Re: Re: Will you help Dr. Marsha ?

[Guest guest]

Wouldn't it be even better if Neurologists would create that event? I say that because I believe that is who should be researching, studying and treating this. Sadly they keep sending us to psychologists but it's only because they are not yet educated and more importantly because many many neurological issues are treated by psychologist because neurologists don't know how to relate them to their field even though they are clearly neurological problems. It's the big disconnect between health care and mental health care. HeidiSent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 8, 2012, at 10:03 AM, "adah_123" wrote:

Wouldn't it be awesome if the Audiologists could create an event specifically for 4S/Misophonia?

BTW - I think we should consider using terminology as follows:

Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

(Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42

There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

>

> Hi this is Marsha , can you all go to

>

> https://walk.ata.org/team-finder

>

> And support my team, Dr. 's Joyful s?

>

> I would sure love a donation for the ATA. All auditory research might be helpful for those with other auditory disorders, do you see that?

>

>

>

> Marsha

>

[Guest guest]

How about a psychiatrist (MD) instead of a psychologist (PhD) who is also a neurologist?  Although my treatment is for depression/anxiety (because it’s my son who has 4S/Miso), mine is a doctor of both psychiatry (which includes psychology) and neurology and this might be a good combination for 4S/Miso.  My doctor had not previously heard of 4S/Miso, but of course I did educate him J - and he was very receptive and mentioned he had a couple of patients who had 4S/Miso symptoms and he would keep this in mind for the next time he saw them. Anyway, you can google “doctor of psychiatry and neurology†(and maybe include the location) and find that combination along with patient/client ratings, etc.  Just a thought for finding someone who can relate to both fields at the same time for treating 4S/Miso. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Friday, June 08, 2012 11:20 AMTo: Soundsensitivity Subject: Re: Re: Will you help Dr. Marsha ? Wouldn't it be even better if Neurologists would create that event? I say that because I believe that is who should be researching, studying and treating this. Sadly they keep sending us to psychologists but it's only because they are not yet educated and more importantly because many many neurological issues are treated by psychologist because neurologists don't know how to relate them to their field even though they are clearly neurological problems. It's the big disconnect between health care and mental health care. HeidiSent from my iPhone Real Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 8, 2012, at 10:03 AM, " adah_123 " wrote: Wouldn't it be awesome if the Audiologists could create an event specifically for 4S/Misophonia? BTW - I think we should consider using terminology as follows:Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia. (Not " selective " .) And as a subset of Misophonia which is still " diagnosed " as a subset of Hyperacusis 388.42There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further. >> Hi this is Marsha , can you all go to> > https://walk.ata.org/team-finder> > And support my team, Dr. 's Joyful s?> > I would sure love a donation for the ATA. All auditory research might be helpful for those with other auditory disorders, do you see that?> > > > Marsha>

[Guest guest]

Excellent idea Chris!Sent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 8, 2012, at 12:29 PM, "Cummings" wrote:

How about a psychiatrist (MD) instead of a psychologist (PhD) who is also a neurologist? Although my treatment is for depression/anxiety (because it’s my son who has 4S/Miso), mine is a doctor of both psychiatry (which includes psychology) and neurology and this might be a good combination for 4S/Miso. My doctor had not previously heard of 4S/Miso, but of course I did educate him J - and he was very receptive and mentioned he had a couple of patients who had 4S/Miso symptoms and he would keep this in mind for the next time he saw them. Anyway, you can google “doctor of psychiatry and neurology†(and maybe include the location) and find that combination along with patient/client ratings, etc. Just a thought for finding someone who can relate to both fields at the same time for treating 4S/Miso. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Heidi SalernoSent: Friday, June 08, 2012 11:20 AMTo: Soundsensitivity Subject: Re: Re: Will you help Dr. Marsha ? Wouldn't it be even better if Neurologists would create that event? I say that because I believe that is who should be researching, studying and treating this. Sadly they keep sending us to psychologists but it's only because they are not yet educated and more importantly because many many neurological issues are treated by psychologist because neurologists don't know how to relate them to their field even though they are clearly neurological problems. It's the big disconnect between health care and mental health care. HeidiSent from my iPhone Real Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jun 8, 2012, at 10:03 AM, "adah_123" wrote: Wouldn't it be awesome if the Audiologists could create an event specifically for 4S/Misophonia? BTW - I think we should consider using terminology as follows:Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia. (Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further. >> Hi this is Marsha , can you all go to> > https://walk.ata.org/team-finder> > And support my team, Dr. 's Joyful s?> > I would sure love a donation for the ATA. All auditory research might be helpful for those with other auditory disorders, do you see that?> > > > Marsha>

[Guest guest]

I am not sure I follow, are you saying that we should separate ourselves as we do not fit under the Misophonia umbrella term?

 

Wouldn't it be awesome if the Audiologists could create an event specifically for 4S/Misophonia?

BTW - I think we should consider using terminology as follows:

Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

(Not " selective " .) And as a subset of Misophonia which is still " diagnosed " as a subset of Hyperacusis 388.42

There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

>

> Hi this is Marsha , can you all go to

>

> https://walk.ata.org/team-finder

>

> And support my team, Dr. 's Joyful s?

>

> I would sure love a donation for the ATA. All auditory research might be helpful for those with other auditory disorders, do you see that?

>

>

>

> Marsha

>

[Guest guest]

I have had this stupid problem for over 50 years. It has been the centerpiece of my life unfortunately and I have arraigned my life around it. From my experience and from what I have been gathering from all of these posts this is more than a sound issue. If we are going to give it a truly accurate definition we should somehow include all of the other "sensitivities" that most of "us" seem to have. Sound is the major trigger for most people, including myself. It is selective because I love many sounds but hate certain selected ones. I love the sound of birds, but some people are triggered by it and hate those sounds. Some sounds bother me but only if I know that a human being is making them otherwise that identical sound is

benign. Any loud sudden sound can jar my nerves for hours. (loud sneezing for instance). But why are so many of us so unnaturally sensitive to tactile, olfactory and visual triggers. They seem germane to this problem. I think a more accurate definition needs to include this the other sensitivities. We are just plain sensitive to all the senses, with sound usually being number one. We are just Highly Sensitive people! I am a little tired and grumpy this morning, and am being overly "sensitive" to things ( it will pass soon), but this issue of defining what we have is bothering me more than usual. The majority of people just don't seem to be exclusively bothered by sound along. And "soft" sounds is just too narrow a term for me. I will go workout and I will feel better in an hour or

so. Mike To: Soundsensitivity Sent: Friday, June 8, 2012 3:52 PM Subject: Re: Will you help Dr. Marsha ?

FWIW, I have preferred the "Selective SSS" version of 4S. "Soft" is an unclear term in that I don't know whether it means "opposite of loud sounds" or "opposite of hard sounds". Many common triggers are hard sounds (typing, heels, barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from "Soft SSS". Triggers can also be loud - volume is irrelevant. Whereas "Selective SSS" has always made sense to me because only some sounds are a problem and not others. That was always the bizarre thing about it and a difficult thing for others to understand - it's only about a specific (but expanding) collection of sounds while all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

[Guest guest]

Hi Mike,I think that you may be right in that we are perhaps more sensitive than others. However, the key is why do these sounds make us react differently than other people who may also be bothered or slightly bothered? That is, the anger, sweat, restlessness, etc accompanying the annoyance of the sound.I brought up a point this week but I still don't have an answer; many women have brought up hormones and the link between miso and hormones. Granted, there may also be a link. But what about men; what is the proportion of males vs female with the condition?

Anyone have any stats?I also would like to know whether people with misophonia symptoms also have overly sensitive personalities; does anyone think they are just overly sensitive individuals? Margaret To: "Soundsensitivity " <Soundsensitivity > Sent: Saturday, June 9, 2012 12:06:46 PM Subject: Re: Re: Will you help Dr. Marsha ?

I have had this stupid problem for over 50 years. It has been the centerpiece of my life unfortunately and I have arraigned my life around it. From my experience and from what I have been gathering from all of these posts this is more than a sound issue. If we are going to give it a truly accurate definition we should somehow include all of the other "sensitivities" that most of "us" seem to have. Sound is the major trigger for most people, including myself. It is selective because I love many sounds but hate certain selected ones. I love the sound of birds, but some people are triggered by it and hate those sounds. Some sounds bother me but only if I know that a human being is making them otherwise that

identical sound is

benign. Any loud sudden sound can jar my nerves for hours. (loud sneezing for instance). But why are so many of us so unnaturally sensitive to tactile, olfactory and visual triggers. They seem germane to this problem. I think a more accurate definition needs to include this the other sensitivities. We are just plain sensitive to all the senses, with sound usually being number one. We are just Highly Sensitive people! I am a little tired and grumpy this morning, and am being overly "sensitive" to things ( it will pass soon), but this issue of defining what we have is bothering me more than usual. The majority of people just don't seem to be exclusively bothered by sound along. And "soft" sounds is just too narrow a term for me. I will go workout and I will feel better in an hour or

so. Mike To: Soundsensitivity Sent: Friday, June 8, 2012 3:52 PM Subject: Re: Will you help Dr. Marsha ?

FWIW, I have preferred the "Selective SSS" version of 4S. "Soft" is an unclear term in that I don't know whether it means "opposite of loud sounds" or "opposite of hard sounds". Many common triggers are hard sounds (typing, heels, barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from "Soft SSS". Triggers can also be loud - volume is irrelevant. Whereas "Selective SSS" has always made sense to me because only some sounds are a problem and not others. That was always the bizarre thing about it and a difficult thing for others to understand - it's only about a specific (but expanding) collection of sounds while all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

[Guest guest]

I feel the word selective should be eliminated as it sounds as if I selected sounds to be sensitive to. For me, my sensitivity is, as it was in the beginning, totally involuntary. To: Soundsensitivity Sent: Friday, June 8, 2012 3:52 PM Subject:

Re: Will you help Dr. Marsha ?

FWIW, I have preferred the "Selective SSS" version of 4S. "Soft" is an unclear term in that I don't know whether it means "opposite of loud sounds" or "opposite of hard sounds". Many common triggers are hard sounds (typing, heels, barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from "Soft SSS". Triggers can also be loud - volume is irrelevant. Whereas "Selective SSS" has always made sense to me because only some sounds are a problem and not others. That was always the bizarre thing about it and a difficult thing for others to understand - it's only about a specific (but expanding) collection of sounds while all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

[Guest guest]

YES definitely- I even read a book called something like "The Highly Sensitive Person"- not exactly those words, but I fit that description to a tee. I wonder how many others here would fit that description- good question!Audrey To: "Soundsensitivity " <Soundsensitivity > Sent: Saturday, June 9, 2012 10:05 AM Subject: Re: Re: Will you help Dr. Marsha ?

Hi Mike,I think that you may be right in that we are perhaps more sensitive than others. However, the key is why do these sounds make us react differently than other people who may also be bothered or slightly bothered? That is, the anger, sweat, restlessness, etc accompanying the annoyance of the sound.I brought up a point this week but I still don't have an answer; many women have brought up hormones and the link between miso and hormones. Granted, there may also be a link. But what about men; what is the proportion of males vs female with the

condition?

Anyone have any stats?I also would like to know whether people with misophonia symptoms also have overly sensitive personalities; does anyone think they are just overly sensitive individuals? Margaret To:

"Soundsensitivity " <Soundsensitivity > Sent: Saturday, June 9, 2012 12:06:46 PM Subject: Re: Re: Will you help Dr. Marsha ?

I have had this stupid problem for over 50 years. It has been the centerpiece of my life unfortunately and I have arraigned my life around it. From my experience and from what I have been gathering from all of these posts this is more than a sound issue. If we are going to give it a truly accurate definition we should somehow include all of the other "sensitivities" that most of "us" seem to have. Sound is the major trigger for most people, including myself. It is selective because I love many sounds but hate certain selected ones. I love the sound of birds, but some people are triggered by it and hate those sounds. Some sounds bother me but only if I know that a human being is making them otherwise that

identical sound is

benign. Any loud sudden sound can jar my nerves for hours. (loud sneezing for instance). But why are so many of us so unnaturally sensitive to tactile, olfactory and visual triggers. They seem germane to this problem. I think a more accurate definition needs to include this the other sensitivities. We are just plain sensitive to all the senses, with sound usually being number one. We are just Highly Sensitive people! I am a little tired and grumpy this morning, and am being overly "sensitive" to things ( it will pass soon), but this issue of defining what we have is bothering me more than usual. The majority of people just don't seem to be exclusively bothered by sound along. And "soft" sounds is just too narrow a term for me. I will go workout and I will feel better in an hour or

so. Mike To: Soundsensitivity Sent: Friday, June 8, 2012 3:52 PM Subject: Re: Will you help Dr. Marsha ?

FWIW, I have preferred the "Selective SSS" version of 4S. "Soft" is an unclear term in that I don't know whether it means "opposite of loud sounds" or "opposite of hard sounds". Many common triggers are hard sounds (typing, heels, barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from "Soft SSS". Triggers can also be loud - volume is irrelevant. Whereas "Selective SSS" has always made sense to me because only some sounds are a problem and not others. That was always the bizarre thing about it and a difficult thing for others to understand - it's only about a specific (but expanding) collection of sounds while all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

[Guest guest]

Just curious…is there anyone here who does not have at least one other sensitivity besides 4S/Miso, such as visual (movement or light), smell, touch? From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of audrey rossowSent: Monday, June 11, 2012 4:03 PMTo: Soundsensitivity Subject: Re: Re: Will you help Dr. Marsha ? YES definitely- I even read a book called something like " The Highly Sensitive Person " - not exactly those words, but I fit that description to a tee. I wonder how many others here would fit that description- good question!Audrey To: " Soundsensitivity " <Soundsensitivity > Sent: Saturday, June 9, 2012 10:05 AMSubject: Re: Re: Will you help Dr. Marsha ? Hi Mike, I think that you may be right in that we are perhaps more sensitive than others. However, the key is why do these sounds make us react differently than other people who may also be bothered or slightly bothered? That is, the anger, sweat, restlessness, etc accompanying the annoyance of the sound. I brought up a point this week but I still don't have an answer; many women have brought up hormones and the link between miso and hormones. Granted, there may also be a link. But what about men; what is the proportion of males vs female with the condition? Anyone have any stats? I also would like to know whether people with misophonia symptoms also have overly sensitive personalities; does anyone think they are just overly sensitive individuals? Margaret To: " Soundsensitivity " <Soundsensitivity > Sent: Saturday, June 9, 2012 12:06:46 PMSubject: Re: Re: Will you help Dr. Marsha ? I have had this stupid problem for over 50 years. It has been the centerpiece of my life unfortunately and I have arraigned my life around it. From my experience and from what I have been gathering from all of these posts this is more than a sound issue. If we are going to give it a truly accurate definition we should somehow include all of the other " sensitivities " that most of " us " seem to have. Sound is the major trigger for most people, including myself. It is selective because I love many sounds but hate certain selected ones. I love the sound of birds, but some people are triggered by it and hate those sounds. Some sounds bother me but only if I know that a human being is making them otherwise that identical sound is benign. Any loud sudden sound can jar my nerves for hours. (loud sneezing for instance). But why are so many of us so unnaturally sensitive to tactile, olfactory and visual triggers. They seem germane to this problem. I think a more accurate definition needs to include this the other sensitivities. We are just plain sensitive to all the senses, with sound usually being number one. We are just Highly Sensitive people! I am a little tired and grumpy this morning, and am being overly " sensitive " to things ( it will pass soon), but this issue of defining what we have is bothering me more than usual. The majority of people just don't seem to be exclusively bothered by sound along. And " soft " sounds is just too narrow a term for me. I will go workout and I will feel better in an hour or so. Mike To: Soundsensitivity Sent: Friday, June 8, 2012 3:52 PMSubject: Re: Will you help Dr. Marsha ? FWIW, I have preferred the " Selective SSS " version of 4S. " Soft " is an unclear term in that I don't know whether it means " opposite of loud sounds " or " opposite of hard sounds " . Many common triggers are hard sounds (typing, heels, barking dogs, stomping on ceilings, eating crunchy food), and seem excluded from " Soft SSS " . Triggers can also be loud - volume is irrelevant. Whereas " Selective SSS " has always made sense to me because only some sounds are a problem and not others. That was always the bizarre thing about it and a difficult thing for others to understand - it's only about a specific (but expanding) collection of sounds while all other sounds are fine.Liesa> BTW - I think we should consider using terminology as follows:> > Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia. > > (Not " selective " .) And as a subset of Misophonia which is still " diagnosed " as a subset of Hyperacusis 388.42> > There's been some confusion and I think we could and should distinguish ourselves from Misopohonia in general. I think we could do this before we get any further.

[Guest guest]

Thanks for info.Margaret To: Soundsensitivity Sent: Tuesday, June 12, 2012 3:02:33 AM Subject: Re: Will you help Dr. Marsha ?

Hi Margaret,

Dr J wrote an article on 4S in which she included the results of surveying a self-selected group of 100 people (from this site?) - 72% were female and 28% male.

http://audiology.advanceweb.com/Article/Selective-Sound-Sensitivity-Syndrome.aspx

Speaking for myself, I have never noticed any influence of female-related hormones on 4S symptoms. However, I also don't get PMS. Do women noting a hormonal effect on 4S also experience an effect on mood in general?

Liesa

>

> Hi Mike,

>

> I brought up a point this week but I still don't have an answer; many women have brought up hormones and the link between miso and hormones. Granted, there may also be a link. But what about men; what is the proportion of males vs female with the condition? Anyone have any stats?

>

> Margaret

[Guest guest]

Hi , Thanks for letting me know.  There’s been a lot of conversation about 4S/Miso perhaps being part of an overall sensitivity syndrome and it seems like so many people here have at least one other sensitivity, so I was starting to wonder.  There are probably others here also without any other/additional sensitivities.  I appreciate the response! J From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of ReaSent: Wednesday, June 13, 2012 6:17 AMTo: Soundsensitivity Subject: Re: Will you help Dr. Marsha ? I am one that does not have any other sensitivity other than 4S/Miso.>> Just curious…is there anyone here who does not have at least one other sensitivity besides 4S/Miso, such as visual (movement or light), smell, touch?> >

[Guest guest]

I would say that we should see if anyone only has sound sensitivity and no other sensitivities to say so. Mike To: Soundsensitivity Sent: Wednesday, June 13, 2012 3:39 PM Subject: RE:

Re: Will you help Dr. Marsha ?

Hi , Thanks for letting me know. There’s been a lot of conversation about 4S/Miso perhaps being part of an overall sensitivity syndrome and it seems like so many people here have at least one other sensitivity, so I was starting to wonder. There are probably others here also without any other/additional sensitivities. I appreciate the response! J From: Soundsensitivity [mailto:Soundsensitivity ]

On Behalf Of ReaSent: Wednesday, June 13, 2012 6:17 AMTo: Soundsensitivity Subject: Re: Will you help Dr. Marsha ? I am one that does not have any other sensitivity other than 4S/Miso.>> Just curious…is there anyone here who does not have at least one other sensitivity besides

4S/Miso, such as visual (movement or light), smell, touch?> >