Re: Fibromyalgia anyone?

[Guest guest]

What's interesting is a lot of patients with fibromyalgia have turned to nuerofeedback with good results. I do not have fibromyalgia but discovered that while researching NFB. HeidiSent from my iPhoneReal Results. Real science. Age-Defying Skin. www.heidisalerno.nerium.comHappy Dancing!www.jitterbal.comOn Jul 7, 2012, at 10:10 PM, "bereshis_newborn_care" wrote:

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?

[Guest guest]

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia, list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way "out" at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it. Sent from my iPad

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?

=

[Guest guest]

I also have fibro and have always thought there was a connection between that and Misophonia... at least they both seem to have similar actions like causing disability but not physically tearing down our bodies. Sounds like the wiring is messed up to me. One thing I do know is that I hate both of them!  They have stolen my life. 

BonniePS  Also have arthritis and OCD... and that thing they call " old age " !!    *:*    Just turned 65.   

 

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia,   list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way " out " at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it. 

Sent from my iPadOn Jul 8, 2012, at 12:10 AM, " bereshis_newborn_care " wrote:

 

I was talking to someone I know today, trying to explain the misophonia thing and she said, " Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro? " I really didn't know how to answer her. For years I've said that a " hypersensitivity to sounds, smells and movement " are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I " m just wondering if anyone else hout there has both?

=

[Guest guest]

It's amazing we have made it this far! There is an answer to this, It may be closer than we think!Sent from my iPad

I also have fibro and have always thought there was a connection between that and Misophonia... at least they both seem to have similar actions like causing disability but not physically tearing down our bodies. Sounds like the wiring is messed up to me. One thing I do know is that I hate both of them! They have stolen my life.

BonniePS Also have arthritis and OCD... and that thing they call "old age"!! *:* Just turned 65.

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia, list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way "out" at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it.

Sent from my iPad

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?

=

=

[Guest guest]

,I too did Brain State, 30 hours worth, and it did help a lot. Much better sleep, unless I am very upset or worried about some present thing and my mind is calmer and races less. Betterconcentration I guess you could say. I paid $140.00 per 1 1/2 hour session, which I though was a fair price. But I didn't notice any major effect on the Miso. I curious how it worked for you.I am sorry you are so effected by so many things. I also have had numerous problems in the past. But I have overcome many of them I think with a combination of exercise, good diet, prayer,being actively involved in life and things bigger than myself and a dogged determination not to let these problems get the best of me. It takes a lot of

will not to be defeated by this.I think all of these problems are the result of physical, emotional, psychic and spiritual trauma which alter our brain waves, endocrine systems, and other areas but react in ways that enable usto survive despite the shocks to the system. We continue to survive....but at a price.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, July 8, 2012 4:05 AM Subject: Re: Fibromyalgia anyone?

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia, list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way "out" at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think

the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it. Sent from my iPad

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?

=

[Guest guest]

Thanks for your info! I did notice the Brain State helped with the Miso. I paid $1,800 for 7 days of two sessions one in the morning and one in the afternoon. It was amazing how much it helped. This I did in Austin Tx. The closest place for me. The person certified in this also did Acupuncture, another helpful tool with this "short circuit". I agree that this takes a serious attempt at interfacing ALL aspects of our daily lives. Sent from my iPad

,I too did Brain State, 30 hours worth, and it did help a lot. Much better sleep, unless I am very upset or worried about some present thing and my mind is calmer and races less. Betterconcentration I guess you could say. I paid $140.00 per 1 1/2 hour session, which I though was a fair price. But I didn't notice any major effect on the Miso. I curious how it worked for you.I am sorry you are so effected by so many things. I also have had numerous problems in the past. But I have overcome many of them I think with a combination of exercise, good diet, prayer,being actively involved in life and things bigger than myself and a dogged determination not to let these problems get the best of me. It takes a lot of

will not to be defeated by this.I think all of these problems are the result of physical, emotional, psychic and spiritual trauma which alter our brain waves, endocrine systems, and other areas but react in ways that enable usto survive despite the shocks to the system. We continue to survive....but at a price.Mike To: "Soundsensitivity " <Soundsensitivity > Sent: Sunday, July 8, 2012 4:05 AM Subject: Re: Fibromyalgia anyone?

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia, list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way "out" at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think

the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it. Sent from my iPad

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?

=

=

[Guest guest]

I don't have any health conditions other than the misophonia. I've had a few short term episodes of mild clinical depression that were set off by high stress in my life - sudden traumatic loss of my mother, the bank selling my house (without telling me) while I was in grad school and trying to refinance, and trying to work a crazy schedule where I didn't know when to eat or sleep. I've had the misophonia since I was about 12, these other things happened in my 40s.

Missy in Nashville

I have been told by my Dr. That they Are somehow the same. I have an appointment tomorrow and will ask more questions. I can tell you that I am a person who has ADHD,Fibromyalgia, Arthritis, Tinninitus, Alcoholism,Anorexia , Misophonia, list goes on. I have been on Antidepressants since I was 35 ,,,and would not have made it to 59 without them,,, the self medication, was a way "out" at the time and I try very hard to make AA meetings but can not stand the slurping coffee drinkers that are typical in such an environment. Luckily I was able to make it to retirement a year ago, from Teaching,,, and now have time for introspection, study and observation,, my entire life has been a battle with these conditions. All of the above conditions are somehow linked and systemic. It has been almost a rebirth to have discovered this Misophonia ,, I have tried the Brain State Training and it did work ,, it's just very expensive,, I do think the Neorofeedback is something that will help very much,, if I can find a way to get my Insurance to cover it. Sent from my iPad

I was talking to someone I know today, trying to explain the misophonia thing and she said, "Wow. Is that connected to your fibromyalgia or is it something totally separate alongside the fibro?" I really didn't know how to answer her. For years I've said that a "hypersensitivity to sounds, smells and movement" are symptoms of my fibromyalgia. Now, I am learning about Misophonia and I"m just wondering if anyone else hout there has both?=

[Guest guest]

I have both. I was diagnosed with Fibromyalgia when I was 17 (13 years ago).

Sent from my BlackBerry® wireless handheld

[Guest guest]

I too have been diagnosed with Fibromyalgia. Never thought that might be a connection. Keep us posted what the doctor said about the possible connection!

[Guest guest]

I also have fibromyalgia, diagnosed about 15 years ago.

-tam

>

> I was talking to someone I know today, trying to explain the misophonia thing

and she said, " Wow. Is that connected to your fibromyalgia or is it something

totally separate alongside the fibro? " I really didn't know how to answer her.

For years I've said that a " hypersensitivity to sounds, smells and movement " are

symptoms of my fibromyalgia. Now, I am learning about Misophonia and I " m just

wondering if anyone else hout there has both?

>

[Guest guest]

I don't have Fibromyalgia, so it wouldn't be " the same " in my case. I have ADD

and SPD, and I personally consider my Misophonia to be a part of the sound

sensitivity that I have with SPD. Most doctors have not heard of Miso, or they

have no experience with it with other patients, so please be careful when

doctors lump it in as a symptom of physical conditions that are not

neurologically-based hardwiring problems. The origins of Fibro are unknown, but

are thought to vary anywhere from a result of depression to problems in the

immune system.

Anything is possible ...Fibro, or other conditions, could increase Miso

sensitivity, but doctors can't say Miso is just " the same as... " Miso-sufferers

have heard " that's just OCD " or " that's a result of having lots of earaches " or

" you just need therapy and it'll go away " ... all things that are inaccurate and

unhelpful.

I hope you're getting lots of good treatment and relief for your Fibro, though!

Vicki B.

[Guest guest]

Yeah, I have Fibro and extreme sound sensitivity, light sensitivity, photosensitivity, motion sensitivity, dry eyes, mouth, extreme chronic fatigue, dizziness, balance issues, brain fog, migraines, you name it, I've got it.

[Guest guest]

Yes, I think I may have had fibromyalgia. A couple years ago, I began to experience total body muscle pain which began after I had flu-like symptoms. 3 doctors later, I was told I didn't have fibromyalgia or polymyalgia... no, they said I had "reactive arthritis," whatever that is. I was given Mobic and then Celebrex. Both made the pain go away, but caused my blood pressure to skyrocket and my heart to beat rapidly. I knew I was headed for disaster, so I quit the meds and dealt with the pain. After 2 years, it got better. Not a pretty picture.. Does any of this sound familiar to anyone else out there?