Re: How sensitive are you? was Re: Will you help...?

[Guest guest]

I haven't been following this thread but have seen it asked many times,

in the short time I've been on this list, what other sensitivities people

have. Of course, the " why " is another matter. For me, they fall

under categories: hearing, digestive, emotional, touch, vision

(photo-phobic) and probably others. I believe I have aspergers-like

traits, though no one else agrees. It is not hormone-related at all for

me. It started with my earliest memories. I was always different and have

tried to fit in. You know - pretend you don't want to run out of the room

because of some noise. I even do this thing when I'm not thinking of

drawing patterns with my fingernail on my hand. How weird is that?

It would be interesting to poll everyone here to find out how people see

themselves different than mainstream folks. Is all this related? Is it a

20S syndrome? What do we have in common? Maybe nothing but it would be

interested to look into it. Just my 2 cents.

At 07:05 AM 6/9/2012, you wrote:

Hi Mike,

I think that you may be right in that we are perhaps more sensitive than

others. However, the key is why do these sounds make us react

differently than other people who may also be bothered or slightly

bothered? That is, the anger, sweat, restlessness, etc accompanying the

annoyance of the sound.

I brought up a point this week but I still don't have an answer; many

women have brought up hormones and the link between miso and

hormones. Granted, there may also be a link. But what about

men; what is the proportion of males vs female with the condition?

Anyone have any stats?

I also would like to know whether people with misophonia symptoms also

have overly sensitive personalities; does anyone think they are

just overly sensitive individuals?

Margaret

From: Lawrence

To: " Soundsensitivity "

<Soundsensitivity >

Sent: Saturday, June 9, 2012 12:06:46 PM

Subject: Re: Re: Will you help Dr. Marsha

?

I have had this stupid problem for over 50 years. It has been the

centerpiece of my life unfortunately and I have arraigned my life

around it. From my experience and from what I have

been gathering from all of these posts this is more than a sound issue.

If we are going to give it a truly accurate definition we should somehow

include all of the other " sensitivities " that

most of " us " seem to have.

Sound is the major trigger for most people, including myself. It is

selective because I love many sounds but hate certain selected ones. I

love the sound of birds, but some people are triggered by it and

hate those sounds. Some sounds bother me but only if I know that a human

being is making them otherwise that identical sound is benign. Any loud

sudden sound can jar my nerves for hours. (loud

sneezing for instance).

But why are so many of us so unnaturally sensitive to tactile, olfactory

and visual triggers. They seem germane to this problem.

I think a more accurate definition needs to include this the other

sensitivities. We are just plain sensitive to all the senses, with sound

usually being number one.

We are just Highly Sensitive people!

I am a little tired and grumpy this morning, and am being overly

" sensitive " to things ( it will pass soon), but this issue of

defining what we have is bothering me more than usual.

The majority of people just don't seem to be exclusively bothered by

sound along. And " soft " sounds is just too narrow a term for

me.

I will go workout and I will feel better in an hour or so.

Mike

To: Soundsensitivity

Sent: Friday, June 8, 2012 3:52 PM

Subject: Re: Will you help Dr. Marsha

?

FWIW, I have preferred the " Selective SSS " version of 4S.

" Soft " is an unclear term in that I don't know whether it means

" opposite of loud sounds " or " opposite of hard

sounds " . Many common triggers are hard sounds (typing, heels,

barking dogs, stomping on ceilings, eating crunchy food), and seem

excluded from " Soft SSS " . Triggers can also be loud - volume is

irrelevant. Whereas " Selective SSS " has always made sense to me

because only some sounds are a problem and not others. That was always

the bizarre thing about it and a difficult thing for others to understand

- it's only about a specific (but expanding) collection of sounds while

all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not " selective " .) And as a subset of Misophonia which is

still " diagnosed " as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should

distinguish ourselves from Misopohonia in general. I think we could do

this before we get any further.

[Guest guest]

I have been an "ultra-sensitive" for over 50 years. It was not until I read the book "Are You Really Too Sensitive? by Marcy Calhoun did I understand that my sensitivities were actually 'Gifts'. "All ultra-sensitives amplify or magnify all information incoming and outgoing from their actions/feelings/thoughts/brain/mind/spirit, which is their communication center. You experience feelings, thoughts and sensations that cannot be explained by logic or your past experiences. There are three areas in which these occur: emotional, physical and intuitive."

If this information resonates with you, this book is great information and healing. One thing I do to help me in the moment is to say "I do not wish to experience this at this time." It has the strongest impact if you speak it out loud. Say it as many times as you need to say it. Say it until the experience stops. Say your name to calm and strengthen yourself. Say your name again to fill the space you emptied. Say your name again to stabilize your world. Keep saying your name until you feel safe, relaxed and complete.

Kathleen

Re: Will you help Dr. Marsha

?

FWIW, I have preferred the "Selective SSS" version of 4S.

"Soft" is an unclear term in that I don't know whether it means

"opposite of loud sounds" or "opposite of hard

sounds". Many common triggers are hard sounds (typing, heels,

barking dogs, stomping on ceilings, eating crunchy food), and seem

excluded from "Soft SSS". Triggers can also be loud - volume is

irrelevant. Whereas "Selective SSS" has always made sense to me

because only some sounds are a problem and not others. That was always

the bizarre thing about it and a difficult thing for others to understand

- it's only about a specific (but expanding) collection of sounds while

all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is

still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should

distinguish ourselves from Misopohonia in general. I think we could do

this before we get any further.

[Guest guest]

Hi Kathleen,I too feel that I have been blessed and sometimes cursed with being oversensitive. As you say, we as ultra sensitives amplify information coming in and going out. You speak very eloquently and come right to the point, Kathleen. I don't believe I've ever met or heard someone sum it up so concisely. You take the words right out of my mouth -- and heart. I have always been very sensitive and could 'feel' or intuitively sense things way before anyone else could. I never understood, until maybe only 10 years ago, that this was in fact a gift. Albeit, sometimes being overly sensitive has its downfall but all in all, I do think that it is an extraordinary gift. I

will look into this book. Can you pls elaborate on when you use this phrase:"I do not wish to experience this at this time." Thanks for the info.,Margaret feel' To: Soundsensitivity Sent: Saturday, June 9, 2012 10:15:53 PM Subject: Re: How sensitive are you? was Re: Will

you help...?

I have been an "ultra-sensitive" for over 50 years. It was not until I read the book "Are You Really Too Sensitive? by Marcy Calhoun did I understand that my sensitivities were actually 'Gifts'. "All ultra-sensitives amplify or magnify all information incoming and outgoing from their actions/feelings/thoughts/brain/mind/spirit, which is their communication center. You experience feelings, thoughts and sensations that cannot be explained by logic or your past experiences. There are three areas in which these occur: emotional, physical and intuitive."

If this information resonates with you, this book is great information and healing. One thing I do to help me in the moment is to say "I do not wish to experience this at this time." It has the strongest impact if you speak it out loud. Say it as many times as you need to say it. Say it until the experience stops. Say your name to calm and strengthen yourself. Say your name again to fill the space you emptied. Say your name again to stabilize your world. Keep saying your name until you feel safe, relaxed and complete.

Kathleen

Re: Will you help Dr. Marsha

?

FWIW, I have preferred the "Selective SSS" version of 4S.

"Soft" is an unclear term in that I don't know whether it means

"opposite of loud sounds" or "opposite of hard

sounds". Many common triggers are hard sounds (typing, heels,

barking dogs, stomping on ceilings, eating crunchy food), and seem

excluded from "Soft SSS". Triggers can also be loud - volume is

irrelevant. Whereas "Selective SSS" has always made sense to me

because only some sounds are a problem and not others. That was always

the bizarre thing about it and a difficult thing for others to understand

- it's only about a specific (but expanding) collection of sounds while

all other sounds are fine.

Liesa

> BTW - I think we should consider using terminology as follows:

>

> Soft Sound Sensitivity Syndrome/Misophonia or 4S/Misophonia.

>

> (Not "selective".) And as a subset of Misophonia which is

still "diagnosed" as a subset of Hyperacusis 388.42

>

> There's been some confusion and I think we could and should

distinguish ourselves from Misopohonia in general. I think we could do

this before we get any further.