Re: Isolation

[Guest guest]

sejcuero,I know too well what you are saying. I just turned 65 last week and found out about Misophonia last Sept when the subject was on the Today Show. It brings to light WHY I did all the things I did... without really knowing the reasons why. For me they became second nature... of course I won't go to the party, of course I won't ride in someone else's car... too confining...  and all the " leaving the room " episodes. 

Then there was my best friend who didn't understand any more than I did wondering why I couldn't finish a conversation because a cricket was chirping and I couldn't stop " hearing it " . And the time we were out of town and got stuck in traffic... the more nervous she got the more she chomped and cracked on her gum. I couldn't stand it any longer and asked her to stop. She didn't like that at all. Thought I was crazy! Oh well, so much behind me now... I'm alone and mostly glad, but some days I get so lonely I could cry. Today is a quiet day and I just thanked God for it. No one lives in the apartment next door right now (I shutter when I see the landlord over there getting it ready to rent!) and the people on the other side are gone for the weekend. Bliss!  But, I know it will all change and that's where the anxiety comes in. 

Do you feel a relief knowing that there are others? How did you find out?     Bonnie

 

I am now, after 59 years, aware of why my life has been pure torture. Failed jobs and relationships, irrational and frantic behavior masked by self medication has taked it's toll. I have sold my home and now live in a smal metal building placed facing the brush,,, back of the building to the road! I have just discovered this condition as " real " and hope with therapy, careful introspection and conscious noise control that Air might have some peace and productivity!!!!

[Guest guest]

Wow can I related to your experiences ! I Googled "People who can't stand other people's noise" and after reading about Mesophonia realized this was real! It is a huge relief knowing there are others and I will begin working on this. HOWEVER, years of isolation and patterns of behavior will not be easy to change,, really this isn't going to go away so,,,,,,I mean you know!!!!!! Are you aware that there are some neurological similarities to this and Autism, there is a medication in review for treatment, and really I don't like to load up on Meds but at this age it would be nice to have some quality of life!!! Thanks so much for your email,,,, being alone is a double edged sword,,,,Sent from my iPad

sejcuero,I know too well what you are saying. I just turned 65 last week and found out about Misophonia last Sept when the subject was on the Today Show. It brings to light WHY I did all the things I did... without really knowing the reasons why. For me they became second nature... of course I won't go to the party, of course I won't ride in someone else's car... too confining... and all the "leaving the room" episodes.

Then there was my best friend who didn't understand any more than I did wondering why I couldn't finish a conversation because a cricket was chirping and I couldn't stop "hearing it". And the time we were out of town and got stuck in traffic... the more nervous she got the more she chomped and cracked on her gum. I couldn't stand it any longer and asked her to stop. She didn't like that at all. Thought I was crazy! Oh well, so much behind me now... I'm alone and mostly glad, but some days I get so lonely I could cry. Today is a quiet day and I just thanked God for it. No one lives in the apartment next door right now (I shutter when I see the landlord over there getting it ready to rent!) and the people on the other side are gone for the weekend. Bliss! But, I know it will all change and that's where the anxiety comes in.

Do you feel a relief knowing that there are others? How did you find out? Bonnie

I am now, after 59 years, aware of why my life has been pure torture. Failed jobs and relationships, irrational and frantic behavior masked by self medication has taked it's toll. I have sold my home and now live in a smal metal building placed facing the brush,,, back of the building to the road! I have just discovered this condition as "real" and hope with therapy, careful introspection and conscious noise control that Air might have some peace and productivity!!!!

=

[Guest guest]

,There is a wonderful website at Misophonia.info.  It has so much to offer all of us. I know there is a lot of work being done to make the public aware and to set up a foundation to gather info and funds for research. It can be a live saver for some because as you read through the messages, you see that some have tried to commit suicide because of it. So the internet has been a blessing for reaching out to all those who just think they are crazy. 

It would be so great to find something as simple as a pill to help alleviate these symptoms and triggers. Some are getting treatment with re-learning processes but they can be very expensive. So I think we all have to stay hopeful that research will find why people suffer from this and a cure that can help all of us. 

You're not alone anymore !  *;*Bonnie 

 

Wow can I related to your experiences ! I Googled   " People who can't stand other people's noise " and after reading about Mesophonia realized this was real!  It is a huge relief knowing there are others and I will begin working on this. HOWEVER, years of isolation and patterns of behavior will not be easy to change,, really this isn't going to go away so,,,,,,I mean you know!!!!!! Are you aware that there are some neurological similarities to this and Autism, there is a medication in review for treatment, and really I don't like to load up on Meds but at this age it would be nice to have some quality of life!!! Thanks so much for your email,,,, being alone is a double edged sword,,,,

Sent from my iPad

 

sejcuero,I know too well what you are saying. I just turned 65 last week and found out about Misophonia last Sept when the subject was on the Today Show. It brings to light WHY I did all the things I did... without really knowing the reasons why. For me they became second nature... of course I won't go to the party, of course I won't ride in someone else's car... too confining...  and all the " leaving the room " episodes. 

Then there was my best friend who didn't understand any more than I did wondering why I couldn't finish a conversation because a cricket was chirping and I couldn't stop " hearing it " . And the time we were out of town and got stuck in traffic... the more nervous she got the more she chomped and cracked on her gum. I couldn't stand it any longer and asked her to stop. She didn't like that at all. Thought I was crazy! Oh well, so much behind me now... I'm alone and mostly glad, but some days I get so lonely I could cry. Today is a quiet day and I just thanked God for it. No one lives in the apartment next door right now (I shutter when I see the landlord over there getting it ready to rent!) and the people on the other side are gone for the weekend. Bliss!  But, I know it will all change and that's where the anxiety comes in. 

Do you feel a relief knowing that there are others? How did you find out?     Bonnie

 

I am now, after 59 years, aware of why my life has been pure torture. Failed jobs and relationships, irrational and frantic behavior masked by self medication has taked it's toll. I have sold my home and now live in a smal metal building placed facing the brush,,, back of the building to the road! I have just discovered this condition as " real " and hope with therapy, careful introspection and conscious noise control that Air might have some peace and productivity!!!!

=

[Guest guest]

Thank You!!!!!!!! Sent from my iPad

,There is a wonderful website at Misophonia.info. It has so much to offer all of us. I know there is a lot of work being done to make the public aware and to set up a foundation to gather info and funds for research. It can be a live saver for some because as you read through the messages, you see that some have tried to commit suicide because of it. So the internet has been a blessing for reaching out to all those who just think they are crazy.

It would be so great to find something as simple as a pill to help alleviate these symptoms and triggers. Some are getting treatment with re-learning processes but they can be very expensive. So I think we all have to stay hopeful that research will find why people suffer from this and a cure that can help all of us.

You're not alone anymore ! *;*Bonnie

Wow can I related to your experiences ! I Googled "People who can't stand other people's noise" and after reading about Mesophonia realized this was real! It is a huge relief knowing there are others and I will begin working on this. HOWEVER, years of isolation and patterns of behavior will not be easy to change,, really this isn't going to go away so,,,,,,I mean you know!!!!!! Are you aware that there are some neurological similarities to this and Autism, there is a medication in review for treatment, and really I don't like to load up on Meds but at this age it would be nice to have some quality of life!!! Thanks so much for your email,,,, being alone is a double edged sword,,,,

Sent from my iPad

sejcuero,I know too well what you are saying. I just turned 65 last week and found out about Misophonia last Sept when the subject was on the Today Show. It brings to light WHY I did all the things I did... without really knowing the reasons why. For me they became second nature... of course I won't go to the party, of course I won't ride in someone else's car... too confining... and all the "leaving the room" episodes.

Then there was my best friend who didn't understand any more than I did wondering why I couldn't finish a conversation because a cricket was chirping and I couldn't stop "hearing it". And the time we were out of town and got stuck in traffic... the more nervous she got the more she chomped and cracked on her gum. I couldn't stand it any longer and asked her to stop. She didn't like that at all. Thought I was crazy! Oh well, so much behind me now... I'm alone and mostly glad, but some days I get so lonely I could cry. Today is a quiet day and I just thanked God for it. No one lives in the apartment next door right now (I shutter when I see the landlord over there getting it ready to rent!) and the people on the other side are gone for the weekend. Bliss! But, I know it will all change and that's where the anxiety comes in.

Do you feel a relief knowing that there are others? How did you find out? Bonnie

I am now, after 59 years, aware of why my life has been pure torture. Failed jobs and relationships, irrational and frantic behavior masked by self medication has taked it's toll. I have sold my home and now live in a smal metal building placed facing the brush,,, back of the building to the road! I have just discovered this condition as "real" and hope with therapy, careful introspection and conscious noise control that Air might have some peace and productivity!!!!

=

=

[Guest guest]

>

> I am now, after 59 years, aware of why my life has been pure torture. Failed

jobs and relationships, irrational and frantic behavior masked by self

medication has taked it's toll. I have sold my home and now live in a smal metal

building placed facing the brush,,, back of the building to the road! I have

just discovered this condition as " real " and hope with therapy, careful

introspection and conscious noise control that Air might have some peace and

productivity!!!!

>

I can somewhat relate, only I've not been at such a bad stage that I've really

isolated myself completely. I spend a lot of time quietly in my own room working

on something. If I'm not at work, I'm usually keeping my distance from others.

I'm so sorry you've had to go through this much. I'm 22 and it's a struggle for

both me & my fiance. I'm even having trouble with the thought of moving in

together because I get so ranging angry over certain things. Thankfully, he just

wants to help.

I wonder, have you found anything at all that helps you relax? What do you do

when you're having that raging helpless " OH MY GOODNESS! I CANNOT TAKE IT "

feeling? It doesn't sound like any of us have really found any relief besides

getting away from the people who make noise! How awful. I want to be able to

tolerate it. Is there anything that helps you? So far all I know to do is to

scream silently (to keep from biting someone's head off) or get away quickly.

I'm sorry I don't have any suggestions.

[Guest guest]

>

> I am now, after 59 years, aware of why my life has been pure torture. Failed

jobs and relationships, irrational and frantic behavior masked by self

medication has taked it's toll. I have sold my home and now live in a smal metal

building placed facing the brush,,, back of the building to the road! I have

just discovered this condition as " real " and hope with therapy, careful

introspection and conscious noise control that Air might have some peace and

productivity!!!!

>

I can somewhat relate, only I've not been at such a bad stage that I've really

isolated myself completely. I spend a lot of time quietly in my own room working

on something. If I'm not at work, I'm usually keeping my distance from others.

I'm so sorry you've had to go through this much. I'm 22 and it's a struggle for

both me & my fiance. I'm even having trouble with the thought of moving in

together because I get so ranging angry over certain things. Thankfully, he just

wants to help.

I wonder, have you found anything at all that helps you relax? What do you do

when you're having that raging helpless " OH MY GOODNESS! I CANNOT TAKE IT "

feeling? It doesn't sound like any of us have really found any relief besides

getting away from the people who make noise! How awful. I want to be able to

tolerate it. Is there anything that helps you? So far all I know to do is to

scream silently (to keep from biting someone's head off) or get away quickly.

I'm sorry I don't have any suggestions.

[Guest guest]

Hi Kendrar,

Relaxation can allow me to be quite comfortable during my triggers. For me, the following steps work for short term exposure when I’m not caught off-guard:

1. I remind myself that the triggers are temporary, and that I have options other than exposure

2. I take a daily probiotic

3. If I have pre-warning of triggers, or I start to get triggered and I don’t want to leave, I take prescription propranolol (a blood pressure medication said to block aspects of the fight-or-flight response)

I took the probiotic as an experiment, and it really reduces the “sting†of my OCD. I was isolating myself from my miso triggers at the time I started it, but my OCD sting and miso sting are very similar. I think it helps me a lot, but having more people try it would be good, assuming they are comfortable with the approach.

I got the tip from an article on lab mice in Scientific American: Friendly Bacteria Cheer Up Anxious Mice. It’s called Lactobacillus rhamnosus or Lactobacillus GG, and it’s used in yogurt and diarrhea treatment for kids. Here’s the Wikipedia article: Lactobacillus rhamnosus

I buy it through Amazon, and delivery can take 2-3 weeks: http://www.amazon.com/gp/product/B001PYXL2E/ref=oh_details_o02_s00_i00

Like anything on the internet, please Google it for safety.

Best hopes,

From: kendrar

Sent: Friday, August 03, 2012 10:55 PM

To: Soundsensitivity

Subject: Re: Isolation

>> I am now, after 59 years, aware of why my life has been pure torture. Failed jobs and relationships, irrational and frantic behavior masked by self medication has taked it's toll. I have sold my home and now live in a smal metal building placed facing the brush,,, back of the building to the road! I have just discovered this condition as "real" and hope with therapy, careful introspection and conscious noise control that Air might have some peace and productivity!!!!>I can somewhat relate, only I've not been at such a bad stage that I've really isolated myself completely. I spend a lot of time quietly in my own room working on something. If I'm not at work, I'm usually keeping my distance from others.I'm so sorry you've had to go through this much. I'm 22 and it's a struggle for both me & my fiance. I'm even having trouble with the thought of moving in together because I get so ranging angry over certain things. Thankfully, he just wants to help.I wonder, have you found anything at all that helps you relax? What do you do when you're having that raging helpless "OH MY GOODNESS! I CANNOT TAKE IT" feeling? It doesn't sound like any of us have really found any relief besides getting away from the people who make noise! How awful. I want to be able to tolerate it. Is there anything that helps you? So far all I know to do is to scream silently (to keep from biting someone's head off) or get away quickly. I'm sorry I don't have any suggestions.