Re: A little this & A Little that

[Guest guest]

Hi All!

I really, really hate to " bulk " answer, but I'm so far behind......

I hope I remember everything. If I forget anything, I'll follow up!

Barbara, I hope that your brother in law is doing better by now. As someone

said, I'm glad that you've found a Dr. and I hope that everyone else who is

receiving poor treatment is able to do so. It's one of my goals, to have a

list of RSD physicians that have proven themselves to be wonderful

caregivers.

I agree with all who said " I'll stay addicted, thanks, until they find a

cure " .

I've not really found any holistic/alternative treatments that work for me.

On the other hand, Deb has learned self-hynosis and it helps her. I tried

acupuncture for awhile, it was mostly relaxing unless they put the needle in

the wrong place. Then OUCH. They told me after 8 weeks they couldn't help

me.

Margot, I think we've all seen what you described with the changes in color.

I can't stand the sight of my legs anymore, but they're there and I have to

deal with them. It is amazing how they change like a chameleon. This

disease ... keeps things interesting.

Carolyn, I'm glad you found someone caring who took care of (for now) the

phone problem. Keep praying, seems to help :-) Just when you thought there

wasn't any kindness in the world... I would hate to see you lose touch.

PJ, I've had about the same luck as you with the blocks. I gave up rather

quickly because I always got my hopes up and then was devested. I started

them early in my treatment, but my diagnosis was too late I think.

Tracey, in a way, I'm glad you have to switch. As you know, back in January

I finally did for the same reason. Same treatment and then it seemed like it

was my fault that it wasn't working. I loved him, he was so kind, but had

his own thoughts on treatment, and that's what he stuck with. My new Dr. is

very direct and honest with me, tells me since I've had the RSD for so long,

the dx was too long after it started that it will be a very long road to get

me to as pain free a life as I can have, but's he's going to get me there

somehow. Doesn't hurt that he could be one of those hunky ER Drs. I'm

hoping to catch up with you soon, we seem to miss each other all of the time.

AND... PJ is right, guinea pigs we'll be until a cure. I've put myself on

many lists for any clinical trials that come up that I would be able to do.

And... I think Carolyn has a point about laughter. It's vital to our

survival. Luckily, I have my husband, we laugh together like teenagers

sometimes, over nothing at all really. Laughter does release endorphins (as

does another " fun " thing), which are natural pain killers. I don't know if it

helps, but it's a diversion, for sure!

OK! WHO SAID WE AREN'T ALLOWED TO MENTION RELIGION???

Whether or not you believe, I don't think that a mention of a prayer, or of

God, or of any other higher being will offend any of us here. But, we've

asked that we limit ourselves to less than a full sermon! Just as you would

not want anyone to force their religion upon you, nor would anyone else want

it forced upon them. For some, it's a vital part of life, and we're all

adults and can deal with that here.

, thank you so much for sharing your insights. I know that I often get

the same thing that you mean in my neck/shoulder. I've been battling bad

headaches for the past six weeks or so, too. The insight that you provide

will indeed be helpful in the book writing. We're making great headway and

do want to ask all how they would feel about the inclusion of some of your

posts. This could be done anonymously or with your first name. You've all

shared some of your deepest feelings with us and I know that it's been

invaluable to me in many ways. Too many to get started with now, though. LOL.

, I find your closing touching, and would feel honored if you

considered me as a friend.

Hi Isis! I don't think we've met, but I'm so glad you joined us. I agree

with what you say about researching, etc. before deciding that a Dr. knows

what he's talking about. I did find some of Dr. H's 1st puzzle (that's as

far as I've gotten) interesting, and some I didn't. What's with those Ducks,

though?

To all, my apologies for being so " quiet " recently. Between life, pain,

family, work, pain, etc. just getting through my email is a chore. I do read

everything and can tell you I have five thousand notes all over with

reminders of things that are going on. I hope you can all forgive me! I

certainly haven't forgotten about you, and think of you all often.

Hugs!

Jo