I AM GOING OUT OF MY MIND EVEN THINKING OF IT.I don't know what to do. I have tried to explain this to her over and over again but I love my mother dearly andthi shurts her because she wants to be there for us and help us and we do need the help, but I don't know if I can stand it anymore. There is no one else to help us, either. Sister lives out of state, we don't know anyone out here really, and most everyone is very busy with their lives. I ptu my headset in so I could handle the little sounds that get me horribly but the vibrations of the walking still come through my body, even thorugh my huge kingsized bed. She does not know how to just sit and rest and read. She has to do something all the time. She talks a lot too.... she loves to talk. We're a quiet family and we tend to go off and do our own things. Mom eats for long periods of time. She's a tiny little thing and it takes her about 30 to 40 minutes to eat her breakfast or a freaking bowl of yogurt even. She takes a bit off her spoon or fork and then processes it in her mouth for the longest time letting it linger as long as she can. She scrapes and taps her silverware on her bowl or plate over and over that whole time. I'm supposed to greatly reduce stress in my life becaus the Lyme gets worse with stress and this is not doing it. I could scream my brains out. I don't know what to do. I don't know what to do.