Re: Re: Fibromyalgia anyone?

[Guest guest]

After carefully questioning my Dr this afternoon I came to exactly the same realization, you have just articulated what I was going express. I think it is very true that most Doctors are lumping this all together because they do not know! Sent from my iPad

I don't have Fibromyalgia, so it wouldn't be "the same" in my case. I have ADD and SPD, and I personally consider my Misophonia to be a part of the sound sensitivity that I have with SPD. Most doctors have not heard of Miso, or they have no experience with it with other patients, so please be careful when doctors lump it in as a symptom of physical conditions that are not neurologically-based hardwiring problems. The origins of Fibro are unknown, but are thought to vary anywhere from a result of depression to problems in the immune system.

Anything is possible ...Fibro, or other conditions, could increase Miso sensitivity, but doctors can't say Miso is just "the same as..." Miso-sufferers have heard "that's just OCD" or "that's a result of having lots of earaches" or "you just need therapy and it'll go away"... all things that are inaccurate and unhelpful.

I hope you're getting lots of good treatment and relief for your Fibro, though!

Vicki B.

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[Guest guest]

just to be clear, I was talking to a friend, not a doctor and she asked if miso is part of fibro or something else.  I have been told in the past that hypersensitivity to sound and motion are part of fibro so I was just curious how many people in the miso world have fibro also...

 Now,  I can take this info to my doctor...  

 

After carefully questioning my Dr this afternoon I came to exactly the same realization, you have just articulated what I was going express. I think it is very true that most Doctors are lumping this all together because they do not know! 

Sent from my iPad

 

I don't have Fibromyalgia, so it wouldn't be " the same " in my case. I have ADD and SPD, and I personally consider my Misophonia to be a part of the sound sensitivity that I have with SPD. Most doctors have not heard of Miso, or they have no experience with it with other patients, so please be careful when doctors lump it in as a symptom of physical conditions that are not neurologically-based hardwiring problems. The origins of Fibro are unknown, but are thought to vary anywhere from a result of depression to problems in the immune system.

Anything is possible ...Fibro, or other conditions, could increase Miso sensitivity, but doctors can't say Miso is just " the same as... " Miso-sufferers have heard " that's just OCD " or " that's a result of having lots of earaches " or " you just need therapy and it'll go away " ... all things that are inaccurate and unhelpful.

I hope you're getting lots of good treatment and relief for your Fibro, though!

Vicki B.

=

[Guest guest]

desdamona, I'm so glad your pain went away and I hope it never comes back. With fibro there are characteristics that can occur one at a time or all at one time or anything in-between. They are: the pain of course (18 tender spots on your body), depression, sleep problems, bowel problems, fibro fog (like you're in a daze and it's hard to process even the simplest things like constructing a sentence or remembering your own phone number, etc.) and fatigue. When I have a flare up it usually involves all of these symptoms. 

And I need to add that I have gone months between flare ups before. Not so much anymore as I am older...  I  have arthritis too so usually have something hurting all the time.     I have high blood pressure too and have made a conscience choice to bear the pain instead of using drugs. (so many stories of drug reactions - but a lot of people can take the drugs and get relief.) I do take ibuprofen every day and occasionally take a muscle relaxant when the pain is at it's worse. They usually knock me out so only take as needed.

Bonnie 

 

Yes, I think I may have had fibromyalgia.  A couple years ago, I began to experience total body muscle pain which began after I had flu-like symptoms.  3 doctors later, I was told I didn't have fibromyalgia or polymyalgia... no, they said I had " reactive arthritis, " whatever that is.  I was given Mobic and then Celebrex.  Both made the pain go away, but caused my blood pressure to skyrocket and my heart to beat rapidly.  I knew I was headed for disaster, so I quit the meds and dealt with the pain.  After 2 years, it got better.  Not a pretty picture..  Does any of this sound familiar to anyone else out there?