Re: other senses affected????

[Guest guest]

a,The site of people chewing gum, especially those that I know I have to be with can still, at 60 years old, be very upsetting to me. Young people seem to have a more difficult time with Miso/4S since they have not yet developed sufficient coping mechanisms. When I was a teenager, in the "60's" I remember staying stoned on Pot and and alcohol and other drugs and isolating myself much of the time. It got worse as I got into my later teens. I didn't mind being alone as much when I was "high". It is very sad now that I think about it. I missed out on so much and have felt that loss throughout most of my life. When I was 40 I got divorced and acted outthat loss of my youth for

about 10 years. A grown man acting like a teenager. Pretty pathetic. Another wonderful side effect of this disease.But I eventually cleaned up my act and began a fairly strict regimen of diet, exercise, gradual socialization, spiritual advancement,prayer and just just plain maturity. I live a fairly normal life now. I have learned how to better avoid trigger situations. My point here is that young people have not learned how to arrange their lives so they can live with this. Teenage hormones don't help any either. I believe that going forward more accommodations will be made now that we are increasing awareness of our problem. But your 15 year old will have to learn what works best for her. She may need to tell friends, teacher, and future employers of her problem. She may need to learn to be more assertive. And I think that proper

diet(watch the sugar and junk!),exercise and relaxation methods will bea big help to her. Intense aerobic exercise helps moods and releases endorphins that relax the mind and body. It has saved my life. Luckily she has you to help her as well as this group. It will probably take time and patience, but there really is no other choice. There is hope!Best of luck with your daughter.Mike To:

Soundsensitivity Sent: Wednesday, May 23, 2012 9:21 PM Subject: other senses affected????

My 15 year olds Misophonia is severe. I keep seeing people post about headphones and aides that send white noise etc... This would NEVER work for her because with gum for instance it is now the site of seeing people chew and the smell of it that also sets her off in addition to hearing the noises. Its so severe she knew her little sister had gum at a friends house and she freaked over it! Her sister wasnt even around her!!! But just the thought set her off. Are others in the same situation? It is really a FT job trying to deal with my daughters issues. It is tiring and wearing me out. I often think if someone doesnt find a cure she will be living with me at age 30. Ugh.

[Guest guest]

I agree that teens have it extra hard with hormones and with a no sugar diet, no junk food and exercise and plenty of sleep, that's a big one for me. She may benefit from CBT as well as NFB nuerofeedback which has helped some of us and in 2 cases eliminated Misophonia all together (it took them 80 sessions, I'm only at session 17). Good luckHeidiSent from my iPhoneAsk me how to Get Real Amazing Skin with a Natural Productwww.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn May 24, 2012, at 3:54 AM, Lawrence wrote:

a,The site of people chewing gum, especially those that I know I have to be with can still, at 60 years old, be very upsetting to me. Young people seem to have a more difficult time with Miso/4S since they have not yet developed sufficient coping mechanisms. When I was a teenager, in the "60's" I remember staying stoned on Pot and and alcohol and other drugs and isolating myself much of the time. It got worse as I got into my later teens. I didn't mind being alone as much when I was "high". It is very sad now that I think about it. I missed out on so much and have felt that loss throughout most of my life. When I was 40 I got divorced and acted outthat loss of my youth for

about 10 years. A grown man acting like a teenager. Pretty pathetic. Another wonderful side effect of this disease.But I eventually cleaned up my act and began a fairly strict regimen of diet, exercise, gradual socialization, spiritual advancement,prayer and just just plain maturity. I live a fairly normal life now. I have learned how to better avoid trigger situations. My point here is that young people have not learned how to arrange their lives so they can live with this. Teenage hormones don't help any either. I believe that going forward more accommodations will be made now that we are increasing awareness of our problem. But your 15 year old will have to learn what works best for her. She may need to tell friends, teacher, and future employers of her problem. She may need to learn to be more assertive. And I think that proper

diet(watch the sugar and junk!),exercise and relaxation methods will bea big help to her. Intense aerobic exercise helps moods and releases endorphins that relax the mind and body. It has saved my life. Luckily she has you to help her as well as this group. It will probably take time and patience, but there really is no other choice. There is hope!Best of luck with your daughter.Mike To:

Soundsensitivity Sent: Wednesday, May 23, 2012 9:21 PM Subject: other senses affected????

My 15 year olds Misophonia is severe. I keep seeing people post about headphones and aides that send white noise etc... This would NEVER work for her because with gum for instance it is now the site of seeing people chew and the smell of it that also sets her off in addition to hearing the noises. Its so severe she knew her little sister had gum at a friends house and she freaked over it! Her sister wasnt even around her!!! But just the thought set her off. Are others in the same situation? It is really a FT job trying to deal with my daughters issues. It is tiring and wearing me out. I often think if someone doesnt find a cure she will be living with me at age 30. Ugh.

[Guest guest]

Sense your daughter is young, she may benefit from therapy offered by specially

trained occupational therapies. They treat mostly children with sensory

disorders.

Unfortunately, it's hard to find these OT's and depends on where you live. I'm

in the Dallas area and had access to specially trained occupational therapists.

The therapies seem unorthodox, but so is this disorder. Perhaps you can contact

them and ask if they know of any OT's in your area.

http://www.ntxtherapyinnovations.com

Some insurance companies cover it out-of-network.

Good luck.

Colleen

>

> My 15 year olds Misophonia is severe. I keep seeing people post about

headphones and aides that send white noise etc... This would NEVER work for her

because with gum for instance it is now the site of seeing people chew and the

smell of it that also sets her off in addition to hearing the noises. Its so

severe she knew her little sister had gum at a friends house and she freaked

over it! Her sister wasnt even around her!!! But just the thought set her off.

Are others in the same situation? It is really a FT job trying to deal with my

daughters issues. It is tiring and wearing me out. I often think if someone

doesnt find a cure she will be living with me at age 30. Ugh.

>

[Guest guest]

a, it's the same for me. I'm 14 years old. The sight of ny parents chewing or drinking FREAKS me out. Even if I don't hear or see it, and I know they're eating, I get anxious and its almost as if I'm imagining the sounds. I also get paranoid about them chewing, smacking gum, yawning etc. even if they aren't. It really sucks, but at least my parents and close relatives are my only trigger people.

My 15 year olds Misophonia is severe. I keep seeing people post about headphones and aides that send white noise etc... This would NEVER work for her because with gum for instance it is now the site of seeing people chew and the smell of it that also sets her off in addition to hearing the noises. Its so severe she knew her little sister had gum at a friends house and she freaked over it! Her sister wasnt even around her!!! But just the thought set her off. Are others in the same situation? It is really a FT job trying to deal with my daughters issues. It is tiring and wearing me out. I often think if someone doesnt find a cure she will be living with me at age 30. Ugh.

=

[Guest guest]

My son is 9 years old and he is the same way. His sister is his main trigger

person. If she is just holding a cup, not drinking anything, he begins to

scream and go into a rage. It's no longer just about the sounds but the

anticipation of the sound. He does have headphones that help when he is in his

room and sometimes in the car. I know it is exhausting. It is comforting just

to know other people are experiencing the same thing.

>

> My 15 year olds Misophonia is severe. I keep seeing people post about

headphones and aides that send white noise etc... This would NEVER work for her

because with gum for instance it is now the site of seeing people chew and the

smell of it that also sets her off in addition to hearing the noises. Its so

severe she knew her little sister had gum at a friends house and she freaked

over it! Her sister wasnt even around her!!! But just the thought set her off.

Are others in the same situation? It is really a FT job trying to deal with my

daughters issues. It is tiring and wearing me out. I often think if someone

doesnt find a cure she will be living with me at age 30. Ugh.

>

[Guest guest]

It is interesting you said your sons sister is his trigger- my younger daughter

is also a HUGE trigger of my older daughter. I am at my wits end. I cant even

ride in a car with them- I want to jump into traffic. Today my youngest wanted

to bring a travel mug in the car- well her sister went NUTS.... refused to get

in the car yelling. I said she wont drink it in the car- she said I dont care

it is in the car and I will have to watch her blah blah blah. The younger one

is freaking I wont drink it I want it when we get there etc.... I finally had to

scream for the younger one to PLEASE leave the cup home so we could go!!!! It is

crazy. I really wonder what this is doing to my youngest daughter - it has to

be affecting her. Sad.

[Guest guest]

I read NFB helped, but two cured cases? Did I miss something?

Hopefully,

From: Heidi Salerno

Sent: Thursday, May 24, 2012 4:18 AM

To: Soundsensitivity

Subject: Re: other senses affected????

I agree that teens have it extra hard with hormones and with a no sugar diet, no junk food and exercise and plenty of sleep, that's a big one for me. She may benefit from CBT as well as NFB nuerofeedback which has helped some of us and in 2 cases eliminated Misophonia all together (it took them 80 sessions, I'm only at session 17).

Good luck

Heidi

Sent from my iPhone

Ask me how to Get Real Amazing Skin with a Natural Product

www.heidisalerno.nerium.com

Happy Dancing!

www.jitterbal.com

a,

The site of people chewing gum, especially those that I know I have to be with can still, at 60 years old, be very upsetting to me.

Young people seem to have a more difficult time with Miso/4S since they have not yet developed sufficient coping mechanisms.

When I was a teenager, in the "60's" I remember staying stoned on Pot and and alcohol and other drugs and isolating myself much

of the time. It got worse as I got into my later teens. I didn't mind being alone as much when I was "high". It is very sad now that I

think about it. I missed out on so much and have felt that loss throughout most of my life. When I was 40 I got divorced and acted out

that loss of my youth for about 10 years. A grown man acting like a teenager. Pretty pathetic.

Another wonderful side effect of this disease.

But I eventually cleaned up my act and began a fairly strict regimen of diet, exercise, gradual socialization, spiritual advancement,prayer and just

just plain maturity. I live a fairly normal life now. I have learned how to better avoid trigger situations.

My point here is that young people have not learned how to arrange their lives so they can live with this. Teenage hormones don't help any either. I believe that going forward more accommodations will be made

now that we are increasing awareness of our problem. But your 15 year old will have to learn what works best for her. She may need to tell friends, teacher, and future

employers of her problem. She may need to learn to be more assertive. And I think that proper diet(watch the sugar and junk!),exercise and relaxation methods will be

a big help to her. Intense aerobic exercise helps moods and releases endorphins that relax the mind and body. It has saved my life.

Luckily she has you to help her as well as this group. It will probably take time and patience, but there really is no other choice. There is hope!

Best of luck with your daughter.

Mike

To: Soundsensitivity Sent: Wednesday, May 23, 2012 9:21 PMSubject: other senses affected????

My 15 year olds Misophonia is severe. I keep seeing people post about headphones and aides that send white noise etc... This would NEVER work for her because with gum for instance it is now the site of seeing people chew and the smell of it that also sets her off in addition to hearing the noises. Its so severe she knew her little sister had gum at a friends house and she freaked over it! Her sister wasnt even around her!!! But just the thought set her off. Are others in the same situation? It is really a FT job trying to deal with my daughters issues. It is tiring and wearing me out. I often think if someone doesnt find a cure she will be living with me at age 30. Ugh.