Re: SPD, AIT, and motion sickness

[Guest guest]

I had extreme motion sickness as a kid in the car, sailing, etc. I still

have it but it's a little better. Of course, as a kid you are often in

the back seat of the car. I don't believe I ever had ear infections.

Along with that I have a really sensitive digestive system and was often

sick as a kid from what I ate.

At 08:15 PM 5/26/2012, you wrote:

I was at a conference this week and sat in on a

Sensory Processing Disorder seminar. I spoke with the OT afterwards

and mentioned to her my son's problems with the vestibular system

(spinning, rolling etc...he gets motion sickness. That type of movement

though is great for kids with sensory issues-but alas, we can't do that

kind of therapy because it makes him ill). She asked me if he had

had lots of ear infections. None. He has always been healthy as a horse.

She asked if he had any other kind of auditory problems, and I told her

about his sound sensitivities. She seemed to think that the two

were related, which does makes sense. So I was wondering if many others

here have difficulty with spinning and/or motion sickness. The OT

and another lady in the room recommended Auditory Integration Therapy

(AIT) by Berard. This other lady that was there had used it with

her daughter who processed sounds abnormally, and had great

success. I first read about AIT when I was researching and trying

to find out why my son reacted the way he did to certain sounds.

About the same time, I found this group. I don't know if it has been

talked about here, or if anyone has tried it, but I'd love to hear

someone experience with it who has misophonia.

Ginger

[Guest guest]

Have you ever talked to your Dr. about a food tolarance test? they use this to determind if its an algergy or a low tolarance to a food you might want to ask the Dr. if you could get this. The nthing you need is to tell them what you ate befor hand & they could tell you what the ideam is t6hat's causing this problem

Jim

[Guest guest]

I also have always had issues with motion sickness. I've never been able to go

on rides and can't handle water related activities. I've had few ear infections.

I never would have thought there might have been a connection.

> >

> >

> >I was at a conference this week and sat in on a

> >Sensory Processing Disorder seminar. I spoke

> >with the OT afterwards and mentioned to her my

> >son's problems with the vestibular system

> >(spinning, rolling etc...he gets motion

> >sickness. That type of movement though is great

> >for kids with sensory issues-but alas, we can't

> >do that kind of therapy because it makes him

> >ill). She asked me if he had had lots of ear

> >infections. None. He has always been healthy as

> >a horse. She asked if he had any other kind of

> >auditory problems, and I told her about his

> >sound sensitivities. She seemed to think that

> >the two were related, which does makes sense. So

> >I was wondering if many others here have

> >difficulty with spinning and/or motion

> >sickness. The OT and another lady in the room

> >recommended Auditory Integration Therapy (AIT)

> >by Berard. This other lady that was there had

> >used it with her daughter who processed sounds

> >abnormally, and had great success. I first read

> >about AIT when I was researching and trying to

> >find out why my son reacted the way he did to

> >certain sounds. About the same time, I found

> >this group. I don't know if it has been talked

> >about here, or if anyone has tried it, but I'd

> >love to hear someone experience with it who has misophonia.

> >

> >Ginger

> >

>

[Guest guest]

My daughter did AIT for several sessions about 5 years ago. Didn’t help her misophonia at all. Cost me $1500. I wouldn’t waste my time—Dr. J told me not to do it, but you’ll try anything when your child is suffering. From: Soundsensitivity [mailto:Soundsensitivity ] On Behalf Of Ginger BenderSent: Saturday, May 26, 2012 11:16 PMTo: soundsensitivity Subject: SPD, AIT, and motion sickness I was at a conference this week and sat in on a Sensory Processing Disorder seminar. I spoke with the OT afterwards and mentioned to her my son's problems with the vestibular system (spinning, rolling etc...he gets motion sickness. That type of movement though is great for kids with sensory issues-but alas, we can't do that kind of therapy because it makes him ill). She asked me if he had had lots of ear infections. None. He has always been healthy as a horse. She asked if he had any other kind of auditory problems, and I told her about his sound sensitivities. She seemed to think that the two were related, which does makes sense. So I was wondering if many others here have difficulty with spinning and/or motion sickness. The OT and another lady in the room recommended Auditory Integration Therapy (AIT) by Berard. This other lady that was there had used it with her daughter who processed sounds abnormally, and had great success. I first read about AIT when I was researching and trying to find out why my son reacted the way he did to certain sounds. About the same time, I found this group. I don't know if it has been talked about here, or if anyone has tried it, but I'd love to hear someone experience with it who has misophonia.Ginger

[Guest guest]

I spend hundreds $ on the Advanced Brain Technologies listening program, which

sounds similar in concept to the AIT program. I did some supervised listening,

then did many weeks by myself. I repeated the program 3 times. It didn't reduce

my sensory symptoms at all. The worst part (besides my diminished bank account)

was that it was Baroque music, which was unpleasant in itself. I would like to

know if these listening programs benefit anyone besides the people who profit

from them.

Colleen

>

> My daughter did AIT for several sessions about 5 years ago. Didn't help her

> misophonia at all. Cost me $1500. I wouldn't waste my time-Dr. J told me

> not to do it, but you'll try anything when your child is suffering.

>

>

>

> From: Soundsensitivity

> [mailto:Soundsensitivity ] On Behalf Of Ginger Bender

> Sent: Saturday, May 26, 2012 11:16 PM

> To: soundsensitivity

> Subject: SPD, AIT, and motion sickness

>

>

>

>

>

> I was at a conference this week and sat in on a Sensory Processing Disorder

> seminar. I spoke with the OT afterwards and mentioned to her my son's

> problems with the vestibular system (spinning, rolling etc...he gets motion

> sickness. That type of movement though is great for kids with sensory

> issues-but alas, we can't do that kind of therapy because it makes him ill).

> She asked me if he had had lots of ear infections. None. He has always been

> healthy as a horse. She asked if he had any other kind of auditory problems,

> and I told her about his sound sensitivities. She seemed to think that the

> two were related, which does makes sense. So I was wondering if many others

> here have difficulty with spinning and/or motion sickness. The OT and

> another lady in the room recommended Auditory Integration Therapy (AIT) by

> Berard. This other lady that was there had used it with her daughter who

> processed sounds abnormally, and had great success. I first read about AIT

> when I was researching and trying to find out why my son reacted the way he

> did to certain sounds. About the same time, I found this group. I don't

> know if it has been talked about here, or if anyone has tried it, but I'd

> love to hear someone experience with it who has misophonia.

>

>

> Ginger

>

[Guest guest]

I have SPD w/misophonia and am prone to motion sickness, too. There's no way I

could spin or roll! Thankfully I'm not a kid and no one asks me to!!

>

>

> I was at a conference this week and sat in on a Sensory Processing Disorder

seminar. I spoke with the OT afterwards and mentioned to her my son's problems

with the vestibular system (spinning, rolling etc...he gets motion sickness.

That type of movement though is great for kids with sensory issues-but alas, we

can't do that kind of therapy because it makes him ill). She asked me if he had

had lots of ear infections. None. He has always been healthy as a horse. She

asked if he had any other kind of auditory problems, and I told her about his

sound sensitivities. She seemed to think that the two were related, which does

makes sense. So I was wondering if many others here have difficulty with

spinning and/or motion sickness. The OT and another lady in the room

recommended Auditory Integration Therapy (AIT) by Berard. This other lady that

was there had used it with her daughter who processed sounds abnormally, and had

great success. I first read about AIT when I was researching and trying to find

out why my son reacted the way he did to certain sounds. About the same time, I

found this group. I don't know if it has been talked about here, or if anyone

has tried it, but I'd love to hear someone experience with it who has

misophonia.

>

> Ginger

>

[Guest guest]

Yep. To quote Wikipedia's article on AIT:

" A systematic review of randomized controlled trials of AIT found insufficient

evidence to support its use; no significant adverse effects were reported. "

I wonder if they considered the financial costs of having AIT when they decided

it had no adverse effects? Probably not.

Anyway, it has been tested and there is no scientific evidence to support its

use. So don't waste your money.

reference: http://en.wikipedia.org/wiki/Auditory_integration_training

>

> My daughter did AIT for several sessions about 5 years ago. Didn't help her

> misophonia at all. Cost me $1500. I wouldn't waste my time-Dr. J told me

> not to do it, but you'll try anything when your child is suffering.

[Guest guest]

The observations of OTs need to be taken very seriously as they are the

professionals who are able to closely observe children with sensory processing

disorders (qv Ayres). Ear infections (fluid in the middle ear) can directly

or indirectly affect inner ear pressure, which upsets the vestibular organs

therein. When asking parents if they notice any effect of grommets on their

child's hearing, I have sometimes been told that they have not noticed any

effect on the hearing, which they never thought was impaired anyway, but there

has been a noticeable improvement in their child's balance! The vestibular

system is responsible for motion sickness, and probably for most cases of

unexplained nausea and vomiting in children. My work was cited by Berard, but I

have no specific personal view as to whether AIT should or does work. If in

doubt, check on Wikipedia!

**********************************************************************

> > >

> > >

> > >I was at a conference this week and sat in on a

> > >Sensory Processing Disorder seminar. I spoke

> > >with the OT afterwards and mentioned to her my

> > >son's problems with the vestibular system

> > >(spinning, rolling etc...he gets motion

> > >sickness. That type of movement though is great

> > >for kids with sensory issues-but alas, we can't

> > >do that kind of therapy because it makes him

> > >ill). She asked me if he had had lots of ear

> > >infections. None. He has always been healthy as

> > >a horse. She asked if he had any other kind of

> > >auditory problems, and I told her about his

> > >sound sensitivities. She seemed to think that

> > >the two were related, which does makes sense. So

> > >I was wondering if many others here have

> > >difficulty with spinning and/or motion

> > >sickness. The OT and another lady in the room

> > >recommended Auditory Integration Therapy (AIT)

> > >by Berard. This other lady that was there had

> > >used it with her daughter who processed sounds

> > >abnormally, and had great success. I first read

> > >about AIT when I was researching and trying to

> > >find out why my son reacted the way he did to

> > >certain sounds. About the same time, I found

> > >this group. I don't know if it has been talked

> > >about here, or if anyone has tried it, but I'd

> > >love to hear someone experience with it who has misophonia.

> > >

> > >Ginger

> > >

> >

>

[Guest guest]

I agree about the OT's. The specially trained OT's are the experts in this

field. I went through 15 months of the spinning, swinging, and countless other

therapies to retrain my vestibular system. I know it helps children and some

adults. As for the listening program--not a fan of that and it made no

difference in my sensory disorders.

My balance improved when I saw an ENT who specializes in sensory disorders.

Testing determined I had a latent ear infection. After using anti-virals, the

infection improved as did my balance. Unfortunately, it did not improve my

sensory disorder which was my primary goal.

You win some, you lose some.

Colleen

> > > >

> > > >

> > > >I was at a conference this week and sat in on a

> > > >Sensory Processing Disorder seminar. I spoke

> > > >with the OT afterwards and mentioned to her my

> > > >son's problems with the vestibular system

> > > >(spinning, rolling etc...he gets motion

> > > >sickness. That type of movement though is great

> > > >for kids with sensory issues-but alas, we can't

> > > >do that kind of therapy because it makes him

> > > >ill). She asked me if he had had lots of ear

> > > >infections. None. He has always been healthy as

> > > >a horse. She asked if he had any other kind of

> > > >auditory problems, and I told her about his

> > > >sound sensitivities. She seemed to think that

> > > >the two were related, which does makes sense. So

> > > >I was wondering if many others here have

> > > >difficulty with spinning and/or motion

> > > >sickness. The OT and another lady in the room

> > > >recommended Auditory Integration Therapy (AIT)

> > > >by Berard. This other lady that was there had

> > > >used it with her daughter who processed sounds

> > > >abnormally, and had great success. I first read

> > > >about AIT when I was researching and trying to

> > > >find out why my son reacted the way he did to

> > > >certain sounds. About the same time, I found

> > > >this group. I don't know if it has been talked

> > > >about here, or if anyone has tried it, but I'd

> > > >love to hear someone experience with it who has misophonia.

> > > >

> > > >Ginger

> > > >

> > >

> >

>

[Guest guest]

Both my husband and son have misophonia. My husband gets motion sickness more

than our son. AIT did not help w our sons miso.

Ann

Sent from my iPhone

[Guest guest]

There are many who have SPD who have sound sensitivity. I however only have miso and have no issues with motion sickness or problems with spinning and have never had a dongle ear infection my entire life. In fact I love roller coasters and love to spin, so much so just a few years ago broke the Guinness Book of World Records for most spins done in a minute by a couple, yea, I was the one spinning. Lol! I tell this info to let you know that there are many who just have straight up miso not caused or related to anything else. Heidi

>

> At 08:15 PM 5/26/2012, you wrote:

> >

> >

> >I was at a conference this week and sat in on a

> >Sensory Processing Disorder seminar. I spoke

> >with the OT afterwards and mentioned to her my

> >son's problems with the vestibular system

> >(spinning, rolling etc...he gets motion

> >sickness. That type of movement though is great

> >for kids with sensory issues-but alas, we can't

> >do that kind of therapy because it makes him

> >ill). She asked me if he had had lots of ear

> >infections. None. He has always been healthy as

> >a horse. She asked if he had any other kind of

> >auditory problems, and I told her about his

> >sound sensitivities. She seemed to think that

> >the two were related, which does makes sense. So

> >I was wondering if many others here have

> >difficulty with spinning and/or motion

> >sickness. The OT and another lady in the room

> >recommended Auditory Integration Therapy (AIT)

> >by Berard. This other lady that was there had

> >used it with her daughter who processed sounds

> >abnormally, and had great success. I first read

> >about AIT when I was researching and trying to

> >find out why my son reacted the way he did to

> >certain sounds. About the same time, I found

> >this group. I don't know if it has been talked

> >about here, or if anyone has tried it, but I'd

> >love to hear someone experience with it who has misophonia.

> >

> >Ginger

> >

>

[Guest guest]

Interesting. I've always gotten motion sickness. I can't read in the car, so

not very helpful with navigating, and definitely can't do roller coasters (tried

two once as a " bday gift " to my hubs, and said never again!). My mother also

gets motion sickness, I'd say even worse than me bc she gets it on planes

whereas I don't. I can handle smooth sailing boats, but she can't. She doesn't

seem to have 4S, but she does like her peace and quiet, and she is extra

sensitive to certain smells. As for ear infections, my sister had them growing

up. She doesn't have 4S, but she does have Asperger's. So that's why I think

it's so interesting to see how these various symptoms/conditions overlap in the

family history.

> >

> > My daughter did AIT for several sessions about 5 years ago. Didn't help her

> > misophonia at all. Cost me $1500. I wouldn't waste my time-Dr. J told me

> > not to do it, but you'll try anything when your child is suffering.

>

[Guest guest]

Re Motion sickness, I always feel extremely dizzy when I am in a plane that is

taking off! As soon as it leaves the runway it starts. Its awful. My balance

goes, I am light headed and dizzy and I don't know which way is up! It only

stops when the plane is cruising at altitude. Then I can feel it in my head when

the plane starts its decent too. If the plane gets into so called air pockets,

its awful and my head is going round in circles. I would love to know how to

stop this happening. It really puts me off flying. I have flown to LA from

Heathrow and Barbados from Gatwick and Heathrow from New York etc. Those are

long flights so a while between take off and landing. I wont fly anywhere that

is only one or two hours away. Its best when there is a break between take off

and landing. Also, I get dizzy in fast moving lifts so I tend to avoid them.

Shirl

> > >

> > > My daughter did AIT for several sessions about 5 years ago. Didn't help

her

> > > misophonia at all. Cost me $1500. I wouldn't waste my time-Dr. J told me

> > > not to do it, but you'll try anything when your child is suffering.

> >

>

[Guest guest]

There are some good sites on barotrauma, eg

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002059/

In brief, the secret is to avoid a pressure difference across the eardrum, by

adjusting the middle ear pressure to equal the pressure in the plane by

inflating the ear via the eustachian tube, etc.

You seem to be hypersensitive to vestibular stimuli, so a full ENT workup may

show a fixable problem with your ear.

********************************************************************

> > > >

> > > > My daughter did AIT for several sessions about 5 years ago. Didn't help

her

> > > > misophonia at all. Cost me $1500. I wouldn't waste my time-Dr. J told

me

> > > > not to do it, but you'll try anything when your child is suffering.

> > >

> >

>