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Re: Re: SPD revisited

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There were a lot of eyes to evaluate. It takes a bit over an hour to do the whole test. All for the cause of research. There is a question in there regarding how patient a person you are. You may have to answer in the negative. MikeSent from my iPad

I started to do it, but how many pages of eyes are there???? This is really getting tedious.

Liesa

> I took the study that they have online. Very interesting and fits many of us. I recommend taking it. This research could help us in the future.

>

> I am interested what you all have to say about this. Take a few moments to check it out.

>

> Mike

>

=

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2-4-6-8 WHO DO WE APPRITEATE YAHOO YAHOO HOORY I'M NOT GOING TO SCHOOL TOMMORROW

To: "Soundsensitivity " <Soundsensitivity > Sent: Monday, June 4, 2012 1:31 PMSubject: Re: Re: SPD revisited

There were a lot of eyes to evaluate. It takes a bit over an hour to do the whole test.

All for the cause of research.

There is a question in there regarding how patient a person you are.

You may have to answer in the negative.

MikeSent from my iPad

I started to do it, but how many pages of eyes are there???? This is really getting tedious.Liesa> I took the study that they have online. Very interesting and fits many of us. I recommend taking it. This research could help us in the future.> > I am interested what you all have to say about this. Take a few moments to check it out. > > Mike>=

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wHERE THE SCREENING DONE

To: Soundsensitivity Sent: Monday, June 4, 2012 2:01 PMSubject: Re: SPD revisited

I did the full test - how do I get the results?> > > > I took the study that they have online. Very interesting and fits many of us. I recommend taking it. This research could help us in the future.> > > > I am interested what you all have to say about this. Take a few moments to check it out. > > > > Mike> >>

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HI Colleen, I too spent many years in "therapy" trying to find the root cause of my Misophonia( though I didn't have a name for it then). Always thought it had to do with my childhood traumas, but it had little if anything to do with that. I thought that maybe I was just conditioned by my Misophonic mother. I have since, after many, many years of therapy concluded that was not the cause either. I do think we have a form of SPD ,but I don't think that their treatments from what I see are much more than bandaids. What is needed is an accurate understanding of the causes and a workable

cure. Hopefully we will get there soon!Mike To: Soundsensitivity Sent: Monday, June 4, 2012 8:33 AM Subject: Re: SPD revisited

Mike,

Thanks for the video link about SPD. I went through the OT therapy on the video as an adult even though it's primarily for kids. It didn't work for me, but I know it worked for a women who was in therapy the same time I was. She was younger and had not gone through menopause. I do wonder if that made the difference.

I'm not too happy with Dr. Kraus in the video who is trying to get the condition published in the Psychiatric Manual. I spent many hours on the proverbial couch in my twenties, and my doctor was never able to tie my mysterious symptoms to any mental disorder. Many years later when I was officially tested and diagnosed with SPD by an OT, my psychologist was relieved that I had identified my neurological condition and that he hadn't failed to properly diagnose and treat me within his realm of education and knowledge.

There has been a push for many years to get SPD included in the Diagnostic and Statistical Manual, but to my know there is still no DSM code. I don't understand the reluctance by the medical community, except that the thinking may be if an MD can't diagnose and treat it, it doesn't exist.

Colleen

>

>

>

> After reading so many posts here and seeing how many different types of sensitivities people here experience, I believe that SPD (Sensory Perception Disorder)

> is worth checking out. I am beginning to believe that we may need to broaden the definition of Misophonia/4S or whatever label one places on our condition. Many people here have this disorder to some degree.

>

> Sound is just one sensitivity, and though the most predominant, it is apparent that most of us

> suffer to some degree with other sensory sensitivities. They seem to me to go had and hand. Our senses are just amplified and hypersensitive.

> Granted, most of us are unique with the eating and other human sounds being so pronounced. But we are at least a subset of SPD in my estimation.

> And the SPD recognizes us as such.

>

> I took the study that they have online. Very interesting and fits many of us. I recommend taking it. This research could help us in the future.

>

> Here is a TV news story I found interesting on their website.

>

> http://abclocal.go.com/wls/story?section=news/health & id=7570659

>

>

> And here is the link again to the study.

>

> http://spdfoundation.net/researchlanding.html

>

>

> I am interested what you all have to say about this. Take a few moments to check it out.

>

> Mike

>

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