RE: [CRPS]rsd No Change Might Be Worse !!!

[Guest guest]

Barbara,

Sorry to hear about your brother-in-law. I will be praying for him.

Want to wish you luck with the nerve blocks. I've had so many of them

myself. I hope they work for you and bring you some much need relief.

Hugs, Tracey

> [Original Message]

>

> To: <CRPSegroups>; <RSDegroups>; <RSD4Uegroups>;

<RSDHelpegroups>

> Date: 5/18/00 1:06:53 AM

> Subject: rsd No Change Might Be Worse !!!

>

> To All Of You,

> Thank You so much for all your caring and friendship. My brother-in-law

is having drain tubes put into his liver now and his temp is still very

high. He's Still In CCU !!!

>

> As for me, I saw my ortho today and he also said the same thing the neuro

said 2 months ago. He's sending me for nerve blocks, since I can't take

oral drugs and react to anything on my skin (patches, creams, tens pads,

etc.). He thinks that the blocks are my only option left. This doctor is

the best thing in the whole world, I wish one just like him on all of you

!!! He spoke to my lawyer today and I will probably see a treating neuro

and anesthesiologist very soon. He could not believe that comp. has made

me wait. As we all know with RSD/CRPS the longer we wait the worse it gets

and the harder it is to treat, if they can treat me now. It has spread not

just to both my feet and legs, up the right side into the hip, both my

hands and now arms as well (the right is into the arm pit already and

starting to affect my shoulder lately). The first set of blocks will be to

the lower body first since that is where it all started and they will go

further from there if the first set helps !!! I know religion is not

allowed on rsd lists, but please say a silent prayer for my brother-in-law

again. We need all of the help we can get (my sister is a cancer

survivor,20 years and now has to watch her husband suffer). Like I said in

my last post, without these lists, I would not have the strength to go on

myself. You have all been my life lines and I Again Thank You All From The

Bottom Of My Heart. I think that just getting it all out like this, puts

it in perspective for me ! " Make New Friends But Keep The Old ~~~ One is

Silver and The Others Gold " (a song from girl scouts) But I think it fits

how I feel about all of you. And you all know who you are !!!

> Soft Hugs Barbara

>

--- Tracey & Herb Mullen Krieg

--- tnhkrieg@...

[Guest guest]

Oh Barbara, I'm sorry to hear that your brother in law is

worse. We will continue to pray for him, your sister and

your family.

Please take care of yourself. I know you are very worried

about both of them, but please don't forget to take care of

yourself. Remember what stress does to RSD pain.

On another note, congratulations on finding the right

doctor. You are right, everyone of us should have an

excellent doctor who really cares about our well-being. I

lucked out also, after 3 years of being bounced around 14

different doctors! But I finally hit the jackpot with my

pain doc (an anesthesiologist) and although he wasn't able

to stop the progression (I was too far gone & at Stage 3),

in the last 3 years, he has given me much pain relief and is

constantly looking for new things to help me. He

accomplished the one thing I thought was already impossible,

he took me out of my wheelchair! I walk without assistance

and the blocks have been my Godsend. So hang in there and

let's pray he helps you get out of the vicious pain cycle.

Hugz &

Bright Blessings

Isis ~

" Life is easier to take than you think. All that is

necessary is to accept the impossible; do without the

indispensable and bear the intolerable "

....K. Norris

ICQ # 36223315 - Visit our Web Page - still under

construktion http://rsdfmfriends.listbot.com - & Sign up for

our discussion list

- rsdfmfriends@... - RSD, FM & Open Topics!

[Guest guest]

Oh Barbara, I'm sorry to hear that your brother in law is

worse. We will continue to pray for him, your sister and

your family.

Please take care of yourself. I know you are very worried

about both of them, but please don't forget to take care of

yourself. Remember what stress does to RSD pain.

On another note, congratulations on finding the right

doctor. You are right, everyone of us should have an

excellent doctor who really cares about our well-being. I

lucked out also, after 3 years of being bounced around 14

different doctors! But I finally hit the jackpot with my

pain doc (an anesthesiologist) and although he wasn't able

to stop the progression (I was too far gone & at Stage 3),

in the last 3 years, he has given me much pain relief and is

constantly looking for new things to help me. He

accomplished the one thing I thought was already impossible,

he took me out of my wheelchair! I walk without assistance

and the blocks have been my Godsend. So hang in there and

let's pray he helps you get out of the vicious pain cycle.

Hugz &

Bright Blessings

Isis ~

" Life is easier to take than you think. All that is

necessary is to accept the impossible; do without the

indispensable and bear the intolerable "

....K. Norris

ICQ # 36223315 - Visit our Web Page - still under

construktion http://rsdfmfriends.listbot.com - & Sign up for

our discussion list

- rsdfmfriends@... - RSD, FM & Open Topics!