Re: My other child is now showing misophonia symptoms...

June 11, 2012

I know a pair of sisters that I grew up with that both have had misophonia as far back as they can remember, but their brother doesn't have it. (They just now learned it has a name.)

Missy in Nashville

Ugh! My now 12 year old who has severe symptoms with birds singing, and ticking clocks, was bad enough. Now my 10 year old has just recently been reacting to my husband's eating, and throat clearng with extreme irritation. Cannot be around him, without headphones, and I feel like my life is going to be very challenging.

Does anyone else have more than one child with symptoms? Both my husband and I show strong irritations to certain sounds, but not like this. Not to the point of fight or flight.

M

June 12, 2012

I am so very sorry. My aunt has it, her daughter has it, my second cousin and her daughter have it as well. Siblings don't surprise me at all especially since you and your husband are on the sensitive side. But I'm so very sorry. Sent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 11, 2012, at 7:33 PM, M M wrote:

Ugh! My now 12 year old who has severe symptoms with birds singing, and ticking clocks, was bad enough. Now my 10 year old has just recently been reacting to my husband's eating, and throat clearng with extreme irritation. Cannot be around him, without headphones, and I feel like my life is going to be very challenging.

Does anyone else have more than one child with symptoms? Both my husband and I show strong irritations to certain sounds, but not like this. Not to the point of fight or flight.

M

June 12, 2012

I am very sorry as well. At least there is some hope and support here. And you do have knowledge of how to deal with this to some degree. It will be a challenge but I am sure you are up to it. Don't despair, Mike Sent from my iPad

I am so very sorry. My aunt has it, her daughter has it, my second cousin and her daughter have it as well. Siblings don't surprise me at all especially since you and your husband are on the sensitive side. But I'm so very sorry. Sent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 11, 2012, at 7:33 PM, M M wrote:

Ugh! My now 12 year old who has severe symptoms with birds singing, and ticking clocks, was bad enough. Now my 10 year old has just recently been reacting to my husband's eating, and throat clearng with extreme irritation. Cannot be around him, without headphones, and I feel like my life is going to be very challenging.

Does anyone else have more than one child with symptoms? Both my husband and I show strong irritations to certain sounds, but not like this. Not to the point of fight or flight.

M

=

June 12, 2012

I just have one child that has misophonia. Though, since it started at age 4.....I'm sure I'm in for a world of hurt. Especially when he begins school.

To: "Soundsensitivity " <Soundsensitivity > Sent: Tuesday, June 12, 2012 6:24 AMSubject: Re: My other child is now showing misophonia symptoms...

I am very sorry as well. At least there is some hope and support here. And you do have knowledge of how to deal with this to some degree. It will be a challenge but I am sure you are up to it.

Don't despair,

Mike Sent from my iPad

I am so very sorry. My aunt has it, her daughter has it, my second cousin and her daughter have it as well. Siblings don't surprise me at all especially since you and your husband are on the sensitive side. But I'm so very sorry. Sent from my iPhone

Real Results. Real science.

Age-Defying Skin.

www.heidisalerno.nerium.com

Happy Dancing!

www.jitterbal.com

Ugh! My now 12 year old who has severe symptoms with birds singing, and ticking clocks, was bad enough. Now my 10 year old has just recently been reacting to my husband's eating, and throat clearng with extreme irritation. Cannot be around him, without headphones, and I feel like my life is going to be very challenging.

Does anyone else have more than one child with symptoms? Both my husband and I show strong irritations to certain sounds, but not like this. Not to the point of fight or flight.

M=

June 12, 2012

It is extremely difficult. I have a child who cannot go outside while the birds are out. That is the entire day. Mornings are horrific. Imagine, a child that cannot go outside, and she has no clue, why she is the only one who HATES the sound. We have to run fans in the house. My husband cannot stand it that we cannot open windows. I am in the middle of a family who doesn't understand this, trying to balance it so everyone is happy. It is sooo frustrating.

While my husband says he understands, he is in denial. When she tries to venture outside, it is so brief, and then she runs in slamming the door. So, he thinks, " See, she did it. She went out. " Okay...for 2 minutes. Yes, she's healed!

I mean, the grandparents are in complete denial. I'm sick of trying to explain to people, and I shouldn't have to explain it to relatives. It's bad enough, she is embarrassed by it, to have your own relatives think you are crazy at the age of 12 is quite a burden.

Sorry to vent. But now that my other daughter is hating the chewing and throat clearing, I swear I don't know how much one can take. I long for winter, no birds, and peace. Exept for dinner now.

M

I just have one child that has misophonia. Though, since it started at age 4.....I'm sure I'm in for a world of hurt. Especially when he begins school.

To: " Soundsensitivity " <Soundsensitivity >

Sent: Tuesday, June 12, 2012 6:24 AMSubject: Re: My other child is now showing misophonia symptoms...

I am very sorry as well. At least there is some hope and support here. And you do have knowledge of how to deal with this to some degree. It will be a challenge but I am sure you are up to it.

Don't despair,

Mike Sent from my iPad

I am so very sorry. My aunt has it, her daughter has it, my second cousin and her daughter have it as well. Siblings don't surprise me at all especially since you and your husband are on the sensitive side. But I'm so very sorry.

Sent from my iPhone

Real Results. Real science.

Age-Defying Skin.

www.heidisalerno.nerium.com

Happy Dancing!

www.jitterbal.com

Ugh! My now 12 year old who has severe symptoms with birds singing, and ticking clocks, was bad enough. Now my 10 year old has just recently been reacting to my husband's eating, and throat clearng with extreme irritation. Cannot be around him, without headphones, and I feel like my life is going to be very challenging.

Does anyone else have more than one child with symptoms? Both my husband and I show strong irritations to certain sounds, but not like this. Not to the point of fight or flight.

M=

June 12, 2012

Hi M,

Just wondering if it is a fear of birds (ornithophobia) rather than misophonia

that your daughter is experiencing. I thought misophonia was a severe reaction

to human-made sounds and human behaviors, but perhaps I'm mistaken.

________________________________

> To: Soundsensitivity

> From: dammam6total@...

> Date: Tue, 12 Jun 2012 20:29:47 -0400

> Subject: Re: My other child is now showing

> misophonia symptoms...

>

> It is extremely difficult. I have a child who cannot go outside while

> the birds are out. That is the entire day. Mornings are horrific.

> Imagine, a child that cannot go outside, and she has no clue, why she

> is the only one who HATES the sound. We have to run fans in the house.

> My husband cannot stand it that we cannot open windows. I am in the

> middle of a family who doesn't understand this, trying to balance it so

> everyone is happy. It is sooo frustrating.

>

> While my husband says he understands, he is in denial. When she tries

> to venture outside, it is so brief, and then she runs in slamming the

> door. So, he thinks, " See, she did it. She went out. " Okay...for 2

> minutes. Yes, she's healed!

>

> I mean, the grandparents are in complete denial. I'm sick of trying to

> explain to people, and I shouldn't have to explain it to relatives.

> It's bad enough, she is embarrassed by it, to have your own relatives

> think you are crazy at the age of 12 is quite a burden.

>

> Sorry to vent. But now that my other daughter is hating the chewing

> and throat clearing, I swear I don't know how much one can take. I

> long for winter, no birds, and peace. Exept for dinner now.

>

> M

>

> On Tue, Jun 12, 2012 at 5:52 PM, Fournier

> > wrote:

>

> I just have one child that has misophonia. Though, since it started at

> age 4.....I'm sure I'm in for a world of hurt. Especially when he

> begins school.

>

> From: Lawrence

> <michael.lawrence57@...>

> To:

> " Soundsensitivity <mailto:Soundsensitivity > "

> <Soundsensitivity <mailto:Soundsensitivity >>

> Sent: Tuesday, June 12, 2012 6:24 AM

> Subject: Re: My other child is now showing

> misophonia symptoms...

>

> I am very sorry as well. At least there is some hope and support here.

> And you do have knowledge of how to deal with this to some degree. It

> will be a challenge but I am sure you are up to it.

> Don't despair,

>

> Mike

>

> Sent from my iPad

>

> On Jun 12, 2012, at 2:56 AM, Heidi Salerno

> > wrote:

>

> I am so very sorry. My aunt has it, her daughter has it, my second

> cousin and her daughter have it as well. Siblings don't surprise me at

> all especially since you and your husband are on the sensitive side.

> But I'm so very sorry.

>

> Sent from my iPhone

>

> Real Results. Real science.

> Age-Defying Skin.

> www.heidisalerno.nerium.com<http://www.heidisalerno.nerium.com/>

> Happy Dancing!

> www.jitterbal.com<http://www.jitterbal.com/>

>

> On Jun 11, 2012, at 7:33 PM, M M

> > wrote:

>

> Ugh! My now 12 year old who has severe symptoms with birds singing,

> and ticking clocks, was bad enough. Now my 10 year old has just

> recently been reacting to my husband's eating, and throat clearng with

> extreme irritation. Cannot be around him, without headphones, and I

> feel like my life is going to be very challenging.

>

> Does anyone else have more than one child with symptoms? Both my

> husband and I show strong irritations to certain sounds, but not like

> this. Not to the point of fight or flight.

>

> M

> =

>

June 12, 2012

My son is similar, but only with some bird " songs " . Crows are okay, but

mockingbirds bother him, particularly because they make a variety of

different sounds. At least in his case, he definitely does not have any

fear of birds. I suggested putting something out in the yard to scare

the birds away, but he can hear the ones that are at the neighbors,

across the street, on the phone wires, etc.

Re: My other child is now showing

> misophonia symptoms...

>

> I am very sorry as well. At least there is some hope and support here.

> And you do have knowledge of how to deal with this to some degree. It

> will be a challenge but I am sure you are up to it.

> Don't despair,

>

> Mike

>

> Sent from my iPad

>

> On Jun 12, 2012, at 2:56 AM, Heidi Salerno

> > wrote:

>

> I am so very sorry. My aunt has it, her daughter has it, my second

> cousin and her daughter have it as well. Siblings don't surprise me at

> all especially since you and your husband are on the sensitive side.

> But I'm so very sorry.

>

> Sent from my iPhone

>

> Real Results. Real science.

> Age-Defying Skin.

> www.heidisalerno.nerium.com<http://www.heidisalerno.nerium.com/>

> Happy Dancing!

> www.jitterbal.com<http://www.jitterbal.com/>

>

> On Jun 11, 2012, at 7:33 PM, M M

> > wrote:

>

> Ugh! My now 12 year old who has severe symptoms with birds singing,

> and ticking clocks, was bad enough. Now my 10 year old has just

> recently been reacting to my husband's eating, and throat clearng with

> extreme irritation. Cannot be around him, without headphones, and I

> feel like my life is going to be very challenging.

>

> Does anyone else have more than one child with symptoms? Both my

> husband and I show strong irritations to certain sounds, but not like

> this. Not to the point of fight or flight.

>

> M

> =

>

------------------------------------

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Thank you. MJ

June 12, 2012

It is def. not fear of birds. I can take her into a pet store. My daughter did not begin with birds. It was her sister's breathing (they share a room) in the middle of the night, Her sister had a cold, and was slightly breathing a little louder while she slept. It was barely noticeable. But she could not sleep, it bothered her the entire night.

That was the beginning. A sound machine handled that. Then it was the Grandfather Clock, and the cuckoo clock, making the ticking sound, in a quiet house. She could not do her homework, she would cry. Then the birds (which is the worst) because it breaks my heart that she cannot go play outside with her sibings. It is mainly the mocking bird, but the baltimore orioles are extremely loud, and she says " it's because they keep repeating the same sound. "

She does manage to go out a little more if there is alot of background noise (public swimming pools, festivals, cities, etc. But in the country, there is nothing but nature.

M

My son is similar, but only with some bird " songs " . Crows are okay, butmockingbirds bother him, particularly because they make a variety of

different sounds. At least in his case, he definitely does not have anyfear of birds. I suggested putting something out in the yard to scarethe birds away, but he can hear the ones that are at the neighbors,

across the street, on the phone wires, etc.

Re: My other child is now showing> misophonia symptoms...>>> I am very sorry as well. At least there is some hope and support here.

> And you do have knowledge of how to deal with this to some degree. It> will be a challenge but I am sure you are up to it.> Don't despair,>> Mike>> Sent from my iPad

>> On Jun 12, 2012, at 2:56 AM, Heidi Salerno> > wrote:

>>> I am so very sorry. My aunt has it, her daughter has it, my second> cousin and her daughter have it as well. Siblings don't surprise me at> all especially since you and your husband are on the sensitive side.

> But I'm so very sorry.>> Sent from my iPhone>> Real Results. Real science.> Age-Defying Skin.> www.heidisalerno.nerium.com<http://www.heidisalerno.nerium.com/>

> Happy Dancing!> www.jitterbal.com<http://www.jitterbal.com/>>> On Jun 11, 2012, at 7:33 PM, M M

> > wrote:>>> Ugh! My now 12 year old who has severe symptoms with birds singing,

> and ticking clocks, was bad enough. Now my 10 year old has just> recently been reacting to my husband's eating, and throat clearng with> extreme irritation. Cannot be around him, without headphones, and I

> feel like my life is going to be very challenging.>> Does anyone else have more than one child with symptoms? Both my> husband and I show strong irritations to certain sounds, but not like> this. Not to the point of fight or flight.

>> M> =>>>>>>>------------------------------------PLEASE BE AWARE THIS IS A STRICTLY CONFIDENTIAL GROUP AND NO MESSAGESARE TO BE USED FOR ANY PURPOSE OUTSIDE OF THE YAHOO GROUP MEMBERSHIP

SITE OR REPRODUCED OR COPIED AND MAILED FOR ANY PURPOSE.ALSO DO NOT SHARE MEMBER EMAIL ADDRESSES OR NAMES WITH ANYONE.Thank you. MJ

June 13, 2012

Kristy, For me, it's nice to hear from someone on the receiving end. I can't tell you how guilty I have felt for the outbursts with those I love. I can't seem to help it and my kids and I have learned to make a joke out of it - which has helped a little, but the guilt over the years has been worse than the miso. I know it has to be hard on the other end, and for that I am so sorry! We really don't mean to hurt anyone. As for the hearing test - so this is interesting as I recall testing as far above avergage when they ran the general tests in grade school. I was so proud that my hearing (the hard to hear decibles) was increbly high. I never tied that to my issue and of course had no idea it meant disaster

as my life progressed. Thank you for the long and thoughtful email and good luck with your daughter. Stacey To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, June 13, 2012 1:44

PM Subject: Re: My other child is now showing misophonia symptoms...

My husband and son suffer from misophonia and my ten year old daughter has started to show signs of it as well. I have been hoping that, perhaps, it is a learned "secondary response" since she is continually experiencing reactions from my husband and son. I have noticed that, over the years, even I have developed a "heightened" awareness of their trigger noises. This may be because I become very stressed (literally sick to my stomach) when I hear noises that I know are their triggers yet have no control over the situation.

My daughter came out of the room the other night because a ticking noise was keeping her awake. I went up to her room and found her watch in a drawer. I had to hold my breath and place the watch up to my ear to even hear it! My son had hearing tests at Children's Hospital and was found to have hearing ranges beyond the normal ranges. Has anyone else found this?

I can't bring myself to face that she might have misophonia. I see first hand the toll it takes not only on the person with misophonia but with their family members and loved ones. I know this is not probably the appropriate forum for sharing what it is like to live with someone suffering from misophonia, but we need support as well. I am a highly sensitive person and it takes me a long time to recover, even when I tell myself not to take it personally. It is also really difficult for me to see my husband react to my son or to deal with my son screaming at my daughter. I worry about her self esteem as she is also deeply sensitive. I sometimes feel as if I suffer from post traumatic stress due to being on the receiving end of so many outbursts. In addition, when my kids suffer, I suffer too.

I have advocated for my son for years to try to help school staff and teachers understand and accommodate his misophonia. We have experienced the "they need to get over it" attitude from many extended family members. My parenting skills have been called into question because of this. I have known for years that this was a real disease/issue although I know many have thought I was crazy or making excuses I am so glad for all of you that this syndrome has been named and brought to the attention of the medical community, etc.

Regards,

Kristy

Sent from my iPad

June 13, 2012

My husband and son suffer from misophonia and my ten year old daughter has

started to show signs of it as well. I have been hoping that, perhaps, it is a

learned " secondary response " since she is continually experiencing reactions

from my husband and son. I have noticed that, over the years, even I have

developed a " heightened " awareness of their trigger noises. This may be because

I become very stressed (literally sick to my stomach) when I hear noises that I

know are their triggers yet have no control over the situation.

My daughter came out of the room the other night because a ticking noise was

keeping her awake. I went up to her room and found her watch in a drawer. I had

to hold my breath and place the watch up to my ear to even hear it! My son had

hearing tests at Children's Hospital and was found to have hearing ranges beyond

the normal ranges. Has anyone else found this?

I can't bring myself to face that she might have misophonia. I see first hand

the toll it takes not only on the person with misophonia but with their family

members and loved ones. I know this is not probably the appropriate forum for

sharing what it is like to live with someone suffering from misophonia, but we

need support as well. I am a highly sensitive person and it takes me a long time

to recover, even when I tell myself not to take it personally. It is also really

difficult for me to see my husband react to my son or to deal with my son

screaming at my daughter. I worry about her self esteem as she is also deeply

sensitive. I sometimes feel as if I suffer from post traumatic stress due to

being on the receiving end of so many outbursts. In addition, when my kids

suffer, I suffer too.

I have advocated for my son for years to try to help school staff and teachers

understand and accommodate his misophonia. We have experienced the " they need

to get over it " attitude from many extended family members. My parenting skills

have been called into question because of this. I have known for years that this

was a real disease/issue although I know many have thought I was crazy or making

excuses I am so glad for all of you that this syndrome has been named and

brought to the attention of the medical community, etc.

Regards,

Kristy

Sent from my iPad

June 13, 2012

Kristy,

I will keep your family in my prayers. In all honesty, that is the only thing keeping me from losing it. I go for long walks every morning, very early, (the worst time of day for my daughter as the birds are singing their heart out) and pray, and ask God to please heal my daughter (and several others on here as well whose stories touched me deeply). I pray for some moments in the day where she can feel apart of the family as we spend so much time outdoors. And I pray that Dr. and those researching this will find out more so those who struggle can find ways to cope.

You are so right, that those who deal with this need support as well. I am constantly trying to find the balance. She wants the windows and doors closed at all times, and fans running. My husband thinks I am " caving " to her everytime. I am on one hand trying to explain the severity of this to him, and at the other, trying to get my daughter to learn ways to cope without a meltdown. The other kids think it is so unfair to have to sleep in a stuffy room without windows open, and so I have a fan on each of them.

The only way I can get through to my husband (who is claustrophobic) is to say, " how about I put in a large box, just for one hour, and see if that helps you with your claustrophobia. I'll be right outside the box, and talk you through it. " because he is still under the impression, that if we don't give in to her and just make her go outside, she will get used to it. He's seen the meltdowns, the tears, and yet I think deep down he just doesn't want to believe it is there. He just wishes it would go away.

So...until a cure is found, or a healing comes, may God bless you.

M

Kristy,

For me, it's nice to hear from someone on the receiving end. I can't tell you how guilty I have felt for the outbursts with those I love. I can't seem to help it and my kids and I have learned to make a joke out of it - which has helped a little, but the guilt over the years has been worse than the miso. I know it has to be hard on the other end, and for that I am so sorry! We really don't mean to hurt anyone.

As for the hearing test - so this is interesting as I recall testing as far above avergage when they ran the general tests in grade school. I was so proud that my hearing (the hard to hear decibles) was increbly high. I never tied that to my issue and of course had no idea it meant disaster as my life progressed.

Thank you for the long and thoughtful email and good luck with your daughter.

Stacey

To: " Soundsensitivity " <Soundsensitivity >

Sent: Wednesday, June 13, 2012 1:44 PMSubject: Re: My other child is now showing misophonia symptoms...

My husband and son suffer from misophonia and my ten year old daughter has started to show signs of it as well. I have been hoping that, perhaps, it is a learned " secondary response " since she is continually experiencing reactions from my husband and son. I have noticed that, over the years, even I have developed a " heightened " awareness of their trigger noises. This may be because I become very stressed (literally sick to my stomach) when I hear noises that I know are their triggers yet have no control over the situation.

My daughter came out of the room the other night because a ticking noise was keeping her awake. I went up to her room and found her watch in a drawer. I had to hold my breath and place the watch up to my ear to even hear it! My son had hearing tests at Children's Hospital and was found to have hearing ranges beyond the normal ranges. Has anyone else found this?

I can't bring myself to face that she might have misophonia. I see first hand the toll it takes not only on the person with misophonia but with their family members and loved ones. I know this is not probably the appropriate forum for sharing what it is like to live with someone suffering from misophonia, but we need support as well. I am a highly sensitive person and it takes me a long time to recover, even when I tell myself not to take it personally. It is also really difficult for me to see my husband react to my son or to deal with my son screaming at my daughter. I worry about her self esteem as she is also deeply sensitive. I sometimes feel as if I suffer from post traumatic stress due to being on the receiving end of so many outbursts. In addition, when my kids suffer, I suffer too.

I have advocated for my son for years to try to help school staff and teachers understand and accommodate his misophonia. We have experienced the " they need to get over it " attitude from many extended family members. My parenting skills have been called into question because of this. I have known for years that this was a real disease/issue although I know many have thought I was crazy or making excuses I am so glad for all of you that this syndrome has been named and brought to the attention of the medical community, etc.

Regards,KristySent from my iPad

June 13, 2012

Thank you for being such a wonderful parent:) Wish there were more like you out thereAudrey To: "Soundsensitivity " <Soundsensitivity > Sent: Wednesday, June 13, 2012 4:44 PM Subject: Re: My other child is now showing misophonia symptoms...

My husband and son suffer from misophonia and my ten year old daughter has started to show signs of it as well. I have been hoping that, perhaps, it is a learned "secondary response" since she is continually experiencing reactions from my husband and son. I have noticed that, over the years, even I have developed a "heightened" awareness of their trigger noises. This may be because I become very stressed (literally sick to my stomach) when I hear noises that I know are their triggers yet have no control over the situation.

My daughter came out of the room the other night because a ticking noise was keeping her awake. I went up to her room and found her watch in a drawer. I had to hold my breath and place the watch up to my ear to even hear it! My son had hearing tests at Children's Hospital and was found to have hearing ranges beyond the normal ranges. Has anyone else found this?

I can't bring myself to face that she might have misophonia. I see first hand the toll it takes not only on the person with misophonia but with their family members and loved ones. I know this is not probably the appropriate forum for sharing what it is like to live with someone suffering from misophonia, but we need support as well. I am a highly sensitive person and it takes me a long time to recover, even when I tell myself not to take it personally. It is also really difficult for me to see my husband react to my son or to deal with my son screaming at my daughter. I worry about her self esteem as she is also deeply sensitive. I sometimes feel as if I suffer from post traumatic stress due to being on the receiving end of so many outbursts. In addition, when my kids suffer, I suffer too.

I have advocated for my son for years to try to help school staff and teachers understand and accommodate his misophonia. We have experienced the "they need to get over it" attitude from many extended family members. My parenting skills have been called into question because of this. I have known for years that this was a real disease/issue although I know many have thought I was crazy or making excuses I am so glad for all of you that this syndrome has been named and brought to the attention of the medical community, etc.

Regards,

Kristy

Sent from my iPad

June 13, 2012

I feel very touched reading your post. You clearly share your daughter's pain and show a great deal of empathy. I can only imagine how difficult your situation is; you are in essence juggling a whole bunch of individuals around you. I sense that you're trying to make everyone happy. Sounds familiar... I have a 14 year old son who doesn't display any symptoms of misophonia but I feel your pain as a mother. We always want what's best for our children. I think your daughter is lucky to have you as a mom since you show so much understanding and compassion. You may not find solutions for her; I think shell have to find her own coping mechanisms but I think that she'll always be comforted to know that you are there for her. Give your

husband time; I think you're right in assuming he is in denial and probably feels very helpless since he may not know how to deal with the situation ie; find a solution. Good luck,Margaret To: Soundsensitivity Sent: Wednesday, June 13, 2012 8:58:03 PM Subject: Re: Re: My other child is now showing misophonia symptoms...

Kristy,

I will keep your family in my prayers. In all honesty, that is the only thing keeping me from losing it. I go for long walks every morning, very early, (the worst time of day for my daughter as the birds are singing their heart out) and pray, and ask God to please heal my daughter (and several others on here as well whose stories touched me deeply). I pray for some moments in the day where she can feel apart of the family as we spend so much time outdoors. And I pray that Dr. and those researching this will find out more so those who struggle can find ways to cope.

You are so right, that those who deal with this need support as well. I am constantly trying to find the balance. She wants the windows and doors closed at all times, and fans running. My husband thinks I am "caving" to her everytime. I am on one hand trying to explain the severity of this to him, and at the other, trying to get my daughter to learn ways to cope without a meltdown. The other kids think it is so unfair to have to sleep in a stuffy room without windows open, and so I have a fan on each of them.

The only way I can get through to my husband (who is claustrophobic) is to say, "how about I put in a large box, just for one hour, and see if that helps you with your claustrophobia. I'll be right outside the box, and talk you through it." because he is still under the impression, that if we don't give in to her and just make her go outside, she will get used to it. He's seen the meltdowns, the tears, and yet I think deep down he just doesn't want to believe it is there. He just wishes it would go away.

So...until a cure is found, or a healing comes, may God bless you.

M

Kristy,

For me, it's nice to hear from someone on the receiving end. I can't tell you how guilty I have felt for the outbursts with those I love. I can't seem to help it and my kids and I have learned to make a joke out of it - which has helped a little, but the guilt over the years has been worse than the miso. I know it has to be hard on the other end, and for that I am so sorry! We really don't mean to hurt anyone.

As for the hearing test - so this is interesting as I recall testing as far above avergage when they ran the general tests in grade school. I was so proud that my hearing (the hard to hear decibles) was increbly high. I never tied that to my issue and of course had no idea it meant disaster as my life progressed.

Thank you for the long and thoughtful email and good luck with your daughter.

Stacey

To: "Soundsensitivity " <Soundsensitivity >

Sent: Wednesday, June 13, 2012 1:44 PMSubject: Re: My other child is now showing misophonia symptoms...

My husband and son suffer from misophonia and my ten year old daughter has started to show signs of it as well. I have been hoping that, perhaps, it is a learned "secondary response" since she is continually experiencing reactions from my husband and son. I have noticed that, over the years, even I have developed a "heightened" awareness of their trigger noises. This may be because I become very stressed (literally sick to my stomach) when I hear noises that I know are their triggers yet have no control over the situation.

My daughter came out of the room the other night because a ticking noise was keeping her awake. I went up to her room and found her watch in a drawer. I had to hold my breath and place the watch up to my ear to even hear it! My son had hearing tests at Children's Hospital and was found to have hearing ranges beyond the normal ranges. Has anyone else found this?

I can't bring myself to face that she might have misophonia. I see first hand the toll it takes not only on the person with misophonia but with their family members and loved ones. I know this is not probably the appropriate forum for sharing what it is like to live with someone suffering from misophonia, but we need support as well. I am a highly sensitive person and it takes me a long time to recover, even when I tell myself not to take it personally. It is also really difficult for me to see my husband react to my son or to deal with my son screaming at my daughter. I worry about her self esteem as she is also deeply sensitive. I sometimes feel as if I suffer from post traumatic stress due to being on the receiving end of so many outbursts. In addition, when my kids suffer, I suffer too.

I have advocated for my son for years to try to help school staff and teachers understand and accommodate his misophonia. We have experienced the "they need to get over it" attitude from many extended family members. My parenting skills have been called into question because of this. I have known for years that this was a real disease/issue although I know many have thought I was crazy or making excuses I am so glad for all of you that this syndrome has been named and brought to the attention of the medical community, etc.

Regards,KristySent from my iPad

June 13, 2012

Hi Kristy,

I believe I have miso (based on what I understand miso to be) and I also have

great hearing.

Whether great hearing is a prerequisite for miso, I don't know.

While I have not had a hearing test done recently, I know that as a birdwatcher,

I can hear high frequency bird sounds and distant bird sounds that some other

birdwatchers can't hear. Also I have the ability to sort out what species of

birds are calling at times (such as at dawn) when many different species are

calling all at once. The latter ability may be one that anyone can develop with

training. I can quickly recognize the songs and calls of perhaps hundreds of

species.

Sometimes I wonder whether my great hearing, relatively broad hearing range, and

ability to separate out and identify the individual sounds within a chorus have

either caused my miso or at least made it worse.

________________________________

> To: Soundsensitivity

> From: kcreynolds@...

> Date: Wed, 13 Jun 2012 14:44:00 -0600

> Subject: Re: My other child is now showing

> misophonia symptoms...

>

> My husband and son suffer from misophonia and my ten year old daughter

> has started to show signs of it as well. I have been hoping that,

> perhaps, it is a learned " secondary response " since she is continually

> experiencing reactions from my husband and son. I have noticed that,

> over the years, even I have developed a " heightened " awareness of their

> trigger noises. This may be because I become very stressed (literally

> sick to my stomach) when I hear noises that I know are their triggers

> yet have no control over the situation.

>

> My daughter came out of the room the other night because a ticking

> noise was keeping her awake. I went up to her room and found her watch

> in a drawer. I had to hold my breath and place the watch up to my ear

> to even hear it! My son had hearing tests at Children's Hospital and

> was found to have hearing ranges beyond the normal ranges. Has anyone

> else found this?

>

> I can't bring myself to face that she might have misophonia. I see

> first hand the toll it takes not only on the person with misophonia but

> with their family members and loved ones. I know this is not probably

> the appropriate forum for sharing what it is like to live with someone

> suffering from misophonia, but we need support as well. I am a highly

> sensitive person and it takes me a long time to recover, even when I

> tell myself not to take it personally. It is also really difficult for

> me to see my husband react to my son or to deal with my son screaming

> at my daughter. I worry about her self esteem as she is also deeply

> sensitive. I sometimes feel as if I suffer from post traumatic stress

> due to being on the receiving end of so many outbursts. In addition,

> when my kids suffer, I suffer too.

>

> I have advocated for my son for years to try to help school staff and

> teachers understand and accommodate his misophonia. We have experienced

> the " they need to get over it " attitude from many extended family

> members. My parenting skills have been called into question because of

> this. I have known for years that this was a real disease/issue

> although I know many have thought I was crazy or making excuses I am so

> glad for all of you that this syndrome has been named and brought to

> the attention of the medical community, etc.

>

> Regards,

>

> Kristy

>

> Sent from my iPad

>

June 13, 2012

There are quite a few people here (including my son) who can also hear

dog whistles, which are supposedly out of the range of human hearing.

Re: My other child is now showing

> misophonia symptoms...

>

> My husband and son suffer from misophonia and my ten year old daughter

> has started to show signs of it as well. I have been hoping that,

> perhaps, it is a learned " secondary response " since she is continually

> experiencing reactions from my husband and son. I have noticed that,

> over the years, even I have developed a " heightened " awareness of

> their trigger noises. This may be because I become very stressed

> (literally sick to my stomach) when I hear noises that I know are

> their triggers yet have no control over the situation.

>

> My daughter came out of the room the other night because a ticking

> noise was keeping her awake. I went up to her room and found her watch

> in a drawer. I had to hold my breath and place the watch up to my ear

> to even hear it! My son had hearing tests at Children's Hospital and

> was found to have hearing ranges beyond the normal ranges. Has anyone

> else found this?

>

> I can't bring myself to face that she might have misophonia. I see

> first hand the toll it takes not only on the person with misophonia

> but with their family members and loved ones. I know this is not

> probably the appropriate forum for sharing what it is like to live

> with someone suffering from misophonia, but we need support as well. I

> am a highly sensitive person and it takes me a long time to recover,

> even when I tell myself not to take it personally. It is also really

> difficult for me to see my husband react to my son or to deal with my

> son screaming at my daughter. I worry about her self esteem as she is

> also deeply sensitive. I sometimes feel as if I suffer from post

> traumatic stress due to being on the receiving end of so many

> outbursts. In addition, when my kids suffer, I suffer too.

>

> I have advocated for my son for years to try to help school staff and

> teachers understand and accommodate his misophonia. We have

> experienced the " they need to get over it " attitude from many extended

> family members. My parenting skills have been called into question

> because of this. I have known for years that this was a real

> disease/issue although I know many have thought I was crazy or making

> excuses I am so glad for all of you that this syndrome has been named

> and brought to the attention of the medical community, etc.

>

> Regards,

>

> Kristy

>

> Sent from my iPad

>

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Thank you. MJ

June 13, 2012

Dear Kristy,

I think this is EXACTLY the appropriate forum for sharing what it's like to live

with someone who has misophonia, and we all benefited at least a little from

hearing your story. Sometimes it's easy to forget that misophonia also takes a

huge toll on our families and friends. It must be especially heartbreaking for

parents, who have to protect their children from a society that's still far from

understanding misophonia. Thank you for opening up to us.

-Kate K.

>

> My husband and son suffer from misophonia and my ten year old daughter has

started to show signs of it as well. I have been hoping that, perhaps, it is a

learned " secondary response " since she is continually experiencing reactions

from my husband and son. I have noticed that, over the years, even I have

developed a " heightened " awareness of their trigger noises. This may be because

I become very stressed (literally sick to my stomach) when I hear noises that I

know are their triggers yet have no control over the situation.

>

> My daughter came out of the room the other night because a ticking noise was

keeping her awake. I went up to her room and found her watch in a drawer. I had

to hold my breath and place the watch up to my ear to even hear it! My son had

hearing tests at Children's Hospital and was found to have hearing ranges beyond

the normal ranges. Has anyone else found this?

>

> I can't bring myself to face that she might have misophonia. I see first hand